Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Mom2mitokids]

So....

We are going back!

Most of you guys "know" Lauren - former wish child from 2008. She has had a lot of challenges over the past year and should find out on Friday if she is going to be able to have a "big" - I think it is huge - surgery on her neck and hips. She is already fused (with rods and screws) from the lumbar region up through the thoracic region. But her neck is now very crooked. Normally they do not do this type of surgery on the neck - they usually do PT and the children (who are usually much younger) just grow out of it.

But so far Lauren has not really responded to anything we have tried to do to help her - PT, swimming, and two different chair modifications.

So...she is meeting with two neurosurgeons on Friday to see what they can do to help her. I will keep you posted on that.

I believe the surgery will be to put rods and screws in her neck up to the back of her head AND to fuse her spine to her hips. Which would hopefully get her straight and keep her straight. But the doctors don't want to do the surgery. Evidently it is a very difficult recovery and the surgery itself is dangerous since the upper spine is a lot smaller and she could lose all function below her neck. This would be terrible for her - but the way it is now is not working for her either.

Anyway...all that to say...Lauren needs a break (and so do her parents and little brother!)...

Lauren's little brother and her Dad are going on a church trip over Spring Break - so we planned an all girls getaway to Disney.

The CAST:

Lauren - former wish child - "unknown" diagnosis - they are positive now that it is not CP, it is too progressive to be called CP, but they really don't know what it is - she has been tested for mito, but we won't know those results for another few weeks. (her medical records all say CP because they don't know what else to call it)

Jessica - Lauren's best friend - also uses a wheelchair (spinal cord injury from a car accident)

Jordan - Jessica's sister - she is coming to help Jessica and be an extra set of hands and because she is just cool and we will have fun!

Lisa - Lauren's Mom - who really needs a break!

and me!


We scheduled this last year...then our church started this cool campaign called "Outlive Your Life" that focuses on missions...so Lauren caught on to that and really wanted to go to Mexico on a mission trip for Spring Break - so we canceled Disney.

But...turns out it was not safe to go to Mexico and the church eventually canceled the whole trip (and every other trip to Mexico for the near future).

So...then Lauren wanted to go with the middle school students on their mission trip - but it was just going to be too much to try to get her in all the places they were going and she can't do as much as they would like to have her listed as a chaperon (is that how you spell that??) - which I understand.

So...last week - last Thursday night - we decided that if all else fails she should just GO TO DISNEY!!

So the trip is back on!

And I have a whole three weeks to plan...which is now down to less than two weeks!

Here is our tentative schedule:

Thurs March 10 - pack and get luggage from the girls to make sure it fits in the van

Friday March 11 - right after school - head to Disney! the van will be packed - we will take care of all bathroom stops at the school before we leave town. We will try to make it half way or more.

Sat March 12 - sleep in some, drive the rest of the way, check in (we are staying at Bonnet Creek on points from Jessica's family in a 2 BR condo), go to the store for snacks, food, etc...

Sun March 13 - MK

Mon March 14 - Epcot

Tues March 15 - AK

Wed March 16 - MK and AK - depends on what we missed at either - may end up with a Park Hopper so we can do both if we need to.

Thurs March 17 - DHS!

Friday March 18 - DHS or whatever park we missed

Sat March 19 - drive back. Lisa wants to leave before Dawn to get on the road. We will drive all the way back - no overnight stop.


I say all of that here so that you guys that are going to be there can check your schedule and see if there is a way we could meet up - if you want! Or we can at least keep an eye out for you guys. We may not be hard to miss - since we will have two wheelchairs in our party.

It is going to be an interesting trip for us, because Lauren can only ride certain rides and Jess and Jordan can ride the big stuff...so we will be doing some splitting up. But we are hoping for a relatively stress free time since we have twice the amount of Disney time this trip than we did on the wish trip - and hopefully Lauren will stay WELL (and hopefully the rest of us will too!)


