Hello! We just got approved for our MAW trip and we are so excited!!
let me start by introducing our family....
I am Kayla, mommy to 2 wonderful boys. I am currently a stay at home mom.
My husband is Joe, we have been married for 6 years and were high school sweethearts
.
Our wish child is Jackson, he is almost 3 now and he is currently in remission from cancer (neuroblastoma).
Our other son is Austin, he is almost 5 years old and he is a Type 1 diabetic.
My mother, father and Aunt will also be joining us for a few days so they can play with us. They were all 3 with us during our toughest times, I am so glad that they will be there to see the smiles on the boys faces.
A quick story....I am not the best story teller, so try to stick with me ...oh, and it will probably not be quick ...............
Jackson was diagnosed at 9 months old (in 2008) and underwent treatment in Dallas (where we live), after 2 rounds of chemotherapy his tumor shrunk and we had a consult with a local surgeon about removing the tumor. The surgeon in Dallas said he would not feel comfortable removing the tumor and that we could "wait and watch" what the tumor did....no thanks.
After some research, we found a doctor in NY that does tumor resections for neuroblastoma patients and we heard he was amazing. We sent Jacksons' medical file to him and got the call that we were waiting for....they wanted us to go to NY and they would do the surgery!!!
Me, my husband and Jackson left for NY to meet our doctor and we would have 1 week to explore NY and have some fun before our little man had his surgery.
My mom, Aunt and our older son Austin met us in NY a few days later and Austin was starting to get sick. In an effort to not get Jackson sick before surgery, my husband took Austin to a pediatrician in NY to get some antibiotics (at this point, Austin had not been diagnosed with diabetes). Austin had been having some problems with potty training and he was always thirsty, so my husband asked the doctor to check for sugar in his urine while they were there.
While my husband and Austin are at the pediatrician, I am at the oncologist with Jackson, my mom and my aunt...we were visiting with the doctors, doing bloodwork, etc. Next thing I know, my husband is on the phone saying that him and Austin are headed to the hospital in a cab and that Austin has diabetes! What??!!!
The next couple of weeks will always be a blur. We spent 3 days in the hospital with Austin learning how to take care of his diabetes and after he got out of the hospital, we went right back in with Jackson for his tumor removal and a week long recovery.
I am still not sure what me and my husband would have done without my mom and aunt there, they helped tremendously and made our situation a little easier to handle.
To make a long story longer, we are definitely needing this time as a family to have fun and unwind and we are so excited that my mom and aunt will be there for a few days to have fun with us.
I look forward to talking to everyone on here and getting tips and ideas on what to do for our trip!!
Is MAW usually prepared for these changes? I would assume they would be due to the nature of illness. What are your expereinces? Thanks
