Non listed allergies

DrunkJam

DIS Veteran
Joined
Jul 1, 2016
Messages
1,971
Hi,
SO, on top of all our other issues, my daughter has a food allergy.
At home this is manageable, we know when to medicate her and when to take her straight to the ER etc.
BUT
I just found out that the thing she is allergic to is NOT something that is labelled in the USA
She is allergic to mustard. In UK, EU, Canada and Australia, this is a top allergen and is labelled, due to the number of anaphylactic reactions and their severity. So, we can just ask any restaurant and avoid it.
It is not labelled in USA.
SO, I am wondering, if we ask at the restaurants, they won't always know if something contains it? (I know, it sounds easy to avoid, but it is in a load of things, like some bread, some sauces, some breadcrumbs, so some nuggets, etc, some sausages, and in fact, she has to avoid some factory made CAKE in the UK because of factory cross contamination)
What do other people usually do?
 
Note it on dining reservations. The chef will come speak with you at TS places. At QS there is a book with ingredients you can go through.
 
Note it on dining reservations. The chef will come speak with you at TS places. At QS there is a book with ingredients you can go through.

Thanks, that's reassuring, but, also, I was told that, in USA sometimes, ingredients lists say "spices" and don't elaborate, so, especially at QS, they just might not know at all? Or is that just scare mongering?
 
Thanks, that's reassuring, but, also, I was told that, in USA sometimes, ingredients lists say "spices" and don't elaborate, so, especially at QS, they just might not know at all? Or is that just scare mongering?

I can't speak personally on that since it's not a particular ingredient that I've paid attention to.

You could also send an email to special diets to get an answer on that specific question, or they may have some tips about that particular allergy.
 

It's not that it'll say spices. It'll "natural flavoring", yes it is a problem, I'm allergic to mint and go through many of the same problems. Honestly, I'd probably avoid quick service and rely on the chefs at table service.
 
It's not that it'll say spices. It'll "natural flavoring", yes it is a problem, I'm allergic to mint and go through many of the same problems. Honestly, I'd probably avoid quick service and rely on the chefs at table service.

OK, that's useful to know, we might go for the DXDP rather than the standard one then.
Sorry to hear you struggle with it too.
 
I am allergic to mustard along with a whole host of other allergies (30+ including multiple spices). Ive eaten at QS and TS places. From my experience, if it says "spices" and the chefs or managers don't know exactly what spices or natural flavors are in the product, they will avoid that particular food. I have never had an issue with mustard or any of my other allergens at WDW. Our trips the past 2 years, weve eaten at: CBR food court, Contempo Café, Grand Floridian QS, POR food court, Cosmic Rays Café, Flame Tree BBQ, Sunshine Seasons, Crystal Palace, The Plaza, Liberty Tree Tavern, Sci Fi, 50s Prime Time, Garden Grill, 1900 Park Fare, Grand Floridian Café, Chef Mickeys, The Wave, and Citricos.
 
I am allergic to mustard along with a whole host of other allergies (30+ including multiple spices). Ive eaten at QS and TS places. From my experience, if it says "spices" and the chefs or managers don't know exactly what spices or natural flavors are in the product, they will avoid that particular food. I have never had an issue with mustard or any of my other allergens at WDW. Our trips the past 2 years, weve eaten at: CBR food court, Contempo Café, Grand Floridian QS, POR food court, Cosmic Rays Café, Flame Tree BBQ, Sunshine Seasons, Crystal Palace, The Plaza, Liberty Tree Tavern, Sci Fi, 50s Prime Time, Garden Grill, 1900 Park Fare, Grand Floridian Café, Chef Mickeys, The Wave, and Citricos.
Oh, my goodness, thank you so much for sharing this. My DD wasn't even born the last time we were there, and we are still getting used to travelling with the allergy issues!
 
Oh, my goodness, thank you so much for sharing this. My DD wasn't even born the last time we were there, and we are still getting used to travelling with the allergy issues!

