Guilt feeling of leaving autistic son at home

What could be better than a Dad and Daughter one on one trip? She is at a age that this will be a special memory for her, In a few more years she will want to be with friends and not hang out with dad. This is a memory she will treasure. Go and make magical memorys together... I never had a special trip with my Dad and wish I did.
Deb
 
amberdansmom said:
If you do take this trip to WDW with your daughter for special one on one time and then take your son later next year for his special trip, why would your DD go? Your DS didn't get to go on the special trip with you and your DD I bet he would appriciate getting to share and help plan the special trip with you and her just as much as she would for him. It just seems very one sided and I feel so bad for him.

You are out of line, and rude. Why do you feel bad for the DS? :confused3
Because he has a Dad that cares? :confused3
That is concerned enough to come here and talk about not taking his son on this trip? Whats wrong with taking them both on another trip?
Calm down and be nice... Please :love:
Deb
 
Haley Whippet said:
You are out of line, and rude. Why do you feel bad for the DS? :confused3
Because he has a Dad that cares? :confused3
That is concerned enough to come here and talk about not taking his son on this trip? Whats wrong with taking them both on another trip?
Calm down and be nice... Please :love:
Deb
I don't think I ever said anything about his dad not caring about him. I never said there was anything wrong with taking them both on a trip I just thought it was a bit unfair to have a special trip with one child and then when the other child gets their special trip they have to share their time and trip with the other. Do you have multiple children one of which affected by autism?The quote he added saying,"Statements like "he will think he is being punished" when the person
does not even know if my son has the capacity to understand.. " How could YOU as his father or even if you weren't his father just a doc or therapist or specialist for that matter know that? NOBODY knows the extent that Autistic children and adults understand only that they tend to understand a lot more then we think or feel they do.
I do not think I was bing rude or out of line with my statements. We all have our opinions and if we didn't want others opinions knowing not all of them would be sunshine and rainbows we shouldn't post them on messageboards. I am not or was not condeming the father for this, he is most certainly NOT alone in what he is thinking. I DO understand that he is a single father and I understand the hardships of trying to take both kids places like that. I have 2 children one of which bing autistic. I am not a single mother but I do try to take them places while my husband is at work one of which being six flags which I swore to NEVER do again on my own because of my DS. I appologize if I offended anyone or hurt anyones feelings. I do feel bad for the son. I feel bad for my son. That is just life.
 

I understand how you're feeling about taking this trip. I have a DS15 who is autistic and a DS 13 who is not. My DS15 loves to fly but has other issues at times. My DH and I sometimes split up then one of us goes with DS15 back to the hotel for some down time and one of us stays at the park with DS13 so he can do his thing and one of us gets a break. But you don't have that situation and that makes it much more difficult.
 
Jessica

Thank you for your opinions. Maybe I misunderstood your original post. It may be a difference in communications styles. It is usually accepted that on forums and instant messengers that typing words in all capitals indicates raising of the voice, when this media is being used to communicate in leiu of a verbal exchange.

Now for ALL of us to remember ( yes that is raising my voice!)

Something I believe all of us can keep in mind however, is to read the original post and the question ask. Yes I did express concern about my son flying, and guilt of leaving him behind, and yes I did express that I could manage the situation of his behavior. ( BTW, there is a reason that I feel confident about that, because I have worked very hard with my son on the issue of actions in public places. I did not accomplish this by always leaving him at home. We do most every day to day activity together.)

The intent of the original post was how do you deal with that guilt when you feel it is best "for the sibling." Some posters "got that." Other honed in on feeling sorry for my son.

Just as a point of reference of the things I think about concerning my daughter:

1) I am a single parent that has custody of my children 80% of the time. I can not understand what it is like being a girl going into her teenage years living primarily with my father ...not my mother.

2) I am with my son 80% of the time. She is with him 100% of the time. Her mother is not going to take her on any " special trips." Never has, probably never will. Although her mother has all kinds of time to take "special trips for herself"

3) I have raised both a boy and a girl through the teenage years. I know how difficult that can be. How critical of a development time that can be. She will be 13 when we go to WDW. We are very close. It is a perfect time to spend some very special time together.

