WBRepo-Ship of Thieves-Remember the Magic Pt 12

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Feel so sad. A daughter of old friends died yesterday. She was 34 and had ME since she was 15. She was at school and Church with our children, and in the same class as our youngest son. We were close friends with her parents and spent many days enjoying time with the whole family, playing games with all the children.

I don't know details, but I am thinking it is related to the ME as at Christmas we received a letter to say she had improved and was able to eat small amounts, so must have been very bad. Her jaw had been paralysed. She had been bedridden for some time and unable to dao anything for herself.

Since she was 15 she has had periods of being bedridden for years at a time, more often having to be in complete silence as the slightest noise caused huge distress. She had immense strength through this, and her faith held her together. She did manage to get a degree away from home when she was doing ok, then started her own dramatic arts business, still managing to maintain independence. However, 10 or more years ago she deteriorated again and it had been a rollercoaster ride since then, with some terrible dips. So very very sad.

No parent should have to bury their child. RIP Lois.

That is so sad. I think that's every parents worse nightmare.
 
I am VERY excited today! My son called last night with the dates he is able to get off work this summer. We have been able to find a week in August that we can both get off...so YIPPEE...I'll be going to Alberta in August :cool1: I think I'm using airmiles to fly this trip, so I'm just trying to see what might work out for flights. I will fly to Calgary where Brian and his new girlfriend will pick me up. We will spend a few days in Banff National Park, then a couple of days in Jasper National Park, then one day in Hinton, where he lives. The following day he will drive me to Edmonton to fly home!!! Did I say I was excited :dance3: Ouch, except that dancing is hurting my back :headache: :lmao:

Kathe

Sounds like a fantastic week for you! Maligne Canyon is a beautiful short hiking trail with lots of great viewing spots. It my favourite thing in Jasper park. That and the ice cream store that takes fruit and blends it into the icecream (like a fruit blizzard)



I don't even want to talk about the legs Marilyn. Everytime I make some forward progress, it only gets overshadowed by more regression. They get better, they get worse. Back and forth. Forward and backwards. I'm sick of it.

Now, if I sit up at all, they leak again. It seems I have to lie down constantly in order to get them to stop. I'm getting fed up with it all.

How frustrating for you! Hang in there :grouphug:

Good Luck Deborah!!! Have someone toss some coins in the back seat (floor) for good luck... (it's 3 years and I still have the coins in the back of my car...)

QUOTE]

I have never heard of throwing coins into a car for good luck :confused3 I guess its similar to always put a coin in a piggy bank before giving it to somebody.
 

Willie just showed me some of his poetry, since I thought it was so good I'm sharing....

W ows everyone
I n the game
L avinous
S o amazing
O ne with the go kart
N ever boring


S chools Out
U nbelieveably Fun
M ore than Awesome
M oms are free from Work
E nough Fun for everyone
R unning on the beach

Great job Wilson!

At Raglan Road, WJRR radio had a drawing to win a trip to NCY for next St. Patrick's Day. I put in Chuck's name and my name. I was talking to him about how much fun it would be to win a trip to NYC, and Chuck says, I wouldn't even go if I won a free trip! I was floored!

Anyway, guess who was one of the 10 people's names they called? YUP! Chuck's! Good thing he won second place.......dinner for 2 at Raglan Road......I would have gone to NYC with a freind and left HIM at home!:rotfl2::rotfl2::rotfl2::rotfl2::rotfl2::rotfl2::rotfl2::rotfl2::rotfl2:

Hope you enjoy your dinner at Raglan Road!

Well,

1. The oral surgery I had two weeks ago just has not healed very well and I get very very tired.

2. Gretchen and Annie were in a production of Children of Eden by Stephen Schwatz. He did Wicked, Godspell and many more. He says Children of Eden is his favorite. They have been practicing since September. Friday, Sat and Sunday...we sold about 1500 tickets ($15,000) and almost all the money gets to go to missions!! (we did spend about $3000 on costuming) It was AWESOME. I will post some pictures soon. I did the program in full color and it was BEAUTIFUL.....

3. Mom is having a hard time. She will NOT live anywhere but here. Even the mention of it sends her into crying fits. We have given up.

I have missed you guys. I have been reading some....but not posting at all.

I'm still way behind, so hopefully you're starting to get your energy back now :grouphug:
 
Time to get off of here for today. I'm still back on page 35, but I'll do some more reading tonight.

Today is half over already. :cool1: I really just want to go home and have a hot bath and a nap. Luckily there's only a few hours to go and then I can have a bath (the kids will happily have a snack and watch some kids TV while I do that). Then Ken'll be home again, and I'll curl up on the couch.
 