No problem. Disney is, IMO, the best place for allergies. The main chef at the Caribbean Beach food court made me fresh fries everyday. Meaning he actually peeled, sliced, and cooked them fresh. They were AMAZING!! its little things like that, that makes Disney so great. The first time we went after I was diagnosed with allergies to mustard, thyme, ginger, mint, and food coloring I was very nervous beforehand because while I had been there before with allergies, they were top 8 allergies (shellfish, peanuts, tree nuts, eggs) this was all new territory. But they were amazing. And at all QS places, they have ingredient binders with the ingredients for all the food they serve so make sure you ask to see that and when you ask that, they SHOULD notify the manager and they should be the one to handle the allergy meal. Hope that helps
 
No problem. Disney is, IMO, the best place for allergies. The main chef at the Caribbean Beach food court made me fresh fries everyday. Meaning he actually peeled, sliced, and cooked them fresh. They were AMAZING!! its little things like that, that makes Disney so great. The first time we went after I was diagnosed with allergies to mustard, thyme, ginger, mint, and food coloring I was very nervous beforehand because while I had been there before with allergies, they were top 8 allergies (shellfish, peanuts, tree nuts, eggs) this was all new territory. But they were amazing. And at all QS places, they have ingredient binders with the ingredients for all the food they serve so make sure you ask to see that and when you ask that, they SHOULD notify the manager and they should be the one to handle the allergy meal. Hope that helps

wow, that must be so much hard work for you?! it is so good to hear that Disney do a good job on this. I will try and be less scared about it then, thank you.
 
wow, that must be so much hard work for you?! it is so good to hear that Disney do a good job on this. I will try and be less scared about it then, thank you.

I will say though, trust your gut. If the chef does not seem to understand what you are asking or doesn't seem to be listening, ask for a manager. When it comes to allergies, I always go with my gut. If something does not seem right or you are just not 100% comfortable with the service, etc don't be afraid to speak up because everyone is human and mistakes can happen anywhere. But Disney has so many protocls in place and the chefs and managers get a lot of training so I feel comfortable there. last year at a food allergy conference, I actually met one of the former chefs from Disney who helped implement the allergy protocols and helped train the chefs and staff, and he was explaining the focus on details for allergies and its amazing.
 
Thanks, that's reassuring, but, also, I was told that, in USA sometimes, ingredients lists say "spices" and don't elaborate, so, especially at QS, they just might not know at all? Or is that just scare mongering?

If it says spices, assume there's mustard and don't order it. Avoid 'natural flavoring' as well. Those are the only two listings I can think of that would hide mustard. You can order meat to be plain, veggies to be steamed/plain, etc.
 
If it says spices, assume there's mustard and don't order it. Avoid 'natural flavoring' as well. Those are the only two listings I can think of that would hide mustard. You can order meat to be plain, veggies to be steamed/plain, etc.
Thanks, that's helpful.
 
Our general rule is to get our QS in at resorts and try to stick to table service in the parks. If anywhere is likely to be an issue, it's usually the in-park QS locations.
 
Our general rule is to get our QS in at resorts and try to stick to table service in the parks. If anywhere is likely to be an issue, it's usually the in-park QS locations.
That's a really handy tip, thanks!
 
OP- you'll be just fine. Maybe consider making "allergy cards", where you list out what foods or spices your DD is allergic to. I'm doing this for DH for our upcoming trip, just in case we get hungry in the park. Ready for what he can't have? Gluten/Wheat, Soy, Dairy, Egg, Corn, Peanut, Tree Nut, Coconut, Grains of any kind, Nightshades (Tomatoes, Eggplant, Peppers, Pepper Spices), Spices derived from Nightshades/Nuts/Fruits (paprika, mustard, cumin, nutmeg, etc.), raw fruits except banana, cooked fruits must be peeled and no pineapple, no raw vegetables, cooked vegetables must be seedless and have no skin (or we remove the seeds and skin ourselves if necessary), vegetable cooking oil except olive oil. This is for Crohn's, following the Autoimmune Protocol diet and low residue/fiber. Am I worried about it? Not one bit. I'm making allergy cards that list on one side what he can't have (in red), and on the other side, what he can have (in green). I'm going to make a bunch and laminate them and give them to the chefs at a restaurant we decide to dine at that has options on the menu that look like could be catered to his needs. I'm bringing 99.999% of our food down frozen in our suitcase, but we have the cards just in case we need to find a place to eat. Disney is the absolute BEST place for allergy diners, hands down. :grouphug:
 
I have anaphylaxsis to milk, tree nuts, peanuts, and seafood (fish, shellfish; bascially, animal in water = bad).

