I'm so very sad.

[mbw12]

Kids say things. Regardless of whetehr they have developmental problems or not. That woman is an insensitive immature person to have said and done that!

Sedning hugs your way that you start to feel better. i am sure you are doing the best you can for your daughter! It is a struggle just being a parent to begin with, let alone facing challenging situations regarding our children.

 

[Blondie]

 

[MUFFYCAT]

I'm so sorry you feel bad today. People can be incredibly mude and rude sometimes. Don't worry about that lady.
Take each day at a time. Tomorrow will be better.

 

[Hillbeans]

Hang in there...you are obviously a great mom or else you wouldn't be worrying yourself so much.

Sending you prayers and PD.

 

[Snow Dog Mom]

I'm hoping your day gets better.

Kim

 

[Pooh93]

First of all {{HUGS}}. From everything I’ve ever read and “seen” here, you are doing a terrific job with Karissa. . If you weren’t a good mom, you wouldn’t care.
Ignore that idiot at the bus stop. Sounds like she has some issues of her own. My kids do not have developmental disabilities, but they embarrassed me a few times on things they have said. That’s just kids. I hope you have a better day.

 

[binny]

thank you all for your kind thoughts.

They have helped more than you know. I had a really good cry, then I cried some more .

Your words have really helped me put things in perspective and your hugs have helped. I really can feel your support. Thank you.


I know this will get better. 98% of the time I can handle it. Most days Im just fine and have faith that it will be ok. I guess todays incident at the bus stop was the straw that broke the camels back. All my pent up frustration and anger and guilt just got the better of me today.


Thank you. I really appreciate your thoughfulness and your support.

God Bless you all.

Robin

 

[MickeysMommy]

 

[calypso*a*go-go]

binny - I hope you don't mind me asking, but what has Karissa been diagnosed with? They have made so much progress towards pinpointing so many genetic disorders that were once mysteries. Are there any support groups in your area?

We have friends with a daughter that has a genetic disorder that can't be detected from her appearance. My heart goes out to them as people just assume their daughter is misbehaving and make very rude comments about her behavior without realizing she cannot control her actions. It has caused them to be very selective about where and when they can go out because they are acutely aware of the reactions of others.

 

[ilovepcot]

Binny, I'm so very sad, too, just reading your post. My heart goes out to you!

 

[kejoda]

Originally posted by Fishbone†
I'm sorry, but I just want to come and rag that lady out. What was that???? I can not believe she did that..... ARGH!!

I am so sorry Binny - I'm sorry that you are frustrated this week, and I'm sorry that there are people who are less than supportive, and down right stupid out there........ talk about loco.

The thing is Binny..... not everyone is entrusted with a special child like Karissa..... only those that can be counted on to love and care for her unconditionally. Only those with patience and love to share....... you must be worthy of that trust.

You're doing all that you can to give her the best and offer her a chance to become what she was created to be. You don't know what that is, or what kind of skills, characteristics, senses or lack there of that she will need...... she very likely has a purpose greater than any of us could imagine, and whatever it is, she will have just what she needs for it..... and with all that you're doing and have done, you are giving her a significant jump at becoming the best of whatever she will be..... but mostly, you are letting her know that you love her, care for her, and believe in her, and that is invaluable. You really can't do anything greater than that for her.

Hang in there........ you'll see the rewards..... I know you will.

Fishbone!!!! Wonderful, wonderful post!!! You have such a good heart, and a great way with words.

Binny you know I've been there myself. Check you pms.

 

[JerseyJanice]

I think we all have days where our problems seem harder to handle than others.

I'm so sorry, Binny.

 

[decker96]

So sorry you are feeling sad. Some people just do not thing before they open their mouths.

Hoping your week gets better!

 

[Planogirl]

Binny, I'm sorry that you ran into that wacky lady when you least needed to deal with her kind. Just keep in mind that many people are rude and that rudeness is going to come out one way or another.

Also, don't feel bad about getting upset. That stress has to come out and it sounds like you're handling all of this extremely well. Hopefully, things will start to look up now.

 

[binny]

thank you all again.


Calypso, she has what the doctor calls "global delay"
You cant tell by looking at her either.

She was born almost deaf and had ear tubes put in when she was 19 months old. That solved the hearing problem but she was behind in many ways.

*I* think she has Central Auditory Processing Disorder and I have gone behind my doctors back to prove that. I have an appointment with an audiologist to test her for it.

You can read about it here:CAPD

part of that article says:

Is your child easily distracted or unusually bothered by loud or sudden noises?
Are noisy environments upsetting?
Does behavior and performance improve in quieter settings?
Does your child have difficulty following directions, whether simple or complicated ones?
Does your child have reading, spelling, writing or other speech-language difficulties?
Is abstract information difficult to comprehend?
Are verbal (word) math problems difficult?
Is your child disorganized and forgetful?
Are conversations hard for your child to follow?



this describes my daughter to a *T* with the notable exception of reading. She is 5 and loves to read. She tries very hard and can read several words. Its one of her favourite things to do.



The thing about my daughter is she is truly the most loving, empathetic, enthusiastic person Ive ever met! Everyone who meets her loves her immediately. I take her to church and all the kids rush to her side yelling " Karissa's here! Karissa's here!" the adults love her and tell me all the time how she is such a joy and that her enthusiam for everything just makes their day!






She is a great kid. I know, in my heart, that she is destined for great things and that this is just a small hurdle on the way to those things.

I guess its true what the say... you will never hurt as bad as when someone hurts your child!


Thank you all again. I truly appreciate your support and hugs and kind wishes. You will never know how much you have helped me today!
God Bless.

Robin

 

[nativetxn]

{{{HUGS}}} sweetie. I'm so sorry you are having a tough time this week.

I sure hope you are feeling more positive very soon.

Katholyn

 

[AmyBeth68]

I don't have anything to add that hasn't already been said, except I just have to say that the "woman" was absolutely out of line!!! Ugh. I can't believe adults can behave that way. Your daughter sounds amazing....and with a mother like you on her side she is going to do great things! Hugs to you! Hang in there!

 

[Dan Murphy]

So sorry to see you down like this, binny. A good thought, a good wish, coming your way.

What a wonderful community of support here, binny, for you, for so many.

 

[ZachnElli]

{{{{{Binny}}}}} That woman was rude! You are right, Karissa is the sweetest little girl I have ever met! My kids think she is a riot! They still talk about the "shut UP" trip! LOL!

 

[binny]

LOL D

To clarify for everyone who wasnt in the van that day...

Karissa had just watched Princess Diaries right before we went to pick up ZachnElli and her kids. SO any time someone would say anything she would say " Shut UP!" just exactly like Anne Hathaway in Princess Diaries. LOL

Its just one of her quirks I guess but she can perfectly mimick many people. This is both good and bad LOL and the primary reason we dont get her around people who swear a lot .