Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[mom2pixies]

We just had some exciting Mickey Mail arrive! Come check it out here!

 

[Happy Dreams1]

Well, our MAW volunteers have approved everything. They already did the GKTW forms and are just waiting to arrange dates according to vacancies at GKTW. Hopefully, they'll send us during Christmas!

 

[Em'swish]

Have not gotten to post since we got our dates almost 3 weeks ago. Em has been in and out of the hospital and now we have a new issue. We just found out on top of everything else Em has she also has Epilepsy. We just got home from her 48- hour EEG and now with new meds. The only good thing is we have more information to go when we see gentetics at the start of Sept. I need lots of fun trip planning to get my mind off of things!!! 2 months tomorrow till Em's wish trip!!

Congrats to everyone who have gotten dates! I have a lot of reading to do now!

Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 (best little sister)

 

[Loodlow]

We don't have dates for December yet, but I have some questions. I emailed our wish manager last night and now I have decisions to make.

1. Has anyone needed oxygen at the parks? Owen (3 yrs) is on 1-2 liters of oxygen around the clock and we'll have a Portable oxygen concentrator for the airlines, but it's way too heavy and bulky to take on the rides. When we did Disneyland last year, we had a bunch of "D" tanks in our room, they are lighter to carry around and easy to get on/off the rides. The only problem is that they only last about 3 hours each. We were staying at the DL Hotel so I just jumped on the monorail and ran to the room to switch them out.

My question is.. if you had oxygen tanks with you.. how did you do it? We have the option of staying at one of the Disneyworld Resort hotels so we can just run back to our room and switch out tanks at naptime. Or we can stay at GKTW and there are a million benefits to that! I'm trying to choose convienience of staying at the parks vs the magic of GKTW.

How far is GKTW from Universal and Disney.. realistically from the gate to getting to your car and driving. An hour? 20 min? I'm thinking the weather might be good enough to keep tanks in my car and I can run and switch them out.

I thought about calling GKTW to ask them their opinion because I'm sure we are not the first family to try to figure out where to store a bunch of tanks while at the parks. I wonder if there is a way to store them in a wish lounge? Or first aid office?

Just brainstorming. Any input would be awesome.

2. If any of you have been to Disney in December.. what cool things are there to see. I have read about Osbourne lights at HS.. we won't miss that. I'm thinking we'll do MVMCP one evening for sure. Anything else that's a must see during the holiday season?

3. Last question.. which deluxe resort hotel at Disney is decorated fun for Christmas. We want to stay somewhere fun and festive!

Thanks for all your help! I'm hoping we'll get dates soon so we can start planning. Our requested trip dates would put us 4 months out.

I just attended an inservice where I learned about a new portable O2 concentrator, google it and you may be pleasantly surprised! You can have any medical equipment needed waiting for you in your villa at GKTW. We had a hospital bed, lift, suction, and oxygen waiting. It was wonderful! Our wish granting organization arranged for it, and I talked with GKTW prior to our arrival to verify everything. HTH!

 

[katieb4]

We got dates! Well, I think? LOL. They were actually going to send us next week!!! But, I can't get everything together in 6 days. So, while she hasn't called back to confirm, she was looking at Aug. 19-26th. EEK!

Congratulations!!! And good luck with the planning, lots to think about in a short time, but you can do it!!!
I didn't expect it to be soon, but it takes out the worry some of Emily's health. Once school starts, and the colds and bugs start...things go down hill for my girl. So, hopefully, even though it will be hot (of course it's hot all over the country right now), I think going while she's healthy and plump will be the best idea.

Well, our MAW volunteers have approved everything. They already did the GKTW forms and are just waiting to arrange dates according to vacancies at GKTW. Hopefully, they'll send us during Christmas!

Good luck with getting the dates your hoping for, Christmas at Disney would be magical for sure!!

Have not gotten to post since we got our dates almost 3 weeks ago. Em has been in and out of the hospital and now we have a new issue. We just found out on top of everything else Em has she also has Epilepsy. We just got home from her 48- hour EEG and now with new meds. The only good thing is we have more information to go when we see gentetics at the start of Sept. I need lots of fun trip planning to get my mind off of things!!! 2 months tomorrow till Em's wish trip!!

Congrats to everyone who have gotten dates! I have a lot of reading to do now!

Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 (best little sister)

I'm so sorry to hear about Em's additional diagnosis! that really doesn't sound fair at all. I hope trip planning brings rays a fun to you all!


I updated our PTR a couple of times. The last post with some pictures from our area relay for life....Gabbie was an honary survivor...it was a great time!

 

[disneymomma01]

on everyone getting dates this week!! YAY!! We are celebrating right along with you!!

