Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Mom2mitokids]

We have never used bug spray in Florida... the thought never even crossed my mind. I always thought it was too hot for bugs to survive down there!

OMG...we had these tiny black fly bugs that were driving us crazy. Kind of looked like nats..but just a tad bigger. We were hot and sticky and trying to shoot bugs away. Not sure I would use bug spray though. We had enough stuff on with the sun block.

 

[Mom2mitokids]

Its quite possible Peanut will still need to be on IV meds on our trip, at least for part of it anyways. Now I have heard that some rides you can't have anything with you (like purses, cameras, etc). Well, I can't exactly take off her IV pump/meds for a ride, especially with her having a port (if her port isn't in use, it must have heparin in it to avoid blood clots, which isn't something that can just be done on the fly). We can unhook her feeding pump, but she'll still have a small pump and med bag. Will that be an issue for any of the rides? We don't know for sure yet and may not know until the last minute but I want to have an idea of what to expect, just in case.

Kylee went on every ride with her feeding back pack on and nobody said a thing..will one person did, but we said it was hooked to her and they said...oh and she went on. They just thought it was a normal backpack. The only place I have heard on a TR that they had issues with a purse was at Sea World Shamu Harbor(a little play place for kids). We didn't go in this area, but Kylee would of worn her back pack at all times. I also had my purse and camera with me on all the rides. My camera in my hands...lol.

 

[Mom2mitokids]

I posted day 3 of our TR...link in my siggie.

 

[jon03015]

Question?
Do we need to worry about bug spray?

I would bring some. Something that works great is Skin So Soft Spray from Avon. It is light weight and not irritating to the skin.

 

[jon03015]

I just updated our PTR with the detailed version of Austin's story, and a great video my BIL Bryce made of Austin.

 

[jj0plin]

OMG...we had these tiny black fly bugs that were driving us crazy. Kind of looked like nats..but just a tad bigger. We were hot and sticky and trying to shoot bugs away. Not sure I would use bug spray though. We had enough stuff on with the sun block.

Those would be Love Bugs, the worlds most annoying bugs!! They can cover an entire car! They are harmless though. Mosquitos and noseeums can be terrible, but maybe not until the summer. We did not encounter any bugs while we were there but I remember plenty of bites when I lived down there.

 

[Mom2Miracles]

Kylee went on every ride with her feeding back pack on and nobody said a thing..will one person did, but we said it was hooked to her and they said...oh and she went on. They just thought it was a normal backpack. The only place I have heard on a TR that they had issues with a purse was at Sea World Shamu Harbor(a little play place for kids). We didn't go in this area, but Kylee would of worn her back pack at all times. I also had my purse and camera with me on all the rides. My camera in my hands...lol.

Oooh, thats good to know about the feeding pump. I really thought we would have issues with that one and the rides/play areas, etc. Mind you, our pump is slightly bigger then yours, meaning her backpack is bigger. But that is an easy fix to unhook her should it be too bulky, but the IV stuff I can't do anything about (but we have a smaller backpack for that). So hopefully no issues should she need to continue those specific meds.

I posted day 3 of our TR...link in my siggie.

I didn't even realize you had started your TR , off to check it out!

 

[tinytreasures]

Coming to WHINE

It is just not RIGHT to see Tim's thread in the completed area

 

[mommy2girlswv]

Everybody going next week: Did you know that their is Shuttle Launch on 29th at kennedy Space Center. If I'm right that going to be the last one for the United State for very long time!!! I heard you can see it from miles!!

 

[Perrinsmommy]

Everybody going next week: Did you know that their is Shuttle Launch on 29th at kennedy Space Center. If I'm right that going to be the last one for the United State for very long time!!! I heard you can see it from miles!!

I think the last one is on June 28th. Perrin is bummed we are going at the beginning of june instead of the end!.

 

[mommy2girlswv]

I think the last one is on June 28th. Perrin is bummed we are going at the beginning of june instead of the end!.

