WDW with Fibromyalgia

StitchesGr8Fan

DIS Veteran
Joined
Jul 17, 2009
Messages
6,000
This is my first trip to WDW since my diagnosis of Fibromyalgia. On past trips I've been in crippling pain by the end of the trip, and now I know why. Temperature and humidity change is a trigger for me, so that should be interesting. Other than pacing myself, taking breaks, taking my meds on time, and getting an ECV if I need it, are there any other trips to keeping myself pain-free and energetic?
 
you can do a lot of fun thing while you take a break like watch a show there are a lot at EPCOT don't forget some of the longer rides like Ellins Energy Adventure. I would get an ECV and probable get it from an off site vender it is cheeper and you can keep it for you whole stay there can be more walking at some resorts and to and from the bus stop then you think. depending on what time f the year you go a fan umbrella and a cooling towel can do wonders to cool you down. if you need some place to lie down first aid is wonderful it is normally very cool quiet and if need be dark. if you can afford it a sit down restaurant for an afternoon break or even a quick survive
 
I know how you feel, OP. I have fms too and have struggled at WDW each time. I take ultram 3xday, but can take double that if needed. So, I am on a pain med schedule and I add another one if needed. I also supplement with alleve or ibuprofen at times. If I didn't take these, I couldn't function at all.
Then mornings are best for me, so we do rope drop and go at a slow pace til noon, have a noon meal, then back to the resort for a rest. In the evening, we eat at the resort or when we get to another park or DTD. We go even slower in the pm; no rushing, just go with the flow, see shows, etc.
I have not tried an ECV yet, too stubborn. And yes, I suffer with a lot of pain each day.
This time I will probably rent an EVC because I now have plantar fasciitis of the foot and walking is difficult.
I guess all I can say is slow down, rest, take pain meds as directed, take many rest stops at the parks. I hope this helps. There is no "golden rule" for those of us with fms so, for me, nothing has really stopped the pain. But the above mentioned has helped with the pain. Good luck and enjoy your trip:)
 
good shoes , take a cane even if you do get a chair.. slowing down and taking time to enjoy one area of the parks at a time rather than racing from one ride to the next. I use Gabapentin for the flairs and Im a a med called LDN to control long term.. been on it for 7 yrs for FM and am living the life because of it.. I do tend to take more of the Gabapentin while there..
Good healthy snacks and stay hydrated will help too..
Extreme temp changes increase my flairs so I try to avoid too many different climate changes in one day.. so indoor rides can be a pain. and I layer my clothing .
Hope you have a great trip
 

Hydration - hadn't thought of that one. I'm taking Gabapentin Nd it has started to help, but I will take extra Advil as a backup. Got some new supportive shoes, so I have 3 pair of good shoes I can alternate between. Does anyone do any stretching? The back spasms are awful and I'm wondering if there are any stretches you've found that help.
 








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