I have ordered T shirts for us and we have had some cool designs made by the awesome folks on the DISign board - so now I just have to plan the details, get some ADR's (ha!) and go for it!

We don't have any parks the same Are you going to be at GKTW anytime...like Christmas time on the 17th
Taylor and Sami will be there and I believe Kade's dad said they will be and so will we. I would love to meet you and Lauren.
Praying everyone stays healthy and Lauren has the time of her life at the most Happest Place on Earth.

 

[Mom2mitokids]

MAW emailed and asked us how we would like to get to Disney. They have offered to let us fly or drive. We are in GA and I believe it would be about a 9-10 hour drive for us. If we drive I thought we might be able to extend our trip a little bit if we are very frugal. I just wanted to see what everyone's experience with driving vs flying has been. I appreciate any advice.

Since we live in So Cal...we have to fly, but would much rather drive. I don't do well on planes.

 

[Mom2mitokids]

I just called our Wish Coordinator and she told me that there would not be any problem with my mom and sister coming to stay with us for the weekend at GKTW! She just asked that I email her some info and she will contact GKTW to add them on to the stay during that time. She said they just like to know it's been approved by MAW.

I didn't think it would be a problem

 

[Mom2mitokids]

I'm utterly new to forums--so please forgive me if I am posting incorrectly or in the wrong location--I've just been reading up on wish trip stories here (been sharing laughs and tears with you all) for the last two weeks and I couldn't help myself from registering. We just applied for a wish from Make-a-Wish for my beautiful, brave 3-year-old daughter, Brooke, who was diagnosed (and subsequently treated) with Wilms' tumour (a form of childhood renal cancer) last summer. She underwent a nepherectomy on the left kidney (so full removal, as the tumour was quite significant) and just completed 15 rounds of chemo--the last one just before the New Year. Here's to starting 2011 on a healthy foot!

Joining this forum is really soooo, sooooo premature, but Brooke did wish to 'meet Ariel' and the other Disney princesses, so I thought I would do some research--just in case! I have no idea if her wish will be granted, but here's to crossing our fingers that she meets the princesses....

Hi and welcome to the Disboards!!! I can't wait to hear more about Brooke and family.

 

[mom2pixies]

REALLY??

Wilms is a very uncommon childhood cancer. Only 500 cases a year in the entire US. 300+ million people.

Do they all live in the same area?

When Juliana was diagnosed her Children's hospital had a high number of Wilms kids. They were concerned there was some sort of an environmental issue happening. They took all kinds of geographic and other kinds of info from us. They ended up coming up with nothing.

Same here--maybe 50-75 new cases in Canada each year. In our case worker's 19 years work in renal cancers, she said she had only worked on less than a dozen cases of Wilms--only four of which were bilateral (both kidneys). Originally, B was thought to be bilateral, but the doctors have since determined that the 'lesion' is an anatomical anomaly since it has not changed at all with chemo.

I knew my kid was one in a million--but I didn't need this kind of proof!

 

[Mom2Miracles]

So....

We are going back!

YAAAAAAAAAY!!!

Brooke's third birthday was Sunday!!
!

HAPPY BIRTHDAY BROOKE!!! I'm glad that whatever she has is probably just viral, I hope she is feeling better soon.

We just applied for a wish from Make-a-Wish for my beautiful, brave 3-year-old daughter, Brooke

WELCOME!! I hope your daughters wish is granted. It could be a few months before you hear anything though, so don't panic if it takes some time. Our daughter was recommended for a wish (Child Life at our hospital did everything - we didn't even know they were doing it), and it took 5 months from the time they applied to getting an answer that she was being granted a wish. In hindsight, i'm glad we didn't know. lol!

 

[blessedmom4]

REALLY??

Wilms is a very uncommon childhood cancer. Only 500 cases a year in the entire US. 300+ million people.

Do they all live in the same area?

When Juliana was diagnosed her Children's hospital had a high number of Wilms kids. They were concerned there was some sort of an environmental issue happening. They took all kinds of geographic and other kinds of info from us. They ended up coming up with nothing.

