Princess Alyssa's Christmas Wish/ GKTW/ Dec 10-16

[cajunfan]

I am glad to hear that about Tink!

 

[pipersmom]

Hooray for PrimeTime! And...down to weeks..just think, before you know it, it'll be days...then hours!! :dance1:

 

[maroo]

wow. I didn't realize it about Tink!

What happens when you "wake Tink?"

Ellie may want to do that this trip?

 

[kdzbear]

wow. I didn't realize it about Tink!

What happens when you "wake Tink?"

Ellie may want to do that this trip?

Do not read if you don't want to hear about How the Wake Up Tink works!




You go into the Tinkerbell's Treasures store and ask to wake up Tink. The cast member will give you a little bell to ring. The child rings the bell and on a screen behind the register pixie dust begins to appear followed by a large Tinkerbell. She does not stay on the screen very long. Then I guess it is reset and ready for the next child. It is cute!

 

[pacrosby]

Awwwwwwww Makes me long for the days when my little girl was, well......little. She's too old for that now

And, of course, Matty and his brothers could give a hoot

Pamela

Matty's Wish Trip http://disboards.com/showthread.php?t=2325607

 

[chrissid7]

Do not read if you don't want to hear about How the Wake Up Tink works!




You go into the Tinkerbell's Treasures store and ask to wake up Tink. The cast member will give you a little bell to ring. The child rings the bell and on a screen behind the register pixie dust begins to appear followed by a large Tinkerbell. She does not stay on the screen very long. Then I guess it is reset and ready for the next child. It is cute!

OMG I know Alyssa would love it!!! Im going to do my very best!! thanks for the info, Im not going to tell her just in case but Im going to give it my best shot.

 

[chrissid7]

Awwwwwwww Makes me long for the days when my little girl was, well......little. She's too old for that now

And, of course, Matty and his brothers could give a hoot

Pamela

Matty's Wish Trip http://disboards.com/showthread.php?t=2325607

I dont think she's too old at all as a motter of fact i dont think im too old teeheehee! Maybe if you tell her you are going to wake tink she will want to do it instead lol!

 

[pipersmom]

I'm not too old either, Chrissi..and I'm with you, Piper will love it too. Yanno...You should think about postponing your trip until March.. *nodnod* LMAO

 

[chrissid7]

I'm not too old either, Chrissi..and I'm with you, Piper will love it too. Yanno...You should think about postponing your trip until March.. *nodnod* LMAO

thats funny you mention postponing because the other day I was thinking how nice it would be if we had ended up on the same week!! Maybe I will have to hurry and hit the lotto and just plan another trip you yall have your dates hmmmmm now if only i knew what #'s were going to come out! lol!

 

[pipersmom]

You can't hit the lotto silly, think of all the meds and appts and hospital stays you'd have to pay for out of pocket! The only one I mess with is MegaMillions occasionally, with the plan of giving the ticket to my Mom and then getting lots of "gifts" from her!

 

[chrissid7]

You can't hit the lotto silly, think of all the meds and appts and hospital stays you'd have to pay for out of pocket! The only one I mess with is MegaMillions occasionally, with the plan of giving the ticket to my Mom and then getting lots of "gifts" from her!

Well see if we hit the lotto, my husband and I have a plan already lol. He will keep his job but only work the minium required, he has time built up so he would just take off a couple of months so that we could splurge and travel (to Disney of course) but we know that without his insurance all of our winnings would only cover medical lol what a shame huh?

The 1 problem with this plan is that we never play the megamillions unless its way up there so our odds re pretty slim LOL!

 

[pipersmom]

Well see if we hit the lotto, my husband and I have a plan already lol. He will keep his job but only work the minium required, he has time built up so he would just take off a couple of months so that we could splurge and travel (to Disney of course) but we know that without his insurance all of our winnings would only cover medical lol what a shame huh?

The 1 problem with this plan is that we never play the megamillions unless its way up there so our odds re pretty slim LOL!