A couple tips:

I make allergy cards, too. I use MS Word and make them 4x6" size. I print one (well, I have a couple backups) on normal 4x6 photo paper and then laminate it; that one stays with me and I always carry it in my purse. I will bring it out in a restaurant, but prefer to not let it leave the table, because...

I print a whole bunch onto the plain side of pale yellow 4x6 index cards. I leave the lined side blank so restaurant staff could write on it if they want. I carry a byunch with me and when I travel have even more in my carry-on bag in case I need to replenish my purse supply. These ones the staff can take with them and give to the kitchen and if they don't give them back that is fine (I let them know that). 99% of the time they will take them, about 30% of the time they will bring them back.

I have had (not at Disney) chefs come out of the kitchen to thank me for having the cards as it made their job so much easier. Likewise managers coming to thank me. Most of the time the card seems to be appreciated.

another tip: once you receive your food, ALWAYS VISUALLY CHECK IT. As a PP noted, mistakes CAN happen. I have had mistakes happen at Disney (WDW and DCL). But I caught them before eating the food because I visually checked the food and saw something was wrong. So, pull apart the hamburger to make sure there is no cheese hiding in it; check that the breakfast potatoe casserole thing doesn't look the same as your sister's whose has dairy in it, and check that salad to make sure there is not cheese grated on it. Obviously for your own allergies visually check accordingly :-) It won't catch every possible problem, but may catch some of the bigger ones.

That said out of the many many meals I have eaten with Disney, I can count on one hand the number where something has gone wrong.

As for where to eat: I agree you best bets for QS are probably the hotel resorts, for the most part. There are some exceptions though: for example, at the marketplace QS at Beach Club, they have very limited preparation options. I was not able to get a safe hot breakfast there.

We have had some great dining experiences at TS restaurants: Tucker House (breakfast); Boma (breakfast); Whispering Canyon; Spirit of Aloha, Kona, and others. At MK, we have consistently had a good QS experience at Cosmic Ray's: I actually had a great talk with one of the managers there one time as I placed my order (it was a slower time and nobody else waiting for him).

You can contact WDW Special Diets in advance of your trip and work with them. They also have a notification form they may send you; it lets you tell them where your ADRs all are and notify them of the allergies. I always add to it what QS we plan to eat and and when, or for example add a general note that "we are stayaing at Wilderness Lodge and will eat multiple breakfast, lunch, and dinner at Roaring Forks during the course of the trip".

Finally: ALWAYS, EVERY TIME you order food, let the CM know there is a food allergy. This should kick in their allergy protocol. I"ll tell you a little story about why this is so important, because I had a near miss.

We were staying at WL. We arrived mid afternoon and were hungry so went to Roaring Forks to grab some food. I met and had a great talk with the manager. We ended up going over their entire menu and ingredient book, not just for that meal but for future meals so I could preplan. Including breakfast for the next morning. The eggs were listed as just eggs.

Come morning, I am in line to order my breakfast, which I know from reading the ingredient list will be safe if I exclude certain things. But eggs, bacon and potatoes are fine. I wasn't going to say anything about my allergy, just order. At the last second before ordering I changed my mind and said I have a food allergy. Food allergy protocol kicks in and I get to speak with the supervisor. I explain my allergies and what I want. She says no problem, but explains the eggs and potatoes have BUTTER ADDED TO THEM TO MAKE THEM MOISTER (!!!!!!!). Not in the ingredient list ! She made me safe food. If I had not spoken up, just gone off the menu and the ingredient list, at best I would have had a trip to the ER.

As an aside, this actually leads to the concern I have about the "allergy menus" they have introduced. If someone with an actual severe allergy was to rely on those menus alone to place their order, they may end up in a situation like I was nearly in OR have a cross-contamination situation that wasn't prevented because the person preparing the food didn't know they needed to. There needs to be that human:human communication about the allergy and the food. Otherwise, I think, in the long run it is inviting trouble.

We visit WDW and cruise on DCL not just because we enjoy it, but in huge part because they set the gold standard for how food allergies should be handled. I know that with high certainty my food will be safe. I also know there are no guarantees, so I have to do my due diligence as well: inform, ask questions, carry Epipens and asthma rescue inhaler always, visually check the food I receive to make sure it passes the "looks right" "test", and be prepared to walk away if it doesn't feel right (eg chef is clueless).

