Prayers needed for my step-niece

[tc]

She is seven and has Rett Syndrome. Rett is a neurological disease, and Lexi is in stage IV. She is in a wheel chair, eats from a feeding tube, has sever scoliosis, has bad seizures, and communicates with a picture board and sign language. Although this sounds bad, she's a very engaging, happy little girl, who loves to laugh.

She was admitted to Children's in St. Louis last night with pneumonia, and send to the PICU this morning after a long seizure that collapsed one of her lungs. They have her sedated. They are trying to decide if they will insert a tube to reinflate her lung, or see if her body can do it on it's own. The doctors are concerned that the medication it takes to sedate her further to insert the tube will slip her into a coma that she will not recover from. Her parents (my sister's husband and his ex-wife) are making the decision right now. If they don't put in the tube, she could die if her body doesn't do the work. Her little body is so ravaged from the seizures (part of Rett) and her immune system so bad, the doctors are not giving them much hope.

Please pray for little Lexi and her family.
I'll keep you all posted.

 

[browneyes]

Just said a prayer for Lexi.

 

[Beauty]

Oh Kelli, I'm so so sorry! That poor baby! Prayers are being said immediantly for little Lexi and the entire family.

 

[Serena]

My heart hurts when I hear things like this. I just said a prayer for Lexi, I hope she has a full recovery. I can only imagine how scared her parents are.

 

[mrsmom]

My prayers are with Lexi and her family.

kim

 

[tc]

Thanks for the prayers. My sister is communicating with me through MSN messenger, she's home with her two preschoolers is just waiting by the phone to hear the decision that's made. My parents are on the way there, so she can go to the hospital to be with Matt, but they live in souther Indiana, so it's a few hours. She's just beside herself with worry and not knowing.

 

[DoeWDW]

I'm sending prayers up for Lexi and all those who love her.

 

[Big V]

Saying a prayer for little Lexi.

 

[nativetxn]

little Lexi is in my prayers. {{{HUGS}}} tc

 

[momsal]

Hugs and prayers!!!

Please keep us posted.

 

[helenabear]

Kelli, my prayers are with Lexi and all her loved ones.

 

[poohbears5]

Oh I hate to hear such awful things happening to little ones I will keep Lexi in my prayers.