Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[Thumper321]

HI everbody.
Just back from 3 weeks in Florida. The first two were freezing, but it got better after that.

Thanks to Thumper's request for park maps, the old lady woke up and fetched several sets - I never thought of y'all needing those. I have at least 3 extra sets to the first wish momma's who pm me their addresses.

I took a new potential volunteer around GKTW before leaving for the airport, and it reminded me just how wonderful a place it is. I saw the new villas for the first time (They're amazing) and Mathew's boundless playground. WOW! Your kids will think they're in wonderland for sure.

Please don't plan your days so full that you fail to allow time to spend in this marvelous place! There's a magical playroom in the Castle of miracles that twinkles with fiberoptic lights. The carousel about which much has been written, but there's also a narrow guage train, and a marvelous model railroad running through interactive landscapes. There are model boats to 'drive' and ice cream to eat and a sleeping tree that SNORES. Twice a week volunteers bring horses to ride, and there are Christmas Parties, and birthday parties and visits from Characters. And the POOL! Oh my.

Honestly, you could never leave the resort, and still have a fabulous vacation.

Lurkers, if you're lurking and you are not a wish family - c'mon down and volunteer! OR get out there and raise funding for GKTW or your local wish organization. YOU, TOO, can be a part of something wonderful!

Welcome Home! Thank you for picking up the maps for me! Like I said in my other post, I ordered the custom maps from the Disney website, but I don't know what I did wrong because it only has a few each of attractions, dining, and shows. I mean, literally about 10 things for each park, and we all know there's so much more to Disney than that!

I know that we can't wait to see GKTW! Thank you for volunteering! Even though we haven't been yet, I can already tell how much love goes into making it what it is. And all because of people like you!

Glad you made it home safely!

 

[pacrosby]

PS>>>> This is not directly at anything I have read here on the boards at all...and has nothing to do with any particular person or user (I promise I would PM you if it did!)...just something I have been thinking about over the past month or so.


This is just a public service announcement...and it will be a little ironic...

Please don't forget...as you type in these forums and particularly this thread...that there are people reading the posts that are not identifying themselves.

When I first found these forums, I never thought about who would be reading what I am writing and I always felt anonymous.

But you never know who is reading the threads...and I would assume even as I type this...that EVERYONE is reading them. Representatives from MAW, GKTW, Disney, Universal, your family...you never know who is reading what you are writing...

Most of us have identified ourselves here using pictures or even just type that would give away enough information about ourselves to be easily identified.

Just remember that people are reading what we are writing.

Sorry...I just feel like that needs to be said.


As a funny aside...I have a favorite cousin that I don't talk to often...but I found out a few months ago that she is a DISer...a lurker! We have never talked about whether or not she knows who I am on here...but she spends a couple of hours on here a day...so I figure if she spends that much time around here, she knows where to find ME!

Anyway...I just wanted to throw out that gentle reminder.

gee, I think my cheek hurts

yeah, I do get what you're saying maroo and I've certainly thought about how some of the things I myself have said might be received if 'certain' people were reading, but honestly, everything I say here on the boards I wouldn't hesitate to say straight to their faces. Keep in mind of course that I'm coming up on 50 in a couple short years. You tend to get bolder as you get older and are much less concerned that someone won't like what you have to say. Truth be told, I fully intend on including all of my feelings, impressionsand opinions in a lengthy commentary in that section that asks "if there is anything else I'd like them to know about my experience" when I finally get around to returning that survey on my kitchen counter