Hi Tim, It is one of my hit and ruyn days where I post and dash. I had actually typed in my original post it was strange that I knew so many since it is rare; however, I had so many typos I just deleted that part (Knowing you knew that much better than me

Grace was diagnosed just before her first BD, lives in Cape May, NJ and her Grandmom goes to Washington every year to march for funding...

Gwyn, diagnosed age 2 in Maryland

Christian, diagnosed age? in Chicago

Autumn, diagnosed age 4, NC. Had a BMT after relapsing and currently NED.

I also cared for a Wilm's child when I lived on the coast of NC....

So, it is always interesting to me to meet those with Rare defects/cancers,etc...While Congenital Heart Defects~ CHD's are the most common birth defect, Lisa's defect (ALCAPA) is so rare that out of all the CHD's it only affects 0.25-0.5% of those diagnosed with a CHD. There is a child whose Mom posts on the DIS who is about to go on her Wish trip that has ALCAPA...strange, isn't it?

I WILL be back to read all about everyone's very BUSY day, I missed a lot around here. Woo Hoo for new wish trippers, New BIG GIVES, Maroo and Lauren going back to the World (More on that in a while after I read, I have been worried about Lauren and want to see what the latest news is). I have to give a bath now.

 

[HeatherSP]

Ok so it is Lhea's wish trip and NOT the guys. But TNA will be taping at Universal 2 of the days we are down there. I offered to entertain the girls if the guys wanted to go see it. I will probably just stay at the park and let the girls have fun. Sometimes it is fun to just have some girl time anyway. I was wondering if anyone else has ever seen TNA while they were there. What suggestions should I tell the guys? Any great ideas of things I should do with the girls there? Do you know how long the show lasts? Any other helpful hints you might have for me will be greatly appreciated.

 

[my2girlsrock]

I don't know why I never really come on this thread..... I always get caught up with everyone's PTR's & I miss out on all the awesome info on here... I gotta catch up

I came over to this thread to see if anyone had any advice or info on the questions that we had.....

Read my thread & give me some much needed advice.... We are only 12 DAYS OUT!!!!!!!!!!!!!

Taylor started her 7th round of chemo today & she did ok, she has a bit of a headache & nausea, she is really tired. She keeps crying herself to sleep & then waking up for lil bit then crying to sleep again...

I HATE seeing her go through this!!!!! IT SUCKS!!!!

I keep talking to her about WDW & the upcoming trip to keep her happy....

 

[maroo]

Hope she has a wonderful trip, she deserves it!

Thank you! I agree - she works hard all year!

So excited for all those who are leaving soon! I'm hoping for some new trips reports to read when you get back!!!

Not sure ours counts or not... lol (not being a wish trip)

Mary, I hope Lauren and all of you have a very magical trip! I am so glad you all are going...safe travels!

thanks!!

MAW emailed and asked us how we would like to get to Disney. They have offered to let us fly or drive. We are in GA and I believe it would be about a 9-10 hour drive for us. If we drive I thought we might be able to extend our trip a little bit if we are very frugal. I just wanted to see what everyone's experience with driving vs flying has been. I appreciate any advice.

Hello!!!

We are from MS and we did both...

Let me explain. lol

I had to drive Lauren's wheelchair and her van down to FL - because we had to have her van and her wheelchair can't really fly (it has some extra components that make it really tall and it can't lay on it's side).

So...I drove the 11 hours (or so) to get from MS to FL. The drive was much easier than I thought it would be - but it was just me - no kids.

They flew.

They had a blast on the plane (first time to fly) and of course got there faster. I think they liked flying.

BUT...all of them got sick. All of them - not me - and Lauren is convinced it was being "stuck with all those people" in the plane. And she may be right.

If it is only 9 hours...and you think your family will be ok with the drive... then it is possible that you may almost get there about the same time? Depends on if you have a direct flight or not. But when you get to the airport 2+ hours ahead...and go through the security stuff...and then land (maybe late? who knows)...then the Orlando airport is really big...so it takes some time to get out of there, get your luggage and get your rental car. So...by the time you do all of that...it might be faster to drive?

