Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

[LindaBabe]

Orientation should only take an hour. It's about a 15 minute drive to Downtown Disney. Be sure to take your hang tag for the rental car, if you have one. Parking can be problematic.

 

[maroo]

Prayer Request...

you would think, now that I am back, that I would be on more...but we have a lot going on here in MS.

While Lauren and I were making our way home from Chicago, Lauren's grandmother was transported to the hospital in an ambulance because she was in SEVERE pain with her back. They did a CT, but put off doing an MRI until Monday. On Monday they said that she needed emergency surgery for a clot that was resting on her spinal cord.

She had the surgery on Tuesday because she was on blood thinners and they had to wait to safely do the surgery.

As of Monday, she could no longer move her legs or hips.

Her neurosurgeon said that he is not sure how much permanent damage was done to her spinal cord, but that the clot he removed was one of the biggest he had ever seen. He gave her a 20% chance of gaining her movement back.

Basically she has a spinal cord injury.

This precious family has been through so much. Even our friends from church that do hospital visitations are just in awe. They have 3 grandchildren - one uses a wheelchair full time (Lauren) and one was hit by a car when he was 9 and has a traumatic brain injury and William was just diagnosed last week (finally) with Celiac Disease. Anyway...now this. They are frustrated. Trusting that God has them in the palm of His hand, but are very frustrated at another thing....

Anyway...please pray for them. And I have been over here and at the hospital for the past couple of days and will be on and off the DIS for a while, I guess, as I am trying to help them to be able to go to the hospital and help when her grandmother would have been helping. It is a double whammy here.

Anyway...thanks for your prayers!

 

[sammie girl]

Prayer Request...

you would think, now that I am back, that I would be on more...but we have a lot going on here in MS.

While Lauren and I were making our way home from Chicago, Lauren's grandmother was transported to the hospital in an ambulance because she was in SEVERE pain with her back. They did a CT, but put off doing an MRI until Monday. On Monday they said that she needed emergency surgery for a clot that was resting on her spinal cord.

She had the surgery on Tuesday because she was on blood thinners and they had to wait to safely do the surgery.

As of Monday, she could no longer move her legs or hips.

Her neurosurgeon said that he is not sure how much permanent damage was done to her spinal cord, but that the clot he removed was one of the biggest he had ever seen. He gave her a 20% chance of gaining her movement back.

Basically she has a spinal cord injury.

This precious family has been through so much. Even our friends from church that do hospital visitations are just in awe. They have 3 grandchildren - one uses a wheelchair full time (Lauren) and one was hit by a car when he was 9 and has a traumatic brain injury and William was just diagnosed last week (finally) with Celiac Disease. Anyway...now this. They are frustrated. Trusting that God has them in the palm of His hand, but are very frustrated at another thing....

Anyway...please pray for them. And I have been over here and at the hospital for the past couple of days and will be on and off the DIS for a while, I guess, as I am trying to help them to be able to go to the hospital and help when her grandmother would have been helping. It is a double whammy here.

Anyway...thanks for your prayers!

Sending some prayers up for you
Hope everything works out and believe in that 20% recovery. I will definitely be praying for a miracle.

 

[sammie girl]

What is the GAC card? We don't have a handicap sticker and was wondering if we would be getting one of these cards.

 

[keetmommy]

What is the GAC card? We don't have a handicap sticker and was wondering if we would be getting one of these cards.

A GAC card is something that you get in Disney that helps you get all accommodations that your child will need. It won't do you any good for parking though...

 

[merneric]

Prayer Request...

you would think, now that I am back, that I would be on more...but we have a lot going on here in MS.

While Lauren and I were making our way home from Chicago, Lauren's grandmother was transported to the hospital in an ambulance because she was in SEVERE pain with her back. They did a CT, but put off doing an MRI until Monday. On Monday they said that she needed emergency surgery for a clot that was resting on her spinal cord.

She had the surgery on Tuesday because she was on blood thinners and they had to wait to safely do the surgery.

As of Monday, she could no longer move her legs or hips.

Her neurosurgeon said that he is not sure how much permanent damage was done to her spinal cord, but that the clot he removed was one of the biggest he had ever seen. He gave her a 20% chance of gaining her movement back.

Basically she has a spinal cord injury.

This precious family has been through so much. Even our friends from church that do hospital visitations are just in awe. They have 3 grandchildren - one uses a wheelchair full time (Lauren) and one was hit by a car when he was 9 and has a traumatic brain injury and William was just diagnosed last week (finally) with Celiac Disease. Anyway...now this. They are frustrated. Trusting that God has them in the palm of His hand, but are very frustrated at another thing....

