livinglife
Earning My Ears
- Joined
- Nov 14, 2006
- Messages
- 7
Hello everyone,
I am a long time Lurker (3 years) that finally joined as I need help planning a trip for DD. Earlier this year took DD (25, high-functioning autism but with more serious speech issues than most with HFA, OI/EDS, and diabetes... and that's just the major stuff!) to Poly, we stayed in a concierge suite. $$$$$
The only accessible room for concierge level I am told, after the renovation.
DD has MAJOR issues with change. I simply can not afford mentally to have unexpected changes at check-in. DD has to be "prepped" anytime we go on vacation. When we visited this summer, I found out I could not get a room that would meet her needs for our next trip, only that suite or staying in different part of the resort and adding on the higher service level. We have ressies for Feb to stay in room not near the lounges but get access to services and snacks. It's ridiculous that Hawaii has no rooms accessible after a remodel (!!!!) though I can understand why only 1 CL suite exists.
I called directly to concierge and was assured our add on service was correct and it is available to disabled guests. When I called Special Needs Reservations I was told they no longer do that. I am feeling extra frustrated, at this point I am ready to skip WDW altogether. I don't think that I can risk showing up and hoping it goes well. I'll have DD and my 9 year grandson with aspergers, DDs power chair, medical equipment and service dog AND my grandsons stroller chair! Heck, I am about have my own meltdown!
At this point I feel so overwhelmed. We need Concierge because DD is a food grazer, needs quiet, and for her Disney is more about relaxing and the resort stuff than the parks. The last time we stayed in a regular room I swore never again, as I want some sense of relaxation too as I worked hard to be able to pay for it. That won't happen if DD needs food "now!" and can't deal with a counter service or sit down and I'm all over the place. Plus DD's health issues are getting worse, it's now surgery after surgery and after this trip will she have open heart surgery. I have now made it a major priority to visit Disney a few times a year with and with retirement coming up for me in the Spring, I will try to get her there more often, it's worth the money for me to see her happy and (usually) well accommodated. It's the only thing I spend money on other than medical. I keep telling myself College for a non-disabled kid would never touch the amounts we spend on Disney trips
We don't like CR at all, and DD and grandson "hate" it, so that's not an option. I don't think she would like GF at all, and I know I don't.
DD really likes WL but LOVES Poly. I like Poly, its the perfect place to everyones needs minus this issue.
Oy!
I am a long time Lurker (3 years) that finally joined as I need help planning a trip for DD. Earlier this year took DD (25, high-functioning autism but with more serious speech issues than most with HFA, OI/EDS, and diabetes... and that's just the major stuff!) to Poly, we stayed in a concierge suite. $$$$$

DD has MAJOR issues with change. I simply can not afford mentally to have unexpected changes at check-in. DD has to be "prepped" anytime we go on vacation. When we visited this summer, I found out I could not get a room that would meet her needs for our next trip, only that suite or staying in different part of the resort and adding on the higher service level. We have ressies for Feb to stay in room not near the lounges but get access to services and snacks. It's ridiculous that Hawaii has no rooms accessible after a remodel (!!!!) though I can understand why only 1 CL suite exists.
I called directly to concierge and was assured our add on service was correct and it is available to disabled guests. When I called Special Needs Reservations I was told they no longer do that. I am feeling extra frustrated, at this point I am ready to skip WDW altogether. I don't think that I can risk showing up and hoping it goes well. I'll have DD and my 9 year grandson with aspergers, DDs power chair, medical equipment and service dog AND my grandsons stroller chair! Heck, I am about have my own meltdown!
At this point I feel so overwhelmed. We need Concierge because DD is a food grazer, needs quiet, and for her Disney is more about relaxing and the resort stuff than the parks. The last time we stayed in a regular room I swore never again, as I want some sense of relaxation too as I worked hard to be able to pay for it. That won't happen if DD needs food "now!" and can't deal with a counter service or sit down and I'm all over the place. Plus DD's health issues are getting worse, it's now surgery after surgery and after this trip will she have open heart surgery. I have now made it a major priority to visit Disney a few times a year with and with retirement coming up for me in the Spring, I will try to get her there more often, it's worth the money for me to see her happy and (usually) well accommodated. It's the only thing I spend money on other than medical. I keep telling myself College for a non-disabled kid would never touch the amounts we spend on Disney trips

DD really likes WL but LOVES Poly. I like Poly, its the perfect place to everyones needs minus this issue.
Oy!