Fibromyalgia Thread

[tiggspring]

Hi All! Welcome Newbies!

Sorry it has been so long. I had a quick trip to Chicago and then to Boston both with my daughter for interviews for her grad school applications. I also had business in Chicago so it was double duty. I was lucky because my Mom took care of my son and the sick cat so I got to go and not worry too much about him. The schedules have knocked me out and I havn't had time to post.

Tink - you must be so proud of ur kids. Enjoy your trip to WDW. It will be especially magical watching ur daughter!

Tig - I am so glad ur trip finances worked out! Try to relax and get ready for the fun! I was lucky that we were in Chicago for the great flood that was here but I did feel bad that my Mom had to walk the dog in all that crappy weather while we were enjoying the sunshine in Chicago. Thanks for asking!

kaytieeldr - how r you feeling? Are the supplements helping yet?

Bright - keep on swimming, keep on swimming.... ur almost there.....

Everyone else - hope you are all doing well and enjoying Spring!

~Erika


PS Does anyone have suggestions fro a 25th anniverasry gift for my DH? I have no idea and no gift yet and it's next week...

WOW 25 years good for you! Maybe something nastogic that would remind him of when you met (if he is a romantic like my DH) . My kids refer to that as anchient times Glad to hear you avoided the mess!

Bright Hang in there 3 more weeks!!!!!!!!!!!

Sending Pain free vibes and Pixie dust to all

 

[tiggspring]

Dana,

I hope you dont think I was discorraging you from using a EVC. I will use one if i have to and many people on the Dis find them a big relief! I also got a guest assistance card last year to help if I needed it.

 

[Tinker'n'Fun]

 

[tiggspring]

The best advice I can give you is to live in the moment. It took me way to long to let go of the little stuff and the big picture of the future. I like my minute to minute world much better. Glad to have you hear. Diane.

Very well said Tinker!Wish I had learned that earlier. How have you been feeling this week?

 

[Tinker'n'Fun]

 

[tiggspring]

Up and down but that is okay. The antibiotic is working a bit on the sinus infection and I acutally tatsted food again today. Still bugs me that I missed tasting Easter dinner.

I am going to have DH bring down the suitcases this weekend (Friday) so that will give me 8 days to wash, pack, and fold for Disney next week.

How are you doing Tiggs? Sometimes, I feel like I talk more than listen. Today, I would like to listen....

Thanks for asking. To be honest I'm feeling a bit overwhelmed and probably need to talk.DD11 is being a real tween today and I miss my Dh terribly. Even when he is home he isn't really here and he is a force to be recconed with when he is grumpy.He is my best friend and its hard on both of us to be so disconnected.At least I know he feels the same way . He stuck by me for two years while I slept so I'm glad I can finally do something big for him.I can't wait to see the DH I fell in love with at WDW

I'm grateful that the money is finally worked out but the next week or so I'm litteraly counting dollars and it seems every day one of the kids needs money for something
It makes it hard to be greatful and in the moment. Travel expenses for school have been so expensive.So my pain is through the roof today and I see-saw from excited to go on this much needed trip to wondering how we'll pull it off which is crazy because I know in 10 days or so we will be better off then we have been in years .

Not sure how you knew I needed to talk but thanks for asking. I start packing our swim bag and tolitries this week and my best friend from childhood is comming with DD5 next week both should lift my mood.

If I miss you the next few days. Have a great trip!!!!

 

[Tinker'n'Fun]

 

[tiggspring]

Hi Tink.....I'm hanging in 8 days and counting ....


Brighteyes are you ok out there...James is freeking a bit about all the finals stuff. Wont you be glad when the next three weeks are over!

Sending pain free vibes and Pixie dust to all

 

[EDuke98080]

Hi! Hope Tink & Tig got to rest this weekend in preperation for your trips. Bright, you ok? Just checking in. I worked too hard on all kinds of ramdom stuff and am a hurting puppy tonight. I am hoping to be a lump on the couch for the rest of the night. Thinking of all you guys!

~Erika

 

[Tinker'n'Fun]

 

[tiggspring]

Erika

Sorry your in pain this weekend.Sound like you ave been crazy busy. Glad your kitty is holing his own.

