Griff's Make-A-Wish Trip!! April 2011!!

cmgsykes

Earning My Ears
Joined
Mar 13, 2011
Messages
25
We are so excited to be going to Disney World for Griff's Make-a-Wish trip!! Griff is 5 years old and was diagnosed with Leukemia last March. We also have two daughters ages 2 and 4. We are all very excited about Disney, Give Kids the World, and Universal Studios where Griff is looking forward to meeting his favorite superhero, Spiderman!! Any advice on trip planning would be great and much appreciated!! Also, my girls LOVE princesses and I would love to schedule character dining but with short notice I don't know if it will possible, and we'd also love to do Chef Mickey. This is our first trip to Disney...I went when I was 4 but don't remember any of it, but my kids and husband have never been so we are all over the moon!! Thanks in advance! :)
 
:welcome::welcome: to the DIS! I look forward to reading more...Start looking now into making reservations, you never know what might be available, even on short notice. Make sure they know it is a wish trip, sometimes things open up even while you are at the parks. So happy for Griff's Wish being approved!
 
Thanks so much!! I'm so excited to find this forum to get advice and meet other families!! I'm still trying to figure everything out!! I need to post some pictures of my babies next!! I just have to figure out how!!! :) I guess I need to start out by introducing you all to my family and to a very special little 5 yr old boy named Griff! My name is Marie and I'm married to my wonderful husband, Stephan, and we have 3 beautiful children, Griff, Addison, and Ansley. I am blessed to be able to stay at home with my babies, and my husband is an electrical engineer. It's tough being a one-income family, but we try our best to make it work!! We are Christian and live in the South!! A year ago today we got the news that Griff had Leukemia - ALL. For weeks before he was diagnosed, Griff had frequent fever and infections. He would get fever then we would take him to the doctor. He would usually have strep throat, and we would get antibiotics and he would seem to get better. Then in a few days, or maybe a week, the fever would come back. At first, it didn't seem like anything unusual was going on - this was all taking place during the winter of 2009-2010, and there were lots of illnesses going around. But, by March of 2010, we started getting the feeling that something more serious was going on. It was at our baby girl, Ansley's first birthday party when it really started to dawn on us. Griff had just finished up his antibiotic for strep throat, and seemed to be feeling great. Everyone was having fun at the party, and Griff was enjoying running around and playing with his friends and cousins. Then, I noticed him sitting down looking like he didn't feel good. I went over to him and asked him what was wrong. He looked up at me and said "my fever's going up again". I said "surely not, baby, you are better now, you just finished your medicine, everything's ok". I felt of his head and sure enough he felt hot, but I was hoping it was just from running around playing. I got a nervous feeling in the pit of my stomach that something was very wrong, but I ignored it and tried to explain it away. After the party, we went out to dinner, and stopped at a drugstore on the way. We got a thermometer and some tylenol. We checked his temp and sure enough he had fever again. I almost couldn't eat supper, because I knew something was going on. The following Monday we took him to his pediatrician and asked him to do a blood test, because we knew something was up and wanted answers. The blood test showed abnormalites in his counts, so we were rushed to the children's hospital. Once there, they did many tests, and none of them showed any signs of cancer. We were waiting and hoping for the mono test to come back positive. Then, on March 25, 2010, they did a bone marrow aspiration and found that Griff did have Leukemia - ALL, precursor B. We were devastated, but not without hope! God was with us and we knew we could get through it with Him! The next day Griff had a port placement, another BMA, and his first round of chemo. We were finally able to leave the hospital a couple of weeks later, and then went once a week for treatment. In October, 2010, Griff went into the Maintenance phase and we now go once a month for treatment. He is doing great and has had few complications other than low counts, fever, and one very scary seizure. He is a very vibrant, sweet, caring, playful, curious, imaginative, smart, tender-hearted little 5 yr old who loves Spiderman, Batman, and all superheroes, toys (esp action figures), playing nintendo ds, gi joe, star wars, baseball, football, hunting, and just being a typical little southern boy!!
griffspiderman2-1.jpg
 

This is Griff in the hospital a year ago, the day after we got his diagnosis. This is the day he got the port placement, a bone marrow aspiration, and his first round of chemo. He's giving a thumbs-up to let everyone know he's ok!! He's always been such a little trooper and such an inspiration! God is so good and has brought us so far!
griffhospital-1.jpg
 
This is during the horrible 28 day round of taking steroids twice a day. He got gained so much weight that it was hard for him to get around and made him so miserable. This was one of the toughest periods because Griff didn't want a lot to do with me during this time. It broke my heart, but I knew he loved me and he knew I loved him. I think he just needed someone to take it out on. Thankfully, we still had good times even through this rough patch. This is a picture of Griff having a fun moment singing "Our God is so big, so strong and so mighty, there's nothing my God cannot do" with one of my sisters, and his little sister, Addison!
griffsteroids-1.jpg
 
What a doll! Love the pictures. Hopefully you'll get all the dining choices y'all are hoping for! :)
 
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The day we left the hospital after Griff's diagnosis!!
(a blurry cell-phone picture!!)
familyleavinghospital.jpg
 
In the hospital after being admitted for fever and low counts:
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This is Griff at his 5th birthday party. He didn't feel good because he was going through a tough round of treatment and taking the medicine that was worst on him - Doxurubicin (sp?). He was starting to lose his hair and by the next day we had to shave it but he had gone a long time (from March to August) without losing it and as soon as we were finished with that medicine it came right back. It looks great now!! :)
griffbday.jpg

This is after he lost his hair:
griffspiderman.jpg

Griff LOVES spending time with his dad! This is a picture of him "hunting" this past fall!!
griffhunting.jpg

griffsteph.jpg

In October we went into the Maintenance phase which is so much better! Griff went into remission very soon after his first chemo round - within days actually, praise God! A family from our church rewarded his progress by letting us stay in their beach house for a few days! It was a much needed vacation and get-away and we all enjoyed it so much!!
griffbeach.jpg

kidsbattleship.jpg
 
Love your pictures, those last ones are amazing! Can't wait to read more! As far as reservations, check out this site http://allears.net/din/dining.htm for dining info and where the princesses are. You basically just need to keep searching here http://disneyworld.disney.go.com/reservations/dining/ until you find cancelled reservations.... I did it several time a day until I got what I wanted, I even booked several and cancelled several until it was perfected ;) Also, there are threads in the dining section of the DIS where people post cancelled reservations so you can snag them. http://www.disboards.com/forumdisplay.php?f=180
 
Thank you for sharing him with us :cloud9:

LOVE the girls dresses and shoes where did you get them. Ella would kill for zebra shoes since I was a mean mommy and didn't let her get zebra hearing aids :rotfl:
 
Thanks everyone!! I got the zebra shoes at Bella Nova Squeaky shoes on facebook, and the dresses from Lolly Wolly Doodle on facebook! I'm a big facebook shopper!! haha!! :)
 














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