Holden's Make-a-Wish - Disney Dream

PunchkinPatrol

Earning My Ears
Joined
Jun 11, 2013
Messages
16
DISCLAIMER!

Hi everyone! Im brand new to the DisBoards so please bare with me. My friend, Ana~n~Joseph introduced me to the boards years ago and I often lurked but now that Im actually writing a trip report, I figured I might as well get my own username. I know Ana often wrote about my youngest son, Holden, on the Make-a-Wish thread so I wanted to follow up on that. Hopefully I get this thing right the first time.. hehe.

WHO ARE WE?

Well, this is my beautiful family.

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Quick introductions&

Me  Im Traci, mother of 3 wonderful kids and wife to my amazing husband, Dave. I am a huge Disney fan and try to go to Disney World as much as I can (once a year).

DH  Dave  Former Army  Special Forces, two tours to Afghanistan but now he works in the civilian world. Amazing dad to our wonderful kids, soccer coach for our middle sons team and well, the biggest Houston Dynamo fan you will find. He is not a huge Disney fan but he finds the magic whenever we are there.

DD  Jordie  My beautiful, lovable, drama queen. The best big sister her little brothers could ask for. She is a Disney Princess and went to Disney World for the first time when she was 8.

DS1  Trey  My little read head who is going into 2nd grade! He loves his siblings and playing soccer. He visited Disney World for the first time in 2010, the year Holden was diagnosed. It was supposed to be a trip with mommy and daddy but unfortunately, due to the circumstances, mommy had to stay back so he went with Daddy and his Aunt Ana and her family. I have to say both of my older kids have been amazing through this ordeal. Such beautiful, loving and amazing kids/siblings.

DS2  Holden aka Holdie  Holden is our Wish kid of course. Its amazing how much he has been through in such a short time. But hes a fighter and a survivor. August will be 1 year of remission. He loves all things Disney and is so excited to go on the mickey boat!. He loves to play with his older brother and is addicted to iPad games (educational ones, at least). He is truly a ray of sunshine and can light up the room with his infectious smile. He is also very good at keeping me on my toes!

HOLDEN & Acute Lymphocytic Leukemia

So where does one begin on this one? Ill try to make it short.

It was August of 2010, Holden was 6 months old and I was in Italy for a friends wedding. Holden was at home with dad and the kids (and of course, Granny would stop by daily for her visit). It was a usual evening when Dave noticed the baby felt hot. He was running a fever. There were also two bruises on his legs but he was high-energy, he had probably bumped into something, right? Daddy decided he best take Holden to the local ER for the fever and he did. There, he was told it was an ear infection but daddy just had a feeling in his gut that told him to check further. He asked them to run blood tests and immediately called our pediatrician (thank goodness for 24 hour hotline!). Once the results came in, Dave read them to our pediatrician over the phone and he immediately said Something is not right, get him to Texas Childrens ASAP. Without a second thought, Dave grabbed Holden, put him in the car and drove as fast as he could to the Texas Medical Center.

The diagnosis at TCH came out almost immediately. His first blood work there came back showing him as anemic with a white blood cell level of 348,000 (normal range is 5,000 to 10,000). Within the first few hours, the wonderful team at Texas Children's administered platelets and blood, as well as leukopheresis which brought the white blood cell level down to 120,000. This also started an 23 hour journey to get mom home as fast as possible. My friend, Ana, was actually the one who broke the news to me on the phone. She called the hotel and after telling the nice Italian man that this was an urgent matter and an emergency he transferred the call to my room in the middle of the night. Ill never forget her words, Traci, you need to come home. I was with a group of friends in Italy and between all of them, they found me a way home. It was the longest plane ride possible and the feelings associated with it are impossible to put into words.

I arrived at TCH at night and that was the start of a two year journey of countless stays, chemos, surgeries, infections, etc.

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Following. Can't wait to hear more about your plans for your brave boys trip!
 

