Nov 26-Dec 7th Trip, allergies/ASD/OCD/wheelchair at WDW/Universal/KSC report

EvangelineG

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Apr 4, 2011
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We’ve been back from our trip for just over a week now, slowly digesting it, and getting settled back into the regular routine. All in all it was an incredible trip! I would go back tomorrow if I could! We traveled with my entire family (10 of us) and my two sons and youngest sister have some special needs. I guess I’ll divide this into 3 parts, because it has turned out longer than I expected.

#2 Post: Allergy Info
#3 Post: ASD & OCD stuff
#4 Post: Wheelchair Tales
 
First up, the allergy perspective:

Both of my sons have multiple anaphylactic food allergies.
E- tree nuts & eggs
L –peanuts, eggs, all legumes except for soy and green beans, mushrooms

At WDW we ate at:

1. Liberty Tree Tavern. Lunch at the Liberty Tree Tavern ended up being my second favourite meal of the trip. I was very nervous because we almost never eat out. Our server was great. The chef came out to speak with us right away, and was warm, friendly and knowledgeable. He answered my questions, and immediately put me at ease that he understood the severity of the allergies and how to cook safely for our sons. They both ordered Angus Chuck Burgers with big fat “steak cut” French fries, and chocolate milk to drink. The food arrived looking fantastic, and in absolutely enormous portions.

2. Tokyo Dining. The restaurant itself was beautiful, but this ended up being my most stressful meal of the trip. At this restaurant, a manager not a chef came to our table to discuss allergies. At first I was relieved to have someone English speaking, I had been worried about a potential language barrier, but the manager was chilly, brusque and dismissive. She seemed put out by my request to have their sushi made on fresh mats etc (to avoid cross contamination with egg) and informed us curtly that that would make our food take longer. Um, yeah…that would be a grave inconvenience vs. my sons dying. Also bear in mind that this was the first seating of the day, so my request shouldn’t have been a huge inconvenience. She would not take my sons’ food orders, and said to give it to our server. I ended the conversation really worried about whether our sons would be able to eat here safely. We went ahead and ordered anyway. The waiter was impeccably polite and easy to communicate with. I gave him one of the business cards I had printed up with the boys’ allergy info, and reaffirmed our needs and the severity of the allergies with him. I was still not feeling 100%, and debating whether or not to cancel and leave, when our waiter came back to the table. He had given our card to the chefs, and I didn’t have to worry they would make sure the food was completely safe. This was exactly what I needed to hear. I really appreciated him taking the time to come back and reassure me, and if not we would have left. We went ahead with our meal and the food was indeed safe for the boys (smelt & salmon roe nigiri, Philadelphia and cucumber rolls). I am really glad that the boys got to eat sushi in “Japan” which was very high on their wish list, but I would not go back to eat again. If (when!) we go back to WDW, we will stick to the Disney-owned restaurants.

3. Sci Fi Dine In. We were originally supposed to go to Pizza Planet in DHS, but one of my sons has decided he absolutely hates pizza in the months since we made our dining plans, and there’s nothing else on the menu there for him to eat. I was also concerned about counter service at a peak time from an allergy perspective (5:30-6pm), so we made a last minute ADR for Sci Fi. I am really glad we changed plans. The meal at Sci Fi was one of the highlights of our day. The food was pretty good(L had a HUGE burger, and E was able to order pizza from the kids menu to ease his disappointment over missing out on Pizza Planet), and it was made allergy safe, with the Chef coming to our table and inspiring confidence in his hands. The service was excellent, and the boys even got to order safe chocolate shakes. It was a very enjoyable meal.

4. Flame Tree BBQ. No problem getting safe food for the boys here. E had BBQ chicken and grapes, and L had BBQ ribs and grapes (none of the sides were safe). We hit the restaurant just before the lunch rush, and were able to talk to a manager/chef very quickly. He and I went through the binder together, and the boys’ food was ready in no time. It was very smooth and quick.

