My DD9 has had fluctuating hearing loss since, well, probably since birth. She has had hearing aids for the last three years.... got a new ENT and he did surgery in Dec 5th- removed a cholesteatoma from her left ear and rebuilt both ear drums and put in new tubes. On Feb 8th she had near normal hearing- we took away the hearing aids and we celebrated! Audi redid hearing thresholds today- found a "blood blister" and clogged tube in right ear, AND about a 30dB loss in BOTH ears AGAIN! Hearing aids are now back......I am heartbroken for her. Here we thought we had this licked after so many years of fighting, and it is all starting again. We are moving her to public school from Catholic school next year so she can get better services, and our audi and ENT are wonderful, but I am so frustrated for her. Seems for every victory there is a set back. I know that her hearing loss is minor in the greater scheme of things, but she has had 5 surgeries, this last one being quite invasive, she has had speech therapy EVERY after school T/Th since she was 2, and she just has so many hearing struggles. She is so musical and so social- and she takes it so hard. Only good news- I have no guilt sending her to Camp Lions with her friends with hearing loss. Audi actually recommended it....Camp Lions is such a positive, happy place! And we are going to WDW and having breakfast with the princess this summer- guess we will cling to the positive and deal with the negative!