what is this? Update - post 107/Completely Healed!

[dee47]

Or just make a deal with him to go to the Mayo Clinic and sort this out once and for all...with real doctors!

Hugs to you. When you didn't post anything I was worried the news was really bad...I can see why he is so frustrated.

 

[breezy1077]

Or just make a deal with him to go to the Mayo Clinic and sort this out once and for all...with real doctors!

Hugs to you. When you didn't post anything I was worried the news was really bad...I can see why he is so frustrated.

Thanks. you might be on to something. I think Mayo Clinic may be the right choice. I go to see my Endocrinologist on the 7th at the Cleveland Clinic - he's awesome! I may ask him his opinion given all the test results, about what he thinks it might be and what to do next.

BTW, we did find out that the spinal test results didn't show anything, and he tested negative for Huntingtons. I can't remember if I've posted the results yet, and I'm too lazy to look through my last posts. LOL

I did tell DH that we're partway into our deductible for the year and it doesn't make sense to wait til next year when we'd have to start all over again - I'm appealing to his logical, fiscal side as a sneaky strategy to get my way.
I think it might be working....fingers crossed!

Thanks and hugs all around!

 

[breezy1077]

DH went to a follow-up appt. today with his neurologist to find out where we go from here. Neurologist told him the good news is that they haven't found anything. He's exhausted all neurological options. When DH asked him if it could be auto-immune, Neurologist told him that they'd tested for some of that stuff too - so no. DH asked what about the choking - neurologist said he would refer him to a GI specialist, but he thinks it's unrelated to the seizures. As for the seizures - Neurologist did one of these... .


I have no idea what to do. What are the odds that seizures, nerve damage, dizzyness, tremors, and choking all crop up in the last year and are all unrelated symptoms?!? As a logical person, it just doesn't make sense to me.


I know, I should press him to go to the Mayo Clinic, but I'm so afraid we'll go through all this just to be told the same thing - that they don't know what the heck it is.

 

[kimis]

Hi breezy1077 You must be so discouraged.
I would say keep going to doctors until you find out what is going on. I am not saying that your dr isn't capable but it might need just the right dr to find the problem.
Yes encourage him to go to mayo or where ever.
With shows like "DiagnosesX' or "Mysteryllness" it is apparent that not all drs know it all.
Keep searching and hang in there.
In the meantime you are in my prayers!

 

[dee47]

Breezy,

The advantage of a place like the Mayo Clinic is that their doctors are able to connect more dots in better ways than doctors in small facilities. They may look at all the tests he had so far and find a value that raises a red flag for them, even though your local doc didn't find it significant. They have more experience and more people to talk to in the "have you ever seen something similar?" department.

I absolutely agree with you that all his symptoms have to be related in some ways. And I still think he should have a PET scan, but don't push for any more tests right now -- get his records (and him) to the Mayo Clinic. You owe it to yourself, and he owes it to you and the kids -- his symptoms are worrisome as they are, and they seem to be worsening. You guys need answers, and isn't acceptable!

 

[Mackey Mouse]

Breezy... hugs, hugs, hugs, I am not sure what to say here other than I would get my DH to the best teaching hospital in my area and not stay locally..

If after trying the best, you still have no answers, well I am not sure what the heck I would do. The choking thing can be part of GERD.. I do have that.. I also have Vertigo sometimes, not always.. it can come and go, part of the aging process for me.. but the other symptoms, I do not have..

If not neuro, what about ortho?? maybe he has some pinched nerves.. I am grasping here, but I would not give up..

Hugs.

 

[breezy1077]

Just thought I'd give y'all an update. DH had given up on testing. Nothing would budge him, so I gave up too.

Our neighbors host a prayer group every Thursday. We weren't members, but they had offered to and prayed over DH a couple times, but he was still getting worse. Then our neighbors prayed over him one evening and his seizures went from the same amount he'd have in one day - he'd have in a week. So the seizures were way down But he was still aspirating and that part was getting much worse.

Well, the neighbors pastor was over one night and he and his wife along with our neighbors prayed over him and......completely healed. Never had a seizure or choked after that.

DH continued to pray and things that had plagued him for years, like his leg giving out/tripping, pain in his knees, pain in his wrist (he couldn't even do pushups anymore) - just gone.

We're thrilled and give complete credit to God. DH says that of all the things gone, he's most thankful for being rid of the pain. It's the first time since I've known him that he's been pain free. I'll leave this thread with a yay, God!

And a big thank you to everyone who's been so helpful - I honestly don't know how I would have gotten through this without the help of y'all. I debated whether to post the update - I mean it's not something you hear about everyday, but DH is the one who prompted me to tell y'all what happened.

Prayers continue for all in need. Love you guys! Thank you!

 

[TeresaNJ]

Thank you too for pointing me to this board. It has opened my eyes in a big way and makes my problems seem small. "Let Go, Let God"!

 

[minniebeth]

Breezy, this is the first time that I've seen this thread and read through your challenging journey...I'm so sorry what your DH and you have gone through and I share in your praise that your DH is pain free and doing well!
I will continue to pray that it continues!
Hugs, Minniebeth

 

[breezy1077]

Thank you too for pointing me to this board. It has opened my eyes in a big way and makes my problems seem small. "Let Go, Let God"!

Breezy, this is the first time that I've seen this thread and read through your challenging journey...I'm so sorry what your DH and you have gone through and I share in your praise that your DH is pain free and doing well!
I will continue to pray that it continues!
Hugs, Minniebeth

Thanks minniebeth.

We'll never know what he was healed of....But we are just so grateful for the miracle that's happened! Before this healing happened to DH, I would have been the first one to question whether such a thing could really happen. But after witnessing it first hand, and knowing what shape he was in before it happened.....all I can say is, "Yay God!"

Like I said in my other thread, "when has God answered your prayers", the only reason I came back to tell what happened is because DH wanted me to tell his testimony. We learned that the Hebrew root word for testimony means "to do again". Hopefully, someone who reads what happened can claim it over their own lives, and someone else can be helped from it.

I may not post often enough on this forum, but I continue to pray for strength, grace, peace, and of course healing for all who need it.