Has anyone used the Disney Dream kids area. We have three kids with ASD, first time Disney experienc

1funmum

Earning My Ears
Joined
Jan 23, 2016
Messages
34
Hi everyone!
This is our first Disney experience ever! We booked both land and sea for our first Disney trip. We have three kids with ASD. All on different parts of the spectrum, all with different needs and abilities. We booked our Disney world trip first thinking it would be our dream vacation but quickly became over whelmed and noticed that it's a go go go experience that might be much for our family of 5. So we started looking at the cruise experience. We saw the videos and thought wow it's what we needed for a true respite after pounding pavement at Disney world. But after buying our tickets we found policies and statements that don't really sound autism friendly. We had thought the Disney kids area would have more experience or tact to deal with special needs kids.

My son who is severe ASD is really a wonderful soul. Happy and loves to have fun. But he also has selective mutism, he may or may not be able to communicate verbally for his needs. He can be left without a 1:1 for a reasonable amount of time. But the persons who are adults need to be aware of his needs and communications issues. He is potty trained but needs some navigation to where it is. Also he needs someone to ask to go. He has a card he can show if he is in a mute state. He also can sign toliet to request. But he feels he can't go unless he requests. He has some fine motor issues. He can dress himself but needs help with some tasks that might be required to do activities. He tries his best but with out verbal abilities he's often unable to really engage with his peers the way he might be expected to. Kids often think why won't he respond. He needs loads of encouragement to join in but loves doing everything and anything. He's such a joy and always smiles. Never violent. But often can get picked on and bullied once kids figure out he won't speak. He hears everything and understands a lot. But people assume he doesn't. I want to let him have the same privileges he has at home. He's going to be 12 years old. We don't put limits on him at home. We let him experience life and only accommodate what he needs accommodated in the moment.

My other son who is 13 is very serious and grown up Aspie. He is very delightful and very responsible. He is also use to no limits to what he can do. So he's looking forward to the fact that he can have his run of the ship. He needs encouragement to join in. Will stay to him self. I want him to have fun and build some memories. Not just burry his head in devices, he's a big gamer. And he's a bit protective of his brother and sister. I think he thinks he's a adult already. I kind of want him to be a kid. This is what I wanted for him. To loosen up a bit.

My daughter is also ASD and turning 4. She's mild ASD but she's 4! She talks and is sunny. But she's really really shy. Her anxiety is super high. She's extremely busy. She has asthma. She needs help with her inhalers if she needs them. She's a kid who loves to run around, but that might bring on her asthma. She is potty trained. But she's 4! She needs to be reminded when she gets busy. I guess I worry that no one will pay get any attention and she will need her inhaler or have a accident because no one bothered to ask if she needed to pee. Then get kicked out. She has leg braces. And they are new to her. She just got them before Christmas. She's finding it hard to do things and may need assistance here and there. I fear that because they don't have enough staff my kids won't be able to have the same experience other kids have. And I wanted my kids to experience Disney the way other kids do.

Sorry this is long but I'm worried and was looking for the cruise to be a time of respite for me and my hubby. We haven't been away or on vacation since our honeymoon. So we really want this vacation to be magical for all of us. Don't know if we will get to do it again.
 
Hi everyone!
This is our first Disney experience ever! We booked both land and sea for our first Disney trip. We have three kids with ASD. All on different parts of the spectrum, all with different needs and abilities. We booked our Disney world trip first thinking it would be our dream vacation but quickly became over whelmed and noticed that it's a go go go experience that might be much for our family of 5. So we started looking at the cruise experience. We saw the videos and thought wow it's what we needed for a true respite after pounding pavement at Disney world. But after buying our tickets we found policies and statements that don't really sound autism friendly. We had thought the Disney kids area would have more experience or tact to deal with special needs kids.

