Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Mom2Miracles]

Okay, I'm confused....

I talked to our MAW volunteer, and she checked to see the status of our wish.

Apparently they are waiting to hear back from Hannah's doctor ... but they said it is one in Texas?! We moved from Texas to Vegas last June, and her doctors are all out here now. The only Texas doctor we still have listed is her Gaucher specialist, but it is listed as a contact for doctors to ask questions specifically about her disease. He hasn't seen Hannah for over a year.

I'm so very confused! When they check to see if a child gets approval for travel, how many doctors do they contact?

I would imagine they are only contacting the Dr/Drs that you list for your wish organization - MAW? One of our Drs helped the Child Life Specialist who put Peanuts name/info in for a wish, so she was in direct contact with our organization (Children's Wish Foundation). We have a few Drs, but only one has been in touch with CWF and she is the only one signing off on her medical forms/releases.

How would they have gotten Hannah's Drs information? I would give them the appropriate Drs names/numbers so they can talk to the ones taking care of her now. Hopefully they get things sorted out.

 

[angeque143]

Hi all...I am new here. We are meeting with MAW to start paperwork for my little Eva this Saturday. From our phone converstion it looks like a GKTW Disney trip is going to be the way to go since she is NUTS about Mickey.

So nervous because now I am a single mom and I DESPERATELY need Grandma and Grandpa to go since my son who's turning 6 is ADHD and it is too much for my 17 year old to help with both. I guess which ever they decide we will make the best of it and have a ball!!!

I look forward to "meeting" you all and appreciate any words of wisdom that you can provide! I have not been to Disney since I was a kid myself!! This is exciting all around!

 

[Leeds-Josh]

Your wish trip is 15 days? Or are you adding on to the end of your trip? Congrats on your dates! Exciting!!

Well It was originally One week but because of my condition, It would be a lot for me to do in 7 days (especially traveling all the way from England)so we asked if we could have an extra week and find our own accommodation at our own expense (We know a friend who has a holiday villa who would give us a discount). And they said YES!!!

The trip is 14 days however the return flight sets off at 8:30pm(Orlando time) on the 22nd and then we land at 9:30am(UK time) on the 23rd.

 

[owensdad]

Almost ready for our trip, Sunday morning is going to be hectic! Stay at the airport hotel and fly Monday morning, just not looking forward to the flight though, almost ten hours from England!!! I suppose if we manage to tame our 2.5 year old little girl then I can read up on driving in Florida, that's going to be fun!! Although I suppose it can't be any worse than over here!! 3 more sleeps as the wife would say!!!

 

[LVMom23]

I would imagine they are only contacting the Dr/Drs that you list for your wish organization - MAW? One of our Drs helped the Child Life Specialist who put Peanuts name/info in for a wish, so she was in direct contact with our organization (Children's Wish Foundation). We have a few Drs, but only one has been in touch with CWF and she is the only one signing off on her medical forms/releases.

How would they have gotten Hannah's Drs information? I would give them the appropriate Drs names/numbers so they can talk to the ones taking care of her now. Hopefully they get things sorted out.

Yeah, we are going through MAW.

I don't remember ever giving them any of our Texas docs and neither does my husband. The only docs I remember giving them info on are our local specialist and Hannah's NIH pediatrician (who is in VA).

Hopefully this will get resolved tomorrow. The curiosity is killing me!

 

[jj0plin]

GKTW coloring pages...

http://www.gktw.org/pre/Downloads/gktw-color-book.pdf

Thank you!! I will be printing two copies of these for the plane!!

 

[jwallaceent]

GKTW coloring pages...

http://www.gktw.org/pre/Downloads/gktw-color-book.pdf

I am printing too! I will save for the plane ride too! So excited we leave in 6 days!!!

 

[jj0plin]

I am printing too! I will save for the plane ride too! So excited we leave in 6 days!!!

Oh my gosh, 6 days?!?!? here I am starting to panic over 14 days, but 6 sounds much more panic worthy!! are you all ready to go??

 

[jwallaceent]

Oh my gosh, 6 days?!?!? here I am starting to panic over 14 days, but 6 sounds much more panic worthy!! are you all ready to go??

We are working on it! It has been chaotic at our house...We had our send off party Tuesday night and that was awesome!! They were so sweet and MAW is an awesome foundation! I have a 14 year old who plays school softball and travel softball, my 11 year old started baseball this week, and then my three year old(MAW child) is asking can I put a sticker on the countdown...when are we going to Disney...are we leaving yet???!? I have started packing since Brooke's birthday was the 27th of February she got so much stuff for her trip!
I still have some shopping to do for hubby and still have practices lined up all week and weekend ... oh and a fundraiser Saturday....not so sure when all this is going to get done but I know it will I will finally be able to breath when I get on the plane!! Maybe!!

We are so excited and can not wait to do a vacation as a family of five! This will be our first family vacation since Brooke was born!!

How is your trip planning going...those two weeks will fly by!!!

 

[jj0plin]

We are working on it! It has been chaotic at our house...We had our send off party Tuesday night and that was awesome!! They were so sweet and MAW is an awesome foundation! I have a 14 year old who plays school softball and travel softball, my 11 year old started baseball this week, and then my three year old(MAW child) is asking can I put a sticker on the countdown...when are we going to Disney...are we leaving yet???!? I have started packing since Brooke's birthday was the 27th of February she got so much stuff for her trip!
I still have some shopping to do for hubby and still have practices lined up all week and weekend ... oh and a fundraiser Saturday....not so sure when all this is going to get done but I know it will I will finally be able to breath when I get on the plane!! Maybe!!

