Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[tinytreasures]

prayers for Haylee

yah for dates Hollie

Bearshouse sorry your little one got sick

 

[Haybuggsmom]

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

 

[kailatilear]

I hope Haylee feels better soon. Praying she can come home for Christmas!!! Lots of hugs and prayers coming your way

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!![/QUOTE

 

[hollie1974]

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

Thank you for the update. Will keep praying.

 

[katieswish]

They should be totally fine with both of those things in their carry on's. When we fly Southwest, we try to check in exactly 24 hours before our flight to be in the A group. Last year when my nephew went on his MAW trip, he did get to preboard, but he had mobility issues which required help. Have FUN!!

Thanks for the check in tip it is much appreciated.

 

[katieswish]

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

Glad to hear Haylee is feeling better...she will have a great Christmas as long as you are all together

 

[Mom2mitokids]

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

Keeping Haylee in my thoughts and prayers.

 

[Mom2mitokids]

Not sure if anyone saw it, but posted a video of the kids on our local news. Page 20. Please go check it out.

 

[Emilyswish]

Sorry Haylee is in the hospital! I'm glad the CPap is keeping her comfortable. Hugs for you all and hope she is well enough to come home for Christmas!!

 

[Bearshouse]

Keeping Haylee in our prayers!! It is no fun spending Christmas in the hospital.
Alexander has had Christmas come to him there a few times.

Bearshouse

 

[Emilyswish]

Quick question about taking meds on the airplane. The paperwork I received says we need to bring a script for each medication and a letter listing all of the meds and medical supplies we need to bring on board for Emily.

What do they mean a script? She takes a lot of medications. Do we have to get a script for each one we're bringing, an actual new prescription slip? I'm confused. I know we have to bring meds in their original prescription bottles isn't that enough?

Thanks for any help.

 

[maroo]

Quick question about taking meds on the airplane. The paperwork I received says we need to bring a script for each medication and a letter listing all of the meds and medical supplies we need to bring on board for Emily.

What do they mean a script? She takes a lot of medications. Do we have to get a script for each one we're bringing, an actual new prescription slip? I'm confused. I know we have to bring meds in their original prescription bottles isn't that enough?

Thanks for any help.

That is a little confusing...you don't have to have a written prescription...you just need to have them all in their official prescription bottles. They will frown upon you bringing some liquid "medicine" in an unlabled container, for example. And they want all pills to be in their bottles rather than already split up in a dispensing container of any kind.

But...you might want an extra prescription of any meds you really need in case you lose them or need more than you anticipate...so that you can take the actual prescription to a pharmacy down there. We wished we had gotten Lauren's ped to write us an rx for Zofran and some antibiotics - just in case - and we won't leave home without that when we go back - but she doesn't take those on a regular basis - so we would have had to have the prescription.

If you want to be on the really safe side, you could get your physician to list her meds on a letterhead from the dr office and just bring it with you - or bring a copy of her last doctor progress note (if they note each med on there) - just to have it. But I don't think it will be a big deal.

You guys are not traveling internationally, right? ETA - I guess not...from Jersey. It might seem like a foreign country to me - but then I am positive Mississippi would seem like back woods foreign country to "y'all" too.

 

[maroo]

Not sure if anyone saw it, but posted a video of the kids on our local news. Page 20. Please go check it out.

I saw it!


Sorry I didn't post about it! But it was cool!!

 

[Emilyswish]

Wow Maroo, thanks for the super quick response!

I decided to call US Airways and she said as long as we have a list of everything Em needs and it's printed on doctor's letterhead, we should be good. Phew!!

And, yes, we're flying in from jersey!

 

[that's nice]

I wonder what type of routers they need...seems like we could drum up some more to get donated...... I am going to work on that.

Not sure what type they have because I didn't get my hands on one!

I saw that someone is going to report back... I'm curious what kind they need too.

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

Glad to hear Haylee is getting closer to getting out. I hope she gets out on Friday!!! We are praying for you guys!

I know it is a little different but we spent Easter in the hospital one year. Our family and the staff did make it a Joyous day for us.

 

[Mom2mitokids]

I just ordered some Button buddies for Kylee's j tube. These are awesome. My friend use to make them but had to go back to work. I was down to 1 left and found these.

 

[Redwavess]

Hey guys!
Wanted to let you all know Haylee is resting comfortably on the CPap now. They said MAYBE we will go home this weekend. If not Jonathan said Christmas comes to Haylee!!!

Sending prayers and good vibes your way!! Crossing fingers and toes that you will be home for Christmas!!

 

[brookerene]

Those button buddies are great! I wish I had some when my son had his PD Cath... I always thought that we needed something circular to protect it. Now just some Disney ones!

 

[Emilyswish]

Those button buddies are really cool!

 

[Mom2mitokids]

Those button buddies are great! I wish I had some when my son had his PD Cath... I always thought that we needed something circular to protect it. Now just some Disney ones!

Kylee would love to have some Disney Princesses G pads. I wonder if this lady could make some.