Do you really think that they don't refer to the Disboards because they are afraid people will compare notes? Because to do so would implies that they have something to 'hide'. It's a resource. To 'not allow' a Wish family to gather as much information as they can to make their child's trip a trip of a lifetime is insensitive. A Wish trip to WDW is probably one of the easiest Wishes to coordinate. Most chapters just arrange the dates at GKTW, secure plane/rental car reservations and supply an expense check (not to minimize the significance of that..............I'm sure you know what I'm trying to say). They generally don't personalize the trip in any way. In fact many like to point out that the trip is the Wish, there is nothing more to be done so please don't ask. So if they can't personalize the trip (and I do understand why they can't/don't..............it'd be a logistical nightmare) why not provide families with the resources to do it themselves? I remember one of the reps, when she told me Matty couldn't be in the parade, telling me that it might be possible for me to arrange something when I went down there. OK....great. How? While it was nice for her to tell me that, without providing me with any ideas as to 'how' made it a useless suggestion. Who was I going to talk to? Where would I go to find that someone to talk to? She had no idea. It was only because of the Disboards that I learned about the Xmas parade at GKTW. Only because of the Disboards that I learned about Murphy. Without the Disboards I wouldn't have had a clue who to call or what to ask for or anything. Without the Disboards Murphy would've just been that big fat cute ol' gingerbread man at GKTW. And then of course there's the Disney Gmen. While something like that could never have been promised it was still the Disboards that were responsible for that. If I hadn't found you all..........................many peoples memories of that day would be vastly different. I got incredibly lucky the day I found this board. I can confidently say that everything about our trip was different because of these boards. When our granters came to our house, they knew NOTHING about a WDW trip or GKTW. They couldn't offer us anything. They had no knowledge of the village and it's various activities and special opportunities. They had never even seen a picture of GKTW. I'm sorry...............that's just not right. If MAW doesn't have the time/desire to give their grantors the information they need to prepare a family for the journey ahead, they should at least consider offering up a resource that will be able to do so. I'm sorry but I don't think that's too much to ask.

Can you tell I'm getting alittle worked up over here I am. My blood pressure is rising as I write this. And you know what, I do hope someone from the organization IS lurking and reading all that I, and others, have to say.

ok.......breathing deeply.

Of course I'll say it again and again - it's not that I'm unappreciative. It's not that I don't think what they do do is wonderful. I am beyond appreciative of what they did for my family. But they are supposed to be in the business of trying to grant these children's Wishes. Sure Matty wanted to go to WDW at Christmas but his specific wish was to be a gingerbread man. Would he have had fun if Kdzbear hadn't told me about Murphy and maroo hadn't helped make some magic? Sure but his WISH wouldn't have come true. It breaks my heart to think that there are other children out there who could've had their 'specific' Wishes come true, or some version thereof, if their parents only knew how to make it happen We (I) am not suggesting that they do anything that's going to increase their costs or complicate the process. We just would like them to open their eyes alittle bit and help to make this experience the very best it can be. Because at the end of the day, isn't that the goal?

ok, I'm done now. Sorry I've gone and on Gee, think I'm still upset about that recent conversation I had with the 'office'? LOL Guess I needed to vent.




Pamela
Matty's Wish Trip PTR http://www.disboards.com/showthread.php?t=2325607
Matty's Wish Trip TR "Mom, Dad, 3 Kids and a Gingerbread Boy" http://www.disboards.com/showthread.php?t=2356739

 

[livndisney]

gee, I think my cheek hurts

yeah, I do get what you're saying maroo and I've certainly thought about how some of the things I myself have said might be received if 'certain' people were reading, but honestly, everything I say here on the boards I wouldn't hesitate to say straight to their faces. Keep in mind of course that I'm coming up on 50 in a couple short years. You tend to get bolder as you get older and are much less concerned that someone won't like what you have to say. Truth be told, I fully intend on including all of my feelings, impressionsand opinions in a lengthy commentary in that section that asks "if there is anything else I'd like them to know about my experience" when I finally get around to returning that survey on my kitchen counter