Following....can't wait to read about your trip. :-). My daughter's MAW trip is July 20-26
 
Nice to see you posting. :) I've been following Ana's posts about Holden's Wish process.

You have a beautiful family. :lovestruc

Sorry for all Holden & your family has been through. We know what it's like to have your world suddenly turned upside down, but I can't imagine what you went through being so far away when it happened to your family. :hug: Glad Holden is in remission, and is getting his Wish. :cheer2:

DD's Wish was approved 2/28, for a 4/14 cruise, so we understand about not having much time to plan. I was going to offer some advice from a newbie perspective, but then I remembered that Ana has cruised. :)
 
Nice to see you posting. :) I've been following Ana's posts about Holden's Wish process.

You have a beautiful family. :lovestruc

Sorry for all Holden & your family has been through. We know what it's like to have your world suddenly turned upside down, but I can't imagine what you went through being so far away when it happened to your family. :hug: Glad Holden is in remission, and is getting his Wish. :cheer2:

DD's Wish was approved 2/28, for a 4/14 cruise, so we understand about not having much time to plan. I was going to offer some advice from a newbie perspective, but then I remembered that Ana has cruised. :)


Please share all the advice you can think of! :yay: I have only ever sailed Carnival...Ana tells me this will spoil me forever.
 
Please share all the advice you can think of! :yay: I have only ever sailed Carnival...Ana tells me this will spoil me forever.

We had never cruised at all, but we were told by many other passengers that they'll never sail any other cruise line again. :)

I'll be back with more tips, but the most important one is to do your online check in if MAW has given you your reservation number, so you can get your port arrival time, excursions, dining time. If they haven't given you the reservation number, ask for it. Our wish coordinator wasn't going to give it to us until 30 days out, because she said we couldn't book anything until then, but she was wrong. Another Wish family had their chapter tell them to book the excursion once onboard. :rolleyes:
 
We had never cruised at all, but we were told by many other passengers that they'll never sail any other cruise line again. :)

I'll be back with more tips, but the most important one is to do your online check in if MAW has given you your reservation number, so you can get your port arrival time, excursions, dining time. If they haven't given you the reservation number, ask for it. Our wish coordinator wasn't going to give it to us until 30 days out, because she said we couldn't book anything until then, but she was wrong. Another Wish family had their chapter tell them to book the excursion once onboard. :rolleyes:


Thank you for reminding me about check-in!! I have our confirmation # so I did it last night and got a 1pm boarding time. I also secured some excursions!
 
Continuing from the first post

I wont go into all the details from Holdens treatments but needless to say, it was two very long years. The first one was the toughest, of course. I wish I could remember how many days I ended up staying in the hospital. Sleeping on the couch, waking up every hour, then getting up in the morning to go to work for a few hours just to go back to the hospital again. We are extremely blessed with a really good support system and that really helped us get through this. Of course, my two oldest children were amazing as well. I remember there being times when I wondered if my middle child was going to start hating me since there were times when I rarely saw him (and his sister). But we made it!!!

(Btw, this is a picture from Holdens first Halloween he made a really cute Monkey but he wouldnt keep his outfit on)

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And a few pictures of the journey

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On September 13, 2012, after 2 years of cancer with chemo, transfusions, multiple Central Lines, multiple PICC lines, line infections, home help cutting our line off, busted lines, etc., his port was taken out and we breathed a sigh of relief. It was like he was a normal child again&&no more rushing to the ER when he gets a slight fever, no more admissions, etc. To this day, Holden is doing wonderfully! We couldnt ask for better results! We are so extremely blessed and we count our blessings every day. He just started school in May and is doing great! He has a lot of energy and is a little ball of fire and he definitely keeps me on my toes but he is just perfect.

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Hi everyone!

