~How TWO trips became...who knows? ~ It's a TRIP! and an upgrade.... 4/22

[StefaniLyn]

Praying for peace for Rachel, her family, and you too Maroo. Aside from the exhaustion that lack of sleep can cause, the mental exhaustion you all must be experiencing right now is incredible. I hope the meds work their magic and allow Rachel to rest.

I have personally witnessed the power that prayers can have. Were it not for the incredible support and hundreds, maybe even thousands, of people praying for Bella, she would not be doing as well as she is today. Her progress continues to astonish all of her doctors, and I can only attribute it to the many prayers being said on her behalf every day.

The same will hold true for Rachel. These prayers will be answered and Rachel will return to her previous condition. She continues to be in my prayers daily. God Bless you for sharing Rachel's story with us - she has touched so many lives thanks to you.

 

[Sandy321]

Maroo It hasnt been that long since my own son was in a hospital and saying really really "random" things! I know how hard not knowing what tomorrow brings - and how strongly we cling to our faith!!

continued prayers!

 

[TarzansKat]

Thank God for this positive turn!

 

[MomTo4+more]

I hope last night was peaceful for everyone. I am still thinking of and praying for Rachel.

 

[kdzbear]

I hope everyone was able to get some sleep last night. We are praying for Rachel's health and recovery. Take care of yourself!

 

[Matt1026]

WOW! What an encouragement these boards have been to me today. I am glad to hear the good news about Rachel. We are still praying for Rachel, her family and you. We will pray specificaly for a good nights rest for all.

 

[If U Had Wings]

Still sending prayers her way. I'm goad that there have been some postive signs!

 

[maroo]

When I left their house this morning everyone was SLEEPING!

I have no idea what happened between the hours of 11 PM and 6 AM, though. But it was good that they were both sleeping this morning.

Once I get an update, I will let you guys know...


In the meantime...

You guys know I love all of these Wish Families and they ALL are so special and have been through so much.

But there is one that I am hoping you guys can help me with...

Her name is Mya and she is not doing well - her tumor continues to grow despite the chemo they are giving her. Her doctors felt it would be a good idea to move her wish trip up from October and they went in July.

The thing that is getting me right now, though, is that she does not seem to have much support online from folks on the DIS. Many of the kids I follow get hundreds of "hits" each time they post on their blogs and I am actually the only one that has posted on Mya's today. They really need some encouragement and I hope that we can generate some for them.

They just got back from their wish trip and from all accounts it was wonderful!

If you have time and would like to post on her guestbook or follow along and pray for them, I would really appreciate it.

Here is the link...

http://www.caringbridge.org/visit/myaroseharris

Everyone does have to supply an email address and you may even have to register? But it is well worth it...as we have lots of families (even possibly Rachel in the future) that will have a Caring Bridge site.

And feel free to tell her you are posting from the DIS.

 

[maroo]

THREE WEEKS!!!!!!!

Three weeks! Three weeks!

I will be in Disney World three weeks from tonight!

With everything going on, it has certainly caught me off guard a little!



First...I have an ANNOUNCEMENT!


*drum roll please!*







I changed resorts. Yep. I changed resorts!

And I didn't even tell the DIS.

We will now be staying at Old Key West!

I was concerned about the lack of two full beds in our SSR Studio, so I took the plunge and called Disney one afternoon when I was sitting in the ICU with nothing to do but pray, still be worried, and call Disney. They were glad to switch us! Question: Now what do I do to make sure ME knows to take me to OKW???



And I realize that I have not really gone into the day-by-day plans for our trip. So let me give you an idea of our plans in the next week or so here goes nothing!

Saturday, September 5th

Park: Epcot
Breakfast: In room?
Lunch: Sunshine Seasons (around 11:00)
Snack: Somewhere in World Showcase
Dinner: Teppan Edo (around 6:00)

Our special plans for today include meeting a DISer for lunch at Sunshine Seasons. tinytreasures and her husband will be meeting Sharon and I for lunch! I figure there are LOTS of choices here and it will be great for a first meal at Disney!

*Quick aside...there are really very few "must dos" on this trip!*

Hope to Do: Soarin' (at least once), relax around the World Showcase

 

[maroo]

Once again I'm glad to hear that Rachel is doing better. As a PP said, and I'm sure you know, there must be tons of Disney APS for the iPhone.

This is true! She has found several apps already...I need to find some Disney apps for ME! We also need to upload all of her songs today.

Praying for peace for Rachel, her family, and you too Maroo. Aside from the exhaustion that lack of sleep can cause, the mental exhaustion you all must be experiencing right now is incredible. I hope the meds work their magic and allow Rachel to rest.