I FINALLY called the dr today re: rage/anger issues :furious:, feeling like my blood is running/pumping thru my system, and feeling like i'm shaking. I actually added some stuff today tooo.....anxiety, stiff neck, jaw clenching. I'm waiting for a call back to see if it's because of the meds. I'm supposed to pick up a refill tonight--so don't want to shell out $85 if he's going to take me off of it.

I've also had one h e l l of a headache all day today & got very :sick: (nauseous or however you spell it) too. Taking tylenol extra strength has done nothing for the :headache:

I'm supposed to go to a surprise party for my mgr tonight - she's retiring & her last day is tomorrow....I really want to go but will have to see what I feel like at 715pm.


*********************************************
Just heard from the Dr - I'm off 1 of my anti depressants as of NOW. If I still feel this way after I've let it get out of my system then I have to go back in to see him
 
Deb - great news about Ray & the VA stuff - fingers crossed that it all comes through quickly.

Connie - great news about the trip to see DOllywood & spending the time w/ Mike. Enjoy your dinner at Ragland Road w/ Chuck.

Ken & Shannon - so glad you guys are back safely. Sorry that you're under the weather

Holly - let us know how things went (I know you will :hug:)

I know I'm forgetting people .... need to go back to read
 
Thanks Deb, that helps! :goodvibes I hope it works out that he gets slapped with reality BOTH times and it knocks all the stupid out of him. ;)



hahahahaha.....keeping my fingers crossed for you and sending pixie dust your way.:laughing::laughing:
 
I'm nuts to get all worked up over a couple silly appointments, but that man just stresses me out so much. I brought my Klonopin (my Dr. calls it my rescue drug) to take just before I leave work. It works very quickly. :thumbsup2



Take deep breaths and remember you're doing this for Tyler! :hug::hug::hug:
 
I FINALLY called the dr today re: rage/anger issues :furious:, feeling like my blood is running/pumping thru my system, and feeling like i'm shaking. I actually added some stuff today tooo.....anxiety, stiff neck, jaw clenching. I'm waiting for a call back to see if it's because of the meds. I'm supposed to pick up a refill tonight--so don't want to shell out $85 if he's going to take me off of it.

I've also had one h e l l of a headache all day today & got very :sick: (nauseous or however you spell it) too. Taking tylenol extra strength has done nothing for the :headache:

I'm supposed to go to a surprise party for my mgr tonight - she's retiring & her last day is tomorrow....I really want to go but will have to see what I feel like at 715pm.


*********************************************
Just heard from the Dr - I'm off 1 of my anti depressants as of NOW. If I still feel this way after I've let it get out of my system then I have to go back in to see him



I'm sure it's the meds and it's good that you're now stopping them. The doctor will find another medication for you that will not have the same adverse effects.

I hope you feel well enough to go to the party tonight....even if you only stay for an hour. :hug::hug::hug::hug::hug::hug::hug::hug:
 
Thanks Deb & Shannon :-)

I'm having a chat w/ Michelle on im right now...she's helping the day go faster.
 
So how many days at Cold Stone this week??? Shannon's gonna need a 12 step group when she gets home... Hi...I'm Shannon and I'm addicted to Oreo Overload... (or whatever she got...) :rotfl:

We were usually so late getting back from the park, that I went to sleep instead of eating ice cream, but the nights we did ice cream, it was delicious. I like the peanut butter cup one and banana caramel nut one. YUM!

I came home after the course and huh house is okay but need to cleaning and tidy up.. I thought myself right this is Saturday and my break and I am relaxing after had busy week... I work overtime yesterday... and I feel tired now...

Tomorrow I will be out all day :goodvibes but it is Mother's Day tomorrow but we will go out for meals with family together next weekend Sunday as Keith's birthday... He want ten pins bowling then family together for meals for late mother day and his birthday... He will be 12 years old...

Scottishwee35

I had forgotten that Mother's day is earlier over there. You should still celebrate the North American one as a rememberance of the cruise :goodvibes
 
I FINALLY called the dr today re: rage/anger issues :furious:, feeling like my blood is running/pumping thru my system, and feeling like i'm shaking. I actually added some stuff today tooo.....anxiety, stiff neck, jaw clenching. I'm waiting for a call back to see if it's because of the meds. I'm supposed to pick up a refill tonight--so don't want to shell out $85 if he's going to take me off of it.

I've also had one h e l l of a headache all day today & got very :sick: (nauseous or however you spell it) too. Taking tylenol extra strength has done nothing for the :headache:

I'm supposed to go to a surprise party for my mgr tonight - she's retiring & her last day is tomorrow....I really want to go but will have to see what I feel like at 715pm.


*********************************************
Just heard from the Dr - I'm off 1 of my anti depressants as of NOW. If I still feel this way after I've let it get out of my system then I have to go back in to see him
:hug: Oh Monica, I'm sorry you're stuck going through this. Finding the right med combo sure is hard. Sending lots of hugs your way. :hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug:
 
:bday:party: HAPPY BIRTHDAY MARILYN party::bday:

Hope you had a wonderful day!
mostly copied from Bubba!

