Update on DS and his Fundo/Reflux

triplefigs

<marquee><font color=009933>Triple Chick</marquee>
Joined
Oct 26, 2004
Messages
11,568
Rees did very well with the Upper GI this morning. He got quite upset, but overall handled it extrememly well all things considered.

The Pediatric Surgeon called at noon today. The Radiologist Report is not back, so he only saw the still films from the Upper GI. Rees does have a Diverticula in the lower esophagus. He said it is in a very weird location (usually they are higher in the Esophagus), but isn't sure if that is causing all of Rees' problems. He also said the Fundo wrap looks very large, and it may be twisted or loose. He wants to take a close anatomical look at Rees himself. So next Thursday, May 25, Rees will go to Egleston Hospital to have another Endoscopy and an abdominal ultrasound. The surgeon will perform both tests himself. Rees will have to have general anesthesia again.

The surgeon said the surgery, if Rees needs it, is major and he would be in the hospital for at least a week. He doesn't want to do unless he has to, so we may end up trying the feeding tube route if Rees keeps losing weight.

At 4:30pm the GI doctor's nurse called because the Radiologist Report came back. It says the Fundoplication is Incompetent. That means it has failed. He is to call us tomorrow with more information. It also showed that Rees' stomach has rotated to a transverse (lying on its side) position which is very unusual and probably means it is trying to herniate. So, if this is all true, it does look like Rees will be having surgery. I will keep you posted. I told the nurse to have the GI doc call the surgeon so they could discuss treatment.

So please pray we find a definitive answer to what is hurting Rees, that the doctors can fix what is wrong, and that he will recover fully. We appreciate the prayers and support more than you can imagine.
 
Denise, you and Rees are in my thoughts and my prayers. I am so sorry he is suffering. It must be terrible for you both. :guilty:

Take care & hang in there,

Lives4Disney :grouphug:
 

Denise--I'm happy that you are finally getting some definitive answers about what is wrong but sad that it looks like it's going to involve another surgery. Rees is a very strong little boy going through all these tests and the pain so well. I'll be praying that they can fix everything soon and that he doesn't have to go through much pain to get there.
:grouphug: --Hugs to your whole family:)
 
Wow-so much for the pumpkin' to go through. I know he must be an incredible little boy and you must be an incredible family. Prayers for you all. :angel:
 
Sending :grouphug: to you I hope you can get a resolution to Rees' problems soon. Our DS had an open fundoplication and pyloriplasty aged 6 and it was like a new start to his life, he has never looked back. I hope that if Rees needs more surgery it will be as positive an outcome for him. The tests are not pleasant, he is a good little guy for tolerating them so well.
 





New Posts








Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE













DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter DIS Bluesky

Back
Top