I got my first bag packed...rested all day friday and saturday ate leftovers and really did nothing.oldest DD was at a friends house which calmed things down for the other two Got to my clothset today so that I could find all the suitcases.lost another lb so I'm within 5 lbs of my weight last year!! So all is good just can't shake the stress yet.

Tink glad to hear you had good weekend. Hope you can pace yourself so you have a great time at Disney.

Sending pain free vibes and pixie dust to all!

 

[Tinker'n'Fun]

 

[tiggspring]

Today is suppose to be me my first wash/pack day. Needless to say, I am not doing that. This week has been so hard on me. DS14 is breaking me down emotionally. I feel like a failure right now. I always thought having my DD17 would be the hard one, worrying about pregnancies/boys. She was soo easy. No problems at all from her except normal PMS and attitude. I made it through with her. But my son, is killing me here. Seriously, even DH who never ever raises his voice, lunged at him twice last night (just for the fear factor, we don't hit). I don't get teenage boys at all. He is so moody and miserable (unless he gets his way). God give me the strength to let him live until we leave on Saturday!!

Wish me luck. I am going to chill today and start the packing tomorrow. At least I am still a few days out. Thanks, for listening even if you passed through my post, Diane.

Tink I'm so sorry!!

Sounds like this Disney trip is just what you need to break the tension and the vicious cycle our kids sometimes put us in. Things will probably be much better when you get back.

My oldest has been very counfrountational the past few weeks and I know how much that drains you. My professional experience with boys this age is they need that level of bravado from a parent to get them to back down when they are angry. Most of the time they are just trying to prove to themselves they are ready to leave the nest and be a man which means DH will be a big target. Your DD probably was worse for you than for DH (mine is) DH and I joke its natures way of getting us to let them grow up and go away because they make you want to say dont let the door hit you in the butt on the way out!

Sending lots of Pixie dust your way!

 

[Fantasyland Mom]

I did not know this board existed! I was just scanning through and said, "HEY, THAT'S ME!"

Anyway, I guess I'll jump in (very late, it appears!) and tell you about myself.
I was diagnosed with fibro 2 years ago. I'm 27 years old now. I have two little girls and a little boy on the way. Because I have been either pregnant or nursing the whole time, I haven't been able to take much of anything. Last summer I went on Cymbalta, and it didn't relieve symptoms; it made me feel really strange instead...kind of like an out-of-body experience...and I could never sleep at night on it. After a couple of months, they took me off of it and prescribed Lyrica. Went to have it filled only to find out that it was going to be $146 a month, and that's with insurance! We are a one-income family (I am a stay-at-home mom while my DH works), and we could not afford that. So I started toughing it out once again.

We decided to go ahead and have a baby so that I can get on something that might work in the future. We knew we weren't done having children, but we both want me to get some relief, so we took the "sooner rather than later" approach to the pregnancy. Oddly enough, pregnancy is just about the best thing for my fibro!!! The relaxin hormone that the body naturally produces during pregnancy really helps my muscles, which are usually tightly knotted in my shoulders, upper back, and neck. The only downside is that my lower back issues are worsened.

My main problems are the muscle knotting mentioned above, along with joint issues (esp. in hips, elbows, and hands) that worsen with cold/rainy weather, and horrible headaches. I can tell someone two days in advance if it's going to rain!

It's hard to find people who understand what I'm talking about, so I'm so glad I stumbled on this board!

 

[tiggspring]

I did not know this board existed! I was just scanning through and said, "HEY, THAT'S ME!"

Anyway, I guess I'll jump in (very late, it appears!) and tell you about myself.
I was diagnosed with fibro 2 years ago. I'm 27 years old now. I have two little girls and a little boy on the way. Because I have been either pregnant or nursing the whole time, I haven't been able to take much of anything. Last summer I went on Cymbalta, and it didn't relieve symptoms; it made me feel really strange instead...kind of like an out-of-body experience...and I could never sleep at night on it. After a couple of months, they took me off of it and prescribed Lyrica. Went to have it filled only to find out that it was going to be $146 a month, and that's with insurance! We are a one-income family (I am a stay-at-home mom while my DH works), and we could not afford that. So I started toughing it out once again.

