angeque143
Mouseketeer
- Joined
- Mar 15, 2011
- Messages
- 415
Hi! I am Angie single mom of one adult child, a 17 year old daughter Carissa, my nearly 6 year old AJ and my miracle Eva who is now 3.
Eva was born at 22 weeks 3 days gestation and after 128 days in the NICU she came home. As most know a preemie is a roller coaster and boy did she take us for a ride!
Dec. 4th, 2007 began like any other day. I was in my 22nd week of pregnancy and looking forward the upcoming of Christmas. This day I had not been feeling well chalking it up to just a normal day of pregnancy symptoms. Little did I know that my roller coaster ride was about to begin.
Around 8 pm that night I went to the bathroom only to discover that I had lost my mucous plug. I honestly thought that my eyes were deceiving me. I called my mother who said to call my OB/GYN to be on the safe side. Of sourse given the fact that I had a history of premature labor I was told to proceed to the labor and delivery room for a quick check up. I then called my husband and waited for him to get home from his job at the airport. I began packing a small overnight bag and suddenly felt contractions. I called my mother immediately to please take me to the hospital because I could not wait the hour for my husband to get home. We got the the hospital in record time and learned that I was 4 cm dialtated. Believing that I had a stay for a few weeks ahead of me, I was pretty calm. Things moved quickly. I was given a steroid shot to develop my daughters lungs and the nurse started magnesium sulfate. No sooner started my water broke. Panic set in and I became hysterical. My doctor came in and decided to do an emergency c section due to the baby being breech and he thought that she had a good chance because she measured at 24 weeks.
I believe that the c section took all of 1/2 hour . There was no noise when she came into this world and it was several hours later that I was able to lay eyes on her. Eva Paige was born weighing in at 1 lb 2 oz. She was only 11 1/2 inches long.
She required a high frequency ventilator and intense medical intervention. When she was born she started out life well behind other babies, she had pneumonia and a collapsed lung. While in the NICU she battled off sepsis, Strep B, meningitis and she had several blood transfusions.
The day after she was born we had her baptized because I wanted to make sure that it was taken care of before something could happen to her.
We were told just a few weeks before Christmas that there was little to no hope left because the infections that she had were no responding to antibiotics. We began planning her funeral. I cannot tell you the pain that I have in just talking about this . It is the most emotionally difficult time I have ever experienced in my life.
Days later she was placed on a worldwide prayer chain and she began to respond. I can honestly say that prayers have kept her in this earth.
We spent 128 days in the NICU with her and on April 9, 2008 we were able to bring her home. She was little just over 5 lbs. and all mine to care for. Such a scary proposition to be doing it all myself.
From there Eva was hospitalized in June of 2008 for failure to thrive and was needing an NG tube for eating since she was not taking in food well and not gaining weight.
In November of 2008 she underwent surgery for the placement of a peg tube. Spunky little Eva had become a thumb sucker and found ways to remove her feeding tube from her nose.
Eva turned 1 on Dec 4 2008 and this was a milestone for her too since she was just getting the hang of sitting up on her own. We had a small family get together and it was all that Eva could handle. She was not a happy participant even if it was for her honor.
December 25 2008 Eva spent Christmas Day in the hospital with respiratory issues. Quite a scary experience especially with it being during the holidays.
We have had numerous hospitalizations in the past year. Eva does all on her own time and in her own fashion.
Currently we have the diagnosis of Global developmental delays, Grade 1 Stenosis of throat, Silent aspiration, reflux, failure to thrive, Chronic lung disease, difficulty swallowing and she has vision deficits, seizures, microcephaly and leg length descrepancy.
We have our meeting with MAW this Saturday, after talking with her worker on the phone it seems like Disney is a go.
We are trying to get Grandma and Grandpa to go because I need help with the children I hope they approve them!!!
Curious as to how fast this can be done too.
Any words of wisdom are appreciated. Have been to Disney but it was 25 years ago!!!
Pretrip Links
Mickey and Minnie Mail from the Fairy Godmailers
Happy Day Here
Eva's Gift from Aunt Doris and Friends
Our Autograph Book!
