help with pddnos

nicoleakr

DIS Veteran
Joined
Apr 23, 2006
Messages
699
My daughter who is 7 was just diagnois with this pddnos. She also has the ocd with it. We recently took her to cedar point where she freak out and I had to tell every five minutes that she could just walk she didn't have to ride. I feel very alone with this child. Some of her ways bother my husband . We also have an 9 year old who is diabetic and mental retarded. He seems to make allowance for her but not my other one. I also just don't know how to deal with her. To make matters worse she is tease by these boys in school. How do I get her to take charge and stand up to them. I guess I feel all alone and can use any adavice out there
 
First off, :grouphug:

Secondly, while I dont have any children nor do I have PDDNOS, I have a severe and persistant mental illness. I have experience myself with OCD and I have overcome much of it with meds and therapy (when I am tired or stressed it comes back).

Start off by taking a deep breath and realizing that her brain is wired differently then most people's. The things in her life that seem so small and inconsequential to you could be life changing for her. It sounds like you try not to be judgemental which is wonderful and will help your daughter greatly in the long run.

I was bullied in Elementary and Middle school- put a stop to it NOW. The teasing won't likely stop by her saying "stop", it may just fuel them.

If you want to PM me I can possibly help you further with individual ways of dealing with her in situations. I've come up with some creative ideas that may be helpful if I have more information.
 
My son's initial diagnosis was PDD-NOS, but has since been changed to autism. Basically, educate yourself about autism, because NOS is roughly the same thing. Docs give that diagnosis to persons who don't quite meet all the criteria for autism, but who have some of the signs and symptoms and enough of them, to warrant a diagnosis on teh autism spectrum. Your child most likely will NOT be able to stop bullying herself. This is where the school comes in. Do you have an IEP for her? For some children on the spectrum, having an aide is very important. They help the children navigate the social world in which we live. Social skills training is of utmost importance. Unfortunatley, you will find yourself having to repeat things often to your child. That is just the way it is. REmember that she is not trying to be "bad"--her mind just isn't wired the way yours is. I urge you to contact your local Autism Society Chapter (I will do a search for you if you want to PM me your location) and get some support from them. Remember, NOS and autism are very similar and should be treated as such. Many things that are helpful to autistic children also help out the NOS kids. Best of luck and please PM me if you need anything!
 











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