We decided to go ahead and have a baby so that I can get on something that might work in the future. We knew we weren't done having children, but we both want me to get some relief, so we took the "sooner rather than later" approach to the pregnancy. Oddly enough, pregnancy is just about the best thing for my fibro!!! The relaxin hormone that the body naturally produces during pregnancy really helps my muscles, which are usually tightly knotted in my shoulders, upper back, and neck. The only downside is that my lower back issues are worsened.

My main problems are the muscle knotting mentioned above, along with joint issues (esp. in hips, elbows, and hands) that worsen with cold/rainy weather, and horrible headaches. I can tell someone two days in advance if it's going to rain!

It's hard to find people who understand what I'm talking about, so I'm so glad I stumbled on this board!

Welcome Fantasyland!!

I know what you mean about pregnancy. It is the only thing that helped my Fibro. Dr.s joked I should stay pregnant of course they didn't have to deal with them after they learned the word no

If you go back and read through this thread you will find lots of different ways we have been dealing with this crazy disease. You wont find a more supportive and positive group of folks. Everyone here is great. Its a no Flame zone

Brighteys still sending good vibes to you up in Canada

 

[MomToAp1699]

I have tried several times to make it through all the posts on this board but just can't seem to do it. So I am going to say Hello. My name is Valerie. I was officially diagnosed with Fibromyalgia in December, while applying for disability based on other health issues. The doctor who diagnosed my told me in the office that she agreed with my conclusions and felt based on my symptoms, family history and medical history, that I do in fact have Fibromyalgia. She then turned around and wrote on the evaluation she gave to the state that she felt there was nothing at all wrong with me, denied any previous diagnoses that I had and that she felt I could do 8-12 hrs of standing shift work in any weather element with lifting, crawling, squatting and carrying of boxes of up to 100 lbs.. Come on.. REALLY.. most days I am lucky if I can carry the 5lb cat without something hurting..
Please tell me I am not crazy.. other people hurt this much too!

 

[tiggspring]

I have tried several times to make it through all the posts on this board but just can't seem to do it. So I am going to say Hello. My name is Valerie. I was officially diagnosed with Fibromyalgia in December, while applying for disability based on other health issues. The doctor who diagnosed my told me in the office that she agreed with my conclusions and felt based on my symptoms, family history and medical history, that I do in fact have Fibromyalgia. She then turned around and wrote on the evaluation she gave to the state that she felt there was nothing at all wrong with me, denied any previous diagnoses that I had and that she felt I could do 8-12 hrs of standing shift work in any weather element with lifting, crawling, squatting and carrying of boxes of up to 100 lbs.. Come on.. REALLY.. most days I am lucky if I can carry the 5lb cat without something hurting..
Please tell me I am not crazy.. other people hurt this much too!

Welcome Momtoap

No you are not crazy as you will soon find out there are alot of us! They say over a million. I'm so sorry about your Dr that is terrible! I had alot of trouble getting disability 15 yrs ago but that was because the cdc didnt recognize it as a disease yet. I had all 13 dr including the SSI dr state I was unfit to work yet I was still denied. It finally took my congressman Barney Frank calling the SSI court judge to get me on the calendar or my two year wait would have been nearly 4. You need to find a new DR who isnt afraid of the paperwork SSI generates. I would ask a disability attorney who they recomend or contact your local Fibro/ Chronic fatigue group for a referral. This DR is bad for you. Lots of Drs dont like to get involved because it takes too much of their time and they dont get paid

You will find alot of support on this board!

 

[MomToAp1699]

Welcome Momtoap

You need to find a new DR who isnt afraid of the paperwork SSI generates. I would ask a disability attorney who they recomend or contact your local Fibro/ Chronic fatigue group for a referral. This DR is bad for you. Lots of Drs dont like to get involved because it takes too much of their time and they dont get paid

You will find alot of support on this board!

Thank You. I thimk my personal dr would be helpful but since I no longer have personal health insurance I had to go to the dr they recommended. I am looking for a local dr I have been told of who sees patients for free if they are denied Medical Assistance or to see if my reg dr will see me without insurance. Sometimea he does for patients that he has had for a while. Just need a good day becausr I have severe social phobia and axiety and the baf fibro days are bad emotional health days. When one is iff they all are. It would help tp have a firm diagnosis on what I alreay know the mental health issue is but its vety hard to find a dr willing to evaluate and diagnose an adult with an Autism Spectrum Disorder.

 

[Tinker'n'Fun]

 

[Tinker'n'Fun]