Pixie Dust please :-)

[Tink78]

I hope everything went ok today.

Sending lots of love and pixedust to you.

 

[alisonbestford]

Well, we're back and, although the news wasn't too good on the tumour front, we get to go on our holiday

Joking aside, basically the consultant said that there were two possible options - one was to wait until DH gets problems with hydrocephalis and then they would insert a shunt.
The second was to do a mega, major op which would involve, literally, removing most of the left hand side of DH's skull and carotid artery! Hmmm!
As he explained, the second option, at this stage of play would be like playing Russian Roulette as there would be a good chance that DH wouldn't even survive the surgery

So, we're going with the 'closely monitoring, and reporting any problems' option for now (another out patient appt in 3 mths time, when we get home) and I'm going to get planning 'that there' trip

I guess there will be 'sensible' people who will think that we shouldn't go and should save any savings for when DH can't work but, seeing as everything, bar the car hire, chapel to re-new our wedding vows and limo are paid for, we're going to build some more memories for the months and years ahead when things, unfortunately, can only really get worse

If anyone has any ideas of things we can do to make the trip more memorable.....?

Hope I haven't left it too late to book the chapel or get a ressie for Chef Mickeys'

Thank you all so much for your kind wishes and prayers.
DH hasn't had chance to read them all yet so I'll be passing over to him once I've sent this

 

[Tink78]

I don't think you are silly to still go to WDW.

I think you all deserve that trip more than anyone in the world, so you go for it, have a brill time and get yourself a whole bunch more special memories.

I can't believe how brave you are being.
You are a credit to your DH and he is lucky to have someone like you.

Wishing you some more pixie dust and love for the future.


Now go get planning!

 

[mandymouse]

You and your family are remarkable, I don't how I would cope, but you are all wonderful. I'm so pleased that you are still able to take your holiday and make more speical and treasured memories - I hope you have the best holiday ever

 

[sue&and]

You are definitely doing the right thing in still going. The 'sensible' ones are probably the same people who have never encountered something like this and so don't realize that, under these circumstances, priorities change. Live for today and continue to make fantastic memories for all of you!

 

[Hilary]

I'm so pleased you've been given the opportunity to take the trip you've planned. Who cares whether anyone else thinks you should go or not? You and your family think you should go, and that's what matters - no-one else can truly appreciate the decision you have to make.

I truly hope this trip provides you with many, many wonderful experiences to treasure.

 

[wils]

Go make memories! I'm glad that your trip is no longer in doubt. I don't have any ideas but I hope your trip is that extra bit magical for you all

 

[natalielongstaff]

sometimes i think we are all TOO sensible, you go and have a great holiday ! seems to me you all deserve it

 

[Funniebunny]

I am so pleased that you still get to go away and make more special memories together. I don't know how you do this but can you see if you can be in the car during the Magic Kingdom parade, that would a really nice memory and something that not everybody gets to do. I hope all goes well and you and your family will be in my thoughts and prayers. Please let us know what special things you are going to do on this wonderful holiday. A smile a day keeps the doctors away

 

[traycie2201]

Alison, i was pleased to read your update, not obviously for poor hubby's prognosis but that your family get to make wonderful memories for the future which will last a lifetime, so i say stuff sensible, renew your vows, go on a carriage ride, be goofy for a little while and enjoy your time together. Take thousands of photos while you are there. Have a stone engraved at epcot? for your daughter to see on visits when she's older Sending hugs to you all. When hubby does have his op please know that all the diser's will be supporting you long distance and praying for you all. Traycie

 

[kristieuk]

Just to echo what everyone else has said, your whole family deserve to have a wonderful holiday. You will be creating absolutely priceless memories no-one can ever take away.

Have a wonderful wonderful holiday. I will keep you all in my hopes and prayers. You know you have so much support here, you always have somewhere to come if you ever need a big hug and a friendly smile.

Lots of love and best wishes to you all xx

 

[diberry]

ITA - go for it!!!!! Have a really wonderful unforgettable holiday and enjoy every minute!! I admire your courage so much!!

 

[TinkTatoo]

I've only just caught this thread and wanted to send some and and hope you have a fantastic and well deserved holiday

 

[alisonbestford]

ITA - go for it!!!!! Have a really wonderful unforgettable holiday and enjoy every minute!! I admire your courage so much!!

I haven't been courageous enough to tell my mum the outcome of the outpatient appt, or that we're still going yet

She'll be the 'sensible' one who thinks we should save the money to pay the bills............... and that we should go when DH is 'better'

Thanks to everyone for encouraging me to go with what I know is the right decision

 

[ely3857]

Alsion I am sooo glad your trip isnt been comprimised. I am sure you will all have a wonderfull time

 

[florida sun]

Alison, you go and have a wonderful time


Sue

 

[Clare D]

I remember reading on the US trip reports that somebody had photos taken by a Disney photographer in one of the parks before official opening. You could have some taken as part of your renewal of vows ceremony.
I am so glad that the consultant has allowed you to go on holiday, I'm sure you all could do with it.
I am with you 100% that you should go.
Clare x

 

[CarolynU]

Alison I have only just caught up with this. You are all in my thoughts. If it's any consolation my DH has cancer ( colon and secondary liver ) which he has been battling for a while, and we have just returned from a quick New Year's trip to WDW, and I am beginning to plan a Summer return trip. Today we heard that it is back in the liver again for the second time, and I am sure that I should be concentrating upon the future when DH can no longer work, not trips and holidays but I'm not. It may be sensible, but I want to enjoy what I can as a family for as long as I can. So you do what feels right for you. It is your choice and whatever you decide is right is just that.
Carolyn

 

[alisonbestford]

Alison I have only just caught up with this. You are all in my thoughts. If it's any consolation my DH has cancer ( colon and secondary liver ) which he has been battling for a while, and we have just returned from a quick New Year's trip to WDW, and I am beginning to plan a Summer return trip. Today we heard that it is back in the liver again for the second time, and I am sure that I should be concentrating upon the future when DH can no longer work, not trips and holidays but I'm not. It may be sensible, but I want to enjoy what I can as a family for as long as I can. So you do what feels right for you. It is your choice and whatever you decide is right is just that.
Carolyn

Hi Carolyn

Sorry to hear about your DH.
I hope you had a fantastic NewYear.
Have fun planning your summer trip-it's much more rejuvenating than worrying about the bills......

 

[Minniespal]

Think you are doing the right thing Alison. At the end of the day we all have to do what is right for us but you are a long time dead. I'm sure you will all have a fantastic time and come back with lots of truly magical memories.