What is hilarious to me is that we've had to sit down and think about things like that! I'm the same way with lotto tix, I might play 2x yearly when it's over about 200 mil..odds would be much better on the smaller jackpots!

 

[chrissid7]

Well I havent been able to post a whole lot but I did want to update a few things. Sunday we had a wonderful Disney night. We watched Cinderella. We ate princess food (small burgers, meatballs) we had mouse food for Jaq and Gus (veggie try with dip in a carved out pumpkin with carrot wheels, an idea we borrowed from bellas trip report) We had asparaGUSGUS (ive never eatn it before but I really enjoyed it) Kara also convinced me to try an artichoke, which I ve never eaten either I kinda liked it, but it was unusual. For dessert we had Cindereallas castle which was a CHOCOLATE FOUNTAIN WEEEEEEEE!!!! We had marshmallows, pretzels, strawberries and bananas dipping in th fountain. The girls were so excited when we surprised them with that. It was great fun. Our cousin joined in on the fun, she is the Disney movie guru as I call her lol.

Now onto funky news. I think i am going to have to take Alyssa in tomorrow to be admitted. We can both tell that she is not doing so well. We really hoped she was going to kick this lil bug on her own but she is having a rough time and I dont think we should wait any longer. I migh t be wrong and they may send us home but I doubt it. I wish I could talk her into getting a picc line so that we could be home but she is not going to have it im sure.

So it looks like we will be doing the rest of the planning from the hospital. With only 3 weeks and 3 days left, im a little stressed. I just hate seeing her start t feel so bad and Im always on the verge of tears everytime we do PFT's because I know she is so close to the bottom of the chart. It just hurts sometimes ya know?

I just thank God and I know that we will get through this! God is good and I know she is going to get better, I just know it!!!

 

[rie'smom]

My thoughts and prayers are with Alyssa and your family.

 

[HeatherSue]

I'll be praying for Alyssa, and for you.

 

[pipersmom]

Well I havent been able to post a whole lot but I did want to update a few things. Sunday we had a wonderful Disney night. We watched Cinderella. We ate princess food (small burgers, meatballs) we had mouse food for Jaq and Gus (veggie try with dip in a carved out pumpkin with carrot wheels, an idea we borrowed from bellas trip report) We had asparaGUSGUS (ive never eatn it before but I really enjoyed it) Kara also convinced me to try an artichoke, which I ve never eaten either I kinda liked it, but it was unusual. For dessert we had Cindereallas castle which was a CHOCOLATE FOUNTAIN WEEEEEEEE!!!! We had marshmallows, pretzels, strawberries and bananas dipping in th fountain. The girls were so excited when we surprised them with that. It was great fun. Our cousin joined in on the fun, she is the Disney movie guru as I call her lol.

Ohh..chocolate fountain, I love it ! It sounds like an awesome night!


Now onto funky news. I think i am going to have to take Alyssa in tomorrow to be admitted. We can both tell that she is not doing so well. We really hoped she was going to kick this lil bug on her own but she is having a rough time and I dont think we should wait any longer. I migh t be wrong and they may send us home but I doubt it. I wish I could talk her into getting a picc line so that we could be home but she is not going to have it im sure.

So it looks like we will be doing the rest of the planning from the hospital. With only 3 weeks and 3 days left, im a little stressed. I just hate seeing her start t feel so bad and Im always on the verge of tears everytime we do PFT's because I know she is so close to the bottom of the chart. It just hurts sometimes ya know?

I just thank God and I know that we will get through this! God is good and I know she is going to get better, I just know it!!!

Oh geez hon, so sorry you're having to go through that. They've never mentioned putting in a port for Alyssa? If she's in more than 2-3 times a year for IV's, I'd ask about it..she'd be completely out, so I wouldn't think she'd object too much? They can do the blood draws and everything right off it as well. Piper always preferred a PICC 'cause she knew it would be less sticks.
I do know what you mean about the PFT's..I have broken down a couple times (outside of Piper's presence) talking to the Dr afterwards..of course the Dr looked at me like I was nuts, but that's nothing new, lol. You have my # if you need to talk please call!