Anyway...please pray for them. And I have been over here and at the hospital for the past couple of days and will be on and off the DIS for a while, I guess, as I am trying to help them to be able to go to the hospital and help when her grandmother would have been helping. It is a double whammy here.

Anyway...thanks for your prayers!

Prayers coming your way...They have been through so much already...
Mary Anne

 

[sammie girl]

A GAC card is something that you get in Disney that helps you get all accommodations that your child will need. It won't do you any good for parking though...

Thanks for the answer. I am not to worried about parking because we are also taking a sit and stand stroller I bought at a garage sale.
I just read the GAC card is what got people to the front of the lines for character meets and then worried we wouldn't be getting one because my dd is physically capable of walking (unless her BG is making her sick that is).

Thanks for explaining.

 

[Eeyores Butterfly]

What is the GAC card? We don't have a handicap sticker and was wondering if we would be getting one of these cards.

The GAC stands for Guest Assistance Card and it gives you access to attractions only. Each GAC is different as it represents different needs. The types of GACs are:

-Alternate Entrance (an accessible entrance for those who cannot wait with other guests due to various issues.)

-Standard Wheelchair Entrance (most rides this will be standby, but older rides in particular may have a different entrance).

-Shaded Wait Area (for those with sun/heat sensitivity)

-Front of attraction (for those with visual disabilities)

-Green Light Pass- these are hte most common for Wish families and at one point were given out to all wish families. These are the passes that llow you to the front of every attraction line. Now I am told they are only given out to the most medically fragile children. Wish trips used to only be for children with terminal illnesses. Now many organizations send children with chronic but not terminal illnesses as often times these families are given a different card. If you stay at GKTW they will give you the GAC appropriate to your needs.

Make sure that she (or one of you) wear the pin so it is visible at all times. When I worked attractiosn there were many times I never even asked for the GAC, if I saw the pin that was enough for me. Now, they are supposed to ask for the GAC because there are some unscrupulous characters that sell the pins in shops along 192 to people who want to get in line without waiting. I figured karma's a witch and if you're that desperate that you would fake a chronically/terminally ill child, then I won't stand in your way. I'll let karma take care of it. More often than not you will be let into the very front of the lines for attractions and characters, but it is not a guarantee.

 

[Eeyores Butterfly]

Thanks for the answer. I am not to worried about parking because we are also taking a sit and stand stroller I bought at a garage sale.
I just read the GAC card is what got people to the front of the lines for character meets and then worried we wouldn't be getting one because my dd is physically capable of walking (unless her BG is making her sick that is).

Thanks for explaining.

GACs are not for character lines, only for attractions. That being said, I have only heard of one time when a wish family was required to wait in the line. Most attendants will pull you to the front anyway.

Many families with diabetes will get the one that says "standard wheelchair entrance" so they can use a wheelchair if there are stamina issues. Walking around in the heat tends to make your sugars screwy so some people find a wheelchair is necessary. For young children in particular it is recommended to get the "use stroller as a wheelchair" card so it gives them a place to chill and makes them less likely to go low. The bonus is that if you are in line and they go low, it gives them a place to treat/rest without getting out of line. Some also get the shaded wait area stamp if heat is an issue.

Maroo: Prayers being said for that family.

 

[Matt1026]

Prayer Request...

you would think, now that I am back, that I would be on more...but we have a lot going on here in MS.

While Lauren and I were making our way home from Chicago, Lauren's grandmother was transported to the hospital in an ambulance because she was in SEVERE pain with her back. They did a CT, but put off doing an MRI until Monday. On Monday they said that she needed emergency surgery for a clot that was resting on her spinal cord.

She had the surgery on Tuesday because she was on blood thinners and they had to wait to safely do the surgery.

As of Monday, she could no longer move her legs or hips.

Her neurosurgeon said that he is not sure how much permanent damage was done to her spinal cord, but that the clot he removed was one of the biggest he had ever seen. He gave her a 20% chance of gaining her movement back.

Basically she has a spinal cord injury.

This precious family has been through so much. Even our friends from church that do hospital visitations are just in awe. They have 3 grandchildren - one uses a wheelchair full time (Lauren) and one was hit by a car when he was 9 and has a traumatic brain injury and William was just diagnosed last week (finally) with Celiac Disease. Anyway...now this. They are frustrated. Trusting that God has them in the palm of His hand, but are very frustrated at another thing....

