hope they are worth the trouble
Well the feel good Disney vibes did finally wear off, but for the first time in probably at least a year I went a full week without taking any painkillers.
In theory I might be starting my Lyrica today. I got a prescription for it and I'll be taking it along with my Savella at first, but my insurance required prior authorization so I haven't started it yet. I also found out that it's a controlled substance, and the doctor has no idea why.Weeeeiiiiiird.
Joining in on the pain free vibes for everyone!
to Happy, Funny, Love.... Glad you came over.
Well it's official. Last night was my last Cymbalta. I am sitting here with the sweat just dripping off me. It has now been constant since last night around 10pm. Just occurred to me that I may be getting dehydrated so I am pounding down some water now. The sweats are worse than I have ever had. Called the dr. to see if I needed to wean (i have had 9 doses) but the drs. are out today.I plan on not taking one tonight, but I will do what they say as of tomorrow. Now sure how to wean though as they are a capsule filled with beads and not breakable to lower the dose??
. I also imediately realized that I had had this infection for many weeks based on how I felt just 24hrs later. The past two weeks have been very busy with my DD6and DS9 birthday parties at school and at home so i was still tired but better. Now im off and feel the infection coming back. New dr wont refill antibiotic till tomorrow becuase she says it keeps working well not for me. Hopefully another round and I will be able to figure out a way to balance things. Right now I make bus runs, kids activities and maybe a meal. rest of my time I'm resting Meanwhile my DS BIG birthday party at the local bowling ally is this weekend. We had to postpone it but he had waited 3 years to do this so the show must go on. This weekned I will be making a 3d bowling ball and pins cake. Pretty simple but time consuming.
All the antidepressents I took made me feel bugs under my skin!
I now only see mine every 6months unless I think I'm truely dying or have an infection. It has been more than 14 years since I went more than that and it has made a big diffence in my illness. 
Anyone know how to consistantly get posts on my blackberry. I didnt reiceive any of the posts since my until edukes last post yesterday
Glad you were able to help Tink think of calling the pharmacy!
Thanks I guess I'll have to remember to sign in twice a day. The weird thing is I'll get a post from a really old thread but not here
Good to see ou around more. How are things in MA? You been better or just treding water?
Glad you are getting back to your normal wierd fibro self
I think you are approaching the crossroads I reached after my first two years when I noticed was allegic to Dr's
I would like to suggest what helped me get to the real acceptance of what this disease ment in my life. Until I changed my way of thinking my life was a constant rollercoaster.
1. For now give up on drs or drugs fixing or even really helping you. they cant. Hopefully the new virus studies will mean a cure but until they find the source of our illness they just can help us. Hope for a cure but stop looking for one right now. It is a waste of your mental energy. Going to the Drs all the time is a waste of your personal energy dollars not to mention real money.
2. Another waste of mental energy is worrying that our symptoms are heart reatlated, lung related, cancer ( I was afraid tender spots were cancer for years) , a stroke whatever. I found great releif when I could let go of the fear that I had something else. I have fibro and it mimics all sorts of things. When I was sure that I had had enough tests after 2 years I stopped testing and even when I had the skip in my heart for 9 months I did the tests and joked the whole time with my Drs that I would not worry it was the fibro and guess what? It was. Letting go is a risk. risk of an undiagnosed stroke or heart attack but the reality is most likely the Drs would wait to long to really help because they would assume it was a panic attack even though I have never had one. I chose life which means assuming everthing is Fibro until I know for sure other wise. Before that I lived my life in constant fear.
3. I visualize my pain draining out of my body though my and feet. kind of like electricity seeks the fastest way to the ground. My pain is an electricity of sorts constanty leaving my body. I thought that everytime I was aware of the pain for years until it just became a running program in the back of my mind. Try to find a image that lets you beleive the pain is leaving your body instead of attacking it. I also try to do sound meditaion whenever I can. I like guided imagry with sound but breathing to Gregorian chants, ocean sounds, rain storm sound whatever comes to your mind when you think of relaxing will help.
These things take a long time to master when you are in real pain. It was really a year or more before they worked as well as they do know. But I can take them with me wherever I go and they dont cost a thing. For me Fibro is like labor. I have to ride the bad wave to get to the quiet times. I iknow you have been working on shifting your thoughts for awhile. Maybe this is a pivital moment for you.
Here is a site I just found that might help.
http://www.howtocopewithpain.org/
As always tink you are in my thoughts
But for the most part it has been very freeing to blame everthing on fibro, ignore and move on.
. Thank god I'm sleeping (yea!!!) Don't know how long it will last but being able to sleep and be truely oblivious to my pain and fatigue for a few hours is priceless! 
