Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[brookerene]

Well, we're back from the cardiologist and the results are more on the negative side. The good news: Stress test was negative.
The bad news: Holter Monitoring was positive for frequent Premature Ventricular Contractions. Since the echo came back clear, now he wants an MRI of my heart to see is there's a problem with the muscle itself. In his working diagnosis, it says to rule out Arrhythmogenic Right Ventricular Dysplasia. I really don't think I have this but we're doing the MRI so he can give me the all clear to go on my trip next next week!

THE AWESOME NEWS!: MAW called and they have told my mom that everything's confirmed and that we are DEFINITELY going to Disney World in 11 days.

YAYAYAYAYAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

[mom2pixies]

Well, we're back from the cardiologist and the results are more on the negative side. The good news: Stress test was negative.
The bad news: Holter Monitoring was positive for frequent Premature Ventricular Contractions. Since the echo came back clear, now he wants an MRI of my heart to see is there's a problem with the muscle itself. In his working diagnosis, it says to rule out Arrhythmogenic Right Ventricular Dysplasia. I really don't think I have this but we're doing the MRI so he can give me the all clear to go on my trip next next week!

THE AWESOME NEWS!: MAW called and they have told my mom that everything's confirmed and that we are DEFINITELY going to Disney World in 11 days.

Yeah about MAW! Booo about MRI! (Gotta do it though--gotta make sure you are all clear to go to Disney!)

 

[Happy Dreams1]

Yeah about MAW! Booo about MRI! (Gotta do it though--gotta make sure you are all clear to go to Disney!)

I know, I have to do it. I just don't like needles. A bit embarrassing, but I sometimes cry when the needles hurt a lot.

 

[mom2pixies]

A little mermaid made a big splash today....drop in on our PTR for all the deets and pics!

 

[Happy Dreams1]

Single Digit Dance!



9 days until WDW and GKTW! I can't believe it!

 

[Happy Dreams1]

School starts on Monday.

 

[21hearts]

I got a call today that on the 22nd MAW volunteers will come to our house to fill out some paperwork for Rachel's wish. The lady I spoke to said they have everything they need from her doctors now we just have to wait for her to hit two and a half on the 22nd.

 

[Happy Dreams1]

I got a call today that on the 22nd MAW volunteers will come to our house to fill out some paperwork for Rachel's wish. The lady I spoke to said they have everything they need from her doctors now we just have to wait for her to hit two and a half on the 22nd.

Great news!

 

[xanphylus]

Single Digit Dance!



9 days until WDW and GKTW! I can't believe it!

Wahoo!!!!

I got a call today that on the 22nd MAW volunteers will come to our house to fill out some paperwork for Rachel's wish. The lady I spoke to said they have everything they need from her doctors now we just have to wait for her to hit two and a half on the 22nd.

Hurray for you too!!! Congrats on all the paperwork being done!

 

[princessmamaof5]

Ok fellow disney friends we are down to the last 29 days before departure I am so super excited for this to come but also thinking slow this merry go round down a second i havent figure out this iron on thing lol. I have the paper check need to check my local michels for some shirts which its moving so they are having a blowout and nothings left (fail) must check another michaels. An i also have to pack. This silly enough will be our first family trip without taking my parents or my mom and dad so i am a tad nervous. Any disney lovers wanna meet up lol Im sure all will go fine but Im still a tad nervous. To all going around our time have an awesome time and to all of those that helped me with my questions thankyou so much And last but not least for the bg drama I started i truely am very sorry. So on that note Disney this family is ready for you are you ready for us I hope so

 

[livndisney]

Ok fellow disney friends we are down to the last 29 days before departure I am so super excited for this to come but also thinking slow this merry go round down a second i havent figure out this iron on thing lol. I have the paper check need to check my local michels for some shirts which its moving so they are having a blowout and nothings left (fail) must check another michaels. An i also have to pack. This silly enough will be our first family trip without taking my parents or my mom and dad so i am a tad nervous. Any disney lovers wanna meet up lol Im sure all will go fine but Im still a tad nervous. To all going around our time have an awesome time and to all of those that helped me with my questions thankyou so much And last but not least for the bg drama I started i truely am very sorry. So on that note Disney this family is ready for you are you ready for us I hope so

You don't have to get the shirts at Michaels to do the iron ons. You can also check Walmart and Target.

 

[blessedmom4]

Thank you once again to everyone who wrote such kind words when Pete's Dad died.

I have posted our tentative Itinerary on our PTR. If you have time, please come visit and give me your suggestions. Tentative Itinerary

 

[danut]

Hello all. Sorry I have been out of touch. We are so busy with getting ready for college ( ME and Carissa) I broke down and decided to continue my education and move on from a Practical Nurse to an RN! Eva is doing well! Planning away continues. We have a family reunion on Saturday and AJ has Lyme disease!! SO..... you can say that there is NEVER a dull moment!!

Kinda quiet around here this week really! We've been busy at the doctor this week for all of us BUT our cancer child go figure. My 6 year old has sinus isses we are trying some new meds, otherwise we might need to look into some more invasive things. Then today my son got pink eye...in both eyes. Super. Icky for him and busy for Mom trying to keep him quarantined adn away from the rest of us! Lysol, my friend....ha! I'm up next as I'm having swallowing issues that can no longer be ignored. Just always something huh?

Its helpful and a little AHHHH to think that in two months, I get to introduce Disney World to my kids for the first time!