I know if I was going on any of them dates!! That would be something I would take my kids to see or at least close to see it!!!

 

[Mom2mitokids]

Those would be Love Bugs, the worlds most annoying bugs!! They can cover an entire car! They are harmless though. Mosquitos and noseeums can be terrible, but maybe not until the summer. We did not encounter any bugs while we were there but I remember plenty of bites when I lived down there.

Thank you for letting me know what these pesty bugs were. We don't have them here. I would be sitting waiting for the kids to go on a ride and they surround you. You must of just missed them, because they were everywhere when we went.

 

[Mom2mitokids]

Coming to WHINE

It is just not RIGHT to see Tim's thread in the completed area

I 100% agree.

 

[maroo]

so sorry for my little hiatus!

I had chest pain at work yesterday morning and evidently I looked "bad" so my doc made me go to the ER...long story short, my heart is "abnormal" and threw a flag at the EKG machine - my EKG itself was FINE and they ruled it not a heart attack...but it was a long day yesterday!

They diagnosed me with pleurisy - which flippin' hurts! ANwyay...sorry for my day or so without posting!

Question?
Do we need to worry about bug spray?

I would not...well...except maybe at GKTW? I don't know how much they spray there?

Disney sprays for bugs a LOT and they spray down all of the lakes and such (where they breed)...but I don't know if GKTW does that?

Blessedmom4 is from Charlotte. They are ok- some minor damage I believe....

aw man!! I hope they are all ok and the damage claims are completed quickly!

I called MAW yesterday since it had been 4 weeks since we were told DeAnna was going to get a wish to just check on things. We were told that there is not enough volunteers in our area so she could be waiting a while "ask for her wish". That has motivated me to think that maybe after this experience, i should become a MAW volunteer. Has anyone ever done that?

We go back for an MRI tomorrow to check on DeAnna's tumor. She is going to be wearing her Lilo and Stitch T-shirt. She said she wanted to thank the doctors for giving her a wish and to let them know what she is going to wish for.

Another thought, I know that some of you wonderful people sew. Do any of you know of someone who sews for pay? I would pay someone to make DeAnna a Lilo- style dress. That way as we wait for our wish she can pretend to be Lilo. She wanted to dress her brother (3 yrs old) as stitch and he is happy to play that part so we orded him a costume online but could not find one for her. Any ideas?

I am going backwards here...but my hunch is you have probably gotten PM's about your last question... People are not supposed to be selling stuff on the DIS, so they probably won't respond here... but you can try ETSY...they are like the ebay of clothing type things! Or you could PM someone you know that sews on here and ask.... I don't sew.

How was the MRI?? Were the medical folks excited!? What a great way to say thank you!!!

I personally would love to be a MAW volunteer....but I am also personally a little nervous...I am afraid that they would not want me giving out so much information on here about things that some at MAW think should be secret...like all the surprises at GKTW and such...so I am personally going to hold off on being a wish granter for quite a while until I am so far removed from our trip that I simply can't answer questions correctly anymore! THEN I will be a wish granter! I think it would be so fun!

I can't see them arguing it! Of course it will depend on which bag check person you get. Honestly, we only had one out of our whole trip do a thorough check of the bags. The rest poked a stick and was done. Maybe the Make A Wish backpacks helped? If one were to give you trouble I'd just ask for the next in charge. You could start with this number: U.S. Guest Information (407) 939-6244

I would totally plan on following ALL of the security rules...not that anyone wouldn't...but this can really mess up your day to have to spend some time chatting with Disney security...and they don't play. Some of them tend to really check bags more than others appear to...but I wouldn't want to get caught with something I shouldnt have. We had an experience with security in Sept and they just don't play.

Its quite possible Peanut will still need to be on IV meds on our trip, at least for part of it anyways. Now I have heard that some rides you can't have anything with you (like purses, cameras, etc). Well, I can't exactly take off her IV pump/meds for a ride, especially with her having a port (if her port isn't in use, it must have heparin in it to avoid blood clots, which isn't something that can just be done on the fly). We can unhook her feeding pump, but she'll still have a small pump and med bag. Will that be an issue for any of the rides? We don't know for sure yet and may not know until the last minute but I want to have an idea of what to expect, just in case.

