Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[rosieari9197]

You can get lanyards at Party City for a couple of dollars and as far as the autograph books you can go to the DIS-igners boards and copy the ones that are there or just buy them from Walmart on the way to GKTW

thats like the one place i have not looked! im so happy i asked -would have never thought. thanx!

 

[angeque143]

hey guys just wanted to know if anyone knows were i can get rosie and ari lanyards before we leave - i have looked at a few shops here and i have been going nuts trying to find them -any ideas
also strange request- i wanted to try and make autograph books for the kids but every time i try, i get to overwhelmed and its so hard to do it when ari is around if i leave him for a second all hell breaks loose!! he doesnt understand danger and he needs to have someone with him at all times for safety . anyways i was hoping to get some help form my fellows here on the thread if anyone is able to help me out with this. or knows someone who can i would be so grateful.

Try going here and follow the directions.....for the autograph books...this is how I did ours

http://www.disboards.com/showpost.php?p=36014876&postcount=15

 

[rosieari9197]

i found the lanyards at party city 99 cents each!

 

[jon03015]

I have never used a discussion board. How do I put our story on here and have a link on the first page? We are still finding out our date.

never mind I figred it out. looking forward to getting to know you!

 

[jon03015]

I

 

[billwendy]

I have never used a discussion board. How do I put our story on here and have a link on the first page? We are still finding out our date.

never mind I figred it out. looking forward to getting to know you!

Welcome!! you'll find a lot of good info around the DIS! Cant wait to hear all about your family and your wish!!

 

[jon03015]

Welcome!! you'll find a lot of good info around the DIS! Cant wait to hear all about your family and your wish!!

Thanks! I just posted our PTR. We haven't gotten a date yet, but we did get our GTKTW consent forms in the mail about a month ago. I love this, how great to be able to learn from and support one another!

 

[tinytreasures]

I have never used a discussion board. How do I put our story on here and have a link on the first page? We are still finding out our date.

never mind I figred it out. looking forward to getting to know you!

Welcome

 

[mom2pixies]

Thank you. I called Delta this morning, and they were less then helpful. The woman said shes never heard of anyone needing more then one bag of medical stuff. And then she began to question what specifically was medical supplies. I was saying we needed to bring Peanuts medical supplies like her feeding pump, her formula, all her meds, syringes, tapes, extensions, feeding bags, blah blah blah and shes like - "thats not medical supplies". Huh? Then what IS medical supplies. Oiy. At first she told me we couldn't bring anyting ON the flight that we didn't need while on it. So the ONLY formula and the ONLY meds we could bring on board would be what she required for the flight. Then she said we needed to call the TSA for more specific information. She was less then helpful and very rude. I called TSA and of course, they only take calls Monday-Friday. So i'll call Monday. But I appreciate your post and hope that we have no issues either.

I would much rather have all her formula on board, just in case anything happened to our luggage. At first the woman said all of her formula had to be checked. I asked what were to happen should the luggage get lost, because she is 100% dependant nutritionally on the formula. She basically said it would be our problem. Nice.

Hopefully we can get some clear, solid answers on Monday.

Ugh! Whatever happened to actual 'customer' service--if she doesn't have the answers, why didn't she put you in touch with someone who does?! There's no need to be rude! I'm annoyed for you. Hope you get some actual answers tomorrow.

 

[blessedmom4]

I have never used a discussion board, so bear with me! We applied for
Make-A-Wish and had our home visit the end of February. We have since received
and sent in a consent form for GKTW. We are eagerly awaiting for news from MAW!

Now Austin's Story:
Austin became ill after contracting a deadly strain of bacteria on a camping
trip in the summer of 2010.

Austin was diagnosed with Hemolyic Uremic Syndrome. The disease released toxins
into Austin's bloodstream. His red blood cells broke down and tore apart blood
vessels in his organs, particularly affecting his kidneys. His kidneys had begun
to shut down.

Austin's blood had to be cleaned 24 hours per day; the doctor prescribed pain
medication and sedatives. Austin wasn't allowed to eat or drink — he received
nutrition intravenously — because his digestive system had to be used to
eliminate the deadly bacteria.

Weeks passed and the 3-year-old didn't improve. X-rays showed his stomach had
enlarged astoundingly. He underwent emergency surgery because the bacteria had
attacked his colon and 11 inches of it had to be removed.

As a result of surgery, Austin nearly recovered. But then the doctor determined
that his kidney was too damaged to repair itself.

