DIS Dads The Dis Dad's Club II

[trennr]

We're Back!!!

Pulled in our driveway around 9pm last night

Now should I do a trip report?

 

[dvczerfs]

I don't know if any of you saw Noah's Wish TR. I'll give you the background. Taken from -->http://www.disboards.com/showthread.php?t=2031190 There are also pictures of the family and Noah on the 1st page of the TR.

It is finally time to start my own pre-trip report!!

Cast Members:

Myself, Nichole aka Mom (33)
My hubby, Brad (34)
Daughter, Kailyn (8)
Son, Joshua (6)
Wish son, Noah (3)


A bit of background for you as to why Noah has been granted this wish trip. During a routine ultrasound during my pregnancy, we discovered that Noah would be born with a cleft lip and palate. He was also measuring unusually small. So I had an amnio done and we recieved the devastating news that no parent ever wants to hear. Our son has a rare genetic condition; a piece of his chromosome #12 is missing. The condition is so rare, that very little information could be found, except for a couple of babies who were stillborn. So we were given the choice to terminate, or the bleak prognosis of a likely stillbirth. Choosing to carry our boy to term, we prepared ourselves for the worst.

But God had other plans for our little one, and he came into the world kicking and screaming. On day 2 he began losing the battle to breath and was intubated in NICU. After 2 weeks, he was able to breath on his own, and at four weeks, we took our little 4lb peanut home.

His chromosome deletion has caused many health issues. Developmental delays, no oral feeds, multiple aspiration pneumonias, severe GERD, sleep apnea requiring nighttime oxygen, asthma, failure to thrive, mild heart issues (PDA/PFO), ketogenic hypoglycemia, fat malabsorbtion requiring a central line and TPN feeds, multiple line sepsis, blood clots and bone infections...the list goes on. Our doctor always calls our son "the boy with 9 lives" and he truly has narrowly escaped death's doorstep numerous times. Our scariest experience was this past february where the flu combined with a fungal infection caused him to code and he spent 18 days in PICU intubated and on the oscillator. He's had 16 surgeries for his cleft lip, g-tube, fundoplication, many central lines, ear tubes, stoma revision etc. This past spring he was also diagnosed with yet another genetic syndrome, called San Filippo Syndrome, which is a brain degenerative disease. This means that eventually he will begin to regress, and life expectancy is usually early teens.

Now at 3 years old, weighing just over 14lbs, he is our little miracle...the joy and sunshine of my life!!


This little boy has been through hell. The last few days he was in the hospital fighting for his life again. Yesterday he lost his fight and passed away to join God.

My DD is the same age as Noah and has been through a lot... not as much as this family. It really hit home that life is precious and you really cannot take your life or your kids for granted.

There is a donation being made in his name to the Give Kids The World Village. GKTW is right outside Disney and many wish families stay here for free. You can read more about the donation here.--> http://www.disboards.com/showthread.php?t=2243804


EDIT::: Also FYI the new Smiley on the DIS is in honor of Noah.

i was in tears reading this. our prayers are with the little guy and his family!(i love the look on his face in the pic w/ the magic fast pass.)

 

[dvczerfs]

We're Back!!!

Pulled in our driveway around 9pm last night

Now should I do a trip report?

welcome back trennr! cant wait to hear about your trip!!

 

[Poopachino]

Number 120: You keep the Disney hotel soap from each night, then alternate those soaps with regular soap at home to keep reminding you of being at Disney.

Excellent addition - we do that each trip!

Also add:

122. Collect Disney napkins each day of your trip to have at home and in the car.

123. Keep your Disney hotel Parking Permit on your dash until it is replaced by a new one next trip.

 

[Poopachino]

I also found www.livestrong.com.

Great job on your success, FreezinRafiki! I'll check livestrong out.

 

[DisneyDaddy-O]

We're Back!!!

Pulled in our driveway around 9pm last night

Now should I do a trip report?

I don't think I would be the only one who says yes!!

I can't wait to read about your trip, I hope all went as planned, it always feels good to read TR's, it gives me my fix until my own next trip.

Is it Jan yet?

 

[rhettreaux]

123. Keep your Disney hotel Parking Permit on your dash until it is replaced by a new one next trip.

What a great idea! We usually fly, but maybe I'll get two parking passes next time just for the souvenir value.

 

[FreezinRafiki]

Have any of you guys done the Segway tours of Epcot? We did one a few years back and had a blast. I'd like to do the one a Fort Wilderness in October, but I don't think the schedule or pocketbook will allow it.
Anyway, I'm going out with some guys from work on a Segway tour of Milwaukee this evening. It probably won't have the same magic as cruising around China, Italy, etc, but should be fun enough.