Hope everyone is hanging in there!!

Hope everyone is starting to feel better and that what you are dealing with isn't too serious.

Trying to keep up with everyone but things are crazy busy. I read, but am not able to respond. Just know that everyone is in my thoughts and I enjoy following along!

We are meeting with some of our DF volunteers today to pick up our expense check and paperwork for our rental (we are driving). We leave NEXT WEEK!!!!!!!

We didn't have much time to plan, because we wanted to go soon to avoid the illness issues my little squirt starts dealing with come Fall. She's had a healthy summer and we want to take advantage of it! But, we're just going to sit back and enjoy the ride. We are so excited!

How awesome that your trip is so close!!

Big Give fairies visited us again! Swing on by to see what they brought!

Love the Big Gives!!!

Well, we're back from the cardiologist and the results are more on the negative side. The good news: Stress test was negative.
The bad news: Holter Monitoring was positive for frequent Premature Ventricular Contractions. Since the echo came back clear, now he wants an MRI of my heart to see is there's a problem with the muscle itself. In his working diagnosis, it says to rule out Arrhythmogenic Right Ventricular Dysplasia. I really don't think I have this but we're doing the MRI so he can give me the all clear to go on my trip next next week!

THE AWESOME NEWS!: MAW called and they have told my mom that everything's confirmed and that we are DEFINITELY going to Disney World in 11 days.

Hooray that your trip is confirmed! Sending prayers that the MRI goes okay!

Single Digit Dance!



9 days until WDW and GKTW! I can't believe it!

That is so exciting to be so close!

I got a call today that on the 22nd MAW volunteers will come to our house to fill out some paperwork for Rachel's wish. The lady I spoke to said they have everything they need from her doctors now we just have to wait for her to hit two and a half on the 22nd.

Awesome news!

Thank you once again to everyone who wrote such kind words when Pete's Dad died.

I have posted our tentative Itinerary on our PTR. If you have time, please come visit and give me your suggestions. Tentative Itinerary

I am so sorry to hear about Pete's father. Please know you are in my thoughts and prayers.

 

[danut]

Just wanted to quickly update on us. Have the Disney planning on hold for a bit. Brendan is one week out of his cast and we have been trying to plan a bunch of fun stuff to do before school starts since we didn't do anything this summer. Plan to start back up again once the kids start school. On a completely awesome note, Brendan just left to go shopping with his Dad and for the first time in one year and 3 weeks did not take a walker or a wheelchair. Just his own two feet! He is not walking perfect, but didn't even ask to bring the walker which means, he is not in any pain. Today could not be a better day!

 

[katieb4]

We leave for Disney in 2 months!!!!

We're doing ok here, Sophia's new medicine seems to be working well...she has only had one headache this past week...hooray! I have an ulcer in my throat, I'll be fine! Its good to get all these issues taken care of so we can focus on other things in life. Gabbie has had a fantastic month, no pain issues.

Glad to see some action here! Lots of us all going soon...let the chatter begin!

 

[katieb4]

Just wanted to quickly update on us. Have the Disney planning on hold for a bit. Brendan is one week out of his cast and we have been trying to plan a bunch of fun stuff to do before school starts since we didn't do anything this summer. Plan to start back up again once the kids start school. On a completely awesome note, Brendan just left to go shopping with his Dad and for the first time in one year and 3 weeks did not take a walker or a wheelchair. Just his own two feet! He is not walking perfect, but didn't even ask to bring the walker which means, he is not in any pain. Today could not be a better day!

Thats fantastic!!!!!!!!! HOORAY!!!!!!!!!!!!!

 

[Owensheart]

Ok fellow disney friends we are down to the last 29 days before departure I am so super excited for this to come but also thinking slow this merry go round down a second i havent figure out this iron on thing lol. I have the paper check need to check my local michels for some shirts which its moving so they are having a blowout and nothings left (fail) must check another michaels. An i also have to pack. This silly enough will be our first family trip without taking my parents or my mom and dad so i am a tad nervous. Any disney lovers wanna meet up lol Im sure all will go fine but Im still a tad nervous. To all going around our time have an awesome time and to all of those that helped me with my questions thankyou so much And last but not least for the bg drama I started i truely am very sorry. So on that note Disney this family is ready for you are you ready for us I hope so

29 days!! Congratulations.. I hope you made a fun little countdown calendar! You're going to have a great time! I have no ideas on the iron ons, we always just go to the Disneystore and get matching shirts. They always have great sales! Good Luck.

 

[Owensheart]

We leave for Disney in 2 months!!!!

We're doing ok here, Sophia's new medicine seems to be working well...she has only had one headache this past week...hooray! I have an ulcer in my throat, I'll be fine! Its good to get all these issues taken care of so we can focus on other things in life. Gabbie has had a fantastic month, no pain issues.

Glad to see some action here! Lots of us all going soon...let the chatter begin!

Great news! I'm excited for you.. 2 months will be here before you know it!!

 

[Menfusse]

We leave early Friday morning!!! Actually, we plan to leave in the wee hours and drive through the night, so really it's like Thursday night!

Emily, the wish kid, is sick...after only one week back in school. We were going soon to hopefully avoid this. Steroids and antibiotics on board so hopefully we can get her feeling better by Thursday!

We're so excited!

 

[chelleydi77]

It looks as though lots of families are doing their final countdown! We are too, 4 more days!!!