*sigh* Too fat to donate :(

I thought about sending this in a PM, but if there is a chance that anyone else here that could benefit from this information, I would rather post it in this thread.

I think it's wonderful that you want to do this for your mom, but if you do get the opportunity to go ahead with it, there are some things I’d like to tell you from our personal experience.

DH and I have been through the entire process beginning to end (DH was to be the donor for his mom), and it was such a stressful time that it almost cost us our marriage. He now talks about that time as being pretty much the worst time of his life.

Live liver donation is not like live kidney donation. It’s a much bigger deal - bigger surgery, bigger risks, longer recovery time. The chance of the donor having to be re-hospitalized due to complications can be as high as 40%, with some of these complications being potentially serious. Be sure that you are well educated about all of this before making the decision to proceed.

Live donation causes an ethical dilemma for doctors. They really don’t want to cut open a perfectly healthy individual and take out part of an organ. They want you to be absolutely sure that you want this, and they *should* put you through both physical testing and psychological counseling before approving you. This leads me to my next point.

The testing you will go through is called “hell week” at the Mayo Clinic. My husband went through a week of very long days of testing, some of it uncomfortable, and some of it flat out painful. In addition to the physical testing, you will also meet with a psychologist to determine that you are mentally stable and that your family dynamics are stable.

Regarding your family dynamics, you really have to be sure your family dynamics are stable, because while you would expect this kind of event to bring out the best in everyone, there is a very good chance it will do just the opposite. I’m really sad to say my husband was so desperate to save his mom that he lied about his family dynamics and got approved when I felt he absolutely shouldn’t. I knew things about his family that they didn’t, and of course he didn’t share those kinds of things with them. I wanted nothing more than to tell the psychologist about these things, because I knew what his family was going to do to him, but if I had taken this opportunity to save his mom away from my husband, I knew he would probably have never forgiven me when/if she died. As a result, what his family put him through during this whole ordeal was really horrible, and it tore him up. The unbelievable amount of stress that their family caused him almost tore our marriage apart, as well. He didn’t get over it for a couple years, and even now it is really hard for him to talk about.

If your hospital doesn’t put you through all this testing, I question whether I’d want them to do the procedure. We were doing it through Mayo, which is among the best there is. They were wonderful; we had no complaints at all (except that they let my husband fool them into thinking they had this wonderful family who would do anything for each other, but I suppose they can only go by what he tells them…)!

In the case of my husband and his mom, while they were doing a last minute checkup on his mom the day before the procedure was to happen, they determined that she was having some questionable heart issues so the surgery was canceled until she was healthier. About three weeks later, they had a match with a cadaver liver for her, and it turned out to be the best thing that could have happened for her, as the liver was a match to hers in almost every way, including being large enough to improve the success rate. What she would have gotten from my husband would probably have worked, but they much preferred something larger, as her own liver was quite large.

The recovery time was long, and my husband was immediately abandoned by the rest of them, left to care for her 24/7 in Rochester by himself. Sadly, I truly believe that even if he had been the donor, they would have done the same thing. Both of them would have needed round the clock care, and nobody would have stepped up to the plate (I had a young child at home and a new job with no leave available to me, so I wasn’t in a position to help much, either, although I would have had no choice but to figure out a way.) There really are some selfish, selfish people in this world.

As a follow-up to her story, she did quite well for about a year or so, but she has since become sick again. She isn’t very forthcoming with medical information, so from what we know, we believe it’s the same issues she had before, but with more complications added in. With that said, we must remember that she has been given several additional years to her life (I think it's been three or four years since the surgery), and hopefully she will have several more to come.

