Well... I'm kind of in this position now...
I have Lupus, and that increases my risk for miscarriage. Additionally, as a result of Lupus, I have anticardiolipin antibodies... which means that my blood is prone to clotting (I was diagnosed with Lupus after a battery of tests that stemmed from me having been admitted to the hospital with a DVT and a PE). I will take blood thinners for the rest of my life.
If I were to ever get pregnant, from the moment of confirmed pregnancy until after the baby was born, I would have to switch from taking Coumadin (pill form of a blood thinner) to Heparin (injectable form of blood thinner) twice a day, as Coumadin is not safe during pregnancy. There is also an slightly increased risk of disease activity flare during pregnancy.
All that said... I hope to TTC next year. I'm in the process of losing weight and making sure I am in the absolute best shape (mentally, physically, physiologically) I can be in. I am doing everything I possibly can to help my disease activity and labs to stay in the normal range. Though all pregnant women with Lupus are classified as "high risk", from what I understand, most women have successful, uneventful pregnancies.
Years ago, women with Lupus were told they couldn't have children, and if they got pregnant, they were told to terminate. These days, they are no longer saying that, but they DO say that a woman with Lupus should have at least a 6 month remission of Lupus symptoms before getting pregnant.
Having Lupus gives me about 20% chance of miscarriage, and about a 25% of delivering prematurely.
Again, all that said... I plan to TTC next year.
I only plan to go forward with TTC after getting the greenlight from all of my doctors (rheumatologist, primary care, hematologist, GYN). I know I can't completely take away the risk of something happening, but I can do everything I can to make that risk as low as possible for me.