Wow, I'm horrible at this updating stuff. For a while I couldn't find this thread at all :lmao: Anyway, I wanted to share that we told Holden about his Wish this past weekend. We surprised him in the morning with a giant box. In the box there were balloons that came out as soon as he opened it and one balloon read "Your Wish Came True" and the other said "Mickey Mouse Boat - August 18th". When his older brother, Trey, read them, he got so excited! We then had a small cake and a gift from Mickey for him to unwrap (it was underwear, I really need him to potty train!!!). We made it a family affair just us and the kids (and well, Ana was there too, she helped with everything). Here's a picture:

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Our Volunteer told me she'll stop by the house a few days before the trip to drop off our itinerary and spending money so I guess that is next. We are saving up our pennies to pay for all the "extras" (we are not sure what exactly MAW pays for so just in case we are budgeting for everything). Everyone is so excited about this and Holden is really looking forward to getting on an airplane for the first time and seeing Mickey!!!
 
Hi everyone!

Wow, I'm horrible at this updating stuff. For a while I couldn't find this thread at all :lmao: Anyway, I wanted to share that we told Holden about his Wish this past weekend. We surprised him in the morning with a giant box. In the box there were balloons that came out as soon as he opened it and one balloon read "Your Wish Came True" and the other said "Mickey Mouse Boat - August 18th". When his older brother, Trey, read them, he got so excited! We then had a small cake and a gift from Mickey for him to unwrap (it was underwear, I really need him to potty train!!!). We made it a family affair just us and the kids (and well, Ana was there too, she helped with everything). Here's a picture:

941257_10201527456729388_127325088_n.jpg


Our Volunteer told me she'll stop by the house a few days before the trip to drop off our itinerary and spending money so I guess that is next. We are saving up our pennies to pay for all the "extras" (we are not sure what exactly MAW pays for so just in case we are budgeting for everything). Everyone is so excited about this and Holden is really looking forward to getting on an airplane for the first time and seeing Mickey!!!

Hi,

I just saw your post at the Wish Trippers forum and thought I would come along and join in on your Make A Wish Trip Report!! You have such cute kids!! I love the pictures!! Oh and I love how you told Holden with balloons and the box!! It must have been one of those magical moments!! pixiedust:

We have been on a Wish Trip to Disney World and we also have been on many cruises but on a different cruise line. You are actually taking our two favorite vacations Disney and a Cruise and combining them, so I'm sure you will LOVE IT!!! :cheer2::cheer2: Our kids love cruising so much!! We had to convince our teenager to try the Teen club, he wasn't sure about it. But once he tried it, we never saw him again!! :rotfl2: We learned that it was best for him to tough it out through the 1st night anxiety of meeting new people, because once he did he ended up with friends for the whole cruise. Our daughter who is 8 never needed convincing. She LOVES the kids club. It was funny because when she was younger on the cruise we would see some kids crying because they did not want to be left at the kids club, however my daughter would cry when we came to pick her up!! :rotfl2::confused3:lmao:

To stay in contact with our teen we brought sticky notes along and we would leave little messages for each other.

He might write at the pool.

We might respond back going to the comedy club meet us for dinner please.

The sticky notes helped him to know what we were doing and pop in if he wanted to. I was excited to see him join me at an art auction. He actually loved it and would like to go to one on land. Of course the sticky notes also helped us to know where he was. We were sneaky and would take pictures of him and his new friends from a distance. We saved the sticky notes and they are a fun reminder of our cruise. Of course he would put his sticky notes inside the cabin because we didn't want to have any strangers following him around. The adults left the sticky notes on the outside door of the cabin since we went with my whole side of the family. This was a cheap and easy way for everyone to do their own thing, but also stay connected to each other and meet up together!! :grouphug:

I'm sure you will have a fantastic time. Everyone I know who cruises Disney is in awe by the experience!! pixiedust:

Happy Planning!!! I'll check back.

