GuinnessRunner
DIS Veteran
- Joined
- May 16, 2018
- Messages
- 628
Well, it turns out “hypermobile” isn’t just an observation: it’s a DIAGNOSIS. Literally nobody told me that: I found it while looking through my clinical notes, mentioned it to a friend who has Ehlers-Danlos Syndrome, and she hooked me up with a doctor who specializes in EDS and Hypermobility Spectrum Disorder. I fit all criteria for HSD. And that diagnosis finally got me to the appropriate information for managing it.
Know how wonderful it can feel to finally get a diagnosis. Our 18 y/o DD has hypermobile EDS and I've run Marathon Weekend the last couple years raising money for the Ehlers-Danlos Society. Feel free to ping me if I can provide you any of the resources we've come across in dealing with EDS.