He continues to face challenges; he is fed through a G-tube inserted into his
stomach, he has had to return to the hospital because of a variety of
complications and he must travel 70 miles for kidney dialysis 2 times a week and
sits perfectly still for four hours during the treatment.

He has been approved for a kidney transplant. We are now looking for a donor. He
is our hero, and a great kid.

We are awaiting news about my brother in law's kidney. He is a good match and we
are waiting to see if the donor team will give their consent. We are in a
holding pattern right now. Ugggh. A month ago I found out that I would not be
able to give my kidney since I have kidney stones. It was a major
disappointment. But we still have hope!

I tried to answer this 2 hours ago; however, had to leave the computer for awhile to take care of children. I wanted to say



to the DIS!!!

Looking forward to learning more about your family and SO HAPPY Austin is getting a Wish!!!!

 

[SMS216]

Hi Everyone,

I recently stumbled across this site and have been reading a lot! I am a Disney newbie, and frankly, completely overwhelmed by all there is to learn and take in!

Our daughter, Robin, was dx with leukemia on June 10, 2008 at age 3. She completed treatment in August 2010 and has been off treatment for 8 months now. We leave on May 2 and we have not told her yet!! So excited for that moment. We're thinking we will let the volunteers tell her when they come.

We have done NO planning. Robin's big thing is water parks. In fact, her wish was to go to a water park. We decided on Disney since there would be so much to do. Robin is 6 and her brother, Henry, is 3. They are not big into characters so we didn't feel like scheduling character meals (plus we just found out our dates about a month ago).

Anyway, my biggest questions are, can we bring packed lunches into the parks? We're rather healthy eaters and I really don't want to eat junk for a week. And second, I'm kind of scared of the crowds and the kids getting lost. What are some ways to put identification info on the kids? I was thinking about little tags for their shoes, similar to what is worn in a marathon or other race.

Sara

 

[blessedmom4]

Hi Everyone,

I recently stumbled across this site and have been reading a lot! I am a Disney newbie, and frankly, completely overwhelmed by all there is to learn and take in!

Our daughter, Robin, was dx with leukemia on June 10, 2008 at age 3. She completed treatment in August 2010 and has been off treatment for 8 months now. We leave on May 2 and we have not told her yet!! So excited for that moment. We're thinking we will let the volunteers tell her when they come.

We have done NO planning. Robin's big thing is water parks. In fact, her wish was to go to a water park. We decided on Disney since there would be so much to do. Robin is 6 and her brother, Henry, is 3. They are not big into characters so we didn't feel like scheduling character meals (plus we just found out our dates about a month ago).

Anyway, my biggest questions are, can we bring packed lunches into the parks? We're rather healthy eaters and I really don't want to eat junk for a week. And second, I'm kind of scared of the crowds and the kids getting lost. What are some ways to put identification info on the kids? I was thinking about little tags for their shoes, similar to what is worn in a marathon or other race.

Sara

and congrats on the Wish Trip! Are you staying at GKTW? Yes you can bring food in to the parks. Shoe tags, bracelets, tattoos...I am sure someone will come along with a link to a site where to buy these shortly!

 

[Cheshire Figment]

Good news/bad news and some other good news

First the good news.

At the four major parks (AK, DHS, EC, MK) coolers are restricted to "small, soft-sided, which can fit in a locker". And they cannot be rolling bags.

The only restrictions that apply to all parks (theme and water) are nothing in glass containers (other than medicines and baby food) and no alcoholic beverages.

Some things people don't think about (which tend to be in glass) are pickles, salsa, Mayonaisse, Starbucks drinks, Snapple drinks, Tabasco.

At the water parks any type or size cooler is acceptable. I have seen people come through the gate (Typhoon Lagoon) hauling wheeled coolers about 4' x 3' x 2½'. Note that the cooler can be on two wheels or carried, but the way the rules are written you can not have it in a wagon and it cannot have four wheels.

If you show up at the gate with prohibited items we will give you three choices:
(1) Take prohibited items back to your car or resort.
(2) Put prohibited items in the nearby trash can.
(3) (Only for other than alcoholic beverages) If you have plastic bags or cups you can dump the items out of the glass containers and throw away the container.

The bad news is that normally the tickets from GKTW do not include the water parks and you might have to expect to pay. Also, the GAC does not work in the water parks as there are no alternate entrances (except Crush "N Gusher at TL has an elevator) and only one way to get to the top of a slide.

