My daughter is still in the hospital - they did a gastro scope yesterday and saw inflamation and some ulcers in the intestines. They are going to giver her another round of Remicade and MAYBE send her home Saturday. She was on the phone with her husband today and one of the 2 y/o twins started crying "I want my mommie!", then she started crying, then I started crying when she told me.
One of her doctors came around today and told her "Well, I won't be cutting on you now...but one of these days I'll be cutting on you."
This is a horrible, debilitating disease. You feel so helpless when you see your child wasting away, or in terrible, constant pain. Heaven only knows what this latest hospital stay is costing.
I apprediate your prayers and comments. I usually work late at night and sometimes when I get in, I have all these thoughts on my mind and no one to talk to...most normal people are asleep in their beds at this time...so it's a welcome outlet to be able to "chat". Thanks