There is much more I could say about this subject, but this has gotten plenty long already. Let me know if you have any questions at all! Please know that I am not saying all of this to you to scare you away from doing this – it’s a beautiful gift! I’m telling you all of this because since we went through this, we have encountered many people that think it’s “not a big deal”, and “they’d do it for anyone in a heartbeat.” That couldn’t be further from the truth. It is a huge deal. The stress is high, and the recovery time is long and painful. It’s something that you think should bring your family closer together, but in reality, it could potentially tear your family apart. It won’t affect just your life, but your whole family’s lives as well (I'm talking about your husband and children here). So I guess what I am trying to tell you is if you do get the opportunity to do this, please make sure you are very well informed and have given it much thought.

On the bold - I was ignorant - thanks for educating me. Truly. I had no idea. If I had given it some thought - two kidneys - one regnerating liver. Different.

The rest :hug: and wow.

There were some family issues around my BIL as well. It's a long story but he didn't make it to surgery. I was cleared just as - the day acutally - something else took him into the hospital. But reading your post made me remember the intense emotions from family members. Running the gamut. Surprising issues. Triggers.

:hug: to you Luv2scrap.
 
If thats true, then you really need to see a Dr. Otherwise, I'd say that you are still overeating or not eating healthy. Theres no way to workout 5x a week (breaking a sweat) and not lose weight.

Oh yes there is!!!!! I work out at that rate and have for years, but dont lose weight. I dont overeat nor do I eat mostly 'bad' food, etc. I have always been "big" .... I am at a set weight. My doc says not to worry, because I am very healthy "for my weight", not all bodies respond the same to exercise/change of diet/ etc. Granted, these things do work for most, but not all.

Goodluck OP - what a great thing you are trying to do!:hug:
 
:hug: to you, Darsa. I hope everything works out for both you and your mother.
 
Oh yes there is!!!!! I work out at that rate and have for years, but dont lose weight. I dont overeat nor do I eat mostly 'bad' food, etc. I have always been "big" .... I am at a set weight. My doc says not to worry, because I am very healthy "for my weight", not all bodies respond the same to exercise/change of diet/ etc. Granted, these things do work for most, but not all.

Goodluck OP - what a great thing you are trying to do!:hug:

My friend was like this. Always 30 lbs overweight. Exercised 5 days a week. Went to a trainer and did all kinds of varied activity. The trainer could NOT believe she wasn't losing weight. She dropped, maybe 3 lbs over a year. My friend truly believed she was eating well and not too much. She was wrong. She had someone look at everything and went on Weight Watchers at some point. She *finally* dropped 30 lbs. This after 10 years of trying.
 

I dont have any advice really, but I just wanted to say that I think you are doing a wonderful thing! :hug:

And I have heard wonderful things about Weight Watchers as well. SO maybe give them a shot!

Good luck to you both.
 
My friend was like this. Always 30 lbs overweight. Exercised 5 days a week. Went to a trainer and did all kinds of varied activity. The trainer could NOT believe she wasn't losing weight. She dropped, maybe 3 lbs over a year. My friend truly believed she was eating well and not too much. She was wrong. She had someone look at everything and went on Weight Watchers at some point. She *finally* dropped 30 lbs. This after 10 years of trying.

That's good advice - I've done Weight Watchers and it's a great program. And, yes, even my Weight watcher instructor, who went over my eating plan at length, couldnt believe it when I just stopped losing after a certain point. I realize it's not the norm, but it's also not terribly uncommon - some people truly are 'big' and I've had several docs agree (even though its usually begrudgingly> :) )

I would definaltey give WW a try OP - it is great for helping you learn about portion size and for giving you moral support.
 
On the bold - I was ignorant - thanks for educating me. Truly. I had no idea. If I had given it some thought - two kidneys - one regnerating liver. Different.

The rest :hug: and wow.

There were some family issues around my BIL as well. It's a long story but he didn't make it to surgery. I was cleared just as - the day acutally - something else took him into the hospital. But reading your post made me remember the intense emotions from family members. Running the gamut. Surprising issues. Triggers.

:hug: to you Luv2scrap.


Thank you very much. :flower3:
 
/
Live liver donation is not like live kidney donation. It’s a much bigger deal - bigger surgery, bigger risks, longer recovery time.