Traveling with allergies can be a challenge -- I've gotten stuck at Chicago O'Hare for eight hours due to a flight connection cancelation and been refused food service everywhere I tried but McDonalds (which I now can't eat at either); but the McDonalds manager was GREAT, especially considering I was crying by the time I made to his counter after six or eight refusals one after another in an hour -- but also quite rewarding -- safe restaurant pizza at Pizzafari after not being able to have any for years !

One final trip: whether traveling by air or driving, bring some safe non-perishable food (if crossing borders, commercially pre-packaged and still sealed is a really good idea; also be aware of restrictive rules re: fruits, veggies, meats, etc). I like Enjoy Life products: free of top 11 allergens, portable, etc. I have had many times where I have had to delve into my safe snacks for some reason or another, and been very glad I had them, whether during travel itself or at my destination.

SW
 
I have anaphylaxsis to milk, tree nuts, peanuts, and seafood (fish, shellfish; bascially, animal in water = bad).

A couple tips:

I make allergy cards, too. I use MS Word and make them 4x6" size. I print one (well, I have a couple backups) on normal 4x6 photo paper and then laminate it; that one stays with me and I always carry it in my purse. I will bring it out in a restaurant, but prefer to not let it leave the table, because...

I print a whole bunch onto the plain side of pale yellow 4x6 index cards. I leave the lined side blank so restaurant staff could write on it if they want. I carry a byunch with me and when I travel have even more in my carry-on bag in case I need to replenish my purse supply. These ones the staff can take with them and give to the kitchen and if they don't give them back that is fine (I let them know that). 99% of the time they will take them, about 30% of the time they will bring them back.

I have had (not at Disney) chefs come out of the kitchen to thank me for having the cards as it made their job so much easier. Likewise managers coming to thank me. Most of the time the card seems to be appreciated.

another tip: once you receive your food, ALWAYS VISUALLY CHECK IT. As a PP noted, mistakes CAN happen. I have had mistakes happen at Disney (WDW and DCL). But I caught them before eating the food because I visually checked the food and saw something was wrong. So, pull apart the hamburger to make sure there is no cheese hiding in it; check that the breakfast potatoe casserole thing doesn't look the same as your sister's whose has dairy in it, and check that salad to make sure there is not cheese grated on it. Obviously for your own allergies visually check accordingly :-) It won't catch every possible problem, but may catch some of the bigger ones.

That said out of the many many meals I have eaten with Disney, I can count on one hand the number where something has gone wrong.

As for where to eat: I agree you best bets for QS are probably the hotel resorts, for the most part. There are some exceptions though: for example, at the marketplace QS at Beach Club, they have very limited preparation options. I was not able to get a safe hot breakfast there.

We have had some great dining experiences at TS restaurants: Tucker House (breakfast); Boma (breakfast); Whispering Canyon; Spirit of Aloha, Kona, and others. At MK, we have consistently had a good QS experience at Cosmic Ray's: I actually had a great talk with one of the managers there one time as I placed my order (it was a slower time and nobody else waiting for him).

You can contact WDW Special Diets in advance of your trip and work with them. They also have a notification form they may send you; it lets you tell them where your ADRs all are and notify them of the allergies. I always add to it what QS we plan to eat and and when, or for example add a general note that "we are stayaing at Wilderness Lodge and will eat multiple breakfast, lunch, and dinner at Roaring Forks during the course of the trip".

Finally: ALWAYS, EVERY TIME you order food, let the CM know there is a food allergy. This should kick in their allergy protocol. I"ll tell you a little story about why this is so important, because I had a near miss.

We were staying at WL. We arrived mid afternoon and were hungry so went to Roaring Forks to grab some food. I met and had a great talk with the manager. We ended up going over their entire menu and ingredient book, not just for that meal but for future meals so I could preplan. Including breakfast for the next morning. The eggs were listed as just eggs.

Come morning, I am in line to order my breakfast, which I know from reading the ingredient list will be safe if I exclude certain things. But eggs, bacon and potatoes are fine. I wasn't going to say anything about my allergy, just order. At the last second before ordering I changed my mind and said I have a food allergy. Food allergy protocol kicks in and I get to speak with the supervisor. I explain my allergies and what I want. She says no problem, but explains the eggs and potatoes have BUTTER ADDED TO THEM TO MAKE THEM MOISTER (!!!!!!!). Not in the ingredient list ! She made me safe food. If I had not spoken up, just gone off the menu and the ingredient list, at best I would have had a trip to the ER.

