So it looks like you have to do ALL of your packing this weekend then!! You sound so busy I wish I lived nearer so that I could come help you outOH, i forgot to tell y'all that Jonah pt at school is going to bring up a gait trainer to him on Monday. This is will help him with his trunk and head control. It will also serve as a walker for him. Since he is wanting to stand, we thought it would be good try. Also, his teacher, nurse, and aid are going to be throwing him a birthday party on Wednesday, so I'm going be spending most of my time at school next week instead of packing, but it'll be worth it though. We are all just excited about the possibility of him getting to use his legs.
becca
So it looks like you have to do ALL of your packing this weekend then!! You sound so busy I wish I lived nearer so that I could come help you out
Its nice that they are throwing him a birthdayhug:
What day is Jonahs actual birthday on?
Mandy
I'm usually not this busy but it gets me out of the house. His birthday is Nov. 25. We'll be at DHS and Animal Kingdom for his birthday. They did tell me he's going wear a crown.
becca
His birthday is just two day's after mine and my wife's. Yes we share the same birth date, not year.
jonah had his party today. We got our information, had some cake and Jonah flirted with some young girls. We had a relaxed afternoon going through our packet. Of course I didn't get any pictures with my camera because we were soaking up the moment with Jonah, but our volunteers got some pictures so when they email me those I'll post them. He got a bunch of balloons his MAW t-shirt and button.
I don't have to say it but NOW we are really EXCITED!!!!! only 5 more days to go.
becca
That is like the topping on the cake. It will be here before you know it.
Tell him to keep flirting. ian does the same thing.
We are hoping to go to the candyland party.So hopefully we will see you that night
On to Jonah's awesome day. His PT at school brought out the gait trainer and it was a few inches to tall for him so she is bringing out another one tomorrow. He didn't seem to be fussy at all while he was in it. We all think that once he figures out how to use it and move his legs he's going to take off. This time last year or even the few years ago we didn't think it was going to possible. Now everyone thinks he's going be hard to keep up with once he learns how to use his legs. It brings tears to my eyes when I remember what was said to us 5 years ago (december 24) and look at him now. He rode the horse today and sat backwards with the therapist and her helper holding his arms and he didn't fall backwards or forwards like he did even 2 months ago. I can only pray and hope that his progress continues on this path. He is my little sponge right now just soaking up everything and anything we put in front of him. He was in his stander while the wish volunteers were here and the little boy who HATES having his hand put in macaroni actually put his hands in it and played I couldn't believe my eyes. My little baby is not my little baby anymore he's my BIG BOY. O.K. I've gotta go love on my kid now before i start crying and this has really gotten to long anyway. I was just thinking about how far he has come. Thank you for letting me share. I didn't get any video of him in the trainer today because it was to big for him, but I'm hoping to get some tomorrow when he gets fitted
Becca
On to Jonah's awesome day. His PT at school brought out the gait trainer and it was a few inches to tall for him so she is bringing out another one tomorrow. He didn't seem to be fussy at all while he was in it. We all think that once he figures out how to use it and move his legs he's going to take off. This time last year or even the few years ago we didn't think it was going to possible. Now everyone thinks he's going be hard to keep up with once he learns how to use his legs. It brings tears to my eyes when I remember what was said to us 5 years ago (december 24) and look at him now. He rode the horse today and sat backwards with the therapist and her helper holding his arms and he didn't fall backwards or forwards like he did even 2 months ago. I can only pray and hope that his progress continues on this path. He is my little sponge right now just soaking up everything and anything we put in front of him. He was in his stander while the wish volunteers were here and the little boy who HATES having his hand put in macaroni actually put his hands in it and played I couldn't believe my eyes. My little baby is not my little baby anymore he's my BIG BOY. O.K. I've gotta go love on my kid now before i start crying and this has really gotten to long anyway. I was just thinking about how far he has come. Thank you for letting me share. I didn't get any video of him in the trainer today because it was to big for him, but I'm hoping to get some tomorrow when he gets fitted
Becca
On to Jonah's awesome day. His PT at school brought out the gait trainer and it was a few inches to tall for him so she is bringing out another one tomorrow. He didn't seem to be fussy at all while he was in it. We all think that once he figures out how to use it and move his legs he's going to take off. This time last year or even the few years ago we didn't think it was going to possible. Now everyone thinks he's going be hard to keep up with once he learns how to use his legs. It brings tears to my eyes when I remember what was said to us 5 years ago (december 24) and look at him now. He rode the horse today and sat backwards with the therapist and her helper holding his arms and he didn't fall backwards or forwards like he did even 2 months ago. I can only pray and hope that his progress continues on this path. He is my little sponge right now just soaking up everything and anything we put in front of him. He was in his stander while the wish volunteers were here and the little boy who HATES having his hand put in macaroni actually put his hands in it and played I couldn't believe my eyes. My little baby is not my little baby anymore he's my BIG BOY. O.K. I've gotta go love on my kid now before i start crying and this has really gotten to long anyway. I was just thinking about how far he has come. Thank you for letting me share. I didn't get any video of him in the trainer today because it was to big for him, but I'm hoping to get some tomorrow when he gets fitted
Becca
THANK YOU DENISE (bigdisgrandma) for the matching shirts. We are so excited to be able to match one day. I can't believe dh is actually ready to have a matching day. I"ll get pictures later (i promise) Jonah is having an off night right now so he wouldn't be to happy in the pictures right now, but I am going to post pictures of the shirts.
![]()
![]()
![]()
![]()
We'll probably wear them either to sea world or universal. Thank you so much
becca