To hope that families don't get together and 'compare notes' implies that they have something to 'hide'. To 'not allow' a Wish family to gather as much information as they can to make their child's trip the most special experience of a lifetime is insensitive. A Wish trip to WDW is probably one of the easiest Wishes to coordinate. Most chapters just arrange the dates at GKTW, secure plane/rental car reservations and supply an expense check (not to minimize the significance of that..............I'm sure you know what I'm trying to say). They generally don't personalize the trip in any way. In fact many like to point out that the trip is the Wish, there is nothing more to be done. So what's wrong with giving families the resources to personalize the trip themselves. I remember one of the reps, when she told me Matty couldn't be in the parade, telling me that it might be possible for me to arrange something when I went down there. OK....great. How? While it was nice for her to tell me that, without the dis (and maroo) it NEVER would have happened. I wouldn't have had a clue who to call or what to ask for or anything. When our granters came to our house, they knew NOTHING about a WDW trip or GKTW. They couldn't offer us anything. I'm sorry...............that's just not right. And as far as the potential for ******* when famiies find out that things are not necessarily consistent from chapter to chapter? Well how about simply treating people like adults and explaining to them that policies can differ based on financial resources amoungst other things. We're all big girls here. I think we would easily understand that.

Can you tell I'm getting alittle worked up over here I am. My blood pressure is rising as I write this. And you know what, I do hope someone from the organization IS lurking and reading all that I, and others, have to say.

ok.......breathing deeply.

Of course I'll say it again and again - it's not that I'm unappreciative. It's not that I don't think what they do do is wonderful. I am beyond appreciative of what they did for my family. But they are supposed to be in the business of trying to grant these children's Wishes. Sure Matty wanted to go to WDW at Christmas but his specific wish was to be a gingerbread man. Would he have had fun if maroo hadn't made her magic and Kdzbear hadn't told me about Murphy? Sure but his WISH wouldn't have come true. It breaks my heart to think that there are other children out there who could've had their 'specific' Wishes come true if their parents only knew how to make it happen We (I) am not suggesting that they do anything that's going to increase their costs or complicate the process. We just would like them to open their eyes alittle bit and help to make this experience the very best it can be. Because at the end of the day, isn't that the goal?

ok, I'm done now. Sorry




Pamela
Matty's Wish Trip PTR http://www.disboards.com/showthread.php?t=2325607
Matty's Wish Trip TR "Mom, Dad, 3 Kids and a Gingerbread Boy" http://www.disboards.com/showthread.php?t=2356739

I don't think anyone is suggesting that "parents should not get together and compare notes". But the truth of the matter is different chapters do things differently.

I have been blessed to spend a day with my cousin on his wish trip, I have been blessed to be a part of the "Big Gives", I have also been blessed to be able to help families make some "extra magic".

I know first hand how theme parks work and have connections in several parks. I also know that SOMETIMES magic can happen. But there is no way I could stand in someones living room weeks or months before a trip and promise a "special" will happen. I don't see how wish granters can either. I have been part of "magic" that was a moment by moment kind of thing. I was a nervous wreck hoping that everything went right. No one wants to be the person that said something would happen and then it doesn't. Especially for a Wish child.

I could say more, but I won't. I just wanted to present the "other side" if you will. Everyone I have ever worked with on a wish trip wants that trip to be the BEST for the child and for the family. Sometimes we want to arrange something but sometimes it just can't be done or it can't be done in the time given.

 

[pacrosby]

I don't think anyone is suggesting that "parents should not get together and compare notes". But the truth of the matter is different chapters do things differently.

I have been blessed to spend a day with my cousin on his wish trip, I have been blessed to be a part of the "Big Gives", I have also been blessed to be able to help families make some "extra magic".

I know first hand how theme parks work and have connections in several parks. I also know that SOMETIMES magic can happen. But there is no way I could stand in someones living room weeks or months before a trip and promise a "special" will happen. I don't see how wish granters can either. I have been part of "magic" that was a moment by moment kind of thing. I was a nervous wreck hoping that everything went right. No one wants to be the person that said something would happen and then it doesn't. Especially for a Wish child.

I could say more, but I won't. I just wanted to present the "other side" if you will. Everyone I have ever worked with on a wish trip wants that trip to be the BEST for the child and for the family. Sometimes we want to arrange something but sometimes it just can't be done or it can't be done in the time given.

OOOOOPs...................I think you misunderstand my beef.

I'm sorry, maybe I shouldn't have written that on this thread. I forget that not everyone who contributes on this thread has been following the discussions on other's PTR's and pm's and understands exactly what I am talking about it. Please forgive me for the misunderstanding. Just know that I don't disagree with anything you have said. You would have had to been privy to alot of previous conversations to clearly understand my point.