As far as cost...that depends on your chapter. They gave us money for me to drive the van - because it was cheaper for MAW to pay for our gas and one night of hotel than it was for them to fly me to Disney and rent us a handicapped accessible van for the trip (those are really expensive)...so they were fine with it and did a great job budgeting for gas. They have some formula where they take the make and model of the vehicle and use the current gas prices to determine your gas expense and it was really right on the nose! I was impressed - especially since their van gets 8 - 12 miles per gallon (it is just really heavy with her chair and all the equipment in it).

But I am not sure if you will really have any "extra" money to stay longer? Because most MAW chapters expense out what you will need and don't really pad it all that much? But that is really chapter dependent - they are all different.

That was probably more than you wanted to know.

so, y'all weren't there in November? I looked and looked but never saw you. So happy Lauren is getting to go back. (and the rest of you also).

we weren't there in Nov. We were going to go in Nov - but that trip fell through. Now it really looks like we are really going!!! crossing fingers no one gets sick or anything!

I just called our Wish Coordinator and she told me that there would not be any problem with my mom and sister coming to stay with us for the weekend at GKTW! She just asked that I email her some info and she will contact GKTW to add them on to the stay during that time. She said they just like to know it's been approved by MAW.

woo hoo!!!!! That is awesome!!!!!

I'm utterly new to forums--so please forgive me if I am posting incorrectly or in the wrong location--I've just been reading up on wish trip stories here (been sharing laughs and tears with you all) for the last two weeks and I couldn't help myself from registering. We just applied for a wish from Make-a-Wish for my beautiful, brave 3-year-old daughter, Brooke, who was diagnosed (and subsequently treated) with Wilms' tumour (a form of childhood renal cancer) last summer. She underwent a nepherectomy on the left kidney (so full removal, as the tumour was quite significant) and just completed 15 rounds of chemo--the last one just before the New Year. Here's to starting 2011 on a healthy foot!

Joining this forum is really soooo, sooooo premature, but Brooke did wish to 'meet Ariel' and the other Disney princesses, so I thought I would do some research--just in case! I have no idea if her wish will be granted, but here's to crossing our fingers that she meets the princesses....

so glad you are here! I arrived two years ago with the same thing...totally new to forums and felt like the DIS was HUGE - but as the user names started to be "people" and go to know folks - it became much smaller to me. And I have just stayed around.

Feel free to start a pre-trippie once you are sure she is going to Disney!

Have the wish granters already come? Or are you still in an application process?

Glad you are here!

 

[maroo]

REALLY??

Wilms is a very uncommon childhood cancer. Only 500 cases a year in the entire US. 300+ million people.

Do they all live in the same area?

When Juliana was diagnosed her Children's hospital had a high number of Wilms kids. They were concerned there was some sort of an environmental issue happening. They took all kinds of geographic and other kinds of info from us. They ended up coming up with nothing.

I saw the info later on down here...but I was so wondering the same thing. I noticed a LOT of cancer patients living in my old apartment complex and reported it to the health dept here...it was uncanny!

I'm crying again! Wow. Must remember Photopass photogs--I would be teary-eyed to take my own!!

NEW FOLKS - (sorry...don't mean to yell... lol)

You guys don't forget that ALL wish kids staying either AT GKTW or with GKTW - you guys ALL get a free photopass CD! It should be in your packet and they should talk to you about it during orientation - but I just wanted to make sure you guys all know it is there.

Use it a LOT - they will take "candid" pictures while you are with the characters - but you can also take group shots in various places - do that often as the memories it will capture will be priceless years from now.

We don't have any parks the same Are you going to be at GKTW anytime...like Christmas time on the 17th
Taylor and Sami will be there and I believe Kade's dad said they will be and so will we. I would love to meet you and Lauren.
Praying everyone stays healthy and Lauren has the time of her life at the most Happest Place on Earth.

that is such a bummer!