Anyway...please pray for them. And I have been over here and at the hospital for the past couple of days and will be on and off the DIS for a while, I guess, as I am trying to help them to be able to go to the hospital and help when her grandmother would have been helping. It is a double whammy here.

Anyway...thanks for your prayers!

Oh my, this precious family has been through so much. We will be praying!!!!

 

[kmparrish5]

GACs are not for character lines, only for attractions. That being said, I have only heard of one time when a wish family was required to wait in the line. Most attendants will pull you to the front anyway.

Many families with diabetes will get the one that says "standard wheelchair entrance" so they can use a wheelchair if there are stamina issues. Walking around in the heat tends to make your sugars screwy so some people find a wheelchair is necessary. For young children in particular it is recommended to get the "use stroller as a wheelchair" card so it gives them a place to chill and makes them less likely to go low. The bonus is that if you are in line and they go low, it gives them a place to treat/rest without getting out of line. Some also get the shaded wait area stamp if heat is an issue.

Maroo: Prayers being said for that family.

We did not know that the GAC was not for character lines. Ours was the "Green Light" one and said, "Guests should be provided any assistance necessary to expedite their visit at the attraction." We used it at all the character lines and they put us next in line coming in from the exit. They would ask us how many in our party each time and then look at the number listed on our GAC.

 

[mommy_lisa]

I have been a lurker for about a month and finally decided it was time to introduce my family. There is myself (Lisa 27), DH (Brian 27), DD (Kayla 10), and our wish kid DS (Lucas 2 1/2). I went to Disney a few times as a child, the last time was when I was 16. No one else in my family has ever been, they are all super excited.
Lucas was diagnosed at 3 months old with biliary atresia. Biliary atresia is a progressive liver disease with no known cause. He was jaundice after birth but we were repeatedly told it was normal breastfeeding jaundice. Needless to say, it wasn't, and at 3 months old we finally got someone to listen to us. He had an abdominal ultrasound which was indicative of bilary atresia and underwent an 8 hr surgery the next day, to hopefully reroute bile flow out of his liver, using his intestines. He recovered nicely and was sent home 8 days after surgery. He had significant liver damage already and it immediately did not look like the surgery was working. We left on Christmas day for a liver transplant evaluation in Omaha, NE. He was listed with a low PELD score ( scoring system used to determine each childs medical need using labs and other factors). We went back home to El Paso, TX and he started to deteriorate. The army moved us to Omaha to be closer to the transplant center. We moved just in time. He was in end stage liver failure and they immediately worked me up for a living donor transplant. We had surgery the next week. Lucas underwent a liver transplant just shy of being 7 months old. He is now almost 3 years old and doing pretty good. He has had a few bumps in the road, which most transplant patients have but overall has done exceptionally well. He is down to one medication, his immunosuppressant which he will be on for the rest of his life. He gets labs drawn every 2 months, and doesn't even cry (just asks for his freeze pop).
We went too see Disney on Ice in December and Lucas fell in love with all the disney characters. Then with the birthday promotion commercials, he repeatedly asked if we could go to Disney. His transplant center nominated him in February and we met with our wonderful wish granters. He was approved to go to Disney. We decided to go in October when he was a little bit older and the weather would hopefully be nicer. We got our flight times in the mail last week, and will be there 0ct 14th-22nd. We are extending our trip by 2 nights. We plan on also going to the beach (don't know which one) and doing MNSSHP.
So after looking online and reading other TR I have accumulated a lot if info but still feel overwhelmed with everyithing. I am having so much trouble trying to figure out a good schedule. Kayla should have no problem being at the parks all day. I am worried about Lucas and DH. DH is not an amusement park type of person but I think he will do good overall. I am hoping Lucas will take naps in the stoller but if not DH can take him back to GKTW or to the wish lounge to rest.

We plan on doing a few character meals. Since we are staying at GKTW I would like to eat there for breakfast most mornings and planning on being there for a couple of dinners. We are hoping to do CRT for breakfast our full day at MK. Chef Mickey maybe the last day of our extended trip (since we have to provide breaskfast anyway) and we leave at noon. We would also like to do Crystal Palace for lunch or dinner, Hollywood and Vine for lunch, and Ohana for dinner. My husband also wants to eat at some German restaurant in Epcot. I am having so much trouble trying to figure out a good schedule. Anyone have any ideas of how to plan out our days/parks/sit down meals? I am thinking for the other meals maybe to do an early dinner and just let them have snacks and such throughout the day, or getting a small quick service if needed. For lunch and dinner what are the best times to have reservations?? My tentative plans are