5. Liberty Inn. The manager was super nice and extremely thorough. The safest option was for the boys’ food to be baked separately here. The manager warned us that unfortunately this would take a while. We ordered Allergy Free Chicken Tenders with baked fries for L, and a burger with baked fries for E. Their food did take a really long time, and the manager was very apologetic when it finally came out, but it was prepared with great care (I think the manager took care of it himself) and was again, completely safe, so we didn’t mind waiting longer one bit. We got such good service here, I would recommend this option for anyone who has allergies and is eating at Epcot.

6. Tony’s Town Square. Tony’s was OK from an allergy perspective The chef came out to speak with us and take the boys’ orders, and although we could tell that our particular list of allergens was a challenge given their menu, he gave us some good options and I felt confident. I didn’t like the fact that the runners delivering the allergy-safe meals didn’t keep them separate from the other meals, and seemed confused and slightly irritated when we questioned them about it. Still, the food was safe. E really enjoyed his egg free meatballs and spaghetti, but L didn’t really like his egg free meatball sliders. He managed to choke down half of one slider and a handful of cherry tomatoes. I’m not sure if it was the food itself, or the close quarters of the table (this was the most challenging meal from a proximity/OCD POV for him), or simply the fact that he was super tired at this point. Either way, he was a champ. He did his best. He did not meltdown, and he stayed at the table while we ate.

7. Sanaa. The best meal of our trip from every perspective! Our server Sima, was the best of our trip. On a trip where we received almost uniformly excellent service, he was the cream of the crop. Chef Bob and Chef Ron came to our table, not just once, but several times during the meal to make sure all the boys’ allergy dining needs were cared for, and they were so knowledgeable about allergies that I was immediately completely at ease. Really, it was just extraordinary. The food itself was delicious. E had tandoori chicken. L had a burger on naan bread (are you getting a burger theme for L on this trip? The kid ate a lot of burgers!). They both ate almost every bite, which is practically unheard of, especially for L! The chefs also brought the boys fruit for an appetizer and made them special Strawberry smoothies for dessert. We had this meal on the last day of our trip before leaving for the airport, and it was the perfect way to end our vacation. We would go back anytime. Heck, if we lived closer, we’d go back once a week!
Snacks around the world included: Mickey premium ice cream bars, ice cream cones from Sunshine Tree Terrace, Kaki Gori, Divvies caramel popcorn and jellybeans from main street bakery, frozen lemonade, soda from Club Cool

At Universal we ate at:
The Three Broomsticks multiple times! We chose this option, because we are Harry Potter fanatics and kept ending up back in the Wizarding World no matter how far we strayed, and because it was really easy to get the boys safe food here. Eating here was one of the most relaxing meal experiences of our trip. A lady named Pam helps with all of the allergy ordering, and she is friendly and knowledgeable, and the whole process was very smooth, and inspired confidence (along with the info I’d gotten from Chef Bob Burdick by email beforehand). On the first day we ordered the Great Feast for our family. The roasted potatoes and veg were delicious, and the chicken pretty good. I didn’t care for the ribs, but others at the table did. It was a massive amount of food for the 4 of us, even though the boys were really hungry and tucked in, and all of it was safe for the boys’ allergies. We were seated at a large round table, with the boys at an adjacent 2 top, which was another factor making it relaxing. No worries for the boys about germs, proximity, contamination etc. We had butterbeer! We sat and ate and ate, and watched for house elf shadows, all of us so content! In subsequent meals here the boys also tried turkey legs and chips (dedicated fryer), ribs, corn and chips, frozen butterbeer, pumpkin juice and pumpkin fizzes. We had a great experience here! Thank you Pam!

At Kennedy Space Center:
We didn’t even try. We brought a picnic, leaving a cooler bag in the car and retrieving it at lunchtime, and had no problem with security. There are lots of tables around (we ate near the rocket garden), and it didn’t feel at all awkward bringing our own food.

In general:
I am really glad we contacted Disney Special Diets, and Chef Bob at Universal beforehand. We stuck to the first seating of the day, or other off times to eat for all except one meal, and this was a very good thing. We had great dining experiences at both Disney (CS and TS) and Universal (CS only), and my boys were completely safe. I am very thankful to all the wonderful chefs, managers and servers who took such wonderful care of us. Being able to eat in restaurants just like everyone else was one of the biggest things that made this trip so magical for our family!

