OT: Need words of Encouragement-udate post 16

mommyoftwinfants

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Nov 4, 2005
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Tomorrow is the last day I have to decide if I want to go ahead and go with open heart surgery for my son or go with just 1 button. My son was born with 1 large hole and 2 small holes in his heart. I have been driving myself crazy about this since he was a baby worrying about what decision to make and if it is the right one. I honestly believe my son will not be able to handle himself after open heart surgery, he has a very feisty temper, my own fault for giving him the name "the fiery one". If I decide to just close one hole now there is always the what ifs later on. Normally this surgery is done at a much younger age but since my guys are so small we kept waiting and hoping that they would close on thier own but they never did. Please just keep us in your prayers tomorrow that I make the right decision. Who knows, maybe when we go in for our appointment tomorrow by some miracle that the holes closed on their own.
 
Oh, my heart breaks for you! That is such a hard decision to make. I know you will know in your gut what the right thing to do is. A mom always does. I'll be praying for your family.
 

Mommyoftwinfants, you and your little guy have my prayers for certain. :hug: I can't imagine having to make such a huge decision like this. Needless to say, I don't envy your position, and my heart goes out to you in a bigger than Texas way. Please report back when you can.:goodvibes

BTW, what part of Texas? I'm 80 miles east of Dallas (kind of close to Tyler).
 
I pray the right decision is made. Like Sunshinegirl said. You will know in your gut - heart. Then once a decision is made, don't second guess....You'll be doing the right thing.
Angela
 
pixiedust: Sending some pixie dust your way. What a tough decision to make.
 
Sending good thoughts and prayers for you and your family! Please keep us updated on how it went!

Hang in there! pixiedust:
 
OMG, Thank Y'all so much for your thoughts and prayers. I am on cloud nine right now:cloud9: He doesn't need open heart anymore the doctor feels that the one 'button' will be able to cover all three holes or at least enough of the 2 small ones so they won't affect the right side of his heart. The bad news is that there is tremendous growth in the right side when up until now he has yet to show any abnormal growth. But he says with the large hole taken care of w/some of the small holes being covered his heart should go back to normal in just a short amount of time. Sorry if my post dosn't really make since I am dead tired right now and could not sleep a wink last night and it is a very long drive to see the specialist. Again Thank Y'all so much for your prayers. We go back in July and will keep you updated.
 
Just wanted to let y'all know surgery is scheduled for next month if you could all please keep him in your prayers. When we went to his appointment his heart had significant growth again. His heart on one side is the size of a grown mans heart instead of a 4yr olds. It is just completely mind boggling how his heart has been growing at a normal rate for 4 yrs then all of the sudden within 6 months his heart is so enlarged.
 
WOW...you and your family will be in my thoughts and prayers!! Keep us posted on what is going on...we are hear to listen :love:
 
I hope that eveything goes well. I'll keep you and your precious little on in my prayers!
 
I'll be praying for you!!! And for your little guy and the doctors and nurses!!:grouphug: :grouphug:
 











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