 

[livndisney]

OOOOOPs...................I think you misunderstand my beef.

I'm sorry, maybe I shouldn't have written that on this thread. I forget that not everyone who contributes on this thread has been following the discussions on other's PTR's and pm's and understands exactly what I am talking about it. Please forgive me for the misunderstanding. Just know that I don't disagree with anything you have said. You would have had to been privy to alot of previous conversations to clearly understand my point.

I think I understand your "beef". I just wanted to share my personal experience to maybe "help" with your frustration. I guess I didn't. That is what I get for posting after midnight LOL.

 

[pacrosby]

I think I understand your "beef". I just wanted to share my personal experience to maybe "help" with your frustration. I guess I didn't. That is what I get for posting after midnight LOL.

Hmmmmmmm. But I really don't think that you do

I guess my confusion lies in the fact that I am not in any way suggesting that a wish grantor OR MAW representative promise a family weeks or months ahead of time that magic will happen. I'm not suggesting they promise anything at all. Honestly, I didn't say anthing like that. What I was suggesting is that they consider offering families the resources to do some planning of their own d(as in the disboards). Allow them the opportunity to become aware that there are ways that they "might" be able to make some extra magic and personalize their child's trip even if MAW can't. It doesn't have to be random. As you read through PTR's and TR's of late you will see where people have taken charge and made lots of things happen that MAW had no hand in. Things that would probably not be happening if they had never been introduced to others here on the dis.

And as far as families comparing notes...................it was maroo who actually suggested that perhaps that is why MAW didn't want to pass on the existance of the Dis. I was specifically commenting on that.

btw: I edited my initial post in hopes of reducing further misunderstanding - you are welcome to reread (although with two additional posts and two pm's I would hope it's clear by now LOL)

 

[camarks1234]

you know, I thought it was rather easy to find the disboards. When I knew we were going on a trip I immediately went to the Disney site and then found the boards. If someone really wants to research their vacation and find resources, they'll find them.

 

[dmbfan]

Yes, Seaworld and US/IA are near each other...so I would plan Sea World do to during one of your trips to US/IA.

 

[livndisney]

Hmmmmmmm. But I really don't think that you do

I guess my confusion lies in the fact that I am not in any way suggesting that a wish grantor OR MAW representative promise a family weeks or months ahead of time that magic will happen. I'm not suggesting they promise anything at all. Honestly, I didn't say anthing like that. What I was suggesting is that they consider offering families the resources to do some planning of their own d(as in the disboards). Allow them the opportunity to become aware that there are ways that they "might" be able to make some extra magic and personalize their child's trip even if MAW can't. It doesn't have to be random. As you read through PTR's and TR's of late you will see where people have taken charge and made lots of things happen that MAW had no hand in. Things that would probably not be happening if they had never been introduced to others here on the dis.

And as far as families comparing notes...................it was maroo who actually suggested that perhaps that is why MAW didn't want to pass on the existance of the Dis. I was specifically commenting on that.

btw: I edited my initial post in hopes of reducing further misunderstanding - you are welcome to reread (although with two additional posts and two pm's I would hope it's clear by now LOL)

Wow, I think I will be stepping away from this thread.
Believe me I understand your opinion. My intent was not to anger you, I was just trying to explain some of the "difficulties" in making the "extra" magic happen.

 

[Savannah's Mami]

Hi,
I went back to Disney and GKTW last week and have been sick since so this is my first time back on the boards...have I mentioned how much I love GKTW????

I hope to catch up on the thread soon!!!

I was just trying to explain some of the "difficulties" in making the "extra" magic happen.

Our family will be FOREVER grateful to you for the "MAGIC" on our trip!

 

[maroo]

Gosh...I am not really sure what to say.

I am sorry that anyone's feelings got hurt over what I posted earlier.

What I posted had nothing to do with what you guys were discussing, I don't think.

But I do know for a fact that there are MAW reps who do not feel like it is a good idea for THEM to give the information out about the DIS.

