Just need to get this out (Female stuff... update pg14)

[bethbuchall]

I am so sorry. You are in my thoughts and prayers. I hope the retesting shows something different. May you have strength, perseverance, and hope in any case.

 

[Pea-n-Me]

Hang in there, Tina. You WILL get through this!

 

[DisneyFan32WI]

We were going in the right direction for a while there......TURN AROUND!!! I'm hoping that you can put this all past you in due time with the help of a caring, competent professional medical team, surrounded by family and friends.

 

[Pea-n-Me]

So sorry to hear your news! I'm been following this thread because I was diagnosed with endometrial cancer in June 2014 and was hoping you would have a different outcome.

If you have any questions, I'm here for you. I was 41 when I was diagnosed, and there just wasn't a lot of information out there for premenopausal women.

This is GREAT to hear! There are many cancer survivors here on the Dis.

 

[Briarmom]

Oh Tina, I'm so sorry.
Big hugs to you!

 

[lovemygoofy]

Good Morning ya'll,

I still haven't heard anything about the retesting. I expect to hear more about the test results tomorrow at my doctor follow up.
I'm feeling I guess ready for whatever is next even though I'm not sure i am. I started a notebook of questions for tomorrow's appointment
and subsequent oncology appointment.

On a good note though, I do feel better. I'm walking, showering and even allowed to stay alone for a few days now. Of course still somewhat sore
but overall I'm doing okay and feeling better every day.

Thank you all for letting me get this all out and sending me your good thoughts and wishes and some of you even your own personal stories. I can't tell you how all this has meant to me
Thank you so much

Let's to still hoping for just thick and lumpy

 

[cabanafrau]

Good Morning ya'll,

I still haven't heard anything about the retesting. I expect to hear more about the test results tomorrow at my doctor follow up.
I'm feeling I guess ready for whatever is next even though I'm not sure i am. I started a notebook of questions for tomorrow's appointment
and subsequent oncology appointment.

On a good note though, I do feel better. I'm walking, showering and even allowed to stay alone for a few days now. Of course still somewhat sore
but overall I'm doing okay and feeling better every day.

Thank you all for letting me get this all out and sending me your good thoughts and wishes and some of you even your own personal stories. I can't tell you how all this has meant to me
Thank you so much

Let's to still hoping for just thick and lumpy

Lots of positivity flowing your way!

Completely ready to buy Thick and Lumpy's first album and promise to stand in line to buy tickets for the concert tour.

 

[Shmily1]

Praying you find out good news tomorrow. You seem to be very strong so hang in there!

 

[wishesuponastar]

Prayers continue for you, Tina.

 

[PlutoPony]

I still haven't heard anything about the retesting. I expect to hear more about the test results tomorrow at my doctor follow up.

Both times I have had biopsies sent out for 2nd opinions, it's taken close to 2 weeks. My doc was really irritated at the one that went to Mayo and took over 2 weeks...we were waiting for the results to begin treatment. Hope you have better luck getting it done quickly!

Good luck at your appointment tomorrow. I think you'll walk out with a game plan and an idea of whether you want to go the 2nd opinion route or not.

Will be thinking of you!

 

[fortwildernessishome]

I have been following this thread and was also hoping for a different outcome for you. I do want to offer you some encouragement. In July of 2011, I was diagnosed with uterine cancer AND ovarian cancer. I was 44. Now, I am nearing my five year anniversary of diagnosis. I had three surgeries in less than a two month span and I won't lie, it was pretty tough. I then had almost 6 months of treatment, but I am HERE and I am doing GREAT!! MY advice would be to stay as positive as possible (not always easy with a scary cancer diagnosis) get a great oncologist (I had a great one, she did my last surgery and took great care of me for two years. Sadly, she moved and I was assigned a new one. I am positive she was/is a great Dr. but I just didn't feel comfortable with her and dreaded my appts. with her. It was hard, but I found another one, who I love) do any treatment that is offered for the best possible outcome and surround yourself with supportive and positive people. I am sending you lots and lots of positive thoughts and prayers.

 

[anniemae]

Hang in there and keep us updated. Many prayers for you. Keep swimming.

 

[Shmily1]

Good luck and pixie dust to you today.

 

[piglet too]

You've been in my thoughts, Tina.

 

[Gr8t Fan]

Thinking of you and Matt and praying for strength for both of you. (((HUGS)))

 

[anniemae]

Any update OP? Been thinking of you. Hope all is well.

 

[Liberty Belle]

Thanks, y'all. I'm not throwing the towel but this is hit to the knees. The doctor did say he was having everything retested at cancer specialist
So maybe something will be different. Either way I'll get through this. I have faith

I just saw this, Tina. I'm so sorry this was the initial result and I hope hope hope the diagnosis is different with the retesting. If not, know you have so many people behind you who will love you through this.

 

[lovemygoofy]

Hi Everyone,

So so sorry I haven't updated this thread. I saw my doctor last Tuesday and then spent several days in hospital for infection. After that it was my husband's work drama and oh yeah some friends dropped in for a long weekend visit. Nice.

First and foremost I do NOT have cancer. All my test came back negative for all kinds of cancer. Great news! I thought I was going to fall over when the doctor let me know. I thought Matt was going to punch the doctor in the face for putting us through the worry for the week prior. We all respond differently it seems.

The doctor did say I will need full hysterectomy and he thinks probably by the end of the summer/beginning of fall I should get one. I'm having such a mixed bag of emotions to all this. Apparently my uterus is scarred beyond repair from years of untreated endometrosis. The doctor told me several times he was not expecting anything like that and I guess the damage had been done. Apparently knowing that it all will grow back is the pushing factor for him to have me have this surgery. My mixed feelings is the simple feeling of finality of never having a baby of my own. I realize I probably wouldn't have anyways but after all this major work he did to put my girl parts back together I had some small hope left it might still happen. Crazy I know. I'm reconciling myself that I will need to get this done for my health.

I spent a few days in the hospital last week for allergic reaction and infection, dehydration, and probably stress. My incision areas and good portion of my abdomen are covered in blisters from the bond adhesive. My doctor had never seen such a reaction. Lucky me.

Overall I do feel better. I'm already down 19lbs from pre-surgery weight. The crazy thing for me is that gastro issues I was having pre-surgery are basically gone for now. I didn't realize how bad it was until my husband mentioned he doesn't see me eating tums and gas x like I was before. It's crazy how all this parts work together.

Here's my funny because you know I always have to have a funny. I was having a heated discussion with my doctor about this hysterectomy thing and I told him why did he bother to make me a 24 year old's rebuilt hoohah to now take it away. I told him next to just to give me a 24 year old's perky chest instead

Thank you all for my hand holding, your stories, your prayers, your messages of encouragements and your love. I will never be able to show my appreciation for it all.

 

[SirDuff]

Okay, I'll finish reading in a second but WOO HOO!! So glad to hear that it is not cancer.

Now to read the rest (too excited and happy to do so at first).

 

[NHdisneylover]

Oh Tina--I am so thrilled to read this update. I had been thinking of you and wanting to ask if you had more news but didn't want to bug you. No cancer is a hugely wonderful thing to read--especially given what you had been told after round one of post surgery testing. Phew.

But I can certainly understand mourning the lost ability to have a child of your own now---somehow the finality of not being able to is different than just deciding that for yourself.

Big. BIG hugs to you and thanks for the update.