However, I know that when I am on duty at the gate at TL if a family comes with MAW/GKTW buttons they will get in free. And this policy is generally followed by all the Gate people. If you have any question about it, rather than going to a booth to buy tickets go to Guest Relations and see what they can do for you.

 

[mom2pixies]

Hi! Welcome!!! So glad Robin is off-treatment and getting her wish. So exciting! (Good name, too! LOL!!) Anyways, here's something you might try: safety tattoos (http://www.safetytat.com/). Can write whatever info you want on the kids--cell phone numbers, resort address, etc.--and it won't wash off for days.

Another tip--take a pic of the kids at the start of every day. That way, God forbid it happen!, should the kids get lost, you can just check your digicam to see what they are wearing. Might help identify them! (Also, help to take a photo of the parking sign, so you'll know where you parked, too!)

Enjoy your planning! You'll find lots of info here.

 

[jj0plin]

Good news/bad news and some other good news

First the good news.

At the four major parks (AK, DHS, EC, MK) coolers are restricted to "small, soft-sided, which can fit in a locker". And they cannot be rolling bags.

The only restrictions that apply to all parks (theme and water) are nothing in glass containers (other than medicines and baby food) and no alcoholic beverages.

Some things people don't think about (which tend to be in glass) are pickles, salsa, Mayonaisse, Starbucks drinks, Snapple drinks, Tabasco.

At the water parks any type or size cooler is acceptable. I have seen people come through the gate (Typhoon Lagoon) hauling wheeled coolers about 4' x 3' x 2½'. Note that the cooler can be on two wheels or carried, but the way the rules are written you can not have it in a wagon and it cannot have four wheels.

If you show up at the gate with prohibited items we will give you three choices:
(1) Take prohibited items back to your car or resort.
(2) Put prohibited items in the nearby trash can.
(3) (Only for other than alcoholic beverages) If you have plastic bags or cups you can dump the items out of the glass containers and throw away the container.

The bad news is that normally the tickets from GKTW do not include the water parks and you might have to expect to pay. Also, the GAC does not work in the water parks as there are no alternate entrances (except Crush "N Gusher at TL has an elevator) and only one way to get to the top of a slide.

However, I know that when I am on duty at the gate at TL if a family comes with MAW/GKTW buttons they will get in free. And this policy is generally followed by all the Gate people. If you have any question about it, rather than going to a booth to buy tickets go to Guest Relations and see what they can do for you.

I just wanted to say that Give Kids the World does have Waterpark tickets... they just are not included, all you have to do is ask for them 24 hours in advance. They even have tickets to Aquatica, the Sea World Water Park that is supposed to be awesome!

 

[SueM in MN]

We were told you can have as many medical supplies carry on as you need without a charge. I was told that if you want to check in your medical supplies..they will charge you. I called the Delta lines a few times because I didn't want to lug all the formula. Their is no weight limit.
They don't charge for carseat...at least I don't think so. We had Kylee's SN stroller and they took at while we were walking in the airplane and it was out when we got off.

The part about carry on medical supplies is true - if you need it for the flight and you can carry it on, it is exempt.

Also, no airlines that I know of charge gatechecking a car seat.

Thank you. I called Delta this morning, and they were less then helpful. The woman said shes never heard of anyone needing more then one bag of medical stuff. And then she began to question what specifically was medical supplies. I was saying we needed to bring Peanuts medical supplies like her feeding pump, her formula, all her meds, syringes, tapes, extensions, feeding bags, blah blah blah and shes like - "thats not medical supplies". Huh? Then what IS medical supplies. Oiy. At first she told me we couldn't bring anyting ON the flight that we didn't need while on it. So the ONLY formula and the ONLY meds we could bring on board would be what she required for the flight. Then she said we needed to call the TSA for more specific information. She was less then helpful and very rude. I called TSA and of course, they only take calls Monday-Friday. So i'll call Monday. But I appreciate your post and hope that we have no issues either.

I would much rather have all her formula on board, just in case anything happened to our luggage. At first the woman said all of her formula had to be checked. I asked what were to happen should the luggage get lost, because she is 100% dependant nutritionally on the formula. She basically said it would be our problem. Nice.

Hopefully we can get some clear, solid answers on Monday.