We stayed offsite in a villa in Sunset Lakes with a full kitchen. This allowed us to serve the boys all of their breakfasts in, and usually one other meal per day (most often a quick supper before heading back to the parks for the evening). This really took the pressure off. Despite the A+ treatment we received (for the most part), eating out 3 times a day would have been too much for their & my stress levels. The boys also took an allergy safe prepackaged snack with them to the parks each morning, that way if hunger struck, they always had something safe readily available no matter where we were or what we were doing.
 
ASD/OCD Stuff
My sons are both diagnosed with Aspergers, and have OCD tendencies.

The stuff we did that worked for us:
-rope, drop, rope drop, rope drop, and have a good touring plan! The single most important thing we did was arrive early to avoid the crowds. We used Ridemax to cram in as many rides as possible in quick succession before lunch, gathering fastpasses as we went. This worked for us because the boys are morning people, and they do better moving quickly and doing lots for short spurts, and then resting, rather than taking an easy pace (meandering drives them bonkers). They were fully aware of our ride plans before the trip, this let them know exactly what to expect reducing confusion and meltdowns. We walked onto most rides, sometimes waiting for a few minutes, sometimes not at all. We did get them a GAC just in case, but very, very rarely needed to use it, because of the way in which we were touring.

-afternoon break. There was only one day that we didn’t take an afternoon break, and we had a whole rest day scheduled for the following day. After lunch as the crowds in the park started to build, the boys would start to get really tense and “melty”. We would make our way to the front of the park, trading vinylmations, shopping, riding a ride or two with fastpasses, and taking a look at things we moved too quickly to see in the morning, and then go to the villa to swim and game for a few hours. This really helped them decompress. Some evenings we took them back to a park, and some we didn’t, it depended on how they felt.

-a villa instead of a hotel. We rented a large villa. Each of the boys had their own room to sleep and keep their things in, and we had a private pool. My boys do not do well in close proximity to other people for extended periods of time, and L has OCD issues with harm coming to his belongings that cause him (and us) a great deal of stress. Putting us all into a hotel room together would have been a recipe for misery. It would be lovely to stay onsite, but until we can afford a grand villa at Kidani Village, it’s an offsite villa for us!

-it’s so nice we do it twice! Rather than trying to see everything, we often went back and redid our favourites. This gave the boys a sense of familiarity. They love repetition. At AK we rode Dinosaur 4 times in a row!

-disinfectant hand wipes. DH and I had individually wrapped Wet Ones antibacterial wipes in our park bags. When the boys’ germ anxieties were getting high, we could hand them one.

-skipping gridlock. We skipped Fantasmic and the Candlelight Processional. We watched the fireworks from less popular areas and/or waited until the crowds had dispersed to try and leave. We stayed far away from parades and street entertainment.

-ear plugs/ ear defenders for fireworks and loud shows

-having one “walking partner” per kid, instead of trying to walk as a group. My sons have a low awareness of their own bodies in space and other people around them. Having them stick to one adult partner to help them navigate crowds was really helpful. We also held hands a lot, and I was really grateful they were willing to do this. They would never, ever at home! (Disney magic!)

-Universal express pass! After much debate we sprang for a night at Loew’s Royal Pacific in order to get the 2 days of express pass and early entry into WWoHP. That quiet hour at WWoHP was truly magical, and worth every penny! Even though the crowds were very low, as staff assured us many times, the shops were still way too crowded for our sons at almost all times, except for first thing in the morning. We were also able to get into Ollivander’s with no wait, and both of our sons got picked! Having the express passes for touring the rest of the Universal parks was invaluable. It made for a very relaxing experience. We were also able to take the boys for a midday break in our hotel room on the first day, although we took them back to the villa rather than using the room that night.

