What to do when child has outgrown the stroller=wheelchair stamp on GAC

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Hi all,

I am a WDW vet with children who are also vets. My issue is our trip that we have planned for 2012. We have and autistic spectrum son (high functioning and verbal) that we have always had a GAC for at WDW. We have always used strollers either our own or rental and they worked until our last visit. He has outgrown all of them. He can walk, but we would use the stroller as his safe place for him and us. He will sometimes try to wonder off if he is not interested in what we are doing at the time. The stroller would allow him to sit still and read (a love of his- especially his hidden Mickey books) but our last trip, he got up and wondered off 3 times and he is too big for strollers now being 12. What would you suggest for our trip next summer when he will be 13 years old and still need a GAC because of the lines and touching and closeness of people all around? Please help! :confused3
 
What about a pediatric wheelchair?
 
Had the same issues with my DS, we ended up getting a convaid wheelchair. check with your doctor and insurance, our insurance paid for it becouse the dr. perscribed it. the convaid was great, folds like a stroller and lasted many years. you can often find them used on e-bay.
 
I agree with the other posters that it is probably time to discuss a large special needs stroller or a wheelchair for him.

I don't know how big he is, but there are companies that rent special needs strollers for kids up to 100 pounds (see post 2 of the disABILITIES FAQs thread). This might work for you if you can't get a wheelchair or larger special needs stroller before your next trip.

Adaptive mall is a great website for looking at things. They have good pictures, good explanations and measurements.
http://www.adaptivemall.com/allstrolpus.html

Looking there would be helpful in narrowing down what types of devices you are interested in so you can start the discussion with the doctor with some ideas. In looking at your insurance, wheelchairs and other mobility devices aree usually covered under "Durable Medical Equipment".
In the case of a child who can walk, it would be used for safety and sensory needs rather than mobility. Your doctor and therapists may have to work on exactly how to state the needs.

And, as was mentioned, you can sometimes find outgrown or no longer used equipment on eBay at good prices.
 

Thank you all for the help. Now here is another small issue... My husband says he shouldn't be in a wheelchair because he doesn't have a physical disability and he can walk and is fine. (no, he is not in denial about our son's disability) I am just worried about the walking off part and losing him. My husband says that since he is in regular ed classes and mostly normal in terms of all that and verbal, he should walk because he has no physical diability, it's just the noise and touching. Would your answers still be the same and what would happen with our GAC? TIA, I appreciate it. :confused3
 
I was actually thinking about a transport chair - Most 12 year olds are as tall as me, and I fit ok in these chairs. They are lightweight and have small back wheels so he cannot wheel himself away. They do not have belts, but this may not be an issue for you. They are not too expensive and would give you something for home as well.
 
Had the same issues with my DS, we ended up getting a convaid wheelchair. check with your doctor and insurance, our insurance paid for it becouse the dr. perscribed it. the convaid was great, folds like a stroller and lasted many years. you can often find them used on e-bay.

Yes, just what I was going to say. Contact your insurance... thankfully ours covered it under durable medical equipment... for us the tough part was finding a dealer in state that actually dealt with Convaid. But was WELL worth it. Also, check on ebay. They come in different sizes for different heights/weight. Got letter from doctor stating he needed it for his safety and restraint and made it as detailed as possibly could.

My son is autistic and though low functioning, nonverbal.. he can walk just fine physically, but as you said, it's for restraint. There is NO way we'd be able to do WDW without the convaid! He needs the restraint so not running off, so not bumping into and touching people in line - or, being quick to snag a bottle of water or soda from someone! Is very nice to have him in there and he can occupy himself when he needs to by looking at pictures or something to keep him settled down when need be.

As for a regular wheelchair.. maybe rent one in the park? I know when we go to Kohl's we grab a wheelchair up front for him (he no longer fits in their cart thingys!), and he loves sitting in there and knows it's his place to be and stay put! Is probably what we would end up doing at WDW when he's much much older if need be. Then you can just get it/use it on days that you need it.
As for restraint for that... well, on our convaid we just use a small dog leash... wrap it once around his waist and convaid and snap it to a caribiner I guess it's called, hook that we hook on the back of the chair. (he figured out the 5-point harness right away, so that became pointless way of offering restraint!) At least this way, he can't reach behind him to undo this. Simple and easy. Would imagine perhaps could do something like that with a regular wheelchair?
including a picture to show the convaid and how we use the leash (purple) as the restraint around waist/convaid. As you can see in picture, is kinda what you are describing - my son not interested in the fairies, so instead of wandering off, is restrained with something to look at and occupy himself and be nice and safe!