 

[maroo]

Well I havent been able to post a whole lot but I did want to update a few things. Sunday we had a wonderful Disney night. We watched Cinderella. We ate princess food (small burgers, meatballs) we had mouse food for Jaq and Gus (veggie try with dip in a carved out pumpkin with carrot wheels, an idea we borrowed from bellas trip report) We had asparaGUSGUS (ive never eatn it before but I really enjoyed it) Kara also convinced me to try an artichoke, which I ve never eaten either I kinda liked it, but it was unusual. For dessert we had Cindereallas castle which was a CHOCOLATE FOUNTAIN WEEEEEEEE!!!! We had marshmallows, pretzels, strawberries and bananas dipping in th fountain. The girls were so excited when we surprised them with that. It was great fun. Our cousin joined in on the fun, she is the Disney movie guru as I call her lol.

Ok...this sounds like SO MUCH FUN! And that chocolate fountain......... YUM!

Now onto funky news. I think i am going to have to take Alyssa in tomorrow to be admitted. We can both tell that she is not doing so well. We really hoped she was going to kick this lil bug on her own but she is having a rough time and I dont think we should wait any longer. I migh t be wrong and they may send us home but I doubt it. I wish I could talk her into getting a picc line so that we could be home but she is not going to have it im sure.

That is horrible! I am so sorry. Hopefully they can get her situtated soon and feeling much better! I agree you guys should ask about getting a port put in...I talked to Lucas last night (one of the DIS wish kids) and he just got his out - but he LOVED his - no more sticks for IV's, etc.

So it looks like we will be doing the rest of the planning from the hospital. With only 3 weeks and 3 days left, im a little stressed. I just hate seeing her start t feel so bad and Im always on the verge of tears everytime we do PFT's because I know she is so close to the bottom of the chart. It just hurts sometimes ya know?

Big hugs to you. I am so, so sorry.

I just thank God and I know that we will get through this! God is good and I know she is going to get better, I just know it!!!

I will be praying for you guys!!! Hang in there and keep us posted.

 

[chrissid7]

Thanks everyone! The office was full today so we are going to go in tomorrow at 1:30, so for today we are going to do intense therapy and just keep the antibiotics flowing by mouth.

I have actually been thing a lot about the port for over a year now. When Alyssa got the feeding tube in August I asked about it then, but because she was so sick then they didnt want to risk longer sedation and more infection exposure. They wanted to wait until she is a lil healthier. We I wouldnt want to do it this visit if she ends up being admitted because we are only 3 weeks from Disney and I just dont want her to be sore or "protective" She tends to Protect things for months meaning she wont let you come near a site (Ivs, injection sites, g-tube) she stays so tense. Maybe on the next visit but she keeps saying no! She is so sweet and sensitive until it comes to her care lol then she is the boss. I love it that she has opinions about it and that she is very involved, she needs to be.

 

[pipersmom]

They wouldn't implant it this visit anyway with her being sick unless they couldn't get an IV or PICC going. Keeping my fingers crossed and praying for you guys! At least you get time to get everything together. (I tend to pack a hospital bag when I think we'll get admitted, lol).

 

[chrissid7]

They wouldn't implant it this visit anyway with her being sick unless they couldn't get an IV or PICC going. Keeping my fingers crossed and praying for you guys! At least you get time to get everything together. (I tend to pack a hospital bag when I think we'll get admitted, lol).

The thing that worries me everytime too is that one day they are not going to get 1 going. She already has about used up all of her veins. It gets harder and harder. We keep a bag packed that has her art supplies, my lil coffee pot, shower stuff, extra slippers for her, a universal remote (the one on the bed stinks and they never have any universals) we actually have the codes now to all of the tv's and dvd players on 1 lil sticker. Just odd and end things that we have figured we need on each trip so we just keep it in that bag by the way that bag has wheels which was also planned after too many sore backs and shoulders lol.

Im a lil bit ocd when it comes to stuff I guess but this is our life and we need it simplified however possible as you know too well.