Well, as I already mentioned... my name is Amy. I am the mother of four wonderful kids and Navy wife to my high school sweetheart. Our oldest son is 15, our wish kid is 12 then we have 2 more little guys 4 and 6 months.
My daughter was diagnosed almost 2 years ago with Indeterminent Inflammatory Bowel Disease. Although, they are now saying Crohn's. She has had symptoms since she was 2 and it took 8 years and A LOT of doctors to finally figure out what was wrong. She was started on medications right away and several didn't work and she ended up on Remicade. She has been getting those for 14 months and did not get good news with her last EGD/Colonoscopy. They are giving her one more chance at the max dose of Remicade. If that doesn't work we need to try something new. She has several other issues that go along with Autoimmune diseases as well as chronic upper respiratory and sinus infections. That's the nutshell anyway.
She was referred to MAW by the nurses in her hematology/oncology treatment center. It took quite a while to hear anything back (MONTHS) because the doctors papers "didn't make it back" to MAW. Once they got them, it has moved VERY quickly. We got the letter in the mail that our Volunteers would be calling. Less that 2 hours after opening the mail they called. They were at our house 2 weeks later. They brought Allison a MAW barbie!! So cute. It is displayed on a shelf in her room. More paper work, birth certificates, more papers for the dr. Which by the way, was deployed very suddenly. So the one doctor that finally figured out what was wrong AND gave her quality of life back..... is now gone. But that's a whole other story. So the papers again finally make it back to MAW. Our Wish Granter calls and literally wanted us to leave in 2 weeks from when everything was approved. (Which would have been tomorrow)
Her first wish was to meet Harry Potter's George and Fred. We were told we would have to be willing to leave within 48 hours of being notified, which with a Sailor you just can't do. Her second wish was to go to The Wizarding World of Harry Potter. They decided to have us go to GKTW and visit the Orlando parks, which includes IOA where Harry Potter is. She is a huge Potter fan.
Our trip is December 12-18. She is so excited!! And we are all excited as well. We LOVE Disney!! LOVE LOVE LOVE it!! DD LOVES
Even at 12 still has alot of her in her room!! We have nothing specific planned at this point.. just to kinda go with the flow.
I feel like I just said so much, but yet it isn't nearly our whole story!
So happy to have found this board!! YAYAYAYAYAY
Treasure this trip for always!
I am so glad your daughter is getting a wish. My daughter is actually getting a wish to disney too.
, Thursday back to the dr for her thumb, and they are starting her in PT for her back pain. My hubby told me Thursday night, that he is not happy, not with our marriage, but with our finances. So, we have decided that it is time to put my college education on hold and go back to work full time. I have been on an emotional rollercoaster this week. I am fine with putting school on hold. I will give up school, I will NOT give up my family. Still waiting to hear from MAW it has been it has been 4 weeks on Monday since the volunteers came out to offically get Abby's wish. Hopefully we will hear something soon. Oh and by the way, her dr.'s nurse said, that he has never said no to a disney MAW trip.
Now I just have to keep that up until the semester ends.
I think I even confused myself. But there are directions on the wish thread somewhere.... try clicking something in Maroo's signature... I know it will eventually lead to the directions! 
