Hi, I am going to attempt to write a pre-trip report. My youngest son is a Make a Wish kiddo and I am super excited for him. We are a family of 6, containing 4 boys! I am queen of the castle.
So, here we go:
Cast of characters-
Me (Riali) 32 I am the Disney addict of the family. I have managed to convert my husband (to a point) and most of my boys appreciate some level of Disney. I am a type 1 diabetic and have been for 26 years. I wear an insulin pump and that manages to keep things interesting at times. I work at my boys school part time and spend the other part of my life taking care of my boys.
DH (Chris) 35 I met my husband in a college sign language class. We didn't date long and to his family's disappointment
we were married pretty quick. But we are approaching our 15th year anniversary this year and are pretty proud of that! He is the calm, easy going type, I on the other hand am his complete opposite. He is a huge help, especially on vacation!
DS #1 (Jarrett) 12 Jarrett is our oldest and has high functioning autism. He is very intense in certain areas and has managed to teach me exactly how much patience I have or don't have. He is very into BSU football and is a clogger (which I LOVE). He also has a cecostomy tube and does daily flushes. He is interested in the workings of Disney and has expressed that he would like to dance for Disney someday.
DS #2 (Keegen) 10 Keegen is our gentle giant. Keegen is very slow paced, easy going, helpful kiddo. There are days that I could not get by without Keegen's help. He is very into animals and science. He loves Bill Nye the Science Guy and pirates. He is the "favorite" brother because he is so gentle-minded.
DS #3 (Marshall) 7 (next week) Marshall is the typical little brother. He is a little on the intense side. He is sharp as a tack, though, and will be glad to let you know. He is very into pirates as well. He is a rough and tumble boy and loves to play.
DS #4 (Prescott) 4 Prescott is our wish kid. He is a sweet little boy that has faced a pretty rough road so far. Prescott was born at 35 weeks with a concealed abruption. He had to be resuscitated at birth due to respiratory distress. He was put in the NICU where he was doing well until his 3rd day of life. Up until this point he had been weaned off of the ventilator and was going to start feeds. But then the worst day of my life happened, Prescott was overdosed by the hospital with magnesium. His level was 15.6 (normal high for an adult is up to 2.5
) Anyway, after going into respiratory arrest and being put on the oscillating vent, loosing deep tendon reflexes, and pupillary response, it was figured out and my little boy was saved. He spent 21 days in the hospital after that. In the hospital he had hypertension, seizures, and feeding difficulties. All of those problems are still a part of him today. Prescott is developmentally delayed to about a 2 year old level. He is mostly non-verbal, he does have a few words and can sign. He has a chromosomal deletion, a feeding tube, carnitine deficiency, an immune deficiency, MRSA, hypotonia, reflux (fundo done), asthma/lung issues, seizures, chronic sinus infections, hypertension, hemifacial microsomnia, soft palate issues, dysphagia, fatigue issues, suspected mito, and more. He has had over 15 different surgeries and too many procedures to count. However, he "looks" pretty good. He is a sweet boy that is obsessed with trains and "Key" his word for Mickey Mouse
.
Prescott had a pretty complicating approval for his wish, but we got it!
Prescott was referred to Make a Wish when he was 3, but his family dr. wouldn't sign off on it because "he did not have a death date". So, we sent it on to one of his specialists. That dr. (S) said he would "help us out". Within that same week, his nurse (not the nicest lady in the world) called and said that (S) "did not feel comfortable signing it", this was in April. I did question her if he really looked at it, but she said that he was sitting right there. So, I dropped it. I never got the Make a Wish denial letter, though. Then this past October Prescott needed to go to the Mayo clinic and our community had many fundraisers for Prescott and someone referred him to Wishing Star. We switched dr.'s about that time, so I called MAW and told them to not send any info to our old family dr. The lady replied that she was "sorry for not calling sooner, but Prescott's dr. (S) had signed off on Prescott's wish in September!!!!! So, then Wishing Star called and said Prescott had been approved for a wish through them. So, I had to decide between MAW and Wishing Star. So, I chose MAW and here we are.
He wished for "Key's Home (signed)". My husband and I both work in the school district (As well as my oldest son is a bit obsessed with Star Wars), so we asked for June 2013. We asked to have my mom go too. She is a nurse and she helps us with Prescott and is a huge part of his life, but that got turned down. So, we will be going without her and calling a lot. We had our wish reveal today and I am so excited!!!!!
We found out that the month of June was approved and we will find out final dates later. So, now I just plan, plan, plan.
Hope that works for a pre-trip report. Thanks for letting me share in my excitement!
So, here we go:
Cast of characters-
Me (Riali) 32 I am the Disney addict of the family. I have managed to convert my husband (to a point) and most of my boys appreciate some level of Disney. I am a type 1 diabetic and have been for 26 years. I wear an insulin pump and that manages to keep things interesting at times. I work at my boys school part time and spend the other part of my life taking care of my boys.
