Hi I am Jackie. My son Trevor is my wish kid. He will be 7 in a few weeks. He has a heart defect pulmonary atresia. He has had 6 surgeries so far. Right now he is doing well so I was shocked when a friend nominated him for MAW and found out that yes his wish will be granted. We will have someone come out to the house in the next couple of weeks. He is into Legos and he is always talking about going to Disney World and doing Jedi training. He has two little sisters that are 3 1/2. I am still processing the fact that he qualifies. It brings back a lot of emotions of when he was first born and his future was uncertain. His next surgery will most likely be in 2-3 years as he currently does not have a pulmonary valve. I am glad I have found this forum and look forward to reading all of your magical stories.
Jackie
Thanks Michelle! I am happy that he gets to be blessed this way. We had our wish grantor call yesterday to set up an appointment but we asked them if we could wait a couple weeks to set up a meeting as we just found out my Father in law has throat cancer and they want to start radiation and chemo in the next couple of weeks. Right now we need to focus on. Him and find out exactly what is going on then we can focus on Trevor. They were very understanding and will call us back in a couple weeks. I see you have twins... Mine are 3.5!
Jackie
Sending prayers and pixie dust to your Father in law. I hope they can find the right treatment plan for him and he has a full recovery.
Twins are great !!![]()
Thank you for the prayers. They mean a lot.
Do I post all my questions on this thread or is their somewhere else to do that? I have been looking around and want to make sure I do it right![]()
What Trev loves the most is Legos and Star Wars. He has talked about being a Jedi in training since a friend came back from Disney a few months ago. Has anyone do e this as part of their wish? I recently seen that Disney World has a Star Wars weekend. I think Trev would be over the moon to do something like that. He hasn't seen or heard about it so he does not know it exists.
Do the wish grantors only talk to the kids about what they want or can parents suggest things like the Star Wars weekend and not have their child know?
The other place he has wanted to go is Lego Land. Is that close to the other Disney adventures? We have never been to Lego Land so I am not sure what to expect there.
Thanks!
Jackie
Thank you for the prayers. They mean a lot.
Do I post all my questions on this thread or is their somewhere else to do that? I have been looking around and want to make sure I do it right![]()
What Trev loves the most is Legos and Star Wars. He has talked about being a Jedi in training since a friend came back from Disney a few months ago. Has anyone do e this as part of their wish? I recently seen that Disney World has a Star Wars weekend. I think Trev would be over the moon to do something like that. He hasn't seen or heard about it so he does not know it exists.
Do the wish grantors only talk to the kids about what they want or can parents suggest things like the Star Wars weekend and not have their child know?
The other place he has wanted to go is Lego Land. Is that close to the other Disney adventures? We have never been to Lego Land so I am not sure what
to expect there.
Thanks!
Jackie
Thank you for the prayers. They mean a lot.
Do I post all my questions on this thread or is their somewhere else to do that? I have been looking around and want to make sure I do it right![]()
What Trev loves the most is Legos and Star Wars. He has talked about being a Jedi in training since a friend came back from Disney a few months ago. Has anyone do e this as part of their wish? I recently seen that Disney World has a Star Wars weekend. I think Trev would be over the moon to do something like that. He hasn't seen or heard about it so he does not know it exists.
Do the wish grantors only talk to the kids about what they want or can parents suggest things like the Star Wars weekend and not have their child know?
The other place he has wanted to go is Lego Land. Is that close to the other Disney adventures? We have never been to Lego Land so I am not sure what to expect there.
Thanks!
Jackie
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Do the wish grantors only talk to the kids about what they want or can parents suggest things like the Star Wars weekend and not have their child know?
The other place he has wanted to go is Lego Land. Is that close to the other Disney adventures? We have never been to Lego Land so I am not sure what to expect there.
Thanks!
Jackie
We are still kind of just waiting. I emailed our coordinator yesterday to see if we could get at least our flight info, but nope. We won't get any details until we're about 1.5 weeks out.
This makes me super, super twitchy. It's not like me to leave the planning to someone else.![]()
Disneyland and Legoland are a bit more than 45 minutes - depending on traffic, probably closer to 1:15-1:30.
We are still kind of just waiting. I emailed our coordinator yesterday to see if we could get at least our flight info, but nope. We won't get any details until we're about 1.5 weeks out.
This makes me super, super twitchy. It's not like me to leave the planning to someone else.![]()
It is fine to show your kids some options of what places are. My daughter had heard of Disney World, but after she saw some videos, she definitely wanted to go. The letter they gave us said to think of where you wanted to go, what you wanted to have, what you wanted to be, and who you wanted to meet. Those were the baseline questions. So we asked Tori those things and that helped her narrow it down before the wish granters came. I'm not sure if you know, but you can get free tickets to Legoland at Give Kids the World.
Thanks. I showed Trev Star Wars weekend and his eyes lit up like it was Christmas morning! The other things he has came up with is Disneyworld, Seaworld, 2 star wars Lego sets he really wants, and. The sweetest of all was for his sisters to each have a wish granted
I did not know they have Legoland tix at Give Kids the World. That is good to know.
My Father in law had his CAT scan yesterday to see if the cancer has progressed. Now we wait again for results. Trevor should be meeting with the wish grantors as soon as school is out. If he does pick Star Wars weekend at Disney he is going to have a ling time to wait!
Jackie
Thanks. I showed Trev Star Wars weekend and his eyes lit up like it was Christmas morning! The other things he has came up with is Disneyworld, Seaworld, 2 star wars Lego sets he really wants, and. The sweetest of all was for his sisters to each have a wish granted
I did not know they have Legoland tix at Give Kids the World. That is good to know.
My Father in law had his CAT scan yesterday to see if the cancer has progressed. Now we wait again for results. Trevor should be meeting with the wish grantors as soon as school is out. If he does pick Star Wars weekend at Disney he is going to have a ling time to wait!
Jackie
answering my own question, I see posting a reply puts up a new post.
We are from minnesota and my ten year old daughter with progressive kidney disease is waiting for her wish granters to come and hear her wish to go to WDW and other florida fun spots
Deb