Wed- arrive at noon, do orientation, hang out around GKTW, go to Downtown Disney
Thurs- Animal Kingdom/Epcot dinner at german restaurant
Fri- MK all day, breakfast at CRT
Sat-Universal Studios, then hang out at GKTW, then dinner at Ohana
Sun-Seaworld in the morning, leave by lunch and drive to a beach. hang out at the beach till late, then drive back (too much??)
Mon- DHS with lunch at Hollywood and Vine, then back to MK/Epcot/or AK
Tue- check out of GKTW, take back rental car and recheck it out, Universal Studios, check into hotel
Wed-hang out at hotel swimming, 4pm Crystal Palace and then MNSSHP
Thurs- Chef mickeys for breakfast and then head to airport, leave at noon

Open to ALL suggestions for switching days/parks/reservations. We would like to see as many parades and fireworks as time allows. Can use it as some downtime

Thanks

 

[Eeyores Butterfly]

We did not know that the GAC was not for character lines. Ours was the "Green Light" one and said, "Guests should be provided any assistance necessary to expedite their visit at the attraction." We used it at all the character lines and they put us next in line coming in from the exit. They would ask us how many in our party each time and then look at the number listed on our GAC.

Like I said, it's not technically for it but I have never had an attendant who denied it. I have only ever heard of one family being asked one time to wait in the normal line. Even though we don't have to honor them, we still try to.

 

[bellairisa]

Another question about the GAC and the GKTW button, now I'm normally a somewhat shy person so using special privileges is new territory for me, so when it comes to using the button/GAC, say for the rides, do you just show the CM that's working the entrance of the ride the button my dd will be wearing, and the CM will know what to do? And from reading on the boards the conflicting "yes you can use it w/ char." vs. "GKTW's standard: Not for char. meet n greets," same basic question, find the CM working with the char. and explain/show the button?

My dd Malia is getting so excited, she's crossing off the days on her calendar, I got a call from her MAW volunteer and her send off party is this coming Monday!!

 

[Eeyores Butterfly]

Another question about the GAC and the GKTW button, now I'm normally a somewhat shy person so using special privileges is new territory for me, so when it comes to using the button/GAC, say for the rides, do you just show the CM that's working the entrance of the ride the button my dd will be wearing, and the CM will know what to do? And from reading on the boards the conflicting "yes you can use it w/ char." vs. "GKTW's standard: Not for char. meet n greets," same basic question, find the CM working with the char. and explain/show the button?

My dd Malia is getting so excited, she's crossing off the days on her calendar, I got a call from her MAW volunteer and her send off party is this coming Monday!!

Yes, just show them button/GAC and they will tell you what to do. Like I said, although it is not officially for character greetings, go ahead and show it to the attendants. The worst that will happen is they will tell you to wait in line, but 99.9% of the time they will let you go in front.

Be forewarned that you may on occasion have a Scrooge of a guest who says something, particularly if your child does not "look" sick, but as soon as they find out it's a Wish child they normally shut up. Don't let it faze you.

 

[sammie girl]

Thanks for the info on the GAC's. I am a little worried about the heat and it damaging the insulin in my dd pump. I am trying to get the insurance company to give me a supply early. The pharmacy told me that it would be to early for another supply but I could still purchase it at regular cost. I am worried about the site itself coming of with so much activity and also having to continually change her insulin due to the heat. Anyone else know how to handle this? This is our first summer with diabetes and the vial of insulin I will be able to keep cool but the pump I won't as my dd will be wearing it.

 

[maroo]

Thank you all for praying for Lauren's family!

Thanks for the answer. I am not to worried about parking because we are also taking a sit and stand stroller I bought at a garage sale.
I just read the GAC card is what got people to the front of the lines for character meets and then worried we wouldn't be getting one because my dd is physically capable of walking (unless her BG is making her sick that is).

Thanks for explaining.

You will get the GAC and GKTW button from GKTW when you get there. It doesn't matter that she can walk, etc. All Wish Kids get the same one.

-Green Light Pass- these are hte most common for Wish families and at one point were given out to all wish families. These are the passes that llow you to the front of every attraction line. Now I am told they are only given out to the most medically fragile children. Wish trips used to only be for children with terminal illnesses. Now many organizations send children with chronic but not terminal illnesses as often times these families are given a different card. If you stay at GKTW they will give you the GAC appropriate to your needs.

This is not exactly true...