013-2.jpg
 
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I was actually thinking about a transport chair - Most 12 year olds are as tall as me, and I fit ok in these chairs. They are lightweight and have small back wheels so he cannot wheel himself away. They do not have belts, but this may not be an issue for you. They are not too expensive and would give you something for home as well.

Thank you all for the help. Now here is another small issue... My husband says he shouldn't be in a wheelchair because he doesn't have a physical disability and he can walk and is fine. (no, he is not in denial about our son's disability) I am just worried about the walking off part and losing him. My husband says that since he is in regular ed classes and mostly normal in terms of all that and verbal, he should walk because he has no physical diability, it's just the noise and touching. Would your answers still be the same and what would happen with our GAC? TIA, I appreciate it. :confused3
Given the things that you added now - he is high functioning to be in regular education classes, I would also suggest a transport chair. They are light weight, fairly inexpensive and would provide what you need in terms of keeping him in place and touching.
That would be able to be brought into lines because it is a wheelchair. Or, you could use it to get from place to place, park it with the strollers and then have him walk in line.
Given that he is functioning in regular education classes, it may be difficult to get a special needs stroller or wheelchair covered. He has the understanding to stay with you; it sounds like he’s missing the impulse control that keeps him with you.

Another possibility would be to use a locator system - he wears a transmitter and you have a receiver. If he gets too far away from you, the receiver goes off and you can use it to be led to him.
Orlando Stroller Rentals also rents the Big Leap GPS locator, which can be placed on your child so that you can find him/her if they wander off. The contact information is in post 2 of the disABILITIES FAQs thread.

For the noise part, a GAC really does not help that much. The parks are still noisy outside of the lines and attractions. I would suggest ear plugs or noise reducing muffs - you can get some used by people working with noisy machinery or for people doing target shooting. Those dampen the sound down to a manageable level for most people. THe in ear kind are small and unobtrusive.

You may also find that a good touring plan is much more helpful to you than a GAC. A GAC only helps in lines, but the ‘wandering off’ will not be a problem in lines - just when you are going from place to place, where a GAC will not help you at all.
A touring plan or at least being aware from things like touringplans.com which park is the ‘green’ (least busy) park for the day will help everything. Knowing when to be where will cut down on both waits and crowds. Using Fastpasses and the regular lines give a much more consistent experience. With a GAC, you are never sure what the CM will direct you to do, where the wait will be or what exactly will happen.
Since your son can walk and doesn’t need to wait for a wheelchair vehicle or use an accessible entrance, you would have a more consistent experience using the regular lines and Fastpasses.
In addition, if you use other members of your party to be in front and behind him in lines, you can create a ‘buffer zone’ so he is only close to people he knows.
Many people with older kids with autism have posted that doing these things (touring plan, ‘buffer zone', ear protectors specifically) was more helpful to them than a GAC and they seldom need to use a GAC. As for what to say when requesting a GAC, you would explain the difficulties he has in lines the same as you did before. Don’t be surprised if they suggest renting a wheelchair because that would cut down on running and give him a place to just ‘chill’.

Other people have posted that it helped a lot to have their older child doing something - like that child has maps and is the navigator for the group. Or things like looking for hidden Mickeys or telling the group ‘tidbits’ of information about that part of the park. In other words, keep him busy and engaged.
 
My 13 year old Aspie would never consider any kind of stroller or wheelchair. To her, a stroller is for babies and a wheelchair is for people who can't walk. This is her perception so we have to go with this. Luckily she's never been a wanderer so we've never needed it for coralling her. It would certainly help for being touched, bumped, personal space issues but it's just not an option for us.

Our greatest tool is a detailed itinerary/touring plan services. These services help me to figure out which park will have the least number of people on any given day and which time of day to get to each attraction in order to avoid the most people. This keeps us out of crowds and lines. It also helps me to think about what's truely must-do and what can be skipped and to make sure that we can fit in everything that we really want to do in the time we have. It also helps me to make sure that we're only in a park for max 3 hours so we can leave while DD13 is still in a good mood and not yet overwhelmed, plus it helps me to plan for enough days away from parks so that she's not overwhelmed. Basically, forcing myself to plan ahead forces me to think about what we REALLY need and allows me to prepare DD13 each day for what's to come. I used to really recommend TourGuide Mike for this but his site's gotten pretty out of date. I now recommend easywdw. The owner Josh seems to use the same philosophy as Mike yet his site is free, up to date and maintained very timely with changes to Disney calendars.