Madeline
 
Hi,

I just saw your post at the Wish Trippers forum and thought I would come along and join in on your Make A Wish Trip Report!! You have such cute kids!! I love the pictures!! Oh and I love how you told Holden with balloons and the box!! It must have been one of those magical moments!! pixiedust:

We have been on a Wish Trip to Disney World and we also have been on many cruises but on a different cruise line. You are actually taking our two favorite vacations Disney and a Cruise and combining them, so I'm sure you will LOVE IT!!! :cheer2::cheer2: Our kids love cruising so much!! We had to convince our teenager to try the Teen club, he wasn't sure about it. But once he tried it, we never saw him again!! :rotfl2: We learned that it was best for him to tough it out through the 1st night anxiety of meeting new people, because once he did he ended up with friends for the whole cruise. Our daughter who is 8 never needed convincing. She LOVES the kids club. It was funny because when she was younger on the cruise we would see some kids crying because they did not want to be left at the kids club, however my daughter would cry when we came to pick her up!! :rotfl2::confused3:lmao:

To stay in contact with our teen we brought sticky notes along and we would leave little messages for each other.

He might write at the pool.

We might respond back going to the comedy club meet us for dinner please.

The sticky notes helped him to know what we were doing and pop in if he wanted to. I was excited to see him join me at an art auction. He actually loved it and would like to go to one on land. Of course the sticky notes also helped us to know where he was. We were sneaky and would take pictures of him and his new friends from a distance. We saved the sticky notes and they are a fun reminder of our cruise. Of course he would put his sticky notes inside the cabin because we didn't want to have any strangers following him around. The adults left the sticky notes on the outside door of the cabin since we went with my whole side of the family. This was a cheap and easy way for everyone to do their own thing, but also stay connected to each other and meet up together!! :grouphug:

I'm sure you will have a fantastic time. Everyone I know who cruises Disney is in awe by the experience!! pixiedust:

Happy Planning!!! I'll check back.

Madeline

I'm sorry I'm just seeing this!!!! I love the sticky note idea!!! I will def have to use that!!! My teen is already talking about all the things she wants to do! Help!!! :rotfl2:
 
Hi everyone! Holden's mommy here. We leave for our MAW trip this Sunday!! I can't believe it is finally here!!! And Holden potty trained in two weeks so he's all ready to go!!! he is so excited!

We got Pirate costumes for all the kids - Holden will be Captain Hook! We have a Dolphin Encounter in Nassau and my oldest and my husband will go parasailing in Castaway.

This Saturday we are hosting some friends over to have a "Bon Voyage" party for Holdie. Our Wish "volunteers" stopped by the house two weekends ago to drop off the check. They brought Holdie a MaW t-shirt but it was an adult XL!!!! I don't think he'll fit!!! Thankfully Ana~n~Joseph surprised us with a purchase from the MaW store and they bought all of us a t-shirt. We'll be wearing them on Sunday!!

Flight leaves at 7:05am so it will be a very early morning. We have to drive ourselves (don't know anyone with a big enough car to take us) so we'll be leaving the house at 4:30 I'm making the kids go to bed at 8pm on Saturday
 
Hooray for the Bon Voyage Party!! :thumbsup2

Hooray for Make A Wish Shirts!! :)

Hooray for Sunday!! :dance3:

Hooray for potty training!! :cheer2:

Hooray for swimming with the dolphins!! :beach:

Hooray for your awesome wish trip!! pixiedust: Have a blast!!!

party:::MinnieMo:donald::goofy:pluto::tink::dumbo::earsboy::earsgirl::jumping1:
 
So very sorry that I never got back to give you any tips or answer questions. :( I haven't felt well, and haven't been on the DIS.

So excited for you that your trip is here. :cheer2:

Loved the pictures.

Wonderful way to reveal that Holden's wish was granted.

Sympathized with everything you went through during his long treatment, and :scared: about the part where his line had been cut off. So glad that he's doing so well. :goodvibes



I second everything Redwaves posted -Yay! :cheer2:

Have a great party tomorrow. :)

You're going to have a fantastic trip, and I can't wait to read all about it. :beach:
 





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