GKTW will give you a Green Light pass...Past Wish Families...PLEASE correct me if I am wrong on this.

I don't want any future wish family to worry that they may not get a GAC that allows them front of the line access......

ALL GKTW wish families get the highest level GAC, regardless of their medical condition - this is the way it has been over a year and we have had no families report back (regardless of their condition) that this was different for them. They no longer will let Wish Granting organizations without a life threatening illness send kids at all to GKTW. kdzbear can attest to this, unfortunately. So, if your child has been granted a wish and is staying at GKTW, they will pre-issue you a GAC. You don't have to request anything, like you would a "normal" GAC in the parks. It will come already done in your orientation packet.

Future wish families, please don't worry that you won't get the GAC...you will get one!

I have been a lurker for about a month and finally decided it was time to introduce my family. There is myself (Lisa 27), DH (Brian 27), DD (Kayla 10), and our wish kid DS (Lucas 2 1/2). I went to Disney a few times as a child, the last time was when I was 16. No one else in my family has ever been, they are all super excited.
Lucas was diagnosed at 3 months old with biliary atresia. Biliary atresia is a progressive liver disease with no known cause. He was jaundice after birth but we were repeatedly told it was normal breastfeeding jaundice. Needless to say, it wasn't, and at 3 months old we finally got someone to listen to us. He had an abdominal ultrasound which was indicative of bilary atresia and underwent an 8 hr surgery the next day, to hopefully reroute bile flow out of his liver, using his intestines. He recovered nicely and was sent home 8 days after surgery. He had significant liver damage already and it immediately did not look like the surgery was working. We left on Christmas day for a liver transplant evaluation in Omaha, NE. He was listed with a low PELD score ( scoring system used to determine each childs medical need using labs and other factors). We went back home to El Paso, TX and he started to deteriorate. The army moved us to Omaha to be closer to the transplant center. We moved just in time. He was in end stage liver failure and they immediately worked me up for a living donor transplant. We had surgery the next week. Lucas underwent a liver transplant just shy of being 7 months old. He is now almost 3 years old and doing pretty good. He has had a few bumps in the road, which most transplant patients have but overall has done exceptionally well. He is down to one medication, his immunosuppressant which he will be on for the rest of his life. He gets labs drawn every 2 months, and doesn't even cry (just asks for his freeze pop).
We went too see Disney on Ice in December and Lucas fell in love with all the disney characters. Then with the birthday promotion commercials, he repeatedly asked if we could go to Disney. His transplant center nominated him in February and we met with our wonderful wish granters. He was approved to go to Disney. We decided to go in October when he was a little bit older and the weather would hopefully be nicer. We got our flight times in the mail last week, and will be there 0ct 14th-22nd. We are extending our trip by 2 nights. We plan on also going to the beach (don't know which one) and doing MNSSHP.
So after looking online and reading other TR I have accumulated a lot if info but still feel overwhelmed with everyithing. I am having so much trouble trying to figure out a good schedule. Kayla should have no problem being at the parks all day. I am worried about Lucas and DH. DH is not an amusement park type of person but I think he will do good overall. I am hoping Lucas will take naps in the stoller but if not DH can take him back to GKTW or to the wish lounge to rest.

We plan on doing a few character meals. Since we are staying at GKTW I would like to eat there for breakfast most mornings and planning on being there for a couple of dinners. We are hoping to do CRT for breakfast our full day at MK. Chef Mickey maybe the last day of our extended trip (since we have to provide breaskfast anyway) and we leave at noon. We would also like to do Crystal Palace for lunch or dinner, Hollywood and Vine for lunch, and Ohana for dinner. My husband also wants to eat at some German restaurant in Epcot. I am having so much trouble trying to figure out a good schedule. Anyone have any ideas of how to plan out our days/parks/sit down meals? I am thinking for the other meals maybe to do an early dinner and just let them have snacks and such throughout the day, or getting a small quick service if needed. For lunch and dinner what are the best times to have reservations?? My tentative plans are

Wed- arrive at noon, do orientation, hang out around GKTW, go to Downtown Disney
Thurs- Animal Kingdom/Epcot dinner at german restaurant
Fri- MK all day, breakfast at CRT
Sat-Universal Studios, then hang out at GKTW, then dinner at Ohana
Sun-Seaworld in the morning, leave by lunch and drive to a beach. hang out at the beach till late, then drive back (too much??)
Mon- DHS with lunch at Hollywood and Vine, then back to MK/Epcot/or AK
Tue- check out of GKTW, take back rental car and recheck it out, Universal Studios, check into hotel
Wed-hang out at hotel swimming, 4pm Crystal Palace and then MNSSHP
Thurs- Chef mickeys for breakfast and then head to airport, leave at noon

Open to ALL suggestions for switching days/parks/reservations. We would like to see as many parades and fireworks as time allows. Can use it as some downtime

Thanks

First of all to the Wish Trippers thread!!!!