I just updated our pre-trippie with a BIG secret I just found out about from our Dream Manager!!

http://www.disboards.com/showthread.php?p=41955937#post41955937

Check it out!!!

 

[angeque143]

We had our BIG Reveal today~!!

http://www.disboards.com/showpost.php?p=41961325&postcount=269

The local paper was there too but the article is not out yet....

 

[WDWJonasGirl]

I love the wish trip reports!!

 

[Happy Dreams1]

I love the wish trip reports!!

Glad you do! I also love them!

 

[IrishIz]

Is there someplace to post stuff specific to our own trip? I couldn't figure out where people were posting their stories specifically.

 

[livndisney]

Is there someplace to post stuff specific to our own trip? I couldn't figure out where people were posting their stories specifically.

Some info from the great Maroo!

http://www.disboards.com/showpost.php?p=30723042&postcount=713

Should help with starting a trip report.

 

[brookerene]

Is there someplace to post stuff specific to our own trip? I couldn't figure out where people were posting their stories specifically.

Read post two of this thread and it'll explain it for you! Welcome!

 

[chelleydi77]

More goodies came our way!

 

[angcmom]

Eagerly awaiting our dates so I'm beginning some pre-planning based on the dates we provided.

My daughter had a visit from the wish granters on Sunday and her wish was to go to Disney. She would love to go prior to her next surgery which is September 22, so if she is approved, things may move very quickly.

If we get our first choice, we will be there for Night of Joy, a contemporary Christian music festival. I would think so, but does anyone know for sure if park guests have to leave prior to the concerts starting?

I would love to have the opportunity to stay (if we decide to go to MK on the day of the concert) because there are a couple of groups my son would love to see. (I'd love to arrange some type of meet and greet to surprise him...waiting on confirmation of dates before I start that process.)

Any thoughts are greatly appreciated!

 

[livndisney]

Eagerly awaiting our dates so I'm beginning some pre-planning based on the dates we provided.

My daughter had a visit from the wish granters on Sunday and her wish was to go to Disney. She would love to go prior to her next surgery which is September 22, so if she is approved, things may move very quickly.

If we get our first choice, we will be there for Night of Joy, a contemporary Christian music festival. I would think so, but does anyone know for sure if park guests have to leave prior to the concerts starting?

I would love to have the opportunity to stay (if we decide to go to MK on the day of the concert) because there are a couple of groups my son would love to see. (I'd love to arrange some type of meet and greet to surprise him...waiting on confirmation of dates before I start that process.)

Any thoughts are greatly appreciated!

Night of Joy is a separate ticket event so regular park guests will need to leave at park closing. The party/concerts start after regular park closing.

 

[jon03015]

We found out yesterday that Austin will not get to go on his Make-A-Wish trip until 12-18 months post transplant. These are the dr's orders. But we are approved for Disney World, and until we can get dates I will keep popping my head in here learning from all of you!!!! Thanks for all who contribute, I feel like I have learned a lot already, and will be an expert by the time we leave, thanks to you.

 

[princessmamaof5]

We got a call from the Cincinnati Make a Wish Chapter saying that they had chosen Mackenzie to be the Make a Wish Child guest at the Cincinnati Reds Game on Friday evening. She gets to be interviewed by the local news station and she gets to meet with the Reds and watch them at their batting practice on the field and even gets special attenchin from her favorite player ( Drew Stubbs) . We also get some of the best seats in the house!! I am awestruck and so happy they chose us. I think im going to have Mackenzie wear her mickey mail from Katelyn and Carrie !!!!! Let the MAW magic begin

 

[matties dad]

My daughter Mattie was given a Disney pin at a sleepover from one of her friends. She told her she needed to have pins to trade at Disney. We've heard that mentioned before and am not sure exactly what that means. Can anyone give me a clue as to what the process is and where you get the pins to trade?

Thanks,

 

[disneymomma01]

We got a call from the Cincinnati Make a Wish Chapter saying that they had chosen Mackenzie to be the Make a Wish Child guest at the Cincinnati Reds Game on Friday evening. She gets to be interviewed by the local news station and she gets to meet with the Reds and watch them at their batting practice on the field and even gets special attenchin from her favorite player ( Drew Stubbs) . We also get some of the best seats in the house!! I am awestruck and so happy they chose us. I think im going to have Mackenzie wear her mickey mail from Katelyn and Carrie !!!!! Let the MAW magic begin

Did she get it already?!?!?! I am so excited for you all!! Can't wait to see some pictures!!!

 

[princessmamaof5]

We are still anxiously awaiting but you better bet im gonna be on my mailbox like a bee on honey tommorow lol. Is it coming UPS or FED EX ?