Positive thoughts please-ups and downs p.42

Thank you for clearing that up. I misinterpreted what you were saying. My biggest fear is that I’ll lose him so I’m touchy about even a thought in that direction.

They all know I am the one to talk to because he literally doesn’t have any blood family besides his ******* brother. I know they have some papers for me so I’ll get them tomorrow when I go back up.

I do have to keep that in my mind. I think I was under the impression that he would just continue to improve every day and he’d be home by next weekend. Not that he’d be 100%, but that he’d be healthy enough to leave the hospital.

I talked to him a few minutes ago and he’s ok, but utterly pooped out from yesterday. So, my expectations have been adjusted and it will take as long as it takes.
Absent any other information, I don't think that was an unrealistic expectation. I also think @Pea-n-Me provided you with a very valuable and informative different perspective, in terms of how the illness may resolve in a less than perfectly linear fashion. FWIW, I would have been like you - assuming that now the diagnosis is made and the treatment has been started that he'd just improve every day, and I'd have been equally alarmed by the set-back.
 
Hang in there, sounds like you’re on the right path here, just might be a bit of doubling back from time to time. Hopefully tomorrow is better.
 
Absent any other information, I don't think that was an unrealistic expectation. I also think @Pea-n-Me provided you with a very valuable and informative different perspective, in terms of how the illness may resolve in a less than perfectly linear fashion. FWIW, I would have been like you - assuming that now the diagnosis is made and the treatment has been started that he'd just improve every day, and I'd have been equally alarmed by the set-back.


You’re right. I think the ‘setback’ really got to me because I’m so overtired. I’ve been up since 3 am...and it’s now 715 pm. I think I’m going to take two sleeping pills tonight and force myself to get some sleep.
 
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More good news!

I just got a call from the on duty nurse and he’s been moved out of icu!! He had a very restful night and now is on a regular floor. I’ve never been so happy to be woken up before <3

I also got about 8-9 hours of sleep and am going to try for another hour before I get up for work.
 
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More good news!

I just got a call from the on duty nurse and he’s been moved out of icu!! He had a very restful night and now is on a regular floor. I’ve never been so happy to be waken up before <3

I also got about 8-9 hours of sleep and am going to try for another hour before I get up for work.
That is positive! Thanks for keeping us posted. :wave2:
 
So, I just got home from today’s visit. I was there for three hours and he was able to stay awake the whole time. He still has no use of his arms and legs which the doctors are still trying to figure out. I don’t want to go down that road yet but what if he never regains use? I know we’ll figure it out but I don’t know how.
 
So sorry to read of your husband’s illness. I’m glad he’s making progress & now out of ICU. He will hopefully be able to rest much better in a regular room. ICUs are noisy, disorienting places & most patients can’t get very much sleep there. And sleep & rest are important in recovering from these types of illnesses. It is hard not seeing daily improvement, but unfortunately recovery is often slow at the beginning. Glad you are taking the time to get some rest yourself too.

Positive thoughts for you both.
 
So, I just got home from today’s visit. I was there for three hours and he was able to stay awake the whole time. He still has no use of his arms and legs which the doctors are still trying to figure out. I don’t want to go down that road yet but what if he never regains use? I know we’ll figure it out but I don’t know how.
Is paralysis a possibility caused by the type of infection he has? If I were you I'd be asking a million questions and cross-referencing everything I was being told with further research. I know everyone copes differently, for me, information is empowering.
 
Is paralysis a possibility caused by the type of infection he has? If I were you I'd be asking a million questions and cross-referencing everything I was being told with further research. I know everyone copes differently, for me, information is empowering.

I do write stuff down and then google all possibilities. That’s always a bad idea. Yes, the paralysis could be caused by the infection. I do like information but the more I know the more I panic. It’s such a fine like between knowing enough and knowing too much.
 





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