 

[booger73]

*runs in*
12 days! 12 days!

*cheer*

 

[Poopachino]

I found a free iPhone/iPod Touch app that works well as a calorie counter, too. It's called Lose It!

I downloaded this app this morning and it's great - thanks Captain!

Also, just so we're all on the same page - THERE IS NO COUNTING WHILE IN DISNEY WORLD!!!

 

[AirGoofy]

Sign me up! I need the support. I'm 35, DW35, DD 7, DD 5 - Heck, even their cat is a girl.

 

[AirGoofy]

I did a top ten list for my membership criteria [and edited a few]:
2. You have a wife that thinks you are a big kid.
4. You get more excited than your kids when a trip to WDW is planned.
8. You planned your next Disney trip the day after returning from Disney World.
22. You have [Goofy] Watch.
26. You have a Disney background on your [desktop w/] count down calendar on it.
27. All of your family photos seem to be taken at WDW.
36. You wear a matching Disney shirt with your kids to the parks.
39. Your boss quits asking where you are going on vacation - he already knows.
54. Simply put...there is no place you would rather go on vacation than at WDW.
83. Your Christmas tree has all Disney ornaments on it.
119. You have endured the hazing process to become a DIS Dads Club Member.

This is a great thread

 

[MrIncrediDad]

My qualifications are below. My DW turned me into a dis fanatic in '02. I've been reluctant to join the dis boards since I never saw a spot for us guys to hang out, now that I'm a dad it looks like I found my spot!

My DIS Dad's qualifications:
Became a dad for the first time 5 weeks ago!
1. Your passion for Disney equals that of a 7 year old kid.
2. You have a wife that thinks you are a big kid.
12. You have friends and family that do not understand why you vacation in WDW every year (or at least talk about doing it).
19. You drink your coffee from one of your multiple Disney mugs.
44. You don't want to fix the musty smell in your damp basement because it reminds you of the Pirates of the Caribbean cave.
49. You only feel fulfilled when you know you have another trip on the horizon.
56. You can recite the entire script from the Haunted Mansion.
89. The cake topper on your wedding cake was Mickey & Minnie.
102. You only know one phrase in spanish-"please stand clear of the doors..."
108. You have so many Disney shirts you have to decide which ones to take and which ones to leave home when you leave for vacation.
111. You have a Mickey lamp on your desk.
116. When you bought a new mini-van...instead of kicking the tires and looking under the hood...you checked out all the stow-n-go features and was planning on where to put our luggage for your next trip to WDW. (I see this one in my future...just bought a corolla for the family and my first concern was if our stroller and luggage would fit!)

 

[DisneyDaddy-O]

Sign me up! I need the support. I'm 35, DW35, DD 7, DD 5 - Heck, even their cat is a girl.

You have come to the right place!

 

[dvczerfs]

Sign me up! I need the support. I'm 35, DW35, DD 7, DD 5 - Heck, even their cat is a girl.

my dd is 16, good luck! were with ya!

 

[dvczerfs]

hay, the grizwalds are off to wally world on the travel chanel!!

 

[MiJo]

Have any of you guys done the Segway tours of Epcot? We did one a few years back and had a blast. I'd like to do the one a Fort Wilderness in October, but I don't think the schedule or pocketbook will allow it.
Anyway, I'm going out with some guys from work on a Segway tour of Milwaukee this evening. It probably won't have the same magic as cruising around China, Italy, etc, but should be fun enough.

My DW and I did the EPCOT Tour a few years ago and really enjoyed it! I'd like to to it again someday for sure. We've also done the Keys to the Kingdom Tour and really enjoyed that one, too.
I hope you enjoyed cruising around Milwaukee. I don't think we have anything like that around here but I've never really looked into it. We did see something similar going on in a Chicago park once.

 

[pepe of ohio]

I'm 60 years old and match your criteria to a tee, sign me up.

 

[dvczerfs]

I'm 60 years old and match your criteria to a tee, sign me up.

welcome aboard pepe!!!

 

[dvczerfs]

My DW and I did the EPCOT Tour a few years ago and really enjoyed it! I'd like to to it again someday for sure. We've also done the Keys to the Kingdom Tour and really enjoyed that one, too.
I hope you enjoyed cruising around Milwaukee. I don't think we have anything like that around here but I've never really looked into it. We did see something similar going on in a Chicago park once.

hay mike, how did you like keys to the kingdom? my dd and i are doing the tour in oct. my dw wouldnt go so ive been waiting for 16 years!!