Sorry, but a kidney donation was a very big deal to me and my family. I endured the painful and sometimes humiliating psychological and physical examinations, an 8 hour surgery and weeks of recovery. I also had to do this even though my two small children were very afraid for me. My father had died just a few weeks earlier and they (we all) were still reeling from that.

I know the death of my father had nothing to do with the risks of donation, nevertheless it had a tremendous impact on our family, as my brother was getting closer to death himself.

Not trying to argue here, but I take exception to the bold text above. I know you didn't say kidney donation wasn't a big deal, but it seems implied. Touchy subject for me. You may not agree.
 
Sorry, but a kidney donation was a very big deal to me and my family. I endured the painful and sometimes humiliating psychological and physical examinations, an 8 hour surgery and weeks of recovery. I also had to do this even though my two small children were very afraid for me. My father had died just a few weeks earlier and they (we all) were still reeling from that.

I know the death of my father had nothing to do with the risks of donation, nevertheless it had a tremendous impact on our family, as my brother was getting closer to death himself.

Not trying to argue here, but I take exception to the bold text above. I know you didn't say kidney donation wasn't a big deal, but it seems implied. Touchy subject for me. You may not agree.

I would NEVER say kidney donation isn't a big deal - far from it! I admire you for giving your brother such a great gift. Not everyone could do it.

But if you do the research, you will find that the facts are that live liver donation is quite a bit riskier for both the donor and the recipient. That was all I was saying. A lot of people don't realize that. If you do research on kidney donation, it will say the risks to the donor are minimal and they will very likely live a full, normal life after recovery. Many people assume the same is true for liver donation, but if you compare the two, it's not the same.

In liver donation, the risks are higher, including the risks of complications during recovery, and because the procedure is still relatively new, it isn't really known if there are any long-term effects for the donor. Not to mention the size of the incision they make for each - from what we were told, liver is much bigger.

Your brother is very lucky to have you. :flower3:
 
I don't mean to sound combative. Our transplant surgery happened during a very traumatic time in our lives, so maybe that makes it seem more of an event than it really was. I had some enduring and embarrassing complications that have finally cleared up, thank goodness.

I have another family member who was a liver recipient, but that's the extent of my knowledge about liver donation. I applaud your husband for gathering the courage to try.

The circumstances surrounding everyone's transplant cases are unique, I've found. In my research about living donation, I (internet) met many altruistic donors who never met their recipients. That takes courage, too.

Good luck to your family! :)
 
I don't mean to sound combative. Our transplant surgery happened during a very traumatic time in our lives, so maybe that makes it seem more of an event than it really was. I had some enduring and embarrassing complications that have finally cleared up, thank goodness.

I have another family member who was a liver recipient, but that's the extent of my knowledge about liver donation. I applaud your husband for gathering the courage to try.

The circumstances surrounding everyone's transplant cases are unique, I've found. In my research about living donation, I (internet) met many altruistic donors who never met their recipients. That takes courage, too.

Good luck to your family! :)

Now that really takes a very special kind of person! Hard enough to do it when you know and love the person!!

I'm sorry to hear you had complications. I was so terrified for my husband to have complications (he was pretty scared too). It takes a very brave person to volunteer to be a donor! You really are a hero! :hug:
 
That's kind of you to say. I really wasn't trying to "fish for a compliment". Hope I didn't sound like that! ;)

I hope you have a great Thanksgiving!
 
That's kind of you to say. I really wasn't trying to "fish for a compliment". Hope I didn't sound like that! ;)

I hope you have a great Thanksgiving!

Oh my gosh, not at all! It's just the truth as I see it. :)

I hope you have a great Thanksgiving too!
 
Darsa, you sound like a very loving and devoted DD :flower3:. Sending prayers everything goes well for your dear Mom. :grouphug:
 
BMI is such a lousy way to measure things.