It sounds like your plans are great!

As far as ressies...If you call early enough, you can get ressies whenever you want, really.

Some thoughts...

Here is the TENATIVE GKTW schedule (this may change, but will give you an idea) and you may want to take that into account...

Monday and Thursday mornings: Disney Characters at GKTW (including Mickey and Minnie)
Wed and Saturday mornings: Horseback Riding
Friday mornings: Barney Photos
Tuesday mornings: Nick Characters

Evenings:
Monday: Discovery Cove (can be missed)
Tuesday: Family Fun Night (can be missed)
Wed: Village Idol (can be missed)
Thursday: Christmas - Don't miss, unless you don't celebrate Christmas
Friday: Pirates and Princesses Party
Saturday: Mayor Claytons B-Day Party
Sunday: Candyland Party (on the really cool Candyland playground)

These are completely subject to change.

Another question about the GAC and the GKTW button, now I'm normally a somewhat shy person so using special privileges is new territory for me, so when it comes to using the button/GAC, say for the rides, do you just show the CM that's working the entrance of the ride the button my dd will be wearing, and the CM will know what to do? And from reading on the boards the conflicting "yes you can use it w/ char." vs. "GKTW's standard: Not for char. meet n greets," same basic question, find the CM working with the char. and explain/show the button?

My dd Malia is getting so excited, she's crossing off the days on her calendar, I got a call from her MAW volunteer and her send off party is this coming Monday!!

The main thing is to make sure the button is as visible as possible at all times, so that the CM's see it. If they don't see it at any character line, meal, attraction, anywhere; then you can certainly show it to them.

Sometimes the solution is to go through the back of a line or take the fastpass entrance...but generally, you should not be waiting in long lines at any point on your wish trip! (Well, except for a meal...can't do much about those lines!)

 

[HeatherSue]

Prayer Request...

you would think, now that I am back, that I would be on more...but we have a lot going on here in MS.

While Lauren and I were making our way home from Chicago, Lauren's grandmother was transported to the hospital in an ambulance because she was in SEVERE pain with her back. They did a CT, but put off doing an MRI until Monday. On Monday they said that she needed emergency surgery for a clot that was resting on her spinal cord.

She had the surgery on Tuesday because she was on blood thinners and they had to wait to safely do the surgery.

As of Monday, she could no longer move her legs or hips.

Her neurosurgeon said that he is not sure how much permanent damage was done to her spinal cord, but that the clot he removed was one of the biggest he had ever seen. He gave her a 20% chance of gaining her movement back.

Basically she has a spinal cord injury.

This precious family has been through so much. Even our friends from church that do hospital visitations are just in awe. They have 3 grandchildren - one uses a wheelchair full time (Lauren) and one was hit by a car when he was 9 and has a traumatic brain injury and William was just diagnosed last week (finally) with Celiac Disease. Anyway...now this. They are frustrated. Trusting that God has them in the palm of His hand, but are very frustrated at another thing....

Anyway...please pray for them. And I have been over here and at the hospital for the past couple of days and will be on and off the DIS for a while, I guess, as I am trying to help them to be able to go to the hospital and help when her grandmother would have been helping. It is a double whammy here.

Anyway...thanks for your prayers!

Oh no! That is awful! I will pray for her and their family. Stories like this, where coumadin fails, really scare me. Did they put her on a different blood thinner, such as Lovenox, now? She probably shouldn't be back on coumadin. I know that's the least of her worries right now, but she doesn't want to get more blood clots when she gets out of the hospital.

 

[keetmommy]

I love when the mail comes these days...got more big give stuff and Our GKTW welcome package...Oh I am getting so excited.....

 

[sammie girl]

We recieved our welcome package from GKTW today also. My dd started dancing around. It is so neat to see her this excited. (of course my dd and my ds argued over who was going to open it so I had to intervene and open it for them.)

It is becoming so real now and I think I am getting more excited than my kids even.

Should my ds bring his darth vader outfit for the Jedi thingy? He has always loved star wars and I know he isn't the wish child but would love for him to have a good chance at being picked for the training. Would a darth vader t-shirt be better?