Prayers and PD for DS please! UPDATE 4/19, page 3.

[ltldeb]

I'm so glad to hear that Richard is home and everything is going great for him.

 

[kbeverina]

Originally posted by DebbieB

Her 9 year old sister was tested and she has the gene too that may cause it. So she's in a clinical trial using insulin pills to see if it will delay the onset. They willn't find out until next month if she has been getting the insulin pills or a placebo. Meanwhile, she gets tested regularly.

My daughter is in the same clinical trial, but by the time she entered, they weren't dividing them into groups and treating anymore. Now they're just tracking, we have to have her blood drawn once a year to check for antibodies. The peace mind is nice when the report comes back negative, but I've never been told if she has the gene or not. I suspect strongly that she does because she's the only one in my son's endo's practice that has to continue with yearly blood draws. My husband, his mom's brother, his mom's sister and her sister's daughter are all Type I. His mom and one of her other brothers has rheumatoid arthritis, which they've linked to the same gene. My son's endo said a sibling in her practice was able to delay onset by 18 months--he was in the group that had very small insulin injections daily.

Things really have changed a lot since my husband was diagnosed--I really had to convince him that carb counting was the way to go--he'd been told to avoid any food that had sugar in the top three ingredients.

Sandy--we're doing the conference in July, you should go! Also, my son has been to Camp Glyndon in Maryland and loved it. Unfortunately it was destroyed by the tornadoes in La Plata, but this year they're supposedly moving it somewhere else. It was a great experience for him.

 

[Pin Wizard]

Originally posted by kbeverina
Sandy--we're doing the conference in July, you should go!

Have you been to a conference before or is this the first?

 

[mamajoan]

Excuse my late reply..

I am glad to hear that your son is adjusting well to medication and regiment. GOOD FOR HIM!!! GOOD FOR YOU!!!

I am a Type 1 diabetic, the Diabetic lifestyle has changed so very much! God Bless who ever discovered CARB COUNTING!!!
as a way to help manage this disease!

I am sure your son will soon be doing the entire deal by himself, including his injections. You have rec'd great advice here. I just wanted to add that you will have to work with his school nurse and staff to assure that he will have everything necessary to care for him during school. Especially get them used to How to deal with an Insulin reaction.
God Bless and best wishes,
Joan

 

[vald1977]

So happy to hear that your son is back home again . It sounds like he is in great hands with his specialists.

 

[kbeverina]

Originally posted by Pin Wizard
Have you been to a conference before or is this the first?

This will be our first--they alternate east and west coast and in 2001 we already had a trip planned. We really want to have him try a pump out--he likes the idea, but is hesitant about the whole insertion thing.