I am sure there are a bunch of reasons, not the least of which is the fact that they want the trip to be easy for the families and don't want the families to feel any pressure to plan for the trip at all. To send them over here to a planning site could add pressure to some of the families that don't have time or energy to plan.

But for us planners - it is invaluable!

And the great friendships and relationships created on the DIS are invaluable!

 

[cantwaittoseemickey]

Thank you Christine I will post to you on my ptr if you wouldnt mind hopping over there later

 

[dmbfan]

Hi,
I went back to Disney and GKTW last week and have been sick since so this is my first time back on the boards...have I mentioned how much I love GKTW????

I hope to catch up on the thread soon!!!



Our family will be FOREVER grateful to you for the "MAGIC" on our trip!

Can't wait to hear how it went. We go back in a couple of weeks to volunteer and we are so excitied....

Plus can I ask did you have a car rental or did you take a taxi/cab from the Disney sites to GKTW? I am trying to see if it just makes sense to rent a car for a day or so.

 

[livndisney]

Hi,
I went back to Disney and GKTW last week and have been sick since so this is my first time back on the boards...have I mentioned how much I love GKTW????

I hope to catch up on the thread soon!!!



Our family will be FOREVER grateful to you for the "MAGIC" on our trip!

You are so sweet. Thank you! I am sorry you aren't feeling well. Hope you feel better soon. Please hug sweet little savvy for me (and Elmo).


Maroo-thank you so much for your kind words today!

 

[pacrosby]

Gosh...I am not really sure what to say.

I am sorry that anyone's feelings got hurt over what I posted earlier.

What I posted had nothing to do with what you guys were discussing, I don't think.

But I do know for a fact that there are MAW reps who do not feel like it is a good idea for THEM to give the information out about the DIS.

I am sure there are a bunch of reasons, not the least of which is the fact that they want the trip to be easy for the families and don't want the families to feel any pressure to plan for the trip at all. To send them over here to a planning site could add pressure to some of the families that don't have time or energy to plan.

But for us planners - it is invaluable!

And the great friendships and relationships created on the DIS are invaluable!

So fun to talk with you today there girl. And yeah yeah yeah, I hear ya

At the risk of beating a dead horse however, I'm just going to say this one more thing............................just in case 'someone' 'somewhere' is reading (wink wink)............................I/you/we aren't so much suggesting that MAW (any Wish organization for that matter) 'send' families over to the Dis to prepare and plan. Obviously there are many issues and liabilities involved in doing such a thing. But wouldn't it be nice to just ask families if they would like the opportunity to prepare themselves for the journey ahead. Ask them if they would like to be able to do some of their own planning and learn more about the parks and GKTW. Many a family will say 'no', they neither have the time nor the desire, and in that case, that's the end of it. MAW can now feel terrific knowing they are preparing that family for a wonderful surprise. But some families will say 'yes'. Lots of families would in fact say yes. And, in those cases, offering up the disboards as a possible helpful resource is no different than offering up that Birnbaum book they send to us. A simple "oh, we've heard about this website where Wish families can learn about Disney and GKTW and plan together.". Where's the liability in that? Yes, MAW is right, they shouldn't tell people about the DIS 'so' that they can do some of their own planning. Rather they should tell people about the DIS once they have determined that they would 'like' to do some of their own planning.

That's it. I'm done. I promise promise promise not to say anything again (well, at least not on this particular thread ).

Big fat apologies to any of the wonderful Wish trippers who may have gotten caught off guard by the mudslide and were put off by my ranting. I really am quite harmless.......................I just get alittle worked up sometimes I mean let's be serious, how harmful can the mother of a little gingerbread man really be



Pamela
Matty's Wish Trip PTR http://www.disboards.com/showthread.php?t=2325607
Matty's Wish Trip TR "Mom, Dad, 3 Kids, and a Gingerbread Boy" http://www.disboards.com/showthread.php?t=2356739

 

[pnutallergymom]

Hi guys!!