I have personally witnessed the power that prayers can have. Were it not for the incredible support and hundreds, maybe even thousands, of people praying for Bella, she would not be doing as well as she is today. Her progress continues to astonish all of her doctors, and I can only attribute it to the many prayers being said on her behalf every day.

The same will hold true for Rachel. These prayers will be answered and Rachel will return to her previous condition. She continues to be in my prayers daily. God Bless you for sharing Rachel's story with us - she has touched so many lives thanks to you.

There is no doubt that the prayers have made such a difference for her! I have seen it now and in the past and I have no doubt!

I am so glad I got to share her story with you guys!

Maroo It hasnt been that long since my own son was in a hospital and saying really really "random" things! I know how hard not knowing what tomorrow brings - and how strongly we cling to our faith!!

continued prayers!

Wow...I had no idea you have already been through this mess! I hope to have good news for all of us in a few house when I call them at lunch!

Thank God for this positive turn!

I hope last night was peaceful for everyone. I am still thinking of and praying for Rachel.

Thank you so much for praying!!!!

I hope everyone was able to get some sleep last night. We are praying for Rachel's health and recovery. Take care of yourself!

I slept GREAT. First night to sleep all night long in quite a while. I even went into work a little bit late to catch that last little bit of sleep to make a whole night!

WOW! What an encouragement these boards have been to me today. I am glad to hear the good news about Rachel. We are still praying for Rachel, her family and you. We will pray specificaly for a good nights rest for all.

I am so glad these have been an encouragement to you! You deserve it!

Still sending prayers her way. I'm glad that there have been some postive signs!

Me, too!!!! Thank you so much for praying!

 

[All7OfUs]

Whew! Things must be really looking up, because it seems like you are joining us again! That's a good sign!

Your plans look great! I think you and Sharon are going to have a nice time wandering around WS; maybe it will even grow on you.

Never been to Sunshine Seasons- you'll have to tell us all about it!

OKW! I know you've mentioned that you're really attracted to this one, and I"m sure the beds will be a plus for you.

 

[maroo]

Whew! Things must be really looking up, because it seems like you are joining us again! That's a good sign!

Your plans look great! I think you and Sharon are going to have a nice time wandering around WS; maybe it will even grow on you.

Never been to Sunshine Seasons- you'll have to tell us all about it!

OKW! I know you've mentioned that you're really attracted to this one, and I"m sure the beds will be a plus for you.

I am here!

And I got a new computer at work. My old one was so slow and a doctor needed something and asked me to pull it up...and thought he was going to freak when he saw how long it took the computer to "retrieve" it...so today I got a brand new FAST computer!

I can get my work done even faster! And not have to wait on junk to "post" or "pull up!" Woo hoo!

It is amazing what a few nights of rest will do for ya. I think I got 2 full nights in a row and it feels pretty good!

 

[StefaniLyn]

I am here!

And I got a new computer at work. My old one was so slow and a doctor needed something and asked me to pull it up...and thought he was going to freak when he saw how long it took the computer to "retrieve" it...so today I got a brand new FAST computer!

I can get my work done even faster! And not have to wait on junk to "post" or "pull up!" Woo hoo!

It is amazing what a few nights of rest will do for ya. I think I got 2 full nights in a row and it feels pretty good!

Maroo, I seriously want your job, Fighting for insurance benefits AND now you have a newer, faster computer to DIS on while you wait on hold = My dream job! Color me jealous

Glad to have you back and DISing in full force again!

 

[maroo]

Maroo, I seriously want your job, Fighting for insurance benefits AND now you have a newer, faster computer to DIS on while you wait on hold = My dream job! Color me jealous

Glad to have you back and DISing in full force again!

I wish you could see my office. It is a dream job. Really. Someone was trying to get me to interview somewhere else and I told them no. I won't even talk to them. The grass is not always greener on the other side.

And it is like lightening! Even on the DIS!! Woo Hoo!

Having said that...I gotta go get some work done! So I can KEEP this dream job! And get to leave on time.

 

[Sandy321]

Maroo Guess I can delete all the SS stuff I had saved for you!!! And find some OKW stuff!! Actually I'm glad you switched - I think OKW is better fit for you - you can take a boat down to DTD - and eat at Wolf Gang Express - and that Sandwich of Earl place! Stop in the Christmas shop and get some pixie dust!!

Epcot snack - hmm on dining plan? Then a Kaki Gori (snow cone in Japan) or not on the DP - get a funnel Cake in America!! YUMMM!!

Great Plans!! Glad things are settling down - thanks for posting the link - I'll hit it up later - I'm on vacation - drove to see my mom and dad at the lake (NE corner of Indiana) so I have to get off and socialize!!

 

[jenb1023]

I am so glad to hear everyone got a good night's sleep! It is amazing what a restful night can do for the body and soul. Keep us posted.

I joined Mya's Caring Bridge and posted. Thanks for saying something.