As for blood pressure, it just goes to show how things change. 20 years ago, 98.6 was normal temp, now normal is 99. And even closer in time, 120/80 was fabulous bp. Now I just noticed the other day in some literature, it's considered borderline. I guess it's good that they keep updating normals based on studies...


The recovery time was long, and my husband was immediately abandoned by the rest of them, left to care for her 24/7 in Rochester by himself. Sadly, I truly believe that even if he had been the donor, they would have done the same thing. Both of them would have needed round the clock care, and nobody would have stepped up to the plate (I had a young child at home and a new job with no leave available to me, so I wasn’t in a position to help much, either, although I would have had no choice but to figure out a way.) There really are some selfish, selfish people in this world.

Oh man... That's so awful.

My best friend had a liver transplant last March. She had to undergo many many psych evals and questionnaires about her family. Thankfully the first time she was put on the list, she got no matches, as her husband left about a year after...watching how he "helped" her after major abdominal surgery (a bile duct/intestine stent migrated, punctured her intestine, and caused sepsis FAST) she likely would have died under his "care". She got healthier than I'd ever seen her, for about 2 years, then she was back on the list. She had to have someone move in with her (thankfully her adult niece was engaged, planning her wedding, and without an apartment at the time), that niece had to have backup, etc etc. My friend started walking as soon as she could, and had to have someone with her for her walks. There were no breaks in her need for care.

I can't even imagine what that must have been like for your husband, and it's horrifying to think of if he'd been a donor. :hug::hug::hug:

Sorry, but a kidney donation was a very big deal to me and my family. I endured the painful and sometimes humiliating psychological and physical examinations, an 8 hour surgery and weeks of recovery.

Not trying to argue here, but I take exception to the bold text above. I know you didn't say kidney donation wasn't a big deal, but it seems implied. Touchy subject for me. You may not agree.

FWIW, I didn't read that into the post. You know what can happen...now imagine the likelihood of the complications being *even higher*. :hug::hug:

The 24-36 hour period in which my friend had her transplant, they actually did something like 13 transplants. The evening before, two accidental "donors" arrived at the same time...

During all of this, there was a scheduled live kidney transplant scheduled, and they were pushed back pretty far. While my friend was recovering we found that the donor of that kidney was having multiple complications, it was awful. He did end up making it, as did the recipient (they kept the problems the donor was having from the recipient), but it was horrible for a couple days...

And to know that partial liver donation could be worse...well...it's worth knowing.

Now that really takes a very special kind of person! Hard enough to do it when you know and love the person!!

There was a case just this year where a local-to-me Starbucks employee donated to a customer! Wild!
 
Just got a call from my doctor; they had a cancellation so they can get me in Wednesday afternoon. Hopefully my doctor will give me some ideas as to what I might be able to do to maximize the results of all of my efforts! :thumbsup2

Thank you all for your kind words and advice; I've got TONS of info on live liver donation; while it IS a scary-looking procedure (and recovery), I would do anything for my mom and count it as a drop in the bucket compared to everything she's done for me and my siblings. :lovestruc
 
That was my first thought as well. OP, your BP is in the normal range but on the high end of normal. If your doctor is really using the word "amazing" to describe 120/80, something is wrong.

YOu know what, when I was young and VERY in shape and very thin my bp was 120/80 and never varied. It was no problem Drs said it was great. NOw all of the sudden they seem to think 120/80 is pushing it, but most Drs' I know won't prescribe drugs until the bottom number hits 90. If they are prescribing and I do suspect some of them are, IMHO it is nothing more than a push from the drug companies. That is how they make their money. I remember my Dr telling me that if you can at all control it with diet and exercise then you should, Dr's these days are too quick to prescribe drugs. Got a problem take a pill. These drug companies are really just peddling their drugs as far as I am concerned.
 
What is the medical reason to not allow you to donate solely based on your weight? Is it too dangerous for you?
 














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