I don't know. I have mixed feelings, mainly because it doesn't really surprise me mainly because I thought that already was the policy. I guess I just don't get out much the DIS. I really don't frequent threads other than this one and my other two cruises.

Not sure why. Probably a matter of time and interest.

So, to come back to the original point, I thought that this was already the policy. I wasn't aware that people discussed politics on this board, though I have had a few semi-political rants myself.

I rather agree with both of you.

Nan - because interpretation and enforcement of such rules can often become subjective and sometimes lean towards capricious.

Bubba - because some people, while entitled to their views, can become rather nasty. Sometimes this can bring out the worst of human nature.


And now ... off to work (in an non-political and non-threatening manner you understand)

I looked at some of the political threads on the community board, and they were very confrontational. I hope our thread can continue to be as is. I like it when Ian posts a bit of Jewish stuff, because I know very little about the various Jewish holidays. Its interesting to learn bits and pieces. I was surprised to learn that Hannukah is not a big holiday, since it gets so much marketing.
 
Well, Chuck got tied up at work and was a few minutes late for our appointment, and he walked in just as the doctor was telling me different options for increasing one of Tyler's meds. Chuck asked why we'd need to increase them when he was under the understanding that we would be trying to take him off them when he starts doing well. Dr. told him that since things aren't going too well for Tyler in school, based on what the teachers have reported, he feels it would bring his anxiety back down, as well as the impulsiveness and aggression. Then Chuck complained that he was completely in the dark about this and assumed that no news was good news. The doctor told him, "Hey, it's up to you two to stay in communication about that" and my response was that I just assumed he'd be contacting the school to see how things are going just like I do.

So the doctor suggested I copy Chuck on all my updates that I send him, and he gave Chuck all the ones I'd sent. :rolleyes: He's got quite a stack to read!

So he didn't get too angry, and we're increasing Tyler's dose starting tomorrow. The Dr. says if this new dose stops working after a while, instead of continuing to increase it, he'd like to try to get rid of the other med and replace it with an anti-depressant.

So we wait and see what happens with the higher dose for now. :thumbsup2
 
You know your butt's getting too big when it knocks the toilet paper rack off the wall of a bathroom stall! :eek:





:rotfl2::rotfl2::rotfl2:

:rotfl::rotfl::rotfl::rotfl:

OK, I have to stop reading new stories and go to lunch! Wish you all could join me! :)

Yes, I wish to come along...

I FINALLY called the dr today re: rage/anger issues :furious:, feeling like my blood is running/pumping thru my system, and feeling like i'm shaking. I actually added some stuff today tooo.....anxiety, stiff neck, jaw clenching. I'm waiting for a call back to see if it's because of the meds. I'm supposed to pick up a refill tonight--so don't want to shell out $85 if he's going to take me off of it.

I've also had one h e l l of a headache all day today & got very :sick: (nauseous or however you spell it) too. Taking tylenol extra strength has done nothing for the :headache:

I'm supposed to go to a surprise party for my mgr tonight - she's retiring & her last day is tomorrow....I really want to go but will have to see what I feel like at 715pm.


*********************************************
Just heard from the Dr - I'm off 1 of my anti depressants as of NOW. If I still feel this way after I've let it get out of my system then I have to go back in to see him

Monica, Hope you make it for surprise party and I hope you are feeling better soon... as it is not nice when you have it...

Well, Chuck got tied up at work and was a few minutes late for our appointment, and he walked in just as the doctor was telling me different options for increasing one of Tyler's meds. Chuck asked why we'd need to increase them when he was under the understanding that we would be trying to take him off them when he starts doing well. Dr. told him that since things aren't going too well for Tyler in school, based on what the teachers have reported, he feels it would bring his anxiety back down, as well as the impulsiveness and aggression. Then Chuck complained that he was completely in the dark about this and assumed that no news was good news. The doctor told him, "Hey, it's up to you two to stay in communication about that" and my response was that I just assumed he'd be contacting the school to see how things are going just like I do.

So the doctor suggested I copy Chuck on all my updates that I send him, and he gave Chuck all the ones I'd sent. :rolleyes: He's got quite a stack to read!

So he didn't get too angry, and we're increasing Tyler's dose starting tomorrow. The Dr. says if this new dose stops working after a while, instead of continuing to increase it, he'd like to try to get rid of the other med and replace it with an anti-depressant.

So we wait and see what happens with the higher dose for now. :thumbsup2

Holly, you mean Tyler have anti-depressant tablet? I do hope he is improving and stop take the med?? maybe take it slowly....

Scottishwee35
 
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