Woo-hoo (again) for OKW! I think it will be a better fit for you guys too.

I think your first day looks good. The food is good at Sunshine Seasons and there is a big variety. Just make sure you grab FPs for Soarin before you eat. They go quick!

for a new computer so you can fight those insurance guys and DIS!

 

[tinytreasures]

sorry I have not been on in a few days
glad to hear things are better your way

I can't wait to see you soon
I need to really figure out what we going to do once we get there we really don't have any plans

 

[maroo]

Maroo Guess I can delete all the SS stuff I had saved for you!!! And find some OKW stuff!! Actually I'm glad you switched - I think OKW is better fit for you - you can take a boat down to DTD - and eat at Wolf Gang Express - and that Sandwich of Earl place! Stop in the Christmas shop and get some pixie dust!!

Epcot snack - hmm on dining plan? Then a Kaki Gori (snow cone in Japan) or not on the DP - get a funnel Cake in America!! YUMMM!!

Great Plans!! Glad things are settling down - thanks for posting the link - I'll hit it up later - I'm on vacation - drove to see my mom and dad at the lake (NE corner of Indiana) so I have to get off and socialize!!

Oh no! Have you been doing research for me? Was I supposed to know that?? I am losing my mind. All of it.

Also...is the funnel cake not on the DP???

Please, please...all of you guys check out the link!!!

I am so glad to hear everyone got a good night's sleep! It is amazing what a restful night can do for the body and soul. Keep us posted.

I joined Mya's Caring Bridge and posted. Thanks for saying something.

Woo-hoo (again) for OKW! I think it will be a better fit for you guys too.

I think your first day looks good. The food is good at Sunshine Seasons and there is a big variety. Just make sure you grab FPs for Soarin before you eat. They go quick!

for a new computer so you can fight those insurance guys and DIS!

It IS amazing! So amazing in fact that I definitely hope we get to meet again! Because I am not sure I was not sleep deprived?


Thank you so much for posting on that. For the first time I really don't feel like our MAW family is being supported...most of our kids tend to have a LOT of support around them before they ever get to our site...but it doesn't seem like they are getting a lot of posts over there and many of them are from other websites...so I hope we can really show her the love.

FP for Soarin is the very top first thing to do when we get to Epcot! FP it and ride it! Hopefully from rope drop.

sorry I have not been on in a few days
glad to hear things are better your way

I can't wait to see you soon
I need to really figure out what we going to do once we get there we really don't have any plans

Woo Hoo!!! There she is!!! I love your siggie.

You don't need any plans. It is like a honeymoon!

have you checked out the honeymoon section of the DIS? They probably have great ideas of non-plans you can make.

 

[Sandy321]

LOL Maroo - I hang out on the DVC Board because of our Jan trip (staying BCV!! ) and anytime I'd see a good SSR post/info I'd say to myself, "oh I should let Maroo know about that!!" no worries - its all good and fun!!

Funnel Cakes - MK ON ddp - Epcot(in American area) NOT on DDP its a connundrum all right. best thing dis'ers have figured out is the stand in epcot is independent - as most of the epcot areas are independent and negotiate with disney for dp reimbursements...

epcot - BEST Snack NOW on ddp - go to France - walk back towards the Eiffel Tower - on the left side (there is usually a line out the door - always a good sign!!) FRENCH PASTRIES!! ON DDP Creme Brulle - chocalate mousse... *sigh... (both sides have same stuff - it helps move that line fast!!) then when you get your snack - walk to your left where the store is - there in an a/c area are seats to eat your treats!!

Not that I'm a planner or anything!!

 

[maroo]

LOL Maroo - I hang out on the DVC Board because of our Jan trip (staying BCV!! ) and anytime I'd see a good SSR post/info I'd say to myself, "oh I should let Maroo know about that!!" no worries - its all good and fun!!

Funnel Cakes - MK ON ddp - Epcot(in American area) NOT on DDP its a connundrum all right. best thing dis'ers have figured out is the stand in epcot is independent - as most of the epcot areas are independent and negotiate with disney for dp reimbursements...

epcot - BEST Snack NOW on ddp - go to France - walk back towards the Eiffel Tower - on the left side (there is usually a line out the door - always a good sign!!) FRENCH PASTRIES!! ON DDP Creme Brulle - chocalate mousse... *sigh... (both sides have same stuff - it helps move that line fast!!) then when you get your snack - walk to your left where the store is - there in an a/c area are seats to eat your treats!!

Not that I'm a planner or anything!!

Woo Hoo!!!

This is GREAT information. I checked out the snack thread yesterday and if I want a funnel cake, I will just have to get one at MK, huh!!

So...care to share the best snacks at MK, AK and DHS while you are at it? You seem the wealth of information...

Not that you are a planner or anything...