Questions/help re: Cerebal Palsey

[kaffinito]

Hi all,

Recently due to a death in the family, DH and I are going to get custody of my nephew (age 4) who has CP. He seems to function well, he can stand and walk with braces, and can say a few words.

Could anyone direct me to any websites/online groups where I can get information on CP? I know about ASD's but know next to nothing about CP.

Thanks in advance for any guidance/suggestions!

Karen

 

[SueM in MN]

Sorry to hear about the death in the family.
I'm not sure where "way far North" you are, but if you are in Minnesota neck of the North - Gillette Specialty Healthcare is a good place to go. They have been in the (non-profit) business of taking care of kids with disabilities since 1897. Even if you are far away and won't use them, their Center for Cerebral Palsy page has some basic information about the type of services often needed by children with CP. There is also a link on the right side of that page to a basic booklet about CP that is very good.

The best national resource is United Cerebral Palsy. Their website has a lot of information and resources. They also have a place where you can enter your zip code to find the United Cerebral Palsy for your area, which can help you with resources in your area.

My youngest DD has CP, as do several other poster's family members. So, ask any questions you can think of and we will try to help you.

 

[kaffinito]

Sorry to hear about the death in the family.
I'm not sure where "way far North" you are, but if you are in Minnesota neck of the North - Gillette Specialty Healthcare is a good place to go. They have been in the (non-profit) business of taking care of kids with disabilities since 1897. Even if you are far away and won't use them, their Center for Cerebral Palsy page has some basic information about the type of services often needed by children with CP. There is also a link on the right side of that page to a basic booklet about CP that is very good.

The best national resource is United Cerebral Palsy. Their website has a lot of information and resources. They also have a place where you can enter your zip code to find the United Cerebral Palsy for your area, which can help you with resources in your area.

My youngest DD has CP, as do several other poster's family members. So, ask any questions you can think of and we will try to help you.

Thanks Sue! I'm in Michigan and am a bit daunted by all of this. He's a good kid though, so I'm sure with the resources you mentioned we'll be fine.

Karen