Some of the Challenges:
-the waiting area for “It’s Tough to Be a Bug”. It wasn’t busy, and we forgot to show the GAC. As the waiting area filled up it was awful for my sons. Loud, echo-ey, dark, enclosed –not good at all. I am not sure how much good showing the GAC would have been anyway. I had noticed a roped off area with a handicap symbol on it. It wouldn’t have been any quieter, but perhaps would have been less crowded? My sons insisted on staying put and waiting for the show, but we had 10-15 very miserable minutes, and they were too tense to enjoy the show itself much by the time we got in there. I would definitely show the GAC and/or try to time it so we could walk in with little wait for the next show if we were to go again.

-that first car in the parking lot trams where people sit knee to knee. I thought L was going to completely lose it.

-character actors in close proximity and/or making eye contact. My boys had a really hard time with this. They hated Festival of the Lion King for this reason (and the volume), and did not want to watch the parades. What was really cute was that by the our last theme park day (MK), L and I were walking up main street at RD, and the CM’s were smiling and waving with the Mickey plush hands, and L actually waved back, making the briefest, tiny glances as we went. Disney magic!

-we’ll skip the water rides next time. My sons thought they would like the water rides, but ended up chilly and shell shocked after doing Popeye & Bluto’s, Dudley Do Right and Jurassic Park one after the other at Universal. I am not sure if it was more the drops in the last 2, or the shock of the cold water, but they were much less inclined to try any but the dry, easy ones after that (wouldn’t even do Splash!).

-smokers. I hadn’t thought of this as a potential issue, but where we live in Canada my sons almost never encounter smoking. Being smell sensitive and extremely literal (if the school anti-smoking campaign says smoking will kill you, then even one breath of second hand smoke may be lethal no matter what mom or dad say!), L would panic if we got within 20 feet of a smoker. No Italy pavilion at Epcot for us, and some uncomfortable moments in DTD and Tomorrowland.

-being too close to Illuminations. The first night we watched Illuminations we found a great spot at the rail in China. It was near the Good Fortune gift kiosk, and other people didn’t seem to be noticing the space, so we were nice & un-crowded, and the view was spectacular. However that first round of fireworks and fire going off was just too close and overwhelming, and sent one of our sons into meltdown mode despite ear plugs. The second night we watched from the 2nd story of the Japan Pavilion, and he loved it.

-TS restaurants where we were crammed in together. At Tony’s Town Square they had our party of 8 really packed in at a partial booth table, and the boys found this very, very stressful. At Sci Fi the car tables are pretty squishy too, especially since we had a party of 5 in 2 benches, but they liked the films so much that the boys were calm and happy here, even with “strangers” in our car (a very nice couple celebrating their anniversary).

-congestion in the streets at AK. Even though it was only moderate crowds the day we were there, it seemed to get more congested faster than the other parks, and we ended up in a couple of bottlenecks, which really stressed the boys out. They needed a break fairly early on this day.

ASD Hall of Fame
-the shop staff in Dervish & Banges at WWoHP having incredible patience with my son’s OCD shenanigans even though the line was long. They were so incredibly kind to him!

-Push the talking Trash can –thank you so much for the extra attention! You really made my boys’ day! (no pesky eye contact problems with a talking trash can!)

-the CMs doing vinylmations trading, a couple were not so nice, but most were wonderful. To the ones who were wonderful, thank you so much! My sons’ social skills may be awkward but they are working really hard to improve them, and positive interactions like the ones you provided are invaluable.
 
Wheelchair Accessibility Tales
My youngest sister has William’s Syndrome and mobility issues necessitating a wheelchair for her at the parks. She can walk for short distances, and so can transfer. We rented a manual WC from Walker Mobility and had great service and a seamless experience all around. I would recommend them.

Disneyworld was fantastic for her. She could enter most of the regular queues. CMs were patient and clear in their instructions for the most part (a couple of grumps, but at least 95% great). They offered to slow the walkways down for us when possible, and the WC was always waiting for us at the exit. Because we were touring purposely to avoid the crowds our waits with the WC were almost always identical to the regular line (a walk on for them and a walk on for us). Occasionally our waits were shorter, and a couple times they were longer. Sometimes they asked our party of 10 to split up, and sometimes they sent us through all together. AK was probably the toughest as far as pushing the WC around and congestion. Leaving MK after fireworks, and the Osborne lights were also pretty hairy, but we just took it slow and easy and all was well.