4) My daughter could not really give a hoot about going to WDW ( I know that will change one she experiences it :) ) She does very much care about the opportunity to go to Discovery Cove and getting to interact one on one with a dolphin. Something we could not do with my son, because we could not completely be sure that he could follow the safety direction necessary.

And with all that said.... I feel guilty because I love my son so much. But at times you need to do what you feel is right for others.

So thanks to one very wise poster, why not take my son at a different time, under different circumstances! Great idea that should have been right in front of my eyes. Why take my daughter with us. I addressed that in another post in this thread that it was about safety. And the paranoia that if I dropped dead of a heart attack or something, we would be 1200 miles away from home and he would be alone, with no one knowing how to comfort him, not being able to talk on the phone to his mother or anyone.

So the point is ( to all of us). Unless you fully have read all the posts. Unless you fully understand all the particulars. Maybe we all need to think, before we passionately express our opinions. And it is always best to remember that passion and compassion are two different things. The best support comes form people that have mastered both.

:)
 
Excuse me folks, but SueM is away and does not have Internet access; she will be back later in the week.

I think that at this point she would have said there were enough recriminations and apologies and let's either leave this thread alone or just comment in a positive way to the original post.
 
mbb said:
:grouphug: :grouphug: :grouphug:

Go...relax, recharge, and know that your son is enjoying special "one to one" time with mom.

Your daughter may need this trip more than *you* do, and more than you realize. Siblings are often the 3rd parent to a child with special needs, and like you said, she may need to have a break from being on guard too:)Leave your guilt at home - and have a wonderful trip :goodvibes

:sunny:

I have to agree with this. You don't need to feel guilty. There is nothing wrong with planning a special trip for just one child, and there is lots that is right.

Our son Christian has severe autism and mental retardation. He loves Disney World, but honestly, he is a 24/7 constant care kid. We love him and he is a joy, but you know, sometimes we like a break. Every other trip we leave him at home and take the two big kids. While we are there we do things that we specifically can't do with him along. Like go see La Nouba, stay out late, watch the parades, see fireworks. Just getting a break from feeding, dressing, and diapering is marvelous!

Go have fun with your daughter. she needs you and you need her. Raising a child with autism is a hard road, even when they are low-maintenance kids. :grouphug:
 
TEWINOHIO, I think you are a wonderful father for caring so much, and I think a special trip with you and your daughter would be awesome. Not all children out there are even lucky enough to have a Dad like you!!! Go and enjoy your trip with your daughter that you know deserves it so much!!
 
I have done WDW with 2 kids with autism. One being my 10yo son and the other my 7yo former foster child. I did not take them at the same time!!! I had the same concerns about my son with flying. He also has a severe (bad) reaction to kids or babies crying, so this was a concern. When I go to WDW I want to have a good time as well as make sure my kids do too. If I took my 10 yo every year I would not have a chance to enjoy myself as much. When he is with me I am always on guard listening for crying kids. We do bring headphones and rent a w/c so that he is easily removable from a situation. Besides the fact that he walks soooooo slooow!!!! He loves WDW and anything Disney and I am glad that I took the chance the first time and brought him with us. But that said I also look forward to the year that I go, and like another poster said, do the things that I can't do with him. This year my newly adopted(hopefully by Thanksgiving) 9yo daughter, who also has autism will be going with me and my best friend. I would love to at some point be able to take both ds and dd together, but that may not be for a year or two. There was a thread on here a while ago about travelling to WDW with kids with autism, while planning your trip with your son it may be worth checking out. Have a great time with your dd and scout out some things you think your son may enjoy.
 
First of all, :grouphug: It is so hard to try to balance giving one child as "normal" of an upbringing as you can, while seeing all the needs of the other are taken care of.

I think it's wonderful for you and your DD to enjoy a trip together, especially at her age. Go make memories and do things you never get to do together, like stay up all night or eat dessert for breakfast. You both deserve a chance to get silly and have fun together.

Try not to feel guilty about not including your DS this time. Maybe ask his mother, while she's caring for him, to take him swimming at an indoor pool or something he enjoys. Try to encourage her to take this opportunity to build some special memories with him. Just because your DS isn't going with you, it doesn't mean he's being cast aside.

Take lots of pictures, especially of things you two choose for another trip with your DS. If he's anything like my DD, he'll love being able to match the picture when he gets there. (Might also help with visual scheduling, something else my DD craves.)
 














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