Making the drive with oxygen Tanks

[TheDisneyDoll]

I’m hoping someone has done this and can supply me with some tips and advice.
Unfortunately after some recent tests I learned my health is no longer sustainable and while I haven’t formally entered hospice or the like I have been told to get my bucket list done.
I would really like that to include one last trip to Disney World, unfortunately my oxygen needs are to great for a portable concentrator, which means I need tanks.
Thanks to insurance I am only provided so many at a time I have to supply my own otherwise.
If I want to make it down to Florida I need enough to navigate the drive and the length of the trip. I can do all the calculating I’m just hoping that someone might have an insight in a supplier or something of the sort in Orlando where I can exchange empty tanks for full ones on arrival or some system like that, rather than just carrying 20 tanks of oxygen which the hazard kind of freaks me out, plus of course I won’t be alone either.

I’m just more of looking for insight from someone who’s made the trip to Disney on oxygen, and tipsnor advice?
I know all about the DAS

 

[bopper]

Check out this thread https://www.disboards.com/threads/oxygen-rental.3760029/

 

[Bete]

I think some if not most cars will allow the portable oxygen devices to charge in the car constantly; so, you should be okay to a degree. Talk to a medical supply company about this part. You may be able to rent one for the trip. Even if your out of the car for a short time eating lunch you should be safe with these chargeable devices. I don't know if you need something stronger than the portable devices.

This is not to say you shouldn't have some tanks as an added precaution. My understanding is it's not really safe to travel with extra tanks; they can blow up. This is not to say people don't do it, but there's a risk. If you do it make sure you secure the tanks very carefully.

If you plan your trip properly you may be able to stop along the way and make an exchange.

Please be careful.

 

[Hopefully]

I think some if not most cars will allow the portable oxygen devices to charge in the car constantly; so, you should be okay to a degree. Talk to a medical supply company about this part. You may be able to rent one for the trip. Even if your out of the car for a short time eating lunch you should be safe with these chargeable devices. I don't know if you need something stronger than the portable devices.

This is not to say you shouldn't have some tanks as an added precaution. My understanding is it's not really safe to travel with extra tanks; they can blow up. This is not to say people don't do it, but there's a risk. If you do it make sure you secure the tanks very carefully.

If you plan your trip properly you may be able to stop along the way and make an exchange.

Please be careful.

OP Stated a Portable Oxygen Concentrator will not meet her needs

 

[Strawberry's mom&dad]

What is your liter flow? Could you use a portable concentrator then tee or y in say 3 liters from a tank? That could make the tanks last longer .

 

[Bete]

OP Stated a Portable Oxygen Concentrator will not meet her needs

I'm not sure that's correct. She may be going by the battery only having a certain time to run, but with constant recharging in the car it can be used constantly if there's an outlet in the car. Also,even if it's not a complete answer it could cut back the number of tanks and that would help, too.

 

[redberyl]

Orlando medical rentals has tanks for rent. Ive never used them before, but might be worth giving them a call. Also, have you tried calling your insurance company to see if they have a list of companies they work with in orlando? Thats what I do when i need to find a peovider for my daughter. Good luck!

 

[SueM in MN]

So sorry to hear and hope you can get this item for your bucket list figured out.

Portable oxygen concentrators are not able to supply a high enough concentration of oxygen for people with high needs. There are oxygen concentrators that can provide up to 10 LPM of oxygen - those are big and heavy (like 60 pounds), so are not really portable. Those are meant for stationary (home) use, so I’m not sure whether or not one could be taken on a road trip.

I’d suggest working with your doctor/respiratory therapist to see if there are any possible inventive ways to get the oxygen flow you need (like Strawberry’s mom&dad’s idea - maybe it would work, maybe not) or different delivery methods that could give you a higher flow. If you have not worked with a respiratory therapist, it might be worth seeing if you could get a referral to one to help figure this out.

Your oxygen supplier should be able to help with figuring out how many tanks of oxygen you would need and how many can be safely traveled with. If it’s a national company, they should be able to help with doctor’s orders and billing, plus help you find suppliers along the way. From that, you would be able to figure out what your route needs to be, how far you can go each day and where your stops to pick up oxygen would need to be.

It may be that the experts at the oxygen supplier say this trip is just not feasible, but at least you will have tried.

Good luck and let us know how it works out.

 

[Chuck-PA]

Have you tried to get hold of Make A wish to accomplish your bucket list? They may be able to direct you to an adult organization that may do the same. My son just started Trikafta today. Hoping this helps him. Did your doctor say if it could help you?

 

[StitchesGr8Fan]

Have you tried to get hold of Make A wish to accomplish your bucket list? They may be able to direct you to an adult organization that may do the same. My son just started Trikafta today. Hoping this helps him. Did your doctor say if it could help you?

Marissa unfortunately passed away a couple of weeks ago. I followed her on FB and her father posted that she was gone.

 

[SueM in MN]

Marissa unfortunately passed away a couple of weeks ago. I followed her on FB and her father posted that she was gone.

Thank you for sharing this sad news. RIP

 

[Chuck-PA]

Thank you for letting me know. Marissa, Breathe Easy...