Noah's Wish Trip (Wings ~ July 29, 2009)

[3princesses+aprince]

Oh my god, I just started your pre trip report , and read all about Noah. I will keep him in my prayers too. And hope that you are all home soon!!

 

[teresajoy]

Has anyone heard from Nichole in the past few days?

 

[maroo]

No...

I was totally spoiled by the daily updates!!!!

My guess is that it is harder to get to the internet if she is on the floor? It might have been easier in the PICU. ???
I trust that no news is good news?? And hope she updates SOON! lol


**RUNS AND CHECKS THE SITE...

** And runs back!!! SHE UPDATED!!! YEAH! Uh...now I gotta go read it!


And am still praying. I think about that little guy all the time!

 

[llurgy]

The news is great, the discharge papers are being drawn up and they may escape next week!!!
I have been so worried for him, it's like I can breathe again.

Mandy

 

[maroo]

I am with you, Mandy!

I am so, so glad for them!

God is good!

 

[llurgy]

Hopefully we will see Nichole on here soon.
They were hoping that Noah was going to be released today and she wrote on her blog that she is hoping to resume her planning for Noah's trip

Mandy

 

[llurgy]

Noah's Home!!!!!

 

[VroomVroomLightning]

Noah's Home!!!!!

I just saw that myself!! I have been checking their blog lately. When I saw the videos of him with his brother and sister I started crying! Such a miracle and a blessing!!

WELCOME HOME NOAH AND FAMILY!!

 

[ndloewen]

Yes, we are home

I am so excited to be posting here again. I just could not even come to the boards these past few weeks, so terrified that we were going to lose Noah this time and he would never get his wish. But we have one amazing boy who shocked the socks off everyone once again, and one amazing God who answers prayer. We have come home knowing that these days are precious and we don't know how many more we will have. Once we lose this line, palliative care will likely be our only option. So this may very well be the last trip we ever take as a family. Just praying like mad that it will happen and that Noah will stay WELL!!

Things are crazy right now, trying to settle in and get used to the many changes with Noah's care. It will be alot more work to get him to Disney. We will be running 2 pumps almost continously, oxygen for the flight and night, etc...things I had hoped we had gotten rid of. So we have many details that will have to be sorted out, but for right now, I'm just happy to be back on the boards!

We were contacted by the wonderful people from the Big Give board a few weeks back and we recieved our first package yesterday! What a wonderful surprise to come home to! But more on that in my next post.

Huge, Huge thank you's to all of you who have followed our blog, prayed and posted faithfully. You have no idea how much it has meant to me. You have all blessed our family more than you will ever know.

Oh...and most important...we have official dates!!

February 24 - March 3​

 

[llurgy]

Yes, we are home

I am so excited to be posting here again. I just could not even come to the boards these past few weeks, so terrified that we were going to lose Noah this time and he would never get his wish. But we have one amazing boy who shocked the socks off everyone once again, and one amazing God who answers prayer. We have come home knowing that these days are precious and we don't know how many more we will have. Once we lose this line, palliative care will likely be our only option. So this may very well be the last trip we ever take as a family. Just praying like mad that it will happen and that Noah will stay WELL!!

Things are crazy right now, trying to settle in and get used to the many changes with Noah's care. It will be alot more work to get him to Disney. We will be running 2 pumps almost continously, oxygen for the flight and night, etc...things I had hoped we had gotten rid of. So we have many details that will have to be sorted out, but for right now, I'm just happy to be back on the boards!

We were contacted by the wonderful people from the Big Give board a few weeks back and we recieved our first package yesterday! What a wonderful surprise to come home to! But more on that in my next post.

Huge, Huge thank you's to all of you who have followed our blog, prayed and posted faithfully. You have no idea how much it has meant to me. You have all blessed our family more than you will ever know.

Oh...and most important...we have official dates!!

February 24 - March 3​

Such a relief to see you posting in this thread again because it means Noah is on the mend.
Been following your blog with my heart in my mouth for the main part. Some days I didnt want to read because I was scared of what may be posted.

Prayers and good wishes seem to have won through and I am so very, very glad that Noah has been given the go ahead to take his Wish trip.

Love
Mandy

 

[macntosh]

Seeing your dates, I so look forward to meeting your wonderful family in person. We may have to plan our own little Dis party at GKTW for all our special kids!

 

[iu97alum]

Welcome home!!

 

[maroo]

Yes, we are home

I am so excited to be posting here again. I just could not even come to the boards these past few weeks, so terrified that we were going to lose Noah this time and he would never get his wish. But we have one amazing boy who shocked the socks off everyone once again, and one amazing God who answers prayer. We have come home knowing that these days are precious and we don't know how many more we will have. Once we lose this line, palliative care will likely be our only option. So this may very well be the last trip we ever take as a family. Just praying like mad that it will happen and that Noah will stay WELL!!

Things are crazy right now, trying to settle in and get used to the many changes with Noah's care. It will be alot more work to get him to Disney. We will be running 2 pumps almost continously, oxygen for the flight and night, etc...things I had hoped we had gotten rid of. So we have many details that will have to be sorted out, but for right now, I'm just happy to be back on the boards!

We were contacted by the wonderful people from the Big Give board a few weeks back and we recieved our first package yesterday! What a wonderful surprise to come home to! But more on that in my next post.

Huge, Huge thank you's to all of you who have followed our blog, prayed and posted faithfully. You have no idea how much it has meant to me. You have all blessed our family more than you will ever know.

Oh...and most important...we have official dates!!

February 24 - March 3​

Oh Nicole...

I was so scared for you guys, too. But our God is so good, isn't He!

I am in tears reading that you are back here....posting...planning. It is such a gift for your family.

You deserve this gift. God does not promise to answer all of our prayers...but He does promise to listen and do His will...

Anyway...I am so thankful you are back.

 

[kimmylaj]

hip hip hooray

 

[tinytreasures]

Seeing your dates, I so look forward to meeting your wonderful family in person. We may have to plan our own little Dis party at GKTW for all our special kids!

all the cool kids are going that week
I can't wait to meet you and your little miracle Noah

 

[LindaBabe]

Thank heavens he's home - you're home! This trip MUST happen. Sending prayers and pixie dust!

 

[LuvGoing2Disney7]

Yes, we are home


Oh...and most important...we have official dates!!

February 24 - March 3​

BEST NEWS EVER!!!!!

I'm sitting here crying. I am so happy for you guys.

Keep showing them who's boss Noah!!

 

[oklamomof4boys]

Welcome Home! Welcome Back! God is good! We will continue to pray that everything falls into place for Noah's wish trip!

 

[ndloewen]

The day we arrived home from hospital, there was a package waiting for us. I had to hold the kids back so I could get the camera out. We were all very excited to see the Disney package and it felt like we could finally begin anticipating our trip.

Inside were puzzles and coloring books for each of the kids, as well as adorable fabric crayon holders...Minnie Mouse for Kailyn, Pirates for Joshua, and Pooh characters for Noah.

Thank you so much Kim for the pixie dust! These were a huge hit!! I am such a big fan of the crayon holders!!

 

[teresajoy]

Oh Nichole!!! I can't tell you how it does my heart good to see all three of your kids home smiling and opening their packages! Happy happy happy!!!!! That's me!!!