As an aside, this actually leads to the concern I have about the "allergy menus" they have introduced. If someone with an actual severe allergy was to rely on those menus alone to place their order, they may end up in a situation like I was nearly in OR have a cross-contamination situation that wasn't prevented because the person preparing the food didn't know they needed to. There needs to be that human:human communication about the allergy and the food. Otherwise, I think, in the long run it is inviting trouble.

We visit WDW and cruise on DCL not just because we enjoy it, but in huge part because they set the gold standard for how food allergies should be handled. I know that with high certainty my food will be safe. I also know there are no guarantees, so I have to do my due diligence as well: inform, ask questions, carry Epipens and asthma rescue inhaler always, visually check the food I receive to make sure it passes the "looks right" "test", and be prepared to walk away if it doesn't feel right (eg chef is clueless).

Traveling with allergies can be a challenge -- I've gotten stuck at Chicago O'Hare for eight hours due to a flight connection cancelation and been refused food service everywhere I tried but McDonalds (which I now can't eat at either); but the McDonalds manager was GREAT, especially considering I was crying by the time I made to his counter after six or eight refusals one after another in an hour -- but also quite rewarding -- safe restaurant pizza at Pizzafari after not being able to have any for years !

One final trip: whether traveling by air or driving, bring some safe non-perishable food (if crossing borders, commercially pre-packaged and still sealed is a really good idea; also be aware of restrictive rules re: fruits, veggies, meats, etc). I like Enjoy Life products: free of top 11 allergens, portable, etc. I have had many times where I have had to delve into my safe snacks for some reason or another, and been very glad I had them, whether during travel itself or at my destination.

SW

Thank you for this. It is reassuring to know they are good with this. We have a so with ASD, and Disney were very helpful with his issues, but, of course, he is just going to go hungry if something goes wrong for him, his sister will end up in the ER, or worse.

It is important to visually check (I know I ordered a local speciality here, and checked with them, and they thoroughly checked every ingredient, no mustard. Hurray! Then, when it arrived, it was served with whole grain mustard coleslaw, thus rendering it inedible. Boo! LUCKY they used whole grain, because, 99.9% of the time, mustard is NOT visible AT ALL.)

One of the hardest things we find is chicken nuggets. Now, DD LOVES chicken nuggets (i know, I know, but she is little), and it is really hard to explain to her that, for example, she CAN eat Burger King nuggets, BUT, she CANNOT eat McDonald's Nuggets. Even though they are the same food. We don't yet know about WDW ones. Luckily, she also likes grilled chicken, which is safer.
 
Thank you for this. It is reassuring to know they are good with this. We have a so with ASD, and Disney were very helpful with his issues, but, of course, he is just going to go hungry if something goes wrong for him, his sister will end up in the ER, or worse.

It is important to visually check (I know I ordered a local speciality here, and checked with them, and they thoroughly checked every ingredient, no mustard. Hurray! Then, when it arrived, it was served with whole grain mustard coleslaw, thus rendering it inedible. Boo! LUCKY they used whole grain, because, 99.9% of the time, mustard is NOT visible AT ALL.)

One of the hardest things we find is chicken nuggets. Now, DD LOVES chicken nuggets (i know, I know, but she is little), and it is really hard to explain to her that, for example, she CAN eat Burger King nuggets, BUT, she CANNOT eat McDonald's Nuggets. Even though they are the same food. We don't yet know about WDW ones. Luckily, she also likes grilled chicken, which is safer.

My son is offered grilled chicken as a standard item at every table service. Many also will offer a grilled fish, he won't accept any pink fish so I know from trial and error that they are about 50% salmon and 50% either tilapia or mahi mahi. They have kids meals aimed at being healthy and a grilled meat with essentially plain rice pilaf and a steamed veggie is on all the kid's menus now.
 
My son's medication react adversely to alcohol. Including vanilla and de-glazing a pan in white wine. We contact special diets exactly 30 days out. List each ressie by date, time, and number, we also include what dish he would like to eat. While it is very time consuming we have not been disappointed. :)
 












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