We do also use a GAC but that's a secondary tool to the touring plans. Explain to Guest Relations about his difficulty with being bumped and surrounded by strangers, especially when not moving so there's no escape. You'll be told that a GAC will not actually shorten the wait times which is correct, but being able to wait somewhere else can make a big difference. Using the touring plan service your waits won't be long anyway. If you have a wheelchair or stroller then this likely isn't necessary but if you're going to try without it then discuss the issues you foresee with Guest Relations and see what they suggest.
 
My nearly 19 year old DD has mild CP (and possibly dystonia). She can walk, but only for short periods of time. When she got too big, we got a transport chair. It is lightweight and ours does have a seatbelt strap (which we don't use). We always bring it with us, but we do sometimes rent a regular wheelchair for her as well. (She says the regular ones are more comfortable).
 
Hi What would you suggest for our trip next summer when he will be 13 years old and still need a GAC because of the lines and touching and closeness of people all around? Please help! :confused3
He should be able to get a GAC with all of the same icons as before, except for the stroller-as-wheelchair icon which is now irrelevent since he is now in a real wheelchair as opposed to a stroller.
 
The only problem with the same icons on the GAC is that I am still not sure if he needs to be in a wheelchair since he is mobile.

Question: What will they do with the GAC (icons/stamps) if he is no longer in a stroller or wheelchair? How will they work that? Does any one know? TIA
 
The only problem with the same icons on the GAC is that I am still not sure if he needs to be in a wheelchair since he is mobile.

Question: What will they do with the GAC (icons/stamps) if he is no longer in a stroller or wheelchair? How will they work that? Does any one know? TIA

The CMs will know what to do with the GAC - there are lots of parents with kids on the spectrum who get a GAC who do not use a stroller or a wheelchair. Just be able to explain your child's needs, and the CMs will be able to take care of the rest.

Also, if your first stamp does not help, you can always go back to Guest Services and ask for more advice/info.
 
The only problem with the same icons on the GAC is that I am still not sure if he needs to be in a wheelchair since he is mobile.

Question: What will they do with the GAC (icons/stamps) if he is no longer in a stroller or wheelchair? How will they work that? Does any one know? TIA
Since it's late, I will mostly suggest you read post 6 in the disABILITIES FAQs thread. You can find the thread near the top of this board or follow the link in my signature to get there.
As was mentioned, many kids with autism who are mobile and don't need a wheelchair for mobility do use one because it provides a buffer zone and a same space with less stimulation. Using an actual wheelchair or adult special needs stroller will provide the same assistance from wandering away, closeness or touching other people that using a stroller as a wheelchair did. If that's what he needs, then a wheelchair will help.

As far as the stamps, on the GAC, you still would go to Guest Relations and explain his needs to them, the same as you did before. Using a stroller as a wheelchair is only one of the possible accommodations that are available.
 
Thank you all for the help. Now here is another small issue... My husband says he shouldn't be in a wheelchair because he doesn't have a physical disability and he can walk and is fine. (no, he is not in denial about our son's disability) I am just worried about the walking off part and losing him. My husband says that since he is in regular ed classes and mostly normal in terms of all that and verbal, he should walk because he has no physical diability, it's just the noise and touching. Would your answers still be the same and what would happen with our GAC? TIA, I appreciate it. :confused3

I tend to agree with your husband, in that I'd try no wheelchair/GAC's first, and take it from there. Our younger dd is 5, and has the same dx. She also does have low muscle tone, so we tend to use the stroller on long trips, but I can see us discontinuing it in a year or so.

The main thing that has really helped her is private OT/PT. She goes every week, and part of the therapy is "crashing into" things. They have all kinds of marshmallow pits, ball pits, and swings. In the beginning, she had a huge fear of other kids touching her, bumping her etc. Don't get me wrong, this is still an issue. But her tolerance for these things has gradually increased. At our June trip to WDW this year, she and I stood in lines together. I tried to buffer her a little, but overall she did fine. I'll say her tolerance for crowds is about 3 hours, so we just went back to our room after lunch each day. Then later in the evening, we went back sometimes.

I know each kid is so different, but I try to push her, and always have a plan B, in case that goes south!
 





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