I am not sure about GKTW - I have mentioned it to Lauren. In fact, we had talked about volunteering for Christmas - but we never did the paperwork.

I think it will depend on how long Lauren can stay at the parks. Right now she is really barely able to handle a school day in her wheelchair - because her neck is so hard to hold up - so we are not really sure how well she is going to do in the parks. We will get a GAC (not the wish one, but a regular one) and hopefully that will help her some to be able to wait somewhere else and she can lay down some time during the day to keep us able to stay out longer.

Her idea is that she will go in the morning to the parks and back to the room to rest in the afternoon and back out at night. So...if we do that...then I don't know if GKTW will fit as much? Plus the other two girls want to do all the coasters...it is going to be an interesting planning deal.

It takes us FOREVER to get anything done at the parks (it takes us forever to do anything, really). so...it just depends. We all want to go to GKTW...I am just not sure when we will go...??

Hi Tim, It is one of my hit and ruyn days where I post and dash. I had actually typed in my original post it was strange that I knew so many since it is rare; however, I had so many typos I just deleted that part (Knowing you knew that much better than me

Grace was diagnosed just before her first BD, lives in Cape May, NJ and her Grandmom goes to Washington every year to march for funding...

Gwyn, diagnosed age 2 in Maryland

Christian, diagnosed age? in Chicago

Autumn, diagnosed age 4, NC. Had a BMT after relapsing and currently NED.

I also cared for a Wilm's child when I lived on the coast of NC....

So, it is always interesting to me to meet those with Rare defects/cancers,etc...While Congenital Heart Defects~ CHD's are the most common birth defect, Lisa's defect (ALCAPA) is so rare that out of all the CHD's it only affects 0.25-0.5% of those diagnosed with a CHD. There is a child whose Mom posts on the DIS who is about to go on her Wish trip that has ALCAPA...strange, isn't it?

I WILL be back to read all about everyone's very BUSY day, I missed a lot around here. Woo Hoo for new wish trippers, New BIG GIVES, Maroo and Lauren going back to the World (More on that in a while after I read, I have been worried about Lauren and want to see what the latest news is). I have to give a bath now.

We are super excited about Lauren finally getting to go back!
Your worries have been well founded - their family has been having a hard time this year.

We will know a lot more on Friday after she meets with two neurosurgeons at the same time.

Ok so it is Lhea's wish trip and NOT the guys. But TNA will be taping at Universal 2 of the days we are down there. I offered to entertain the girls if the guys wanted to go see it. I will probably just stay at the park and let the girls have fun. Sometimes it is fun to just have some girl time anyway. I was wondering if anyone else has ever seen TNA while they were there. What suggestions should I tell the guys? Any great ideas of things I should do with the girls there? Do you know how long the show lasts? Any other helpful hints you might have for me will be greatly appreciated.

??? Forgive me... What is TNA??

I don't know why I never really come on this thread..... I always get caught up with everyone's PTR's & I miss out on all the awesome info on here... I gotta catch up

I came over to this thread to see if anyone had any advice or info on the questions that we had.....

Read my thread & give me some much needed advice.... We are only 12 DAYS OUT!!!!!!!!!!!!!

Taylor started her 7th round of chemo today & she did ok, she has a bit of a headache & nausea, she is really tired. She keeps crying herself to sleep & then waking up for lil bit then crying to sleep again...

I HATE seeing her go through this!!!!! IT SUCKS!!!!

I keep talking to her about WDW & the upcoming trip to keep her happy....

Bless your heart!!!

I am so sorry you guys are having to go through all of that!

We will be there the same time as you guys!

 

[HeatherSP]

??? Forgive me... What is TNA??

Sorry I should have been more specific. TNA is a wrestling show .... or that's what the boys tell me I call it a soap opera for guys.