DH (Chris) 35 I met my husband in a college sign language class. We didn't date long and to his family's disappointment
we were married pretty quick. But we are approaching our 15th year anniversary this year and are pretty proud of that! He is the calm, easy going type, I on the other hand am his complete opposite. He is a huge help, especially on vacation! DS #1 (Jarrett) 12 Jarrett is our oldest and has high functioning autism. He is very intense in certain areas and has managed to teach me exactly how much patience I have or don't have. He is very into BSU football and is a clogger (which I LOVE). He also has a cecostomy tube and does daily flushes. He is interested in the workings of Disney and has expressed that he would like to dance for Disney someday.
DS #2 (Keegen) 10 Keegen is our gentle giant. Keegen is very slow paced, easy going, helpful kiddo. There are days that I could not get by without Keegen's help. He is very into animals and science. He loves Bill Nye the Science Guy and pirates. He is the "favorite" brother because he is so gentle-minded.
DS #3 (Marshall) 7 (next week) Marshall is the typical little brother. He is a little on the intense side. He is sharp as a tack, though, and will be glad to let you know. He is very into pirates as well. He is a rough and tumble boy and loves to play.
DS #4 (Prescott) 4 Prescott is our wish kid. He is a sweet little boy that has faced a pretty rough road so far. Prescott was born at 35 weeks with a concealed abruption. He had to be resuscitated at birth due to respiratory distress. He was put in the NICU where he was doing well until his 3rd day of life. Up until this point he had been weaned off of the ventilator and was going to start feeds. But then the worst day of my life happened, Prescott was overdosed by the hospital with magnesium. His level was 15.6 (normal high for an adult is up to 2.5
) Anyway, after going into respiratory arrest and being put on the oscillating vent, loosing deep tendon reflexes, and pupillary response, it was figured out and my little boy was saved. He spent 21 days in the hospital after that. In the hospital he had hypertension, seizures, and feeding difficulties. All of those problems are still a part of him today. Prescott is developmentally delayed to about a 2 year old level. He is mostly non-verbal, he does have a few words and can sign. He has a chromosomal deletion, a feeding tube, carnitine deficiency, an immune deficiency, MRSA, hypotonia, reflux (fundo done), asthma/lung issues, seizures, chronic sinus infections, hypertension, hemifacial microsomnia, soft palate issues, dysphagia, fatigue issues, suspected mito, and more. He has had over 15 different surgeries and too many procedures to count. However, he "looks" pretty good. He is a sweet boy that is obsessed with trains and "Key" his word for Mickey Mouse.
Prescott had a pretty complicating approval for his wish, but we got it!
Prescott was referred to Make a Wish when he was 3, but his family dr. wouldn't sign off on it because "he did not have a death date". So, we sent it on to one of his specialists. That dr. (S) said he would "help us out". Within that same week, his nurse (not the nicest lady in the world) called and said that (S) "did not feel comfortable signing it", this was in April. I did question her if he really looked at it, but she said that he was sitting right there. So, I dropped it. I never got the Make a Wish denial letter, though. Then this past October Prescott needed to go to the Mayo clinic and our community had many fundraisers for Prescott and someone referred him to Wishing Star. We switched dr.'s about that time, so I called MAW and told them to not send any info to our old family dr. The lady replied that she was "sorry for not calling sooner, but Prescott's dr. (S) had signed off on Prescott's wish in September!!!!! So, then Wishing Star called and said Prescott had been approved for a wish through them. So, I had to decide between MAW and Wishing Star. So, I chose MAW and here we are.He wished for "Key's Home (signed)". My husband and I both work in the school district (As well as my oldest son is a bit obsessed with Star Wars), so we asked for June 2013. We asked to have my mom go too. She is a nurse and she helps us with Prescott and is a huge part of his life, but that got turned down. So, we will be going without her and calling a lot. We had our wish reveal today and I am so excited!!!!!
We found out that the month of June was approved and we will find out final dates later. So, now I just plan, plan, plan. Hope that works for a pre-trip report. Thanks for letting me share in my excitement!
) They revealed to Prescott and his brothers that we were going to WDW!!!!
So, we ran to the dr., because Prescott was/is not feeling well. Then I came home tonight to work on my disboards stuff. 
Thanks!!!
But I have heard of a lot of people on here get to extend so I hope you are one of them! 
She said she was from an organization called "Dare to Share", I have never heard of that organization before. But she had wrapped up toy trains and clothes for him (I don't know how she knew about his illness, his likes, his size, or our address 
I really do hope we get our requested dates. Prescott "asked" to see "Key now?" So cute! 
So, thats a holiday update on us. Hope the holidays were great to everyone else.