I was wondering if there is a certain menu that GKTW follows for the dinners during the week? Is it Boston Market for Lunch/Dinner all day, everday, or do they switch it up a bit??

Also, another question????? For those of you who have kids with central lines (not ports), how do you handle the swimming thing?? Right now, Brigitte only gets a bath on her dressing change day...and we cover her dressing with gauze and then tegaderm, then immediately change it after the dressing. We were hoping to be rid of this line before we go, but with all of her issues and her inability to gain any good weight, I think the liklihood of that happening is getting further and further away from us. I am prepared to change her dressing each and every time she goes swimming, but was wondering if any of you had any good tips??

 

[llurgy]

So fun to talk with you today there girl. And yeah yeah yeah, I hear ya

At the risk of beating a dead horse however, I'm just going to say this one more thing............................just in case 'someone' 'somewhere' is reading (wink wink)............................I/you/we aren't so much suggesting that MAW (any Wish organization for that matter) 'send' families over to the Dis to prepare and plan. Obviously there are many issues and liabilities involved in doing such a thing. But wouldn't it be nice to just ask families if they would like the opportunity to prepare themselves for the journey ahead. Ask them if they would like to be able to do some of their own planning and learn more about the parks and GKTW. Many a family will say 'no', they neither have the time nor the desire, and in that case, that's the end of it. MAW can now feel terrific knowing they are preparing that family for a wonderful surprise. But some families will say 'yes'. Lots of families would in fact say yes. And, in those cases, offering up the disboards as a possible helpful resource is no different than offering up that Birnbaum book they send to us. A simple "oh, we've heard about this website where Wish families can learn about Disney and GKTW and plan together.". Where's the liability in that? Yes, MAW is right, they shouldn't tell people about the DIS 'so' that they can do some of their own planning. Rather they should tell people about the DIS once they have determined that they would 'like' to do some of their own planning.

That's it. I'm done. I promise promise promise not to say anything again (well, at least not on this particular thread ).

Big fat apologies to any of the wonderful Wish trippers who may have gotten caught off guard by the mudslide and were put off by my ranting. I really am quite harmless.......................I just get alittle worked up sometimes I mean let's be serious, how harmful can the mother of a little gingerbread man really be



Pamela
Matty's Wish Trip PTR http://www.disboards.com/showthread.php?t=2325607
Matty's Wish Trip TR "Mom, Dad, 3 Kids, and a Gingerbread Boy" http://www.disboards.com/showthread.php?t=2356739

LOL.....This thread is about to become a dead horse again
Our MAW knew nothing, and I mean NOTHING about the DISBoards.
I had to contact MAW when we became part of the BIG GIVE and they didnt know anything about the board and had never heard of the BIG GIVE. Once they found out after I explained they were astounded and gratified that so much extra magic was out on the internet, but they had no idea before I put them straight that it was out there.
So, in defense of our particular MAW chapter, sometimes you cant fault them for not pointing you in a direction if they dont know that direction exists

Mandy
xxx

 

[dmbfan]

LOL.....This thread is about to become a dead horse again
Our MAW knew nothing, and I mean NOTHING about the DISBoards.
I had to contact MAW when we became part of the BIG GIVE and they didnt know anything about the board and had never heard of the BIG GIVE. Once they found out after I explained they were astounded and gratified that so much extra magic was out on the internet, but they had no idea before I put them straight that it was out there.
So, in defense of our particular MAW chapter, sometimes you cant fault them for not pointing you in a direction if they dont know that direction exists

Mandy
xxx

I agree 100%. Our MAW was the same way. I will say in defense to the MAW volunteers, it is up to the wish granters to make the most of their wish children that they take on. A good friend of mine is a wish granter, and I told her about the Disboards cause her first wish family was going to Disney. She looked on the thread, loved it, and sent the information to the family. As it turned out, the family just did not have to time to get on the internet.

She also did alot of neat things for the child, as making a disney calaendar, making sure she sent a Disney postcard to her every week in the last month before their trip.

