Hi WISH friends. I have not been around lately and I am not sure I am going to be able to come to the Minnie. I have kept up most of my training, though, just in case.
Here's the news: DH was diagnosed with stage 2 tongue cancer. We were told about the diagnosis on Good Friday. It has taken me this long to be able to cope with it enough to post. It is a rare cancer and it is even rarer in someone as young as him (they say he is 10-20 yrs younger than the avg patient) and has never used tobacco products. We have several more appointments to go & hopefully will start treatment within the next 2 weeks (which is 2 weeks too long for me) It will be 7 weeks of radiation & chemotheraphy. The treatment side effects are nasty. The usual with chemo: hair loss, nausea, etc and because the radiation is focused at his mouth that will be really nasty. He will get really bad mouth sores & eventually not be able to eat or swallow, so he is having to get a feeding tube. It also zaps your salivary glands & will have to have a water bottle with him 24/7. Burns on the skin, possibility of teeth really deteriorating. Just not pretty.
The good news is that it hasnt spread to the lymph nodes & does not involve his voice box (although I can see a difference in his speech over the last week) They say it reacts well to treatment & are aiming to cure it. He is feeling fine now. To look at him you would never know he was sick. However the next several months are going to SUCK!! We are very lucky in that insurance is going to pretty much cover everything and he has about 6 months of leave built up with work. They are also being very good & telling him he can work as little or as much as he wants. They even ordered him a laptop to work from home (although once the kids get out of school he will probably want to go into the office)
When we found out my first reaction was forget Minnie, I dont want to go & I have other things to do & deal with. But he really wants me to go. And this might be the only chance for me to get away for a while.He is such a great guy and has always been so supportive of my crazy Disney racing addiction. I will only be gone for the weekend & since the side effects of treatment are progressive his first week of treatment should be his best as far as how he feels. I would also have my dad come up to help with the boys.
Anyway, if he is still feeling o.k. I will come. At this point it will probably be Wednesday of that week if I know I am coming on Friday. We have alot more appointment in the next week so I will keep you updated. Right now we are trying to keep everything as normal as possible for the kids, still doing all our activities & such. They know daddy is sick but dont really understand the ramifications of it yet.
Here's the news: DH was diagnosed with stage 2 tongue cancer. We were told about the diagnosis on Good Friday. It has taken me this long to be able to cope with it enough to post. It is a rare cancer and it is even rarer in someone as young as him (they say he is 10-20 yrs younger than the avg patient) and has never used tobacco products. We have several more appointments to go & hopefully will start treatment within the next 2 weeks (which is 2 weeks too long for me) It will be 7 weeks of radiation & chemotheraphy. The treatment side effects are nasty. The usual with chemo: hair loss, nausea, etc and because the radiation is focused at his mouth that will be really nasty. He will get really bad mouth sores & eventually not be able to eat or swallow, so he is having to get a feeding tube. It also zaps your salivary glands & will have to have a water bottle with him 24/7. Burns on the skin, possibility of teeth really deteriorating. Just not pretty.
The good news is that it hasnt spread to the lymph nodes & does not involve his voice box (although I can see a difference in his speech over the last week) They say it reacts well to treatment & are aiming to cure it. He is feeling fine now. To look at him you would never know he was sick. However the next several months are going to SUCK!! We are very lucky in that insurance is going to pretty much cover everything and he has about 6 months of leave built up with work. They are also being very good & telling him he can work as little or as much as he wants. They even ordered him a laptop to work from home (although once the kids get out of school he will probably want to go into the office)
When we found out my first reaction was forget Minnie, I dont want to go & I have other things to do & deal with. But he really wants me to go. And this might be the only chance for me to get away for a while.He is such a great guy and has always been so supportive of my crazy Disney racing addiction. I will only be gone for the weekend & since the side effects of treatment are progressive his first week of treatment should be his best as far as how he feels. I would also have my dad come up to help with the boys.
Anyway, if he is still feeling o.k. I will come. At this point it will probably be Wednesday of that week if I know I am coming on Friday. We have alot more appointment in the next week so I will keep you updated. Right now we are trying to keep everything as normal as possible for the kids, still doing all our activities & such. They know daddy is sick but dont really understand the ramifications of it yet.
for you & your family!
- I sent you a PM.
your way! I cannot imagine how hard this is on you and your family. Just know that we are here for you.
And your reasoning for coming to Minnie is exactly what Rick keeps telling me. That it will be early in his treatment & he will still be o.k. So, assuming that he reacts o.k. to his first week of treatment I will most likely be there.