The law that covers Medical Supplies is the Air Carrier Access Act, which mostly talks about mobility aids like wheelchairs, walkers, etc.
This is a link to a summary:
http://www.dlrp.org/html/publications/ebulletins/legal/2009/may2009.html#_Toc229480799

There is the sort of nebulous “other assistive devices” in that summary, which was where items like you mentioned come in. The intent was to have the items that were necessary for the duration of the flight able to be carried on with no charge. ALSO VERY IMPORTANT - if you do not preboard, you are competing for storage space with other passengers bags and if all the spots are full, you will need to chack your bags.

Although the law says they have to carry items at no charge that fit the definition of Mobility Device or are needed during the flight, most airlines in the past did not make passengers with disabilities pay for their bags of medical supplies that were checked. THis was not a requirement, but most airlines did it for customer service.
THis has changed, as airlines started charging for bags and as passengers started taking advantage of the airlines ‘niceness’. I saw a thread once on another forum where a poster was advocating avoiding paying a charge for all his luggage by dividing up his medical equipment a little in each of his several suitcases. Then he said all of them were medical supplies and they could not change him for any of this bags.

It’s late and I can’t find the exact text right now, but the TSA website says something to the effect of saying that the limit of one carry on and one “personal” item will be waived for guests with special needs/disabilities if they are needed during the flight.

 

[Perrinsmommy]

Hi Everyone,

I recently stumbled across this site and have been reading a lot! I am a Disney newbie, and frankly, completely overwhelmed by all there is to learn and take in!

Our daughter, Robin, was dx with leukemia on June 10, 2008 at age 3. She completed treatment in August 2010 and has been off treatment for 8 months now. We leave on May 2 and we have not told her yet!! So excited for that moment. We're thinking we will let the volunteers tell her when they come.

We have done NO planning. Robin's big thing is water parks. In fact, her wish was to go to a water park. We decided on Disney since there would be so much to do. Robin is 6 and her brother, Henry, is 3. They are not big into characters so we didn't feel like scheduling character meals (plus we just found out our dates about a month ago).

Anyway, my biggest questions are, can we bring packed lunches into the parks? We're rather healthy eaters and I really don't want to eat junk for a week. And second, I'm kind of scared of the crowds and the kids getting lost. What are some ways to put identification info on the kids? I was thinking about little tags for their shoes, similar to what is worn in a marathon or other race.

Sara

Welcome! This is the site that I am ordering for our trip in june!

http://www.safetytat.com/

 

[maroo]

Hi Everyone,

I recently stumbled across this site and have been reading a lot! I am a Disney newbie, and frankly, completely overwhelmed by all there is to learn and take in!

Our daughter, Robin, was dx with leukemia on June 10, 2008 at age 3. She completed treatment in August 2010 and has been off treatment for 8 months now. We leave on May 2 and we have not told her yet!! So excited for that moment. We're thinking we will let the volunteers tell her when they come.

We have done NO planning. Robin's big thing is water parks. In fact, her wish was to go to a water park. We decided on Disney since there would be so much to do. Robin is 6 and her brother, Henry, is 3. They are not big into characters so we didn't feel like scheduling character meals (plus we just found out our dates about a month ago).

Anyway, my biggest questions are, can we bring packed lunches into the parks? We're rather healthy eaters and I really don't want to eat junk for a week. And second, I'm kind of scared of the crowds and the kids getting lost. What are some ways to put identification info on the kids? I was thinking about little tags for their shoes, similar to what is worn in a marathon or other race.

Sara

to the DIS!!

Looks like Chesire Figment helped ya with some of these!

I think you may be pleasantly surprised with the healthier options at Disney - most spots really do have some fairly healthy stuff! And almost all of them have options to replace fries with carrot sticks (or apple slices) and things like that. Not that you won't be able to find a lot of junk, too.

I think they gave you the safety tat website! It is a good one! I would not worry too much about losing your kids - unless they have some sort of autism or something where they will run - People are really good about watching out for each other at Disney and security will be tighter than you realize...lots of plain clothes security. Just make sure the older ones know what the CM name tags look like so that they can get help if they get separated along with the tatoos!


Ask at GKTW about getting more water park tickets! They should help you out. And use that button A LOT!!

It is your special trip!! Have a blast!!!

I have never used a discussion board. How do I put our story on here and have a link on the first page? We are still finding out our date.

never mind I figred it out. looking forward to getting to know you!

You did great!!!

to the DIS!! I put a link to your pre-trippie on the first page so folks over here can find ya!

 

[tinytreasures]

it is just me or are the smilies not working?

 

[livndisney]

it is just me or are the smilies not working?

I had that problem last night, I thougt it was my computer. This one works now.

(Not where I wanted it, but it showed up LOL)