I think it may depend a little on the ride? She won't be doing any wild rides, right?? When she is accessed, is it securely taped and such? Bouncing around won't be a problem, right? But I assume she shouldn't go upside down while they are going or do anything with a lot of g-forces?? I am totally guessing here!

Coming to WHINE

It is just not RIGHT to see Tim's thread in the completed area

VERY true!

 

[chelleydi77]

so sorry for my little hiatus!

I had chest pain at work yesterday morning and evidently I looked "bad" so my doc made me go to the ER...long story short, my heart is "abnormal" and threw a flag at the EKG machine - my EKG itself was FINE and they ruled it not a heart attack...but it was a long day yesterday!

They diagnosed me with pleurisy - which flippin' hurts! ANwyay...sorry for my day or so without posting!

Take it easy! I hope you're feeling better soon!

 

[that's nice]

Coming to WHINE

It is just not RIGHT to see Tim's thread in the completed area

Awww.... you are so sweet. It was a shock for me to see it there too.

Seriously, coming home and finally realizing Juliana's Wish trip was over was hard.... then when the TR ended- I think that was harder. You realize that the trip is over. All the planning and looking forward to something, then the realization that it was over was hard. I really had some serious trip depression- sounds weird but it is a real thing.

I think I finally kicked the depression and I started a new TR to keep my mind moving! Don't worry, I will still be here checking in with all of you and answering any questions I am able to.


Oh yea... if you are bored, you can check out my 'new' project.

Just when you thought you've seen all the MAGIC!

 

[that's nice]

so sorry for my little hiatus!

I had chest pain at work yesterday morning and evidently I looked "bad" so my doc made me go to the ER...long story short, my heart is "abnormal" and threw a flag at the EKG machine - my EKG itself was FINE and they ruled it not a heart attack...but it was a long day yesterday!

They diagnosed me with pleurisy - which flippin' hurts! ANwyay...sorry for my day or so without posting!

I hope you are feeling better today Maroo!

I will be keeping you in my prayers.

 

[blessedmom4]

so sorry for my little hiatus!

I had chest pain at work yesterday morning and evidently I looked "bad" so my doc made me go to the ER...long story short, my heart is "abnormal" and threw a flag at the EKG machine - my EKG itself was FINE and they ruled it not a heart attack...but it was a long day yesterday!

They diagnosed me with pleurisy - which flippin' hurts! ANwyay...sorry for my day or so without posting!
Praying you feel better SOON! Pleurisy DOES hurt as you have discovered. Hugs!!!!

aw man!! I hope they are all ok and the damage claims are completed quickly!

We are FINE, minor stuff! Sadly far too many weren't as fortunate!


I would totally plan on following ALL of the security rules...not that anyone wouldn't...but this can really mess up your day to have to spend some time chatting with Disney security...and they don't play. Some of them tend to really check bags more than others appear to...but I wouldn't want to get caught with something I shouldnt have. We had an experience with security in Sept and they just don't play.

This sounds like a great story we will never hear....

I think it may depend a little on the ride? She won't be doing any wild rides, right?? When she is accessed, is it securely taped and such? Bouncing around won't be a problem, right? But I assume she shouldn't go upside down while they are going or do anything with a lot of g-forces?? I am totally guessing here!

Speaking of G-forces and rides...does anyone know of an accurate place to get info on g-forces for rides at all of the Disney Parks, Sea World and Universal. Sadly, because of her heart, my little Dare Devil must avoid rides with strong G-forces and I would love to begin planning what she and I will avoid. If she can't ride, neither will I...

 

[tinytreasures]

Hope you feel better soon Maroo

Off to read Tim's new thread

 

[mom2pixies]

Yikes! Hope you are feeling better, Maroo!