I didn’t know what to expect from Universal having read mixed reviews online, but our treatment there was uniformly fantastic. The staff were so friendly with my sister everywhere we went. They weren’t quite as organized as WDW (had to go looking for the WC a couple of times after a ride), but attitudes were welcoming and instructions were clear. The WWoHP shops were hard to navigate with a WC, and I recommend parking and walking in if you are able. We had virtually no waits at Universal because of the express passes, so I can’t compare WC waits with regular.

Kennedy Space Center presented the biggest challenge for my sister. Their bus tour is not WC accessible. They ask you to leave your chair at the main visitor centre and walk on to the bus. They will then have their manual chairs waiting for you at each of the two stops. I am not sure how this would even work for someone unable to board the bus on their own? My sister was extremely upset. Her WC had become a security item for her as well as providing her with mobility during our trip (it made her feel safe and sheltered from the crowds). She was inconsolable until we finished the tour and got her back into her “own” WC, needless to say we didn’t see much. It is a pity that they wouldn’t allow us to fold the chair and bring it with us, but they were very insistent that we couldn’t. The service at the two stops was very inconsistent, with different staff barking different orders at us, and us very confused (making my sister’s distress worse). It is not a good system by any means, and the low point in our trip as far as staff helpfulness regarding my sister’s needs.

In summary
It was an incredible trip. It felt like one delight after another! WDW really is world class in its accommodation for those with special needs and allergies! Universal, which I went in feeling was the “wild card”, knocked my socks off. All of the staff without exception were friendly and patient, and accommodations, given that we had express passes, met our needs nicely. We went into this vacation saying that it was a once in a lifetime experience, and you guessed it…we are already talking about going back. Thanks to everyone on the DIS (especially in this section) for all of the great information which allowed me to plan a magical trip that met all the different needs in our group, and was SO MUCH FUN!
 

This is one of the best trip reports I have ever read. You really covered a lot of ground. Thanks for all the info. I liked how you separated the topics.

I had to cancel a trip for the same time you went and it's good to know it wasn't horrible with crowds. We will probably try next year at the same time period.

I have different circumstances, but we are similar. I'm especially glad to hear that your sister's wheelchair experience was a good one overall.
 
Thank you so much for this incredible review! What a wealth of great observations you've shared with us. So generous of you to share all of these important details.

I'm really glad that your family had such a wonderful holiday. Sounds like your impeccable planning paid off.
 
ASD/OCD Stuff
My sons are both diagnosed with Aspergers, and have OCD tendencies.

The stuff we did that worked for us:
-rope, drop, rope drop, rope drop, and have a good touring plan! The single most important thing we did was arrive early to avoid the crowds. We used Ridemax to cram in as many rides as possible in quick succession before lunch, gathering fastpasses as we went. This worked for us because the boys are morning people, and they do better moving quickly and doing lots for short spurts, and then resting, rather than taking an easy pace (meandering drives them bonkers). They were fully aware of our ride plans before the trip, this let them know exactly what to expect reducing confusion and meltdowns. We walked onto most rides, sometimes waiting for a few minutes, sometimes not at all. We did get them a GAC just in case, but very, very rarely needed to use it, because of the way in which we were touring.
There is a lot of very good advice in your report, but I think this is very important.