Pixie Dust
Presentation Invite
Disney gets postponed
New Dates
Back to school
Tentative Plans
OUR BIG REVEAL PART ONE
Eva was born at 22 weeks 3 days gestation and after 128 days in the NICU she came home. As most know a preemie is a roller coaster and boy did she take us for a ride!
Dec. 4th, 2007 began like any other day. I was in my 22nd week of pregnancy and looking forward the upcoming of Christmas. This day I had not been feeling well chalking it up to just a normal day of pregnancy symptoms. Little did I know that my roller coaster ride was about to begin.
Around 8 pm that night I went to the bathroom only to discover that I had lost my mucous plug. I honestly thought that my eyes were deceiving me. I called my mother who said to call my OB/GYN to be on the safe side. Of sourse given the fact that I had a history of premature labor I was told to proceed to the labor and delivery room for a quick check up. I then called my husband and waited for him to get home from his job at the airport. I began packing a small overnight bag and suddenly felt contractions. I called my mother immediately to please take me to the hospital because I could not wait the hour for my husband to get home. We got the the hospital in record time and learned that I was 4 cm dialtated. Believing that I had a stay for a few weeks ahead of me, I was pretty calm. Things moved quickly. I was given a steroid shot to develop my daughters lungs and the nurse started magnesium sulfate. No sooner started my water broke. Panic set in and I became hysterical. My doctor came in and decided to do an emergency c section due to the baby being breech and he thought that she had a good chance because she measured at 24 weeks.
I believe that the c section took all of 1/2 hour . There was no noise when she came into this world and it was several hours later that I was able to lay eyes on her. Eva Paige was born weighing in at 1 lb 2 oz. She was only 11 1/2 inches long.
She required a high frequency ventilator and intense medical intervention. When she was born she started out life well behind other babies, she had pneumonia and a collapsed lung. While in the NICU she battled off sepsis, Strep B, meningitis and she had several blood transfusions.
The day after she was born we had her baptized because I wanted to make sure that it was taken care of before something could happen to her.
We were told just a few weeks before Christmas that there was little to no hope left because the infections that she had were no responding to antibiotics. We began planning her funeral. I cannot tell you the pain that I have in just talking about this . It is the most emotionally difficult time I have ever experienced in my life.
Days later she was placed on a worldwide prayer chain and she began to respond. I can honestly say that prayers have kept her in this earth.
We spent 128 days in the NICU with her and on April 9, 2008 we were able to bring her home. She was little just over 5 lbs. and all mine to care for. Such a scary proposition to be doing it all myself.
From there Eva was hospitalized in June of 2008 for failure to thrive and was needing an NG tube for eating since she was not taking in food well and not gaining weight.
In November of 2008 she underwent surgery for the placement of a peg tube. Spunky little Eva had become a thumb sucker and found ways to remove her feeding tube from her nose.
Eva turned 1 on Dec 4 2008 and this was a milestone for her too since she was just getting the hang of sitting up on her own. We had a small family get together and it was all that Eva could handle. She was not a happy participant even if it was for her honor.
December 25 2008 Eva spent Christmas Day in the hospital with respiratory issues. Quite a scary experience especially with it being during the holidays.
We have had numerous hospitalizations in the past year. Eva does all on her own time and in her own fashion.
Currently we have the diagnosis of Global developmental delays, Grade 1 Stenosis of throat, Silent aspiration, reflux, failure to thrive, Chronic lung disease, difficulty swallowing and she has vision deficits, seizures, microcephaly and leg length descrepancy.
We have our meeting with MAW this Saturday, after talking with her worker on the phone it seems like Disney is a go.
We are trying to get Grandma and Grandpa to go because I need help with the children I hope they approve them!!!
Curious as to how fast this can be done too.
Any words of wisdom are appreciated. Have been to Disney but it was 25 years ago!!!
Pretrip Links
Mickey and Minnie Mail from the Fairy Godmailers
Happy Day Here
Eva's Gift from Aunt Doris and Friends
Our Autograph Book!
Pixie Dust
Presentation Invite
Disney gets postponed
New Dates
Back to school
Tentative Plans
OUR BIG REVEAL PART ONE
I am so glad that I am not giving out wishes because I would give ANYTHING!!! 
It has been a little 
at my house (Okay, if I am honest it is ALWAYS a little 
at my house. 