 

[tinytreasures]

Maroo I am so glad you are going back with Lauren.
It is nice to have you back on this thread too, I have really missed you

 

[newdrama12]

??? Forgive me... What is TNA??

TNA is a wrestling organization that is based out of Orlando and they tape in one of the sound stages at Universal. They tape at Soundstage 21, which is next to the Hard Rock Cafe or in the park is at the end of the building where Twister is. TNA stands for Total Nonstop Action and tapes in Soundstage 21, which is behind where Blue Man Group perform or if in the park, is next to the building that Twister is in. They have a ticket pick up system that they use on getting people in line since it is first come, first serve. I don't remember where they are if you are a non park guest. But if you can get into the park, you will want to pick the tickets up at the Studio Audience Center, which is to the right after you enter Universal Studios. Park guests will be admitted into the Impact zone before non park guests, so chances are better if you are in the park the day of the taping or live broadcast.

Note: the language at TNA is more explicit then WWE.

 

[mom2pixies]

so glad you are here! I arrived two years ago with the same thing...totally new to forums and felt like the DIS was HUGE - but as the user names started to be "people" and go to know folks - it became much smaller to me. And I have just stayed around.

Feel free to start a pre-trippie once you are sure she is going to Disney!

Have the wish granters already come? Or are you still in an application process?

Glad you are here!

Thank you! We are still in the application process. We know she is eligible (our Interlink nurse was the one who kept mentioning it to us during chemo, but I kind of put it out of my head until she completed treatment. Then, our nurse mentioned it again, and after reading up on Make-a-Wish and reading some wish stories, I decided to apply.) Anyways, I guess we were 'preliminarily' accepted, because the wish grantors then sent us a huge envelope with scads of forms and questionnaires inside. We have been in touch with the wish grantors since and filled out all the paperwork a couple of weeks ago, so now we are just waiting to find out if Brooke's wish will be approved. No visit from the wish grantors yet, either.

It would be an awesome for Brooke if this dream came true! She's just obsessed with mermaids and princesses--and I know how much she loves fireworks and parades. She's never been to Disney World, but I know she would just be in heaven, there!

 

[that's nice]

So....

We are going back!

I heard about that bug going around....

 

[maroo]

Maroo I am so glad you are going back with Lauren.
It is nice to have you back on this thread too, I have really missed you

Thanks, my friend!

I was not really "gone" out of town or anything this past few days...I just had some days that I was not able to get on the computer at all...then I forgot my computer charger at Lauren's and had two days of NO computer.

I can't believe I survived.

TNA is a wrestling organization that is based out of Orlando and they tape in one of the sound stages at Universal. They tape at Soundstage 21, which is next to the Hard Rock Cafe or in the park is at the end of the building where Twister is. TNA stands for Total Nonstop Action and tapes in Soundstage 21, which is behind where Blue Man Group perform or if in the park, is next to the building that Twister is in. They have a ticket pick up system that they use on getting people in line since it is first come, first serve. I don't remember where they are if you are a non park guest. But if you can get into the park, you will want to pick the tickets up at the Studio Audience Center, which is to the right after you enter Universal Studios. Park guests will be admitted into the Impact zone before non park guests, so chances are better if you are in the park the day of the taping or live broadcast.

Note: the language at TNA is more explicit then WWE.

I would call Universal and see if they have any tickets...and tell them you are a wish family...they may throw some pixie dust on it. Or you could get your wish organization to call, if you want!

Thank you! We are still in the application process. We know she is eligible (our Interlink nurse was the one who kept mentioning it to us during chemo, but I kind of put it out of my head until she completed treatment. Then, our nurse mentioned it again, and after reading up on Make-a-Wish and reading some wish stories, I decided to apply.) Anyways, I guess we were 'preliminarily' accepted, because the wish grantors then sent us a huge envelope with scads of forms and questionnaires inside. We have been in touch with the wish grantors since and filled out all the paperwork a couple of weeks ago, so now we are just waiting to find out if Brooke's wish will be approved. No visit from the wish grantors yet, either.