We are so excited and can not wait to do a vacation as a family of five! This will be our first family vacation since Brooke was born!!

How is your trip planning going...those two weeks will fly by!!!

sounds like my life!! The kids have swim lessons on Tuesdays and Thursdays, Addison has allergy shots on Wednesdays... Trevor just started soccer conditioning on Mon, Tues and Thursday. I work Thursday-Sunday nights. I have nothing packed, still need to borrow suitcases, need to go shopping for some summer clothes, find some crocs for the kids, make a bunch of lists (my favorite thing to do!), and find a ride to and from the airport. I have found a dog sitter and a fish feeder so I guess that's a start.

 

[jwallaceent]

sounds like my life!! The kids have swim lessons on Tuesdays and Thursdays, Addison has allergy shots on Wednesdays... Trevor just started soccer conditioning on Mon, Tues and Thursday. I work Thursday-Sunday nights. I have nothing packed, still need to borrow suitcases, need to go shopping for some summer clothes, find some crocs for the kids, make a bunch of lists (my favorite thing to do!), and find a ride to and from the airport. I have found a dog sitter and a fish feeder so I guess that's a start.

Wow you are very busy too!! It will all come together! I would check with your wish granters....I told them I had family that would take us and they insisted no they want to do this for our family and let them...I said ok. I did not know however it was going to be a limo!!

Also...I posted pics on our PTR...if anyone would like to see!

 

[jj0plin]

When I talked to our wish coordinator last week, he told me that Elliot would be receiving the Make A Wish Shirt in the mail and that he should wear it on the flights, that it might help get special recognition. We received awesome Wish Trip shirts in the Big Give and I wanted everyone to wear those on travel days. Should we all wear ours and then have him wear the one they sent or would his big give one be okay?

 

[brookerene]

Well It was originally One week but because of my condition, It would be a lot for me to do in 7 days (especially traveling all the way from England)so we asked if we could have an extra week and find our own accommodation at our own expense (We know a friend who has a holiday villa who would give us a discount). And they said YES!!!

The trip is 14 days however the return flight sets off at 8:30pm(Orlando time) on the 22nd and then we land at 9:30am(UK time) on the 23rd.

ALright! that sounds great!

Almost ready for our trip, Sunday morning is going to be hectic! Stay at the airport hotel and fly Monday morning, just not looking forward to the flight though, almost ten hours from England!!! I suppose if we manage to tame our 2.5 year old little girl then I can read up on driving in Florida, that's going to be fun!! Although I suppose it can't be any worse than over here!! 3 more sleeps as the wife would say!!!

Yay time is almost here! I hope your trip is awesome!

 

[brookerene]

When I talked to our wish coordinator last week, he told me that Elliot would be receiving the Make A Wish Shirt in the mail and that he should wear it on the flights, that it might help get special recognition. We received awesome Wish Trip shirts in the Big Give and I wanted everyone to wear those on travel days. Should we all wear ours and then have him wear the one they sent or would his big give one be okay?

I think one thing to consider.... the Make-a-wish logo and shirts are highly recognizable...their branding is widespread and probably would be better to wear for that reason... I think it also would be polite to wear theirs since they are paying for the trip...there will be great opportunities to wear the BG ones throughout the trip... but if he is the only one getting one (ours gave them to all of us) then maybe he can wear it over a BG to the airport and then pack it when you get to GKTW?
ALso, will there be one of your wish grantors there to see you off? That might make a difference on how you decide.... Hope it works out... !

 

[mommy2girlswv]

Thank you!! I will be printing two copies of these for the plane!!

I'm going to teach her now what each picture is because she know what wdw is, but not so much about gktw. And after we come home let her take few to her grandparents house and she can tell them about her trip and color too..

 

[jj0plin]

I think one thing to consider.... the Make-a-wish logo and shirts are highly recognizable...their branding is widespread and probably would be better to wear for that reason... I think it also would be polite to wear theirs since they are paying for the trip...there will be great opportunities to wear the BG ones throughout the trip... but if he is the only one getting one (ours gave them to all of us) then maybe he can wear it over a BG to the airport and then pack it when you get to GKTW?
ALso, will there be one of your wish grantors there to see you off? That might make a difference on how you decide.... Hope it works out... !

Good points... guess it will okay for him to be wearing something different than us maybe I'll just carry the other as a spare in case something is spilled

 

[mommy2girlswv]

We got our shirts back in October and put them up, but my dh didn't get one and my youngest dd is too big. They also gave January a hat and we are going have her wear that too on the way down.

 

[mommy2girlswv]

HAPPY ST. PATRICK'S DAY EVERYBODY!!!!

 

[LVMom23]

Abby (Hannah's sister) wanted to take a picture with all the Mickeys and Minnies we have. The extra big one was given to us by a friend (it was her son's, but he outgrew it), the big Minnie was from the MAW volunteers, and the musical one was given to Hannah by one of her nurses.

 

[mom2pixies]

Abby (Hannah's sister) wanted to take a picture with all the Mickeys and Minnies we have. The extra big one was given to us by a friend (it was her son's, but he outgrew it), the big Minnie was from the MAW volunteers, and the musical one was given to Hannah by one of her nurses.

LOL!! That's a cute pic! (And, maybe make some room in the house for coming back with a few more Mickey and Minnies....)