I clicked my heels together and they let me go home

Mickey527

DIS Veteran
Joined
Feb 1, 2000
Messages
4,956
I was released today. Not sure if I am getting better or they were sick of me. Of course I was told I was the perfect patient, I never rang my bell or called for help when I didn't need it. They just didn't realize I felt so bad I couldn't lift my arm to hit the buzzer.
I was admitted with Neutropenia. Had lots of precautions, no il people, no fresh fruits or veggies, no flowers, and I couldn't leave my room at all. Not even to walk down the hall for exercise. Luckily I was in a private room and it was built larger so I had some room to pace in the room.
I went in on Wednesday with a fever of 103.6. They did blood work and my counts were 700. Should have been between 1200-1600. Just a little low. I also had some bacteria in my bloodstream. They were normal skin flora to most people but somehow they got into my blood and didn't belong. With the low bloodcounts I couldn't fight them out. Some were in my port-a-cath, and some in my blood which means they could have come from the wound but also from the port site that was not healing either.
Counts were up to 11,000 today and the bugs are lower so they feel that oral antibiotics would be ok at home.
My fevers spiked up and down throughout the entire time that I was in the hospital, mostly at night, but only as high as 101.6. I felt much better than the day I had the 103.6.
My oncologist will be stopping the chemo for a few weeks so my body can try and heal. The reconstruction is not going so well. I have a great flat stomach, but the stomach they stuffed into my breast is rebelling about being there.
My reconstructive surgeon feels that debriding (cutting out the areas that are not healing) will help the healing speed up. So on Friday he decided to cut a HUGE hole into me. Suffice it to say they stuff 4 4X4 guaze into the hole. He feels I will need 4 more debridements but I am gong to put my foot down and refuse anything else without being put under. I can't tolerate what he put me through on Friday again, all done without any anesthesia. It was inhumane.
Needless to say, I am glad to be home, but really upset that I have to stop chemo for a while. It just could be the time the cells need to find another host. The Dr said that the chance is low because the chemo is still in my body, but I won't stop worrying until the 5 year all clear is given I guess. Guess I will be the only woman on Earth who looks forward to her 56th birthday.
Thank you all again for the concern, hope this topic wasn't too hard to read. I know it was long. Peggie
 
Hugs Peggie!
Glad you are home. Hope things improve soon and quickly so you can get back on the chemo train.

Be strong!
 
Don't you even think twice-----if you need to talk and tell the gory details, you just go right ahead and talk, and we'll listen! You're "processing" and I think it's very healthy!!

Just so glad they let you go home, and I know you must be too.

I know you're worried about delaying about the chemo, but you know your doctors are doing what's best for you on all fronts, so I'm as soon as it's "safe" you know they'll start again. Could you ever imagine that you would be disappointed that you can't have chemo, LOL??!!!!

Love and hugs, and pixie dust and prayers:cheer2: :flower3: :hug:
 

Peggie,

I'm glad to hear you're home. While you're joking about it, we all know that they wouldn't let you go if you hadn't made enough improvement to earn it.

I don't blame you about the debridement without anesthesia. <i>Been there, done that, did not even get the T-shirt. :rolleyes: </i>

I <i>love</i> Ruthie's comment .....<i>"Could you ever imagine that you would be disappointed that you can't have chemo, LOL??!!!!"</i> :crazy: Too true!

Keep it up! We're here whenever you need us. ::yes::
 
And I'm w/ Ruthie...you vent as long and as much as you need...Miss Peggie....that's what we are here for...keep positive thoughts..you should have enough chemo to protect you, and you will be ready to resume soon...just try to build yourself up...and take your antibiotics....
And you are right...no more messing w/ your reconstruction w/o being put out.... hang in there...we think of you often...and as I said before...the cruise won't be the same w/o you...
 
Peggie,
Please keep telling us your tales.
We love you and wish you well, lots of pixie dust and prayers going your way!
 
Peggie, it is always good to "see" you on the bb here. You can write as long a post as you want - we will read it! Take care & know you are in our thoughts & prayers...
 














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