It would be an awesome for Brooke if this dream came true! She's just obsessed with mermaids and princesses--and I know how much she loves fireworks and parades. She's never been to Disney World, but I know she would just be in heaven, there!

awesome! sounds like you are well on your way to making her dream come true!! She will LOVE, LOVE, LOVE Disney!!

I heard about that bug going around....

tee hee.

 

[newdrama12]

Ok so it is Lhea's wish trip and NOT the guys. But TNA will be taping at Universal 2 of the days we are down there. I offered to entertain the girls if the guys wanted to go see it. I will probably just stay at the park and let the girls have fun. Sometimes it is fun to just have some girl time anyway. I was wondering if anyone else has ever seen TNA while they were there. What suggestions should I tell the guys? Any great ideas of things I should do with the girls there? Do you know how long the show lasts? Any other helpful hints you might have for me will be greatly appreciated.

TNA is really fun. If it is an taping of Impact, it will last for about 2 and a half hours or so. If it is a Pay per view, it will be 3 and a half hours.

 

[blessedmom4]

I heard about that bug going around....

Better THAT Bug, than the one we have going around here

 

[blessedmom4]

I think it will depend on how long Lauren can stay at the parks. Right now she is really barely able to handle a school day in her wheelchair - because her neck is so hard to hold up - so we are not really sure how well she is going to do in the parks. We will get a GAC (not the wish one, but a regular one) and hopefully that will help her some to be able to wait somewhere else and she can lay down some time during the day to keep us able to stay out longer.

Her idea is that she will go in the morning to the parks and back to the room to rest in the afternoon and back out at night. So...if we do that...then I don't know if GKTW will fit as much? Plus the other two girls want to do all the coasters...it is going to be an interesting planning deal.

It takes us FOREVER to get anything done at the parks (it takes us forever to do anything, really). so...it just depends. We all want to go to GKTW...I am just not sure when we will go...??

We are super excited about Lauren finally getting to go back!
Your worries have been well founded - their family has been having a hard time this year.

We will know a lot more on Friday after she meets with two neurosurgeons at the same time.

??? Forgive me... What is TNA??
Thanks for asking that Maroo, I wondered that myself!
Believe it or not, back in my younger days I loved me some wrestling! I was a National Wrestling Association (NWA fan)...all the guys lived near here and it was fun to root for them...makes me laugh now.

I am extremely happy and excited you get to go back to Disney with Lauren, I know this is something you have all wanted to do and it is wonderful that the timing has worked out for you to do it now. I am praying for the crowds to be manageable for all of you who are traveling during the next few months and hope with Easter falling so late MAYBE it will help lessen the crowds duing your stay.(Christian starts Spring Break on Friday and will be off a week, my nephew has spring break the following week). I have been at WDW duing that time period before and it was for us (reference post 11 in our PTR)...until I got the hang of the wheelchair for Lisa (that was new for me and it was hard on so many levels). You are all MUCH more experienced at using the W/C though. Will you be using a scooter too or are you healed enough to walk? I have been reading your ABC's TR report (and loving it by the way). I haven't commented yet because I am SO far behind of where you are telling the story, it would be very lame for me to chime in on things that you wrote about weeks ago...It has taken me a bit to realize that people have more than one TR listed in their siggies...Thanks Tim Don't laugh, I am slow...or old...or sleep deprived...or all of the above).

I have been so worried abut Lauren since the first time you posted the x-ray photos and I am HAPPY she is seeing the two neurosurgeons on Friday. I will be storming heaven to give her and the family GOOD solutions and answers...I know they won't be easy.

Maroo, I have said this many times before; however, it bears repeating...you are such a BLESSING to the Wish families and while you weren't the original wish tripper thread starter...you sure have become our mentor and our friend, and for that we are SO thankful Although I am older than you, you are like our Mom...guiding us and encouraging us and once again I say a heartfelt


And IF you manage to squeeze in another TR, I promise to be there right from the start...so I can comment and decorate your thread!