Some of the Challenges:
-the waiting area for “It’s Tough to Be a Bug”. It wasn’t busy, and we forgot to show the GAC. As the waiting area filled up it was awful for my sons. Loud, echo-ey, dark, enclosed –not good at all. I am not sure how much good showing the GAC would have been anyway. I had noticed a roped off area with a handicap symbol on it. It wouldn’t have been any quieter, but perhaps would have been less crowded? My sons insisted on staying put and waiting for the show, but we had 10-15 very miserable minutes, and they were too tense to enjoy the show itself much by the time we got in there. I would definitely show the GAC and/or try to time it so we could walk in with little wait for the next show if we were to go again.
You are correct that many of the same issues are present in the handicapped waiting area. Like many of the handicapped areas, it is just a roped off area of the ‘regular’ waiting area.
It is still noisy and still has the kind of stifling low ceilings and dark walls.
It’s very hard to get good pictures in there - this is one of my better tries, but it is quite dark.
P1030810.JPG

http://photopost.wdwinfo.com/member-galleries/p71854-waiting-area-at-it-92s-tough-to-be-a-bug.html
We have been in that area when we were the only ones waiting there for most of the time. We have also been there when it was very crowded and people in there were packed as close together as in the ‘regular’ waiting area.
So, it’s kind of up for grabs of whether or not it would be better.

Some other options -
- wait in the ‘regular’ area, but stick near the back, not up by the door where most of the other guests are trying to be.
- wait outside to the side until you can see the guests actually entering the theater or let the CM at the entrance to the waiting area know that you would like to walk in at the last minute.

Using the handicapped area does allow you access to the last 2 rows of the theater, which are saved for guests with disabilities. It is not guaranteed to be less crowded there - we have been there when most seats are filled. Chances are that there will be less people and you may be able to choose seats not next to other guests.
P9243375.JPG

http://photopost.wdwinfo.com/member...ng-in-back-rows-at-it-92s-a-bug-92s-life.html
The seats DO have the special effects the same as seats in the other part of the theater, but some of the features (specifically, the spiders from the ceiling) don’t come that far back.
-being too close to Illuminations. The first night we watched Illuminations we found a great spot at the rail in China. It was near the Good Fortune gift kiosk, and other people didn’t seem to be noticing the space, so we were nice & un-crowded, and the view was spectacular. However that first round of fireworks and fire going off was just too close and overwhelming, and sent one of our sons into meltdown mode despite ear plugs. The second night we watched from the 2nd story of the Japan Pavilion, and he loved it.
Another place I have suggested that people posted worked well for them is the balcony area in front of First Aid. It is higher than the water and a little removed, so you are not as close to the fireworks as you are down by the railing.
if things get to be too much, you can also retreat into First Aid or the restrooms that are in the same area.
-congestion in the streets at AK. Even though it was only moderate crowds the day we were there, it seemed to get more congested faster than the other parks, and we ended up in a couple of bottlenecks, which really stressed the boys out. They needed a break fairly early on this day.
Many other people have mentioned the congestion at AK.
The park is beautiful, in terms of theming, but it was not really designed for the number of people who come there. The paths are fairly narrow and there are quite a few places where there are bottlenecks because large numbers of people are coming out of a show and basically have to go back out the same way that they came into that area. Especially a problem at Festival of the Lion King.
 
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I liked your report.

The only thing that I found puzzling was the part about KSC not being handicapped friendly. My mother and I went there last January, and I have to use a scooter. We were loaded onto buses and were able to do most things without getting off my scooter. I wonder if you got some employees who were either being lazy or misinformed?
 
Thanks everyone, and thanks for your feedback on some of our issues Sue. Near the 1st aid station would have been a great place to watch Illuminations!

The only thing that I found puzzling was the part about KSC not being handicapped friendly. My mother and I went there last January, and I have to use a scooter. We were loaded onto buses and were able to do most things without getting off my scooter. I wonder if you got some employees who were either being lazy or misinformed?

Your post prompted me to check out the Kennedy website, and sure enough...

All of our tour buses are equipped with wheelchair-accessible lifts. Guests may request this service from any of the ticket agents and board buses from Gate 5.
Please note: Guests also have the option of transferring into tour buses and picking up a wheelchair at each of the tour destinations.

However we were never offered this option, but told unequivocally that my sister had to transfer to the bus and there was no way she could take her chair. :confused3 Perhaps it was a case of getting the wrong staff member on the wrong day, but at each stop we encountered more confusion and some rudeness. No one seemed to know what they were doing or rather what we were supposed to do. It was, without question the low point in our trip as far as access and service.
 

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