My son who is severe ASD is really a wonderful soul. Happy and loves to have fun. But he also has selective mutism, he may or may not be able to communicate verbally for his needs. He can be left without a 1:1 for a reasonable amount of time. But the persons who are adults need to be aware of his needs and communications issues. He is potty trained but needs some navigation to where it is. Also he needs someone to ask to go. He has a card he can show if he is in a mute state. He also can sign toliet to request. But he feels he can't go unless he requests. He has some fine motor issues. He can dress himself but needs help with some tasks that might be required to do activities. He tries his best but with out verbal abilities he's often unable to really engage with his peers the way he might be expected to. Kids often think why won't he respond. He needs loads of encouragement to join in but loves doing everything and anything. He's such a joy and always smiles. Never violent. But often can get picked on and bullied once kids figure out he won't speak. He hears everything and understands a lot. But people assume he doesn't. I want to let him have the same privileges he has at home. He's going to be 12 years old. We don't put limits on him at home. We let him experience life and only accommodate what he needs accommodated in the moment.

My other son who is 13 is very serious and grown up Aspie. He is very delightful and very responsible. He is also use to no limits to what he can do. So he's looking forward to the fact that he can have his run of the ship. He needs encouragement to join in. Will stay to him self. I want him to have fun and build some memories. Not just burry his head in devices, he's a big gamer. And he's a bit protective of his brother and sister. I think he thinks he's a adult already. I kind of want him to be a kid. This is what I wanted for him. To loosen up a bit.

My daughter is also ASD and turning 4. She's mild ASD but she's 4! She talks and is sunny. But she's really really shy. Her anxiety is super high. She's extremely busy. She has asthma. She needs help with her inhalers if she needs them. She's a kid who loves to run around, but that might bring on her asthma. She is potty trained. But she's 4! She needs to be reminded when she gets busy. I guess I worry that no one will pay get any attention and she will need her inhaler or have a accident because no one bothered to ask if she needed to pee. Then get kicked out. She has leg braces. And they are new to her. She just got them before Christmas. She's finding it hard to do things and may need assistance here and there. I fear that because they don't have enough staff my kids won't be able to have the same experience other kids have. And I wanted my kids to experience Disney the way other kids do.

Sorry this is long but I'm worried and was looking for the cruise to be a time of respite for me and my hubby. We haven't been away or on vacation since our honeymoon. So we really want this vacation to be magical for all of us. Don't know if we will get to do it again.

What do you mean that you 'don't put limits'? If a child doesn't know what the limits are, it could be really, really dangerous on a ship miles out at sea.
 
Lol I don't mean they don't have boundaries lol they have boundaries and stay with in them easily. They follow rules very well. All three of them. My eldest is the rule police. He loves rules and is very very rigid over them. I mean they are use to doing what ever they like and can do. So for instance even though my 11/12 year old is severe he has done things like rock climbing, zip lining, and is presently learning to ski. He needs assistance sometimes to do what's necessary to do those things and a lot more attention in teaching him. But we have never discouraged him from trying or said he couldn't because he has needs. He would love to have freedom I'm sure like he does at other kid friendly resorts. But the ones we are use to are a bit more supportive and have staff that know how to assist when needed. We have a local indoor water park hotel called great wolf lodge. He explores the water area with his brother without parents there. He has fun. Does all the activities but the staff know he's there and they understand he might not respond when they talk to him. It can be crowded there but in the kids area they have a good ratio of staff and they look out for him, ask if he's ok. That sort of thing. Open things his hands can't open. Talk to him so he feels included. They invite him in to join activities. I had high hopes Disney would do the same as they to me would be the leaders of hospitality for kids. Or at least that was my opinion until I read some of their special needs policy. I think I am looking or hoping people will put my mind at ease.
 
My understanding is that the kids club has "open" hours where grown ups can come check it out with the kid. Maybe that would be a good fit?
 

What do you mean that you 'don't put limits'? If a child doesn't know what the limits are, it could be really, really dangerous on a ship miles out at sea.
Oops put reply down below thanks for your question and reply though. Hope you see my reply
 
My understanding is that the kids club has "open" hours where grown ups can come check it out with the kid. Maybe that would be a good fit?
Thank you I have just learned about the open hours from reading on a few of my messages I left on here. You all are a good source of information. I was hoping to leave them for some private time with my hubby. Looking for some respit. We haven't had a full vacation out of country since our honeymoon. Would love to take advantage of the adult fun on the cruise. Here's hoping it works out for us.
 