Also keep in mind the volunteers do this on this down time. They do not get paid to drive out and see the child, and most of the time, wish granters have full time jobs and family's to tend to. Some are also past wish parents, so they are more likely to do extra little things. However, every MAW chapter has a certain expense limit when it comes to before the trip, and I do know alot of wish granters will pay out of pocket to add special things such as hand done family t-shirts and such.

As for MAW as a whole, there are so many wishes that come thru everyday, and not enough people to help out, so while I am sure they would love to be able to give this information, I am sure time just does not allow for it.

I think the best thing would be to share the sites and information with your wish granters. This is what we did and they were shocked and in awwww when they saw all the items that were made for our family from the Big Give, and could not wait to check this thread out. Hopefully they will take the next step and sharing this with their MAW chapter.

I hope it was ok that added my 2 cents to this topic...

 

[dmbfan]

Hi guys!!

I was wondering if there is a certain menu that GKTW follows for the dinners during the week? Is it Boston Market for Lunch/Dinner all day, everday, or do they switch it up a bit??

Also, another question????? For those of you who have kids with central lines (not ports), how do you handle the swimming thing?? Right now, Brigitte only gets a bath on her dressing change day...and we cover her dressing with gauze and then tegaderm, then immediately change it after the dressing. We were hoping to be rid of this line before we go, but with all of her issues and her inability to gain any good weight, I think the liklihood of that happening is getting further and further away from us. I am prepared to change her dressing each and every time she goes swimming, but was wondering if any of you had any good tips??

If I remember correctly...the breakfeast was pretty much the same, eggs, bacon, bagles, cereals, fruit...the whole nine yards...we loved going there in the am... Katies Kitchen, which is where boston market is, is open from 9am-11pm...and you can order anything, as much as you want all the time...we did get tired of chicken by the end of the trip..

As for lunch, I can not remember if they serve it at the village or not?? And dinner we usually got back to late for dinner, so we either ate out or had Katies Kictchen.

They also do sell wine and beer at the walmart ( as a glass of wine was what me and dh had before we went to bed at night.... made the end of the day perfect) and we also picked up some snacks and juice boxs.

For the CL...we have a port, so I can not help you with that one. I do know they make swim suties for brovaics but I think they are super ######...I do have the link if you are interested. I also know some people will wrap their chest with clear plastic wrap, however not sure I would reccommend doing that...I am very nervous when it comes to these lines...

 

[pnutallergymom]

If I remember correctly...the breakfeast was pretty much the same, eggs, bacon, bagles, cereals, fruit...the whole nine yards...we loved going there in the am... Katies Kitchen, which is where boston market is, is open from 9am-11pm...and you can order anything, as much as you want all the time...we did get tired of chicken by the end of the trip..

As for lunch, I can not remember if they serve it at the village or not?? And dinner we usually got back to late for dinner, so we either ate out or had Katies Kictchen.

They also do sell wine and beer at the walmart ( as a glass of wine was what me and dh had before we went to bed at night.... made the end of the day perfect) and we also picked up some snacks and juice boxs.

For the CL...we have a port, so I can not help you with that one. I do know they make swim suties for brovaics but I think they are super ######...I do have the link if you are interested. I also know some people will wrap their chest with clear plastic wrap, however not sure I would reccommend doing that...I am very nervous when it comes to these lines...

Thanks Christine...your a girl after my own heart....we will be making a pit stop at the Wal-Mart for that very reason....and of course for snacks for the kids!!! 12 days in Disney with 4 kids..and lots of medical equipment.....you can bet your bottom dollar that I will need more than a "glass" of wine at the end of the day!!!

The CVL makes me really nervous too...add in the immunodeficiency and Brigitte's risk goes waaaaay up. We have started her on ethanol locks, and so far, so good *fingers crossed*. I have seen the swimsuits, and your right, they are $$$$$$. We use the press and seal too, but it doesn't work really well. I went on the Oley Foundation and did some reading, and it really looks like a chlorinated pool isn't to much of an issue, as long as you do a dressing change right after, and a cap change. I was just looking for anything that would give us a barrier...Would you send me that link though, just so I can see if it was the same one I had looked at??

Thanks!!