I think that based on the ages of your kids, your oldest will be in a different club than his siblings. Based on what I've read here, they may or may not be flexible with the ages. Will your boys accept if they are separated?
 
I think that based on the ages of your kids, your oldest will be in a different club than his siblings. Based on what I've read here, they may or may not be flexible with the ages. Will your boys accept if they are separated?

I actually want them separated. It is very common for my oldest to feel responsible for his younger brother and sister. He's a fantastic help at home but I really want him to actually do his own thing. It would have been easy to just say let's ask them to let him go in with the young ones. He would have made sure they all had everything covered. He would stick to my daughter like glue and he would be his brothers aid for communication because his brother would naturally speak to him. But then it would rob him of being a kid. And we have been seeing that even though he's great with the young ones he's getting far too serious. He is like this even at school. He seems to zero in on his brother and right away take care of him. Lovely as it is, I truly want him to relax. Get some me time that's geared to his age group.
 
I think that based on the ages of your kids, your oldest will be in a different club than his siblings. Based on what I've read here, they may or may not be flexible with the ages. Will your boys accept if they are separated?

My 4 year old daughter would most likely try to stick o my 11/12 year old. She's a mother hen at 4 but he really should be more in charge of her lol. Those two are like partners in crime. They can egg each other on. I would love to see them be all separate and looked after with their age groups. Her with younger ones 3-6 and him with 6-12. That would be ideal. Just both need to have some person aware of their needs.
 
Thanks for the link I looked at it again and they say they offer free support services for people who cruse without them. That's truly handy. I will definitely check them out next time and look at the cruises they offer. The Disney dates are not the dates I'm using. If so I would have jumped at it. See if they were willing to work with us. It would have been too costly to bring our own workers we use. And I actually thought it wouldn't be necessary. It's Disney! Shouldn't disney be the most kid friendly place ever? I really thought we were ready this year.
 
Try not to stress about it too much. However, do NOT count on any alone time with your husband. Try for it, but don't count on it. It will be a nice bonus if it happens, but if not, you won't end up so disappointed if it doesn't happen.

Your kids might surprise you. I do recommend if you drop the kids off, check on them every 20 min or so. Do not depend on the wave phones working. That is what did us in the first cruise. Left the kids, youngest had a meltdown, they called us, but we never got the call! Kid had been in meltdown mode for over 20 min when I happened to go check on them. It was awful. None of the counselors had the slightest idea how to handle the situation. That is why my son hates the club now.
 
Try not to stress about it too much. However, do NOT count on any alone time with your husband. Try for it, but don't count on it. It will be a nice bonus if it happens, but if not, you won't end up so disappointed if it doesn't happen.

Your kids might surprise you. I do recommend if you drop the kids off, check on them every 20 min or so. Do not depend on the wave phones working. That is what did us in the first cruise. Left the kids, youngest had a meltdown, they called us, but we never got the call! Kid had been in meltdown mode for over 20 min when I happened to go check on them. It was awful. None of the counselors had the slightest idea how to handle the situation. That is why my son hates the club now.

Well that's seriously good information to know. I thought those phones were going to be my life line. Figured I would get extra one for my eldest. I won't count on alone time until I hear the cruise say they will take them. We only wanted a few hours anyway. We saw wine tasting and thought oh we want to do that. But now we will just go with no. And we won't be paying for the nice fancy dinner we wanted to have. Who needs private dinner anyway. It just doesn't seem like it's worth paying the extra for.
 
When I went to guest services to discuss the wave phone issue, I was told "oh, yeah, that happens a lot because the satellite connection isn't stable." However, the counselors at the club assured me that the phones worked ALL the time, and sort of insinuated that I was lying about not getting the call. I did finally get the message, over an hour later, as I was tucking my kids into bed.
 
When I went to guest services to discuss the wave phone issue, I was told "oh, yeah, that happens a lot because the satellite connection isn't stable." However, the counselors at the club assured me that the phones worked ALL the time, and sort of insinuated that I was lying about not getting the call. I did finally get the message, over an hour later, as I was tucking my kids into bed.

That's horrible of them. When our kids need us we come running. Most autism parents are on the edge of our seats thinking are they ok. We don't relax much. It's always being on. Hopefully I will get one minute to turn off. Or I will wish I picked another vacation. I'm going to call Disney again this week and see what they say. I hope they will have a special needs coordinator or something. But not holding my breath. The lady on the last call said she is not sure. Then we got disconnected.
 
We have sailed on DCL 3 times with our DS who is now 8 (He has ASD, an expressive language disorder and CAPD). On our first trip (when he was 3 1/2), we brought our babysitter and booked her a separate stateroom. Yes, it was expensive, but it was worth it as DH and I really needed a break. One of my fondest memories of that cruise was simply falling asleep at Castaway Cay in the middle of the afternoon. My DS didn't sleep through the night until he was 5, so that was seriously luxurious. At the time, my DS had just been diagnosed and had transferred from a play-based preschool to a self-contained TEACHH program. (I sort of equate the Disney kids clubs with play-based preschools.) I knew there was NO WAY he was going into the kids club by himself, so our babysitter would take him in (this was when adults could accompany children in at times other than open houses).

Our second cruise was when DS was 6 and he had no interest in the kids club, so he and I just did everything together. Of course, there was no spa, Palo, etc. for me (I was traveling alone with him), but it was ok. Again, it was just me and him - I didn't have 3 children to look after like you do.

Our 3rd cruise (I should say cruises as we back-to-back cruises on the Magic), was last summer when DS was 7. I had no idea what to expect, but I registered him online for the kids club and only mentioned his expressive language disorder letting them know he has word retrieval issues and may need to have instructions repeated. Based on his current needs, that was really the only accommodation he needed at the time. I had no idea if he would even want to go in. I made a Palo reservation for our second to last night knowing I could cancel it if the kids club didn't work out. I wasn't very optimistic nor was I going to make him go. On the first day, he went in and, because I had left special notes on his registration (they pop up on the screen when the kids scan in for the club), he was given a special band to wear (If I recall, it was red, to signify there was a special note on his registration and may need assistance or, if something came up, they could refer back to the screen). I went to check on him about an hour after I dropped him off and he was fine. I could barely get him out of the club for the rest of the cruise. And this is a kid who had trouble socializing, had trouble with lots of noise in big spaces, etc.

I have found in the kids club, there seems to be opportunity for everyone. If you like organized activities (pajama parties, princess balls, become iron man, etc.), they have that. If you'd rather play video games or watch a movie, they have that. If you want to sit quietly with a staff member and draw or play a game, they have that.

It is my understanding that you won't know if they will accept the children or not until you get on the ship, which is really unfortunate. What I would suggest doing is registering the kids online and simply writing out the accommodations you think they will need - letting them know your son has a card and will need to ask to use the bathroom (there are plenty of staff around to ask), that your daughter has an inhaler, etc. I don't even know if you have to fully explain their diagnoses as ASD can mean so many different things. I think I would just list the accommodations they may need. If your daughter has an accident (as many young children do), they will call you. I agree with others, don't rely on the wave phones. You may just want to check on them every hour, two hours or so. And, unfortunately, be prepared for this not working out at all. I think the only way you can guarantee having some alone time with your spouse would be to bring an extra person along to help out if need be.
 
I cruisef last year with my then 7 year (adhd, austism, and epilepsy...although we were still figuring out the asd and epilepsy at the time) and it was a great week!!

I did use the kids club, but I was very nervous. I explained my sons needs to them, my fears, and told them not to hesitate at all to contact me. I was afraid they'd be afraid to contact me about behavior for fear I'd be on of those parents who has a child that can do no wrong. They were great at accommodating him and my requests for communication. I was asked to get him a few times (meltdowns/behavior) but they were very nice and said he was welcome back when he was calm.

I would suggest trying open house first, then leaving for small periods of time. Try it out slowly and go in with limited expectations...then you will be pleasantly surprised!

You sound like a great parent who is attentive to their kids. Have a great time!
 
We have sailed on DCL 3 times with our DS who is now 8 (He has ASD, an expressive language disorder and CAPD). On our first trip (when he was 3 1/2), we brought our babysitter and booked her a separate stateroom. Yes, it was expensive, but it was worth it as DH and I really needed a break. One of my fondest memories of that cruise was simply falling asleep at Castaway Cay in the middle of the afternoon. My DS didn't sleep through the night until he was 5, so that was seriously luxurious. At the time, my DS had just been diagnosed and had transferred from a play-based preschool to a self-contained TEACHH program. (I sort of equate the Disney kids clubs with play-based preschools.) I knew there was NO WAY he was going into the kids club by himself, so our babysitter would take him in (this was when adults could accompany children in at times other than open houses).

Our second cruise was when DS was 6 and he had no interest in the kids club, so he and I just did everything together. Of course, there was no spa, Palo, etc. for me (I was traveling alone with him), but it was ok. Again, it was just me and him - I didn't have 3 children to look after like you do.

Our 3rd cruise (I should say cruises as we back-to-back cruises on the Magic), was last summer when DS was 7. I had no idea what to expect, but I registered him online for the kids club and only mentioned his expressive language disorder letting them know he has word retrieval issues and may need to have instructions repeated. Based on his current needs, that was really the only accommodation he needed at the time. I had no idea if he would even want to go in. I made a Palo reservation for our second to last night knowing I could cancel it if the kids club didn't work out. I wasn't very optimistic nor was I going to make him go. On the first day, he went in and, because I had left special notes on his registration (they pop up on the screen when the kids scan in for the club), he was given a special band to wear (If I recall, it was red, to signify there was a special note on his registration and may need assistance or, if something came up, they could refer back to the screen). I went to check on him about an hour after I dropped him off and he was fine. I could barely get him out of the club for the rest of the cruise. And this is a kid who had trouble socializing, had trouble with lots of noise in big spaces, etc.

I have found in the kids club, there seems to be opportunity for everyone. If you like organized activities (pajama parties, princess balls, become iron man, etc.), they have that. If you'd rather play video games or watch a movie, they have that. If you want to sit quietly with a staff member and draw or play a game, they have that.

It is my understanding that you won't know if they will accept the children or not until you get on the ship, which is really unfortunate. What I would suggest doing is registering the kids online and simply writing out the accommodations you think they will need - letting them know your son has a card and will need to ask to use the bathroom (there are plenty of staff around to ask), that your daughter has an inhaler, etc. I don't even know if you have to fully explain their diagnoses as ASD can mean so many different things. I think I would just list the accommodations they may need. If your daughter has an accident (as many young children do), they will call you. I agree with others, don't rely on the wave phones. You may just want to check on them every hour, two hours or so. And, unfortunately, be prepared for this not working out at all. I think the only way you can guarantee having some alone time with your spouse would be to bring an extra person along to help out if need be.

Wow that's a whole other kind of feed back. Thanks for that. And thank you very much for your advice. It's too late to book any help. My mom bailed on me last minute. I didn't want to post pone my trip one more year. So we are determined to make this the best trip ever. I am going to feel more relaxed now that you explained the band system. I wondered how in a sea of kids my kids would stand out. I wondered how it worked. It's nice to know they made some effort. And everything you said about activities would appeal to both my young ones. My daughter loves arts and crafts and drawing. My son loves super heroes, star track, video games, and all sorts of stuff. If they do pay attention to the kids then they might make it through a hour. Maybe two. I could book the wine tasting or something that if I had to back out of I could. I never would want them to not be all right. My enjoyment truly has to come second to theirs. One day I will make grandma take them and we might go away just the two of us. We special needs parents do need breaks. And hearing you got one when you carried support tells me I should have forced my mom to come along or waited till the our schedules lined up. Oh well, we live and learn.
But thank you for your feed back. I will ask them about the colour system and leave things on file.
 
Just note that previous poster was on the Magic. MUCH smaller ship, and they run the club a bit differently. There are actually two separate rooms and